natural girls
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My Patty, where have you been? Get thee over to the iodine/thyroid thread where we have had a long and informative discussion on iodoral. We believe it is a very important part of our health and prevention. Join us!
Great link Rosemary! As usual!
Baywatcher-do you have any links for those two doctors?
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Virve-
The links are:
Just so no one is turned off, please note that there are items on the sites regarding animal cruelty also.
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I am definitely interested in your site as well, Vivre! Keep us posted!
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Baywatcher,
"The China Study" is truly a wake up call. I would highly recommend to anyone who is interested in learning about the link between nutrition and disease. There are also some great books out there that talk about fighting cancer with B17 (laetrile). "World Without Cancer" by G. Edward Griffin, "Cancer - Why we're still dying to know the truth" by Phillip Day - the list goes on and on. Anyone who says that these things are not "proven" have not done their homework. There is so much proof out there and so much success. Thousands of people have been helped by nutrition and natural remedies. Look at all the interest just on this thread alone!
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With all due respect, The China Study by Campbell has been taken apart, point by point, and is full of inaccuracies and deliberate misrepresentations of data.
Please see: http://www.cholesterol-and-health.com/China-Study.html
If someone wants to be a vegetarian and eat a plant-based diet, that's their choice. But The China Study is not a source of accurate information.
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Anomdenet,
Point taken. I think with any research book or paper, medical study, or any other published article there will be controversy surrounding it. You can always find 100 ways to dispute a topic. I'm sure there are those who would dispute what Chris Masterson has to say as well. When we do our own research for our own health, we have to go with what feels right. What more can we do? You can drive yourself insane with all of the conflicting data out there, especially when it comes to cancer.
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Hi, I read your post about having your cancer tested in Greece. I don't have money for anything like that. Wish I did because I don't think the docs in this country know much about fighting/preventing cancer. I have ILC 4 cm 1/19 nodes no metas. Which chemo drugs did they use? What other supplements are you using to fight it from recurring? I saw an oncologist and knew if I went with her it would be a death sentence. I really don't want to do chemo-I feel it would lower my body's ability to fight off the cancer. I also don't want any long term SE. I need some actual studies so, I can compare numbers. I need to find statistics on the actual benefits chemo would have on my type of BC. Do you have any reports? Could you please share with me what you can? Anybody???
Thanks, Cindy
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Cindy
Check out the block center in IL. They might be able to direct you to someone in your area. I know Dr. Block does lots of seminars around the country. http://www.blockmd.com/
Are you following our idodine thread? If not, check it out and consider taking iodoral. You can get all the info about it at breastcancerchoices.org
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Hi Cindy,
A couple of more good resources might be: http://cancerdecisions.com/ - this site is run by Ralph Moss who used to be a science writer and assistant director of public affairs at Memorial Sloan-Kettering Cancer Center in NYC until he was let go for speaking out about alternative treatment success with laetrile; and http://www.aicr.org/ which is a site run by the American Institute for Cancer Research - an organization that does research based on the link between nutrition and cancer. Hope this helps!
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I went to the http://cancerdecisions.com/ website and they wanted $297.00 to view the whole report. WHy is everything all about the money!!!!!!!!!
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I know, sorry. I should have mentioned that many of the reports are for purchase. But there is some free stuff on there to. And there is a newsletter that you can subscribe to
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vivre-I 'm sure I will be using iodine therapy.I'm just not sure how much. I read that the amounts that it was based on is incorrect because the seaweed it was derived from was wet,not dryweight. I need to resaerch this some more...
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Hi, ladies. I started taking Femara 2 weeks ago, starting with half tabs and ramping up to full tabs and am now dealing with almost constant nausea, starting to get hip pain, headaches and swelling in my hands. It's only been 2 weeks and I know this is my body telling me no. Considering the severe reaction I had to the 2 chemo treatments I had (allergic and secondary se's), I was really nervous about starting an AI. I'm 10 years post menopausal, having my remaining ovary out in 1997 due to a recurrance of endometriosis (estrogen problems my whole adult life!). My onc kind of scared me into trying Femara, stating that since I stopped chemo, I needed to do this. I didn't voice it (I must have been too stunned), but I was told the chemo was strictly to be super-agressive and preventative, not necessary. My onco score was intermediate, my tumor was clean margins, no nodes involved and I haven't had ovaries since 1997 - my tumor was 97% ER / PR + and HER2-. I did rads with no problem, but that's because I wasn't putting anything into my body medicine-wise. I don't know where to find a naturopath in my area, but I'm thinking that's what I need to do and look at other options, because I just don't see myself making it for 5 years after feeling like crap for only 2 weeks. Input from the very well educated ladies here is defintely needed!
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Rosemary 44, thanks for that link, interesting studies on that site.
I just made a new friend at work who also went through BC over 5 years ago and is on arimidex and what this poor girl has been through just upsets me so much. They really need to come up with something better than taking our hormones away from us!
This woman did have a more advanced cancer, I think Stage 3, along with some + nodes. So not only did she have double masefctomy, full Ax node dissectn, and chemo., but also oophorectomy, which she really didn't want to do, but was told it was necessary to stay alive, and has been on Arimidex for over 5 years. She's had lymphedema, struggles constantly with bone pain, struggles to keep her cholesterol down, and tells me sex life has been killed, because there is no libido, and vagina is dry and painful. She said she briefly tried some estrogen vaginal products which were helping but then her Onc decided that it was too dangerous and told her to stop using it.
She's also been told to stay away from Vit C because it makes cells grow. I never heard this before, that Vit C is bad for cancer patients. I thought it was supposed to be a good supplement. Her doctors are at Sloan Kettering in NYC. I started to tell her about some of the Natural Alternatives that i've heard about, but she said "I listen to my doctors because they told me I might not make it to the 5 year mark. Maybe the more advanced cancers are a whole different ballgame, but I feel horrible that not only does a woman have to lose her breasts, but also everything else that is related to her sexuality because of breast cancer.
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Rose, I feel so bad for your friend. It sounds like her onc is a total dunce. There was one study that showed vit c might have lung cancer cells to grow in a smoker, but who knows? Could it be that the guy smoked????? So it seems this onc is basing his care on this one study, which was inconclusive. I am praying the day will come when women will sue the pants off of AstraZeneca for foisting arimidex on us. Whatever happened to "first do no harm"?
Chelev-I remember all too well how I felt when the doctors scared me into taking arimidex. So many sleepless nights, and my anger was pure rage. I just began to read read read until I learned all I could about these drugs, and the alternatives. Educate yourself on all the possibilites and then you will be able to make a decision that brings you peace of mind. You are not alone. You will find your way. Keep looking.
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Makingway- All I can say is you really need to read Dr. Brownstein's book "Iodine, why you need it and why you can't live without it". It really explains everything and is so well researched. It took me a long time to be convinced about the link to iodine and bc, but I have no doubts anymore. You can take the iodine loading test at breastcancerchoices.org really cheap. I just wish I had taken this more seriously a lot sooner, but I am still learning something new everyday too.
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Chelev,
I'm sorry to hear your bad reaction. We hear this all the time-- about the pain, depression and aging symptoms. It doesn't get any better with Femara. One woman tried taking it every other day. But she is still dragging around, and talks about suicide. She was a bright and spirited artist who has become hunched over and aged.
Some of us have made decisions from finding out there is not enough evidence to recommend these toxic, spirit-killing drugs. Others don't care about the evidence because they intuitively know they are being poisoned and they "want to be alive while they are alive."
The decision about what you want to do doesn't have to be made this week. You'll notice very few of us made decisions quickly. We waited until the facts made sense and our comfort grew. I was hesitant to believe iodine could down-regulate estrogen in the breast and ovaries. But the information is out there in studies. It just takes time to sink in.
Dr. Bernard Eskin, a conservative, respected 70 year-old ob-gyn says iodine is as effective as Tamoxifen or Armidex. But it is illegal for a doctor to recommend against standard of care. You can bet his wife is taking iodine.
Stay with us. You will find peace with your decision.
Anom
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Thanks for the support and information - I am going to find out more about iodine and am working to get an appointment with a nautropath to discuss options. After a horribly painful evening - I swear every single joint and bone hurt as if someone was pushing random buttons on the pain meter. We tried to take a gentle bike ride to loosen up my hips and I was having searing pain both in the hip and knee, and to try to get off the bicycle had me looking like a 90 year old. That made the decision for me right there. After two weeks - TWO WEEKS on half doses and this is how I am feeling? Nope. Not going to do it. I am a very spirited, energetic person who before started taking this was just really starting to get my energy level and strength up - I was doing all of my old activities. This week and some of last week? Nothing. Funny, I didn't take the Femara this morning and surprise, I'm not nauseaous!
Vivre, I am going to take the iodine test and see what it is all about.
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Chelev,
I am so sorry to hear about your reaction and that you are in so much pain. And, so glad that you are going to research other options. I would encourage you to go see the naturopath (hopefully someone who has worked with cancer patients). When I made the decision to see a naturopath because I didn't feel comfortable with the traditional options, I felt so empowered and at peace. My hope for you is the same. Feel good. Be strong.
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deni63 - thank you! That is exactly what I am looking towards next - first, trying to find one in my area (already looked at my insurance options - nope, nobody within 100 miles of me, but if I have to pay out of pocket, then I will). I already feel at peace with this decision, the same way I felt when I stopped chemo after 2 rounds because of the severe side effects. Sometimes, the body tells you when to stop.
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Rose,
I'm sorry to hear about your new friend going through so much with this disease. Her Dr. telling her to stay away from vitamin C could be said for any supplemented vitamin out there. Tumors need vitamins just as healthy cells do. To pick one vitamin, like C, and say it causes tumors to grow leaves out a lot of the others that also causes tumors to grow and be nourished.
Actually, there is research out there saying smokers should be taking 1000 mgs. of C daily to ward off lung cancer. And stay away from vitamin E. Of course that's a flawed study because they used heavy smokers. Who else would they use in the study??? Please, it's hard to read some of that stuff out there.
So maybe a Dr.'s advice should be: Don't take any supplemented vitamins till we know your tumor free. Once your tumor free, go for it. Get those healthy cells built up to crowd out a tumor that wants to grow. It's just like weeds. Keep a healthy lawn and weeds can't find a place to start and they get choked off from spreading.
I think I just read the most brilliant piece of good advice here on these boards ever. Test the tumor to see what kills it instead of giving a host of different chemos to the person to see what works to kill their tumor. Good grief why isn't that normal protocol? They take the tumor out anyway, so test it. I realize some are too big and they first have to reduce the size of it, but don't they have biopsies taken? And they know what supplements will help, I'm besides myself here. It's the damn easy button.
Danette, how did you find out about a place doing that?
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Test the tumor! Gee what a concept. They have showed that tumors are killed when iodine is put on them. So why isn't iodine a chemo "drug"? Hmmm could it be that iodine is cheap and natural and is not patentable? This just really gets my dander up!!!!!!
I swear Deni, sometimes I think your statements are coming from my head. I hope people do not start to think I am a multiple personality here.
Chelev-if you cannot find a naturapath, let me know. Mine will do phone consults and he is very reasonably priced.
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Vivre, thank you! Just heard from my onc and he told me to stop taking the Femara, which by coincidence, I did this morning. I am to follow up with him next week some time and let him know if the symptoms subside. I have found a holistic / homeopath nearby that I may schedule a consult with - I need to check their prices first, as of course, not covered under insurance. That part is really a crock, isn't it??? He does do full testing and from their website, seems to know what he is talking about. I will let you know if I may need to talk to your doctor. I feel much more at peace already.
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Vivre, That's because you share common sense...a trait that seems to be sorely lacking in so much of cancer care.
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"Test the tumor! Gee what a concept. They have showed that tumors are killed when iodine is put on them. So why isn't iodine a chemo "drug"?
Yeah, right? I'm sitting here dumbfounded that chemo testing it isn't being done with every excision. Besides being better for the patient, wouldn't it be more cost effective?
Vivre, About the iodine, some people might have a problem with taking iodine. Kelp is loaded with it, and they sell it in pill form. Kelp coming from the ocean has its problems with absorbing pollutants, so the pills have to be bought from a good supplier who will show you their testing of the batch their selling. I'm trying to remember the name of the poison that can be found in kelp. They used it to knock off Napoleon. Hmmm, it will come to me.
Arsenic! I remember.
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so much info here! Don't post but read often. Just curious if anyone is stage 4 and how (if) that has influenced your decisions on treatment options.
deni- I am in Morris County, my dh grew up in Paramus. Almost neighbors
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My naturopath (actually, I just found out that he is an MD who practices natural medicine - there are so many variations on what docs are called apparently a lot has to do with licensing in the state you are in), treats ALL stages of cancer. It never hurts to get as much information as possible. Even if you go talk to a good doctor who practices natural medicine and has treated many cancer patients - it may help you get some clarity on how to proceed. At the center I go to, the doctors will tell you if they think you need to get some traditional treatment. They take the best course available, whatever that might be. Since you are in Morris County, you are close to me. Here is the website of the center that I go to www.schachtercenter.com. You may want to check it out. At least if you cover all of the bases, you can feel comfortable with whatever path you choose to proceed.
Vivre - good to know we are on the same wavelength! It makes all of the support we get from one another all the more meaningful! I am so happy I found this site!
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Deni, I notiiced that you go to Dr. Schachter! He was 1 of the speakers at a conference I went to a few weeks ago here on Long Island. It was all about Natural, Complementary, and Alternative therapies in the treatment of breast cancer. He spoke mainly about the role of Nutrition in the prevention and treatment of BC, emphasizing that this is THE most important component of the treatment. He also discussed other things, such as Mammos vs. Thermography, what Radiation does and doesn't do for youi, and important supplements to take.
I took notes because it was a lot of info and he went into detail about all the different stages of tumor development and which foods would help in each stage.
]I see that you live in Bergen County. That is where my sister lives, in Paramus. Do you travel to NY to see the doctor or does he also have an office in NJ?
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Hi vivre,
My name is Karen and I am posting all the way from New Zealand! Its so great to find a thread like this because I have been muddling my way through the internet looking for alternatives to Tamoxifen and Arimidex. I was diagnosed with BC in December 2008, had a mastectomy in Jan 2009 and have just completed 6 cycles of chemo ( which I handled really well). My oncologist now wants me to start taking hormone therapy because my tumour was 90% ER/PR+. I have read about all the side effects and they scare the hell out of me! My gut feeling says there must be some way to reduce my estrogen naturally! Anyway, I have done a fair bit of research on DIM supplements and it looks like they might do the trick. You mentioned that you also did a lot of research so I'm wondering what you came up with instead of Arimidex etc. Has anyone out there tried DIM supplements and if so are thery working?
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HiKiwiKari! Yes, we have explored many alternatives, including DIM. We have a whole thread on it here. I started out using I3C as an alternative to Arimidex which was recommended by my chiro whom I went to detox after rads. I had already seen a lot of positive resultes with diet and exercise. She did hormone tests for me, and helped me with supplements and doing a liver detox. Although my results with I3C were promising my hormone ratio was not what I wanted, so I have since switched to myomine, which is supposed to metabolize better in menopausal women like me. Some of the younger women here have seen good results with DIM. We have also looked at the links between iodine deficiency, thyroid issues and breast cancer, and we have a great thread here that discusses all of that. You will find lots of links to research on those threads, and books and weblinks. All I can say is what I keep telling everyone. Educate yourself. Read everything you can on prevention. And do not feel coerced into a protocol that you feel is wrong for you. I hope to get my site going in a few more weeks so that all of the links will be easy to find and everyone can talk with some pros that are going to blog for me. Until then, keep reading! And God bless you all.
Okay, I just hit some button and the type got big. What the heck did I do? These macros drive me nuts!
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