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  • vivre
    vivre Member Posts: 881
    edited July 2009

    I use organic rice drink from Trader Joe's. It actually tastes pretty good. Once in a while I do eat imported cheese. I know the French are really strict about the hormones for their animals. I also get some hormone free cheese from our local organic market. While I am not vegetarian, I try to be careful when I eat meat. Do not eat any cheap ground beef, which often comes from old dairy cows.  As far as eggs go, I asked a grocer one time, and they said hens are not allowed to be treated with hormones, but who knows. I do believe we need to eat eggs, so I eat a few each week, and make sure I buy the free range, organic veggie fed ones.

    Dawnn-please look into all the newer research on hormone balancing. Removing the ovaries is becoming less recommended. You are right, we do need hormones. Getting rid of everything, is not the solution.

    Deanna, interesting angle about the pregnant cows. Never thought of that one. I found the myomine OTC from my compounding pharmacist.

    Small world, please do not make a big deal if we get off topic once in awhile. We are just being friendly. And don't worry, my sports discussion is very limited anyway. I cannot name any ML player on any baseball team, unless they played before 1969. LOL That is the year I discovered guys my age at the beach. LOL Now THAT is a topic I could go on and on about. Don't worry. I won't!

  • rgiuff
    rgiuff Member Posts: 339
    edited July 2009

    Dawnn, glad you are questioning this surgery which I think is so barbaric for women with early stage, small tumors to have to go through.  Yes, we do need our other hormones, even after menopause, the ovaries do beneficial things for us which even doctors don't understand completely.  I think Oncs don't look at the whole person sometimes, just at the cancer. 

  • smallworld123
    smallworld123 Member Posts: 33
    edited July 2009

    Vivre, No problem, I just was looking for more information, so it was about the Mets and ML players, go ahead make my day" 1969 Boys, yes that was fun. Laughing is good for our soul, and health.

  • MBROWNING
    MBROWNING Member Posts: 34
    edited July 2009

    For any of you out there that are ER+/PR+, can you tell me what you've done treatment-wise, specifically with regards to Tamoxifen.  I've put it off to-date (dx'd 2/16, lumpectomy 4/30, no radiation so far, no chemo (don't need per oncoDX).  Today, oncologist gave me RX for Tamoxifen and I told her I may not fill it for awhile (possibly never).  I've been very afraid of traditional treatment (I'm doing the Budwig Protocol).  But, there are doubts that creep in and I am really nervous about mets.....so, considering at least trying Tamoxifen, still on the radiation fence.

  • dogsaver
    dogsaver Member Posts: 110
    edited July 2009

    I have a holistic oncologist that comes once a week and i get syringe full of vitamin C, B, magnesium, zinc and traumeel. It has helped to build immune system to recover from surgery and whatever else i may endure. I had two surgeries and had no post surgery sickness or fatigue, definately pain in the area where the lymphs were taken. I have always been afraid of chemo and radiation, i see the medical oncologist tomorrow for first visit and then the radiation oncologist on friday to discuss the 5 day brachy. i had two out of 20 nodes positive am ER PR positive, HER2 neg. i am loving the recipes you all have posted and cant wait to try them. I am learning alot especially that CoQ10 and vitamin C, zinc and vitamin D are cancer fighters. thnx for the support

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited July 2009

    Dawn,

    No, I never even thought about making my own almond milk. I do have a bag full or non-pasteurized almonds in my fridge.  Hmmmm.   I'd rather use almond milk because they have the double whammy of being anti-cancer and heart healthy.  Well, that is, until they started pasteurizing them.  Now, as the article that Deanna posted says, they're a dead food. 

    I can't get rice milk that doesn't seem to have some kind of soy listed on the box.  I'm no where close to a Whole Foods. 

    MBrowning,

    I had the rads, and took arimidex for 5 years.  I didn't need the chemo.  Since I trusted nothing, I decided to research foods and vitamins.  I'm letting my guard down lately, I ate a BBQ sandwich today...the dreaded meat.  It really didn't taste as good as I remembered. 

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited July 2009

    Dogsaver,

    Whoops about zinc.  There is some connection to zinc and macular degeneration.  I'll have to go look for the research tomorrow, but these connections are usually with vitamins and not the foods that are good sources of zinc. 

  • dogsaver
    dogsaver Member Posts: 110
    edited July 2009

    oh wow rosemary yes i would be interested to know what you find as the zinc was given to me by the holistic oncologist, was added to my IV and also given to me in the zinc picolinate form. i would be interested to hear what you find. I want to do the very best possible! thanks!

  • vivre
    vivre Member Posts: 881
    edited July 2009

    dogsaver, I think you are very lucky to have holistic oncologist. Seems like the best of both worlds to me. I like the idea that your doc seems to building up your immune system. As far as any problems caused by zinc, you probably do not have to worry about it with short term use, which is what you doc will probably be doing. Sounds like you are in better hands than I was. I am envious.

    Mbrowning-I opted for alternatives instead of tamox. as well as diet and exercise, which really helps the most with estrogen balance. I use myomine, which does the exact same thing as tamox, with no side effects. I also started iodine recently after my tests show I was really low. I really think it is important to have tests run before you start anything so you know what is lacking. Test your Vit D, iodine, and do a complete hormone workup. If your onc will not do them, find a doctor who will.

  • luckofthedraw
    luckofthedraw Member Posts: 15
    edited July 2009

    Dogsaver, I'd never heard of Traumeel, so looked it up.  It sounds great, except that it has mercury in it.  Apparently mercury is an active ingredient in pill, drop, and gel form.  Does the form that your holistic oncologist gives you have mercury in it too?  That'd concern me more than zinc. 

    Zinc is an essential mineral for body function.  The problem is that many/most zinc supplements come in a form that is too big for your body to assimilate.  Hopefully your onc knows this, and uses an angstrom particle size zinc. 

  • smallworld123
    smallworld123 Member Posts: 33
    edited July 2009

    Girls, you need to read about Codex Alimentarius. Not a word has been spoken about it. It takes away your right to eat healthy food and use of supplements, we are being kept in the dark. I found all this infor on  Codex threatens health of billions, by Barbara Minton  .Go to http://www.naturalnews.com

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited July 2009

    Dogsaver,

    I'm wrong.  Zinc is part of a vitamin regimen they give to stop macular degeneration from getting worse.  Sorry, I knew I read something about zinc and macular degeneration.  I should look before I leap.

  • vivre
    vivre Member Posts: 881
    edited July 2009

    smallworld-You are so right about CODEX. The drug companies have spent over 40 million so far, this year, lobbying congress to pass this government controlled health care. Why is this? It is because they want total control of our health care. Big Pharma already funds most of the FDA and contributes millions to Congress so they can keep their monopolies on our treatment. If the GOV gets control of our health care, we will no longer have the choices we do now to go alternative. There will be none. Say goodbye to compounding pharmacies, supplements, and internet sales of things like iodine. They will all be put out of business because they will not meet government standards. Doctors will not be allowed to prescibe alternatives because they are not the standard of care, determined by Big Pharma. Not only will FREE health care be a lot more expensive, we will lose our FREE choice to determine our own protocol. There is so much in this bill, that no one has read, that will limit our freedom to  make our own health choices. I pray to God it will be defeated. We need reform, we do not need government control. This bill is not changing anything, except who decides what will happen. It is very scary.

  • seaotter
    seaotter Member Posts: 642
    edited July 2009

    Deanna, thanks for the info on water. I read that article which I found very scaryYell. With the plastic water containers you have to be very careful about BPA's. I did call glaceau (they have smart water and the vitamin water) and asked about BPA's in the plastic they use. He said it contained no BPA's. I guess I will invest in a purifier for our house. Trying to be healthy is going to put us in the poor house!!!!!

    Patty

  • chelev
    chelev Member Posts: 417
    edited July 2009

    Meg, just curious - what made you look at changing med oncs?  I'm seriously thinking of doing so as well - there is a female med onc who's about an hour away, but everyone says she is really good.

  • anondenet
    anondenet Member Posts: 261
    edited July 2009

    Ivory,

    Your new onc really seems on the ball. I read somewhere that more women die from osteoporosis-related falls than from breast cancer. So she is sparing you aggravating your osteo.

    My male neighbor died of an osteoporosis-related fall from taking prostate cancer medicine which blocked his hormones. He broke his leg, went into shock and died. And he didn't "look" like he had osteoporosis--whatever that means--he was straight-postured and athletic.

    I don't know why we don't hear more about the seriousness of osteoporosis issues. On the good side, the progesterone should help the osteo.

    Good luck with your new doc!

  • danigirlx1
    danigirlx1 Member Posts: 14
    edited July 2009

    Rosemary,

     Sorry so slow on responding.  I went to Natural Horizons in Fairfax, VA because I knew they offered the IPT chemo. I was looking for.  They informed me about the blood test for my cancer cells.  It was sent to a lab in Greece.  One onc. I spoke with said that research was being done in this country but "they" did not all agree that the cells are successfully isolated.  I was convinced of the approach and pleased to use 3 drugs shown to be effective on my cells.

    someone commented on protein.  I would like to say the Naturopath I met with last week said my urine showed I was low in protein which I was not surprised to hear.  She said I believe, I would better utilize potassium if I had more protein in my diet.  I think that was how she said it.  I was reminded that I could always do better with beans!!!  :)

    One note on the iodine.  I met with two diff. Naturopaths last week to decide with whom  I would work.  They H very differently so I am torn.  However, one told me that my pH had to be in a certain range to absorb the iodine sufficiently.  so she had me take calcium and then 30 min. later test my pH with a small strip before I took the iodine otherwise it would not be sufficiently assimilated.  Nice to know :)  She also did the Iraxxxx (sp?) where they look at your iris and see what issues you have.  Does anyone want to weigh in on that?  The funny thing was, she stopped for a second and said this is not relevant but have you ever had an issue with your coxis and I laughed and said, as a matter of fact I separated it in gymnastics, falling many years ago.  :)

    Danette 

  • Springtime
    Springtime Member Posts: 3,372
    edited July 2009

    Danette, how did you find the neutropaths in your area?

    All, :  I've been having foot cramps the last 2 nights. Any thoughts on this besides eat more bananas? I do the iodine, and a slew of other supplements, which of course, makes me wonder if something I am taking is causing this... 

    Spring.

  • seaotter
    seaotter Member Posts: 642
    edited July 2009

    Spring, I wonder if it is the tam causeing your foot cramps??? Is that a se?

    Patty

  • Susers
    Susers Member Posts: 22
    edited July 2009

    Hello Eveyone - It's been a long time since I have been on here!

    Spring, when I was on the tamoxifen I was getting foot cramps in the bottom of my foot and toes. It was so bad one time that I had to pull over to the side of the road because everytime I pressed my food down to push the gas pedal it would cramp back up again. They were so painful and happend all the time for no reason.

    Now that I have been off the tamoxifen since April, I no longer have them.

  • AllieM22
    AllieM22 Member Posts: 188
    edited July 2009

    I think someone also said tonic water helps...

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited July 2009

    Danette,

    I think it is so wonderful that you found such a place to do that kind of testing.  The time has come for that type of precise therapy.  Good for you.  I wish others would know about these kinds of options.

    There is so much different kinds of chatter about protein.  I was convinced that having enough protein was important after I read research on women living in care homes.  Nothing worked for their bone loss until they added more protein to their diet, suddenly they were having better dexa scans.  It might be it helps women after a certain age, but it tells me getting enough might keep us off bone drugs no matter what our age.

    Spring, potassium and magnesium is suppose to help with leg and foot cramps.  Plus, upping the amount of water you take in each day.  I've used tonic water before when I didn't have my minerals with me.  It worked, but all that sugar that's in soda. 

  • dlb823
    dlb823 Member Posts: 2,701
    edited July 2009

    I have a question.  In the past few days I switched from I3C to DIM.  I have also taken Iodoral now for 2 days.  This morning I woke up feeling noticeably good -- less aching in my hands and feet than I've been having first thing in the a.m., and a real bounce in my step when I did my morning walk, which is when I also noticed that my hands weren't hurting.  I also feel more alert. I wasn't expecting to feel anything from either of those two supplements -- and certainly not within 2 days!  Is it just coincidence, like maybe I just slept better last night for any number of reasons?  Or could one of those have such a marked affect within 48 hrs????    Deanna

  • anondenet
    anondenet Member Posts: 261
    edited July 2009

    Deanna,

    I can vouch for the "alert" thing happening. I got it the morning of my iodine loading test when I took that 50 mg. Several other people have reported the same clear-headed energy jolt. Dr. William Shevin says his patients who get a such an immediate reaction "have been going on iodine fumes for years."

    The good news is you must be a good absorber or you wouldn't feel it so quickly. Some people, (Althea, are you there?) don't absorb well and have to be careful to take the ATP CoFactors.

    Vivre will attest to this, nobody will believe you that iodine is life-changing and important. I had to be convinced and it took a long time for the information to sink in even tho the information came from an impeccable source.

    xox

  • didle20Diane
    didle20Diane Member Posts: 86
    edited July 2009

    Springtime,
    I too have have had cramping in the last few days and yesterday especially.....I had been in my hot garage going through boxes and sweating like crazy and think this is what triggered them.  I downed a bottle of gatorade and then even googled feet cramps and found someone suggest pinching your upper lip with your thumb and forefinger the thought is that it is a pressure point that relaxes muscles....OR maybe it just made me think of the pain in my lip and not my feet.  I got awful feet cramps during my 3 pregnancies but could usually "walk" it off.  Not last night....took me a bit longer but I am convinced it was the heat and major sweating.

    Good luck!

    Diane

  • vivre
    vivre Member Posts: 881
    edited July 2009

    Rosemary, where do you get most of your protein from? I do not eat a lot of meat, but do eat a lot of nuts and eggs. Any other ideas? Oh, and I forgot to mention that the Trader Joe's brand of Organic Rice drink is soy free.

    Deanna-I too think the iodine made a huge difference in my energy levels. It took me a bit longer, and I had headaches and extreme fatigue for a couple of days, detoxing, did the salt thing and I have felt great ever since. I am beginning to think this stuff is a miracle. I hope the study they are doing at bc choices will have such great success that they cannot ignore it any more, and we can tell all our sisters to toss the damn pills!  As for the DIM, I am now on myomine as I said and I will give it a couple more months and see how my hormone tests look before I will make any judgements on it. It did not make me feel any different either way.

    The only thing I have ever had any reaction to was milk thistle, which I took for a while because it is suppose to be a liver detox. But it made me itch like crazy. Went away as soon as I stopped. That is the good thing about trying one thing at a time. You can tell what is having any effect.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited July 2009

    Vivre,

    Beans, lentils, fish, turkey and chicken in that order.  Never pass up any type of bean side dish.  Some are high in antioxidants.  Hummus is good.  Barley and lentil soup, I have a great recipe for that.  Your kitchen will smell like your in the finest of Italian restaurants.

    I use to just buy a whey protein powder (no hormones) but I'm pretty much off beef by-products.  I wish I had a Trader Joe's.  I'm out of my organic almond milk, so either I make my own, or find some near by.  Rice milk would be good too.

  • dlb823
    dlb823 Member Posts: 2,701
    edited July 2009

    anom & vivre ~ Thanks for the info' on the Iodoral.  I just can't believe how great I feel today.  I've been waiting for the afternoon lull to hit, but so far I'm still churning through projects with plenty of energy.  Can't wait to see if this lasts... 

    vivre ~  I wanted to throw out another protein suggestion -- quinoa.  I think it's actually a complete protein.  You already mentioned nuts, but don't forget about natural peanut, almond and cashew butters, and also organic, non-fat plain yogurt (if you're doing any dairy).

    Rosemary ~ I'd love to get your soup recipe sometime.  No rush; it's 110-115+ here these days, so I won't be making soup for awhile!      Deanna

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited August 2009

    Deanna,

    Quinoa is really good, but I can't find anything with it out there.  As I recall we could get different cereals with the exotic grains from the time of the pharoahs, but they stopped carrying them. 

    I found Amy organic soups, and they have barley and lentil, so there went my homemade soups. I just throw in some spices and spinach and soup's on.  They even have low sodium soups, very annoying. 

  • Springtime
    Springtime Member Posts: 3,372
    edited August 2009

    Deanna, I take DIM and iodoral and IC3, and I feel great. I also switched from synthroid for hypothyroid to nature-throid (dessecrated thyroid) and that really helped me too, later in the day. No crashing.

    Diane, I wore socks to bed last night and that helped... or else I am past the cramping, I have no idea.. Thanks for the "squishing your upper lip" bit. I WILL TRY IT!!! heck!! Why not! 

    Vivre, I see you mentioned eggs. How do you, and others here, feel about egg substutes like Egg Beaters? (Lower fat, and no cholesterol). I eat them for protein, so I am not eating too many eggs. I am also not a vegeterian, but am also very careful about meat in general....

    Spring.