Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Arimidex

17374767879118

Comments

  • lakewoman
    lakewoman Member Posts: 221
    edited May 2010

    OKAY regarding asthenia,,,fatigue..I have experienced more lately. I never like to commit to anything but for a month I will try and watch my sugar intake ,,Nothing drastic but just practice a bit more discipline in this regard and see if this helps the fatigue. If each one of us who has this could try something else for a month maybe we would have a plan and can find out if we can help ourselves,,I WILL START TOMORROW !!!!!!!! Now is that not a familiar statement!!!

  • ruthbru
    ruthbru Member Posts: 47,654
    edited May 2010

    How about this, "I will improve my diet. More fruits and veggies, less sugar and processed food, more fish, less red meat." Hmm........tomorrow!

  • lakewoman
    lakewoman Member Posts: 221
    edited May 2010

    Bravo Ruthbru....I had great warmed blueberry pie with ice cream after a full turkey dinner at our redneck restaurant on our lake! Glad I said tomorrow!!!

  • patoo
    patoo Member Posts: 5,243
    edited May 2010

    I'm gonna be watching you both - tomorrow!

  • ruthbru
    ruthbru Member Posts: 47,654
    edited May 2010

    OK lake, you and I will have to report in tomorrow. Yikes!!!!!!

  • d_schnare
    d_schnare Member Posts: 1
    edited May 2010

    My mother is completing her chemo cycle...last one in 3 weeks. She is now having discussions with her doctor about starting hormone therapy. She is up in the air about this next step due to side effects etc...so was hoping to gather some information here that might help us make an informed decision.

     She is post menopausal, was diagnosed with stage II breast cancer, had a radical mastectomy followed by 6 chemo treatments. Her concerns include continuing regular medications for so many years.  Your thoughts on the decision making process, intensity and likelihood of side effects are welcome. 

     Also, how quickly following chemo would she potentially start hormone treatment? 

  • painterly
    painterly Member Posts: 266
    edited May 2010

    Hi D_schnare,

    I was advised to take my hormone treatment (arimidex) within 3 months after chemo had finished. I decided to wait until the last week of that 3 month period so I would know which SE belonged to which medication. (i.e. SE's from chemo and SE's from Arimidex).

  • suzie14
    suzie14 Member Posts: 208
    edited May 2010

    d_schnare, How wonderful that you are advocating for your Mom. I started on A about 2 1/2 months after chemo, but I also needed rads in between.

    It is difficult to say what side effects your mother might have because all of us are different. I myself have a boatload of SE but will continue with the Arimidex as long as I can because if it will stop a recurrence I am all for it. If I would stop taking it and got that recurrence I would kick myself around a country-sized block.

    It is a difficult decision, I know, and  a personal decision.  Weigh the pros and cons, take in the advice her doc gives her and go from there, I guess is all I can offer.

    gentle hugs to you and your Mom.....

  • ruthbru
    ruthbru Member Posts: 47,654
    edited May 2010

    I did chemo, then radiation; the day after I was done with rads, I started Arimidex.

  • Annabella58
    Annabella58 Member Posts: 916
    edited May 2010

    Hi ladies: just reporting in...the pulse rate went way down today to an acceptable 79/80.  It must have been the serevent as my GP suspected it was.  I will get thyroid results back but since I've now been off serevent for 4 days, it must have been that.

    So I will be taking my little white pill tonight.  BTW, as my CMF buddies can tell you, I waited until almost three months to begin taking them.  I had them sitting on the shelf for the longest time.  Finally I just took the plunge and felt.........nothing at all for 6 months.  Then I got sort of stiff in the legs as tho you have been sitting along time but that's mostly it.  I got thinner hair a bit, but that could be from the surgical menopause too.  I do notice some new lines, but hey, I've earned those at 54. 

    Mostly............my MRI and cat scans now for two years show nothing.  And thus, we take the little white pill. 

    I'll take one tonight and if the old bp goes up again, I guess that is it.  You can skip a week even altho they don't like to tell you that one.  It gets built up in your blood to a certain level and skipping it for awhile doesn't really matter.

    Happy mom's day all.

    xoxoxo

  • horsegal13
    horsegal13 Member Posts: 46
    edited May 2010

    I'm on  Arimidex, and all I can say is I'm tired. I sleep so well, even my afternoon naps are a deep sleep. I hope I can get over this tiredness. I keep very busy and active and so far feel OK.

  • painterly
    painterly Member Posts: 266
    edited May 2010

    Hi Sunflowers,

    My objective was to be able to differentiate SE's from one treatment (chemo) to another treatment (Arimidex).   My chemo SE's started about 2 1/2 months after chemo. Suddenly "out of the blue" I became extremely stiff and had trouble getting in and out of the car. I thought it was radiation as I was half way through radiation at the time. So I mentioned it to my Radiologist and she said "No Way is this from radiation as radiation is local only" and she went on to say "What you are experiencing is directly related to chemo and is known as post-chemo-fatigue"  At this point I hadn't started arimidex so I knew it hadn't come from Arimidex so I was able to differentiate between SE's from one treatment to the other treatment. SE's  from Arimidex came 4 months after beginning the drug.

  • Mercedes57
    Mercedes57 Member Posts: 2
    edited May 2010

    Lowrider - You mentioned water and walking are good, I have mets to the spine also and have a lot of back pain, but hard to tell if it is the Arimidex I'm taking (for two months) or mets.  Do you have back pain from your mets? I am not so sure I can walk too much, seems to worsen the pain, but have been thinking about joining a therapy center with a 90 degree pool.  Also you mentioned meds for pain.  I was taking ibupropen daily for months, but stopped because I didn't think it was good to take for so long.  Do you take otc meds? or prescription.  My prescription is codeine based, don't think I want to take much of that either.  I'd appreciate any info you can give...thanks a bunch  Smile

  • pj12
    pj12 Member Posts: 18,108
    edited May 2010

    painterly,

    My experience has been that none of my cancer specialists thought "their" treatment was the cause of any complaint I had. :-)  It was always someone else's treatment causing SEs.

    pam 

  • BonnieK
    BonnieK Member Posts: 271
    edited May 2010

    I started Arimidex one month after finishing chemo, had exchange surgery a month later and started radiation about 3 weeks after exchange.  The SEs from the Arimidex came on very slowly, but now that I've been off it for a few days, my energy level is starting to improve and I'm feeling a little better in general.  Guess I'll enjoy these next 3+ weeks and then see what the SEs will be from the next AI.  --b

  • suzie14
    suzie14 Member Posts: 208
    edited May 2010

    Annie, how did you do with the A and your pulse?

    Bonnie, happy to hear your energy level is improving and you're feeling better.

    Pam, isn't it interesting how docs won't claim the obvious?

  • pj12
    pj12 Member Posts: 18,108
    edited May 2010

    Amen, Suzie!

  • lakewoman
    lakewoman Member Posts: 221
    edited May 2010

    RUTHBRU and PATOO,,,and all!! hahaha no sweets today ..VERY tired at times ..did not get a nap either..did not exercise,,,TOMORROW I will exercise!!!

  • suzie14
    suzie14 Member Posts: 208
    edited May 2010
    Sharlene--congrats!!  But NO NAP????
  • balsie
    balsie Member Posts: 228
    edited May 2010

    watching my refined  sugar has helped with sore legs..... but on Mother's Day I fell into a DQ cake with a wonderful homemade brownie...it was so fabulous but I have to get back on the wagon tomorrow.  Yes I can do it!!! 

    I did arimidex starting on Jan. 1 2010 and I finished my Chemo at the end of October.

    warmly,

    Balsie 

  • claire_in_seattle
    claire_in_seattle Member Posts: 2,793
    edited May 2010

    I started radiation and Arimidex plus had port out two weeks ago.  So far, nothing worse than some swelling from radiation and slight dry mouth.  Port wound is still healing.

    Specific chemo protocol required that I start Arimidex w/i 28 days of last chemo so that is what I did.

    Tired tonight, but assuming from all the cycling I did over the weekend.  Have tons more energy now than even three weeks ago.

    Quaffed first IPA in quite some time with friends yesterday post ride. Ate typical pub fare with, so fish and veggies tonight to put things back in balance.

  • ruthbru
    ruthbru Member Posts: 47,654
    edited May 2010
    lake, I did exercise; and for food I drank a glass of milk, ate a carton of yogart, only meat was a turkey sandwich at noon, and had 4 fruits & veggie servings. I DID eat one cupcake at a retirement party, and a tiny, small Perkins mini-muffin after a meeting. I am hungry and will try not to raid the fridge before I go to bed Tongue out! I wanted to wait to start Arimidex until after radiation to try to keep the SE as sorted out as possible. (Although, as others have said, they can have delayed reactions. SIGH!)
  • ruthbru
    ruthbru Member Posts: 47,654
    edited May 2010
    Here's a happy thought; studies show that 1-2 ounces of at least 70% cocoa dark chocolate lowers blood pressure!! So add that to my food intake but don't count it against me as it was for medicinal purposes only Wink!
  • suzie14
    suzie14 Member Posts: 208
    edited May 2010
    Ruth--were you able to avoid the fridge last night?  Do Junior Mints count as healthful foods?
  • ruthbru
    ruthbru Member Posts: 47,654
    edited May 2010
    barely, I did have a piece of 40 calorie 'Healthy Choice' toast with a glob of peanut butter on it. And I love, LOVE Jr. Mints & Peppermint Patties (which actually have less fat & calories than most candy bars). If dark chocolate is good for you, and peppermint is a herb...........and we stretch far enough.........................yeah, it's a healthful food Wink!
  • Annabella58
    Annabella58 Member Posts: 916
    edited May 2010

    Hi ladies, I am cracking up reading these.  I had an almond joy joy joy yesterday.  If it makes me this happy, to me it's health food :).

    The pulse rate is still up there....a good friend I met on these boards told me it took her at least two weeks after getting off serevent for her pulse rate to return to normal.  So for now, I am waiting two weeks, checking the heart maybe if it's still high, then I will go for one med at a time.  If I try to go off too many, I won't know which it is.

    My GP felt v strongly that it is serevent caused, but I guess that stuff takes awhile to leave your body?

    love to all

    annie

  • sobx
    sobx Member Posts: 108
    edited May 2010

    Jr mints - oh yeah. Sounds healthy to me. And the Almond Joy  - it has the dark chocolate, coconut and almonds. All good for you!

    I started the "A" 2 months after chemo. I had rads 3 months after chemo. I have the aches and pains, sleep good and exercise, mostly walk every day. At this time I have lost my appetite and will find out the results of blood work on Thursday. I sit down to eat and get half way through and I'm not hungry any more. So not like me.  Hugs to all

  • suzie14
    suzie14 Member Posts: 208
    edited May 2010

    sobx--the same thing is happening to me...I think I am hungry,start to eat a meal and suddenly I'm full. I experienced this before...pre-cancer dx...but also had weight loss which is not happening now (too many Jr Mints, eh?).

    Hope your lab work comes out "within normal limits" .

    Annie-- hope that pulse rate starts to go down soon

  • ruthbru
    ruthbru Member Posts: 47,654
    edited May 2010
    Are you suppose to quit eating just because you feel full??? Surprised
  • suzie14
    suzie14 Member Posts: 208
    edited May 2010
    Ruth, I do, otherwise I just get too uncomfortable.  Do you????