~* The Waiting Room *~
Comments
-
Lyn, welcome, Weekends can be hard when you are waiting to hear "soon". I have been holding on to my husband all weekend as we wait for a call Monday or Tuesday giving me a biopsy appointment at Hopkins.
I am praying that this abnormal mammo will actually be normal when compared with prior films. If not, you will find the strength and courage to deal with the results. Meanwhile hold on to the family of yours. They can support you during this time of waiting.
Bette
0 -
Just stopped in to give my support to all of you who are waiting. You're in my thoughts and prayers. I'm hoping everyone receives benign results, but if you don't I'm hoping that you will continue to have the courage and strength you've shown that has gotten you this far.
Best wishes to all.
Kathy0 -
Well there are a few of us left in the waiting room, tomorrow is biopsy #1, I have made up my mind that when they go to do the biopsy they won't see anything this time on the MRI! and then the same will happen on Thursday too! Thank goodness for Valium and friends like all of you or I don't know how I would have made it over the last 2 weeks. Keep your fingers crossed for me (:
0 -
Hi Bettelou
Why did they take you off Femara? Sorry I probably haven't looked back far enough. I've had a dry cough for a week or so now and slight chest pain but I'm not sure if the chest pain is caused more because of the stress/strain from coughing. I try not to link everything to the Big C but it's hard not to. I have decided to see if this cough goes away by itself in the next week or so before I go back for my next Herceptin. Why does this have to be this way? I'm sure we all feel the same, and even when we get good results we worry that maybe there's been a mistake. I'm sure I've said before somewhere here that last year my mammogram showed clear but luckily my doc had requested ultrasound too, that showed a smaller questionable lump which they were only going to biopsy as the bigger one didn't look suspicious - turned out both were cancerous - one was over 5 cm, the other smaller and it had spread to my lymph nodes - this makes me suspicious of all results. I have never had a PET scan, CT scan etc. I did have a bone scan before I started chemo which showed clear but that was it for before, during and after. Since finishing chemo I have had one blood test and that was requested by my chemo nurse, not the onc. I do get regular MUGA scans because of the Herceptin but that's about it. I wonder if this will ever get easier, I guess I'm feeling like they won't check anything unless I present symptoms - do you ladies ever feel the same way? I don't like to go running to the docs with every little ache or pain - especially as most symptons can be attributed to many other things as well as cancer. To me this is almost the worse part of having this disease, the WAITING GAME!
My thoughts and prayers to all who continue to wait here, and congrats to all who receive the good news they have been waiting for.
Gaynor
0 -
Gaynor, I was taken off Femara for chest pain, cough, dizziness, carpal tunnel and weight gain. It just didn't agree with me, and my lung lesion grew while I was on it. Right now I am in a holding pattern waiting for a phone call about my biopsy appointment. Nothing can happen with treatment until that is done and the pathology completed. We are supposed to hear today or tomorrow, but so far the phone is silent.
Bette
0 -
HI all,
My mom was recently diagnosed with idc and had a ct and bone scan. the ct scan showed a non specific spot on lung to be followed up on in 1 year. The bone scan said that there was a non specific spot on the scapula to be followed up on in 6 to 8 months. They said overall she was negative for cancer. My mom and i dont know wether or not to be happy or sad, so right now we are just scared. What do you all make of these results?
0 -
Chris867, I would ask to be followed up sooner than that. I had a spot on my lung on CT scans in May and June, which turned up positive on a PET scan later in June. I am now waiting for a biopsy of the lung to see if the BC has spread or if it is primary lung cancer. My situation is different, though, because I have inflammatory breast cancer and have already been though chemo, surgery and radiation. Not that your mom's spot is cancer, but if it were me, I'd want to check on it sooner than a year to make sure it stays the same.
To all who have been waiting with me, I am now SCHEDULED for a biopsy at Hopkins on Wednesday, July 22. Now praying for a safe procedure and benign results.
Bette
0 -
Dear All and Bette,
thank you so much for your encouragement. I called the doc today again, no return call till I was at dinner, then I missed it.... Then later, I found what feels like a lump in the same breast I had surgery on. I will call back tomorrow first thing... I think I read that it is good news if it is in the same breast. Sitting with my little girl tonight and we both are positive about all things in life.
Best to all!! lyn
0 -
Lyn,
I prayed for you again this morning. Keep us posted.
Bette
0 -
Dear Bette!!! Prayers are coming your way. Wow, you are my role model for staying so positive!!! God bless you!! Kathy
0 -
Ok now I am going in waiting room, as you can see on my thread on this section I have a lingering cough., Having a chest xray this am, and am scared. Doc does not think it is lung mets as I don't have shortness of breath, just had a resp. virus that my whole family had, but can not get rid of cough. (7 weeks)
I finished Herceptin in May had excellent bloodwork, clean bone scan, Tumor Markers were a 5 (lowest end of normal). But still this nasty cough.....just going to the medical imaging place gives me heart palpitations literally!!
0 -
Well Ladies the BS called tonight and left a message that Biopsy #1 done yesterday is positive for cancer, she did say probably stage 0. I guess that would mean DCIS again. I don't get it it is in the same breast I had the lumpectomy in last year. Did they miss this? Oh, well I guess some of us have to fill in the 1-3% gap...I will let you know how biopsy #2 comes out, I am suspecting the mirror image thing now that I know the Rt is positive. And here I was beginning to believe I was maybe "lucky" afterall, even though I hate it when someone say's that to me because if I were lucky I would never have had BC in the first damn place.. ummm I have bitter bit..face tonight!
0 -
Linda, I have stopped to say a prayer for you. I am sorry you had to receive the news by a message instead of in person. I know how upset I was when my PET scan showed positive spots in my chest and lung, just when I had finished rads and started on an AI and thought I had beat BC.
I have mostly dealt with those feelings now, and have my fighting face back on. If the BC is back, I intend to put up my best defenses and attack it with everything I've got. This is my life, and I want to spend as much of it with my new husband as possible. Tom is planning our 25th wedding anniversary. He inspires me with his hope.
Bette
0 -
Linda and Bette, Prayers and hugs, and a good nights sleep. I'll check in tomorrow.
Is that a nice new picture, Bette? What are you and your sweet husband going to do for your anniversary? I'm glad you have an appointment.
0 -
Omaha, if you read back far enough you will see that I too got bad news again. I had a mx and chemo, hysterectomy and arimadex. My recurrance was under my arm, same side as mx and presented completely different than original tumour. I was devastated. I don't want to win the cancer lottery anymore. I'm tired of being special. It hit me harder this time than the original dx. I don't know why. Now that I've had some time to get used to it I'm back into fight mode and am ready to deal with radiation an left mx. I just don't think I can be lopsided anymore.
Anyway I just wanted to let you know that you are not alone.
Bette, glad you have an appointment. Best of luck.
For everyone else waiting for results I take time to send out my prayers and offer my positive thoughts for you all.
Fortunate1-thanks for sticking around, I enjoy your rays of sunshine:)
0 -
Sherry, Hi, missed you. I was wondering if you had started radiation in time to be ready for school. Hope it goes easily. If I don't start getting organized I'll be tap dancing in front of my bewildered students. I'm going to sign off and get to work right now. After I feed the cat.
Hugs for all of you strong fighting women.
0 -
Well now I am officially on a roller coaster ride! My BS just called and told me the updated pathology report is being labeled "Difficult to Read" and that now instead of DCIS or IDC it is LCIS with extensive ductal colonization, but she is sending the slides out for a breast pathologist to read. I still have biopsy #2 tomorrow. Weeeeeeeeeeeee hear we go.
0 -
Linda, I am praying for you on your roller coaster ride. I don't think doctors realize what all these conflicting phone calls do to our emotions.
I am still waiting for paperwork from Hopkins to arrive in the mail confirming my appointments. If nothing is in the mail tomorrow they will receive another call from me.
Bette
0 -
Thanks Bettelou I think you and I have been sitting in the waiting room the longest. I hope your paperwork comes in the mail. Since we have been here so long I think we need some more books and magazines to read, and maybe some inspiring movies. Hugs and love to you
0 -
Linda. I have something better at my house while I wait. Homemade chocolate ice cream. It does not hep my weight, but it does bring some happiness into the days of waiting.
I also have been reading the Bible alot and finding much comfort there.
Bette
0 -
Linda, Just wondering how you are doing. Your second biopsy was yesterday, right? You are in my prayers for B9 results.
I am getting ready to go away on our Lancaster/Baltimore trip, ending with the biopsy next Wednesday. I am taking my laptop in an effort to keep in touch. Don't know what kind of WiFi coverage to expect.
Bette
0 -
Linda, Hope that your biopsy was easy and that your wait for results is short. Plus, of course, the best possible results.
Bette, Have a good trip. Pretty scenery, wicked pastries if I remember right. You're in my thoughts and prayers for the biopsy.
0 -
Couldn't sleep last night, so am up early wondering what to pack. By the time the biopsy is back, I will have been waiting one month past my PET scan. That seems like a long time to have to be concerned about the cancer coming back. I'm so glad I have a friendly waiting room to hang out in while I wait.
Bette
0 -
Awesome timein Lancaster County. On to Baltimore for the consult and biopsy at Johns Hopkins.
Bette
0 -
Awesome time in Lancaster County. On to Baltimore for the consult and biopsy at Johns Hopkins.
Bette
0 -
Glad you're having a splendid time. Enjoy every second.
Hugs, Julie
0 -
Oh Ladies I am still waiting for results, maybe something today?? Bette I am praying for you and B9 results everyday, I am glad you were able to have fun. I have never known what anxiety felt like before this not even with my original diagnosis because everything was lightning fast. My stomach constantly feels like it is doing somersaults and that I will puke at any moment. I do not like being afraid it really is a most unpleasant emotiion. I hope to get out of this "room" soon, the coffee is stale and the magazines are old but the people are awesome!
0 -
Hi Linda, You know, I have a big stack of magazines in my kitchen, to take and leave at my next Doc visit. Wish I could get them to you. Along with donuts that are magically calorie free.
I know what you mean about the fear. My original diagnosis involved a huge amount of waiting and I hated it. I thought that was all over. I found the waiting room while waiting again for a biopsy on a second lump. It shocked me how the fear can resurface so quickly and intensely. You are definitely in the right place, with friends who understand. I'm still thinking that when we leave the waiting room the fear will dwindle away to nothing someday.
Good news for you today.
0 -
Well I saw my BS today and she said " you are quite the problem for some brilliant pathologists" Now both sides tissues have been sent to Cornell for study. It is looking strongly like multifocal LCIS with maybe the left being ILC with a microinvasion. I guess for me then I will choose a Bil Mast. because I couldn't possibly go through this angst every 6 months. I should know the final results by the end of the week. So, not the worst news but not the best. All the choices are mind blowing though.
0 -
Linda, I have been praying for you. Continue to keep us informed. Waiting for pathology is our next step after this. I have had a Mx on the side where the lesions are. My other breast has been given a clean bill of health for a year, so I guess I will keep it for now.
This afternoon we will take a shuttle to the hospital for a consult with the pulmonary specialist. Pray for a positive appointment. Tonight my daughter is meeting us for dinner. She lives near Baltimore, and it will be good to see her.
I am tired, and sleeping a lot. It is better than being awake and worrying. I studied Bible verses on hope this morning. Hope is what I have for all of us.
Bette
0
