Class of 2009 - Sisters in the same time frame
Comments
-
I have had a couple of massages....love them.
0 -
I have several massages and specifically on my torso around my ribs and shoulder blade to alleviate nerve pain after surgery.
Both my BS and PS recommended and approved it to get me mobile again.
Not sure why a doctor would recommend no massages for cancer?
0 -
dualgate, for years I had jaw pain and my teeth hurt. I didn't grind my teeth, I just pushed them together, I would put my thumb under my chin and pushed up in my sleep/ It took a long time for me to figure this out. I had a mouth guard and it helps tons. I used it for probably 15 years and no longer wear it, because I think I finally retrained myself. Anyway, I no longer have pain. You just never know what you might be doing in your sleep. Good luck on finding the cause.
I talked to my Onc regarding massages and scar tissue, she said they had a lady at the hospital that specialized in that kind of massages and encouraged me to go to her. I never did, but if I had had problems, I would have gone.
0 -
Hi All,
The only reason I can think to limit massage would be if you had lymphedema and then you would want a masseuse who specialized in the proper technique. Otherwise I can't imagine how massage could be bad for you. Doesn't it sound heavenly... stretched out while someone kneads all the tight muscles and sore spots? Right now I am icing my ankle. I tripped a week ago and twisted it.. no big deal. All of a sudden, tonight, 9 days later, it is swollen! Very strange. The discomfort has been so minor that I can't fathom why it would swell. Always something these days
Spring is here in 'florida. 80'f today!
Pam
0 -
Pam, sorry to hear about your ankle. I know how that can hurt. We are also having some beautiful weather in Texas. It is in the low 70s, we might get some rain tomorrow, but them temp is suppose to stay about the same all week.
My husband is about to take a motorcycle trip to Florida in about 2 weeks. He is so excited. I hope he has a good time and that the weather stays nice.
0 -
Is he coming for Bike Week? Quite the event! I hope our weather is great for all the bikers. Does he ride his bike or trailer it to the destination? Does he grow a big beard? Does he dress up? Lots of fun.
Pam
0 -
He is coming to Bike Week. He will ride and this is the first big event that he has been to, so he may have some beard, but he can't start before he leaves, because of his job. He has leather, so I don't know what he will wear. I hope he has a good time. It would be a shame to go that far and not have a good time.
Juannelle
0 -
If the weather is good that guarantees a good time. The bikers all dress up like a costume party. The guys are leather jackets and bandanas, beards and long hair. The women.... halter tops, short shorts, boots, and anything with fringe. The highways are filled with motorcyclists, like bees buzzing around your car! The events at the raceway are big but mostly people cruise. A lot of activity has shifted from downtown Daytona Beach to US1 and I-95 where there are lots of biker hangouts and businesses. Even our little town north of Daytona is impacted so restaurants will fill up and roads will be busy. It's quite an economic boon to the area. I think bikers spend more than car race fans and certainly more than spring breakers! Hoping for sunny weather. Rainy days are bad and rainy nights turn dangerous.
Pam
0 -
Sounds like fun. Too bad that I can't come, but I am not going to ride the bike all the way to Florida. I like to ride, but I need to get off about every hour or two and walk around, especially since I take all these drugs that affect my joints. I can't hardly walk after being in the car for a long time. I am hoping for sunny weather also, I really want him to have a good time.
0 -
Hi Friends. Believe it or not, the daffodils are up already! Oh, it's so good. To those who are still in snow and cold, take this as a promise - spring IS coming.
This is week 5 off of Tamoxifen. I need to start taking it again, but have just started to feel normal again. It took this long to stop shaking hands and bad headache. But I can do it. Gee, a YEAR has gone by already. Just four more to go. It's do-able.
Dualgate, Tamoxifen can cause headaches for some of us. Are you taking it?
0 -
Ahhh, wish we had daffodils in Florida. Well, they are in pots in the grocery stores but only to give as a potted plant for Easter. We don't have enough of a dormant season for most bulb plants. So living in NE Florida we don't have the beautiful northern flowers and it is too cold for the really tropical stuff like in So Florida.
I switched from Arimidex to Tamoxifen six months ago and have gotten along much better - very well. I still have hot flashes but now I just get hot, not drippy sweat running down my arms! The general weakness I had is much better, I can actually open a jar again. Also I am experiencing much less cramping in my legs when I sleep and my left foot is not in a perpetual curled cramp. Trigger finger in both hands is almost non-existent. For the statistical FEW extra points of survival the Arimidex provided it was not worth it. Now, I will be singing a different tune if I develop mets and need to go back on an AI. I would never advice anyone else to forego an AI for Tamoxifen but it has been a good decision for me.
No headaches so far
0 -
Mary, aren't you just loving this weather? Several of us got out at work and took a walk, just to enjoy the beautiful day. I see trees leafing out, so I hope that means the cold is gone.
Pam, I am so glad to hear that you are doing better. Sounds like you made the right decision for you. I am taking the generic, but all my SEs have just about gone away. It has been a year now, doesn't seem possible. But I think I am doing very well on the AI.
0 -
Pam, glad to hear you are doing better ! I never thought to blame the "not able to open a jar" on the tamoxifen. I think its the double mastectomy, but yup I have no upper body strength and I try to lift light weights working out too to build it back up. NO daffodils here ~ right now it is like 30 degrees. TOO COLD for my liking. BUT, I did hear the birds chirping this am and I haven't heard that in awhile so SPRING hopefully is coming soon ~
Mary & Juanelle send your weather this way please !
Have a good day girls,
Alicia
0 -
Hi Alicia,
Hope you are soon hearing lots of robins as right now they are ALL at my house! They are in great swarms, hungry and thirsty. They seem to prefer anything purple to eat of which we have plenty... mostly the berries on palm trees. So purple "in", purple "out" and it is just a mess! The driveway and patios are covered andd you dare not hose it off as the water just attracts more robins. I love birds but will be glad when these harbingers of spring go harbinge somewhere else
Pam
0 -
Send them this way Pam!!!! I can't wait to see a Robin here!! I'll even take the Purple Poop as it might add some colour to the dirty snow!!! Oh Well, we are due for some heavy rain on Friday, maybe it will wash the snow clean???
0 -
I want some purple poop snow too..Pam, ship those pooping machines my way, please.
0 -
Isn't it fascinating to think the very same fragile little birds who are at my house right now could be at your homes (1000 miles away) in Ontario before long! Amazing.
0 -
Sorry to my northern friends, but I have to tell you...I HAD to turn on my A/C in the car on Monday. I was sweating! It got up to 80 here. That's too hot for me, but I did enjoy it...
0 -
My peach tree is getting ready to bloom. Last year I had a bumper crop of peaches and they were so good. I would like to have more this year, but if the tree blooms now, I probably will not, because it will frost here again before winter is over I am afraid.
0 -
So glad you Texas girls are getting some warm weather temps! Nice here too. I am boxing up as many robins as I can catch to mail north. Do you need any in Texas?
0 -
We broke a record last week with a high of 81. Today it didn't get above 62. Weird weather. However everything says it is spring. Trees are all in full bloom. Anddddddd my nose agrees. I have decided my body is fighting it more this year to make up for no allergy problems last year while I was recovering from chemo and getting ready for my mastcetomy. uggg but it sure is pretty here.
Glad everybody seems to be spring back to some normal things.
0 -
Hi Sisters, it's been many months since I last visited the discussion boards. I thought it was keeping me in the disease instead of getting my life back. So here I am, spending the last few hours catching up...boy-O-boy, you gals have been busy! I'm coming up on my 2 year mark of diagnosis. A tiny crocus took the initiative to pop it's head up through the snow in my yard to help mark the date, he he he, thank you crocus! Meanwhile the robins that have arrived a little too early could use boots and a parka.
So I have a question....is anyone here dealing with depression issues? I find it interesting that through the whole treatment process I had the typical emotional ups and downs, the anxiety and fear but it wasn't until about 6 months ago that this deep depression settled in. It's not the sad weepy kind, it's the "I don't care about anything" kind. There is no emotion, no drive to do anything, no interest in anything, nothing. I took a 3 week trip to Mexico in Feb. thinking it would kick me back into living. No, I was just as pathetic there as I was at home. Is this just part of not having estrogen in my body? Is it the Tamoxefin? Is anyone else feeling this way? You would think that after looking down the barrel of the gun, one would be out there revelling in all that is good, right? Aren't I supposed to be filled with the joy of life and making every moment count??? Any opinions about this ladies?
0 -
Echo, I think we all deal with this a little different and lots have delayed reactions...much like post traumatic stress disorder...It couldn't hurt to talk to your family doc and perhaps you could talk to someone professional. I think it would be a good idea for all of us to have a chat with a professional. This is by far the toughest stressful thing I have dealt with. I think after all the crazy rush of surgery and treatments it gives us time to sit back and just think...not always a good thing.
0 -
Echo, I agree with Michele - when you're in the "thick of it" - active treatment, testing, etc., you just do what needs to be done, and you don't have time to ponder things. When the urgency starts to fade, and you start to realize you're in it for the long haul, that's when the depression kicks in. It's like you're used up, and there's nothing left. An awful feeling to be sure. And I don't think the whacked-out hormonal situation helps things any! Talking it out with someone is not a bad idea - it's always good hear from another perspective.
Pam, how's your ankle?
I love to hear stories about the spring flowers blooming! I have a black thumb, so I have to enjoy the fruit of others' labor when it comes to plants.
School is almost at an end for me! I'm finishing up my 2nd apprenticeship next week, then I graduate with my masters in just 2 months! I actually have a job interview in 2 weeks, which I am exceedingly nervous about.
I'm also gearing up for my next round of follow-ups...Meet with the med onc in a week and a half, when I will have a bone scan, then my BS, then my gyn onc to talk about scheduling surgery for a non-BC-related problem. I think I'm supposed to get a mammo again sometime soon, but I'm not sure. Does it ever end?
Much love to all, and enjoy the warm weather if/where/when you can!
0 -
Our warm weather has gone on spring break somewhere else. It is cold here this morning with the wind howling like crazy. I think this will last a couple of days and then warm back up. I don't think it is going to freeze, but with the wind it is cold.
I do my bone scan on March 17, have my blood drawn and then see my Onc and the Rad Onc on March 28. I just had my mammo in February and it was all good. I am not having any other problems. My SEs from the AI are doing much better. Could be because I am doing Zumba at least 3 times a week and trying to figure out how to do it everyday. Work gets in the way of my workouts.
Hugs to all
Juannelle
0 -
Having the strangest thing happen. Every time i get on this thread it always goes to a new page, and I have to go back to read the last posts on the previous page....Is this happening to any one else..
I am so excited. I went bathing suit shopping today and got myself a new bikini and a one piece...I must say I don't look to bad in a two piece for a woman who is almost 45...I feel so hot and sexy now...I guess perhaps I got my MOJO back..which reminds me where is Princess JOJO.
0 -
Any chance you will post a picture for us, Michele? Bathing suit shopping is always so discouraging... I would guess you are looking really great if you are even a little bit happy with the suits. 45!!! You are hot and sexy. Gosh, 45 is the new 25.
I had a girlfriend in high school whose mom, I thought, was surprisingly good looking "for a mom." I only realized recently (in e-talking with the friend) that her mom was about 36 when we were 16. Of course she was a "babe."
Juanelle, Bike Week has begun and so far the weather is great. Might rain tomorrow but all next week should be nice. Already our little town is full of motorcycles... maybe your DH is one of them!
Echo, So sorry you are in such a sad place. Is there anyone you can talk to? I don't think our families can understand the cloud that hangs over us... even for the rest of our lives. And we are just waiting for the clap of thunder and the lightening strike! Last year I felt like you do and I don't know if it was the timing or Arimidex SEs. I switched to Tamoxifen and have felt better physically which sure helps my attitude. But I would not have hesitated to ask my doctor for pharmaceutical help if things had not turned around naturally. I hope there is someone you can talk to.
Thanks for asking about my ankle, Shelby. Back to normal after a little rest and some ice. Seems like I take every little boo boo so much more seriously than I used to. Who knew I would become a hypochondriac in my old age?
Wishing beautiful spring weather for everyone. So nice to have you all here to talk to.
Where is Jo-Jo and her magic wand anyway?Pam
0 -
Michele, send pictures. I don't want to even thing about shopping for a bathing suit.
Pam, he didn't leave until this morning. It was about 35 here and the wind was blowing. He left the house at 7:30 and came right back to get something, then didn't get off until about 11:00. He called me abut 5:00 and he was in Beaumont and was going to try and get across Louisiana, before stopping for the night. He is trying to stay behind the rain, he certainly doesn't need to get into it in the dark. I will worry about him all week, but it will not do me much good, he was determined to go. I do hope that the weather is nice next week.
0 -
Juanelle,
There is a line of storms moving from west to east across Florida today, clearing late I think. So good if he does not get here today, at least in the first 3/4 of the day. Maybe he could hang out along the gulf coast today. Tomorrow should be great. Wishing him a safe and fun trip.
Pam
0 -
Thanks for the support ladies. I was supposed to see my oncologist next week for the six month blood work check and I think he was going to switch me over to an AI at this point. I was hesitant to ask for some sort of anti-depressant until I could see how the AI affected me. Unfortunately his office called to postpone my appointment for a month because he'll be out of town for a couple of weeks and is too booked up to see me before he leaves. So, I am going to put this next month to good use and really try to get up and out the door, force myself into doing because my rational mind does know that I can develop a habit of doing that will hopefully keep me going (she said as the sun was shining in the window and the first cup of coffee began coursing through her body)
0
