Class of 2009 - Sisters in the same time frame
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Eph I don't wanna get booted off for too many f-bombs lol.
Mary Louise, I hope the flashes turn to mild tropical heat waves quickly. Get one of those neck bands you soak in cool water and keep it handy. They work like magic.
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Michelle I am so freaking sorry that you are having to go through this again... just know that we are all here for you and we love and support you. You can call us or message us anytime you need to. You can even private message me on facebook and I will respond. It goes straight to my cell phone. Please don't hesitate. I don't want you to be alone. I know once your family knows they will give you support and love, but unless you've been through this yourself it's hard to understand sometimes. Again I'm here for you if you need me sister... Much love to you and all the others. And the same thing goes to all of you... Please if you ever need to talk you can PM me here and I'm also on FB... Prayers going up for all of you... Our God is still in the healing business.
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Michelle, thinking of you. I'm so sorry for you latest development of the crappy disease.
Mary Louise, hope you are recovering nicely from your surgery. Hot flashes are no fun. I've been getting them since chemo, which put me into early menopause. I bought a fan at Costco last summer and have been using it every night - even in the middle of winter - to keep me cool. I now find the hum of it very soothing and the breeze has helped a lot.
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Thanks girls.
So I guess the plan is Femera, and zoladex as well as I am in a clinical trial. It also looks like I will get rads on my hip bone. I will also be getting some bone building meds once a month. I go tomorrow for my port. Pretty scared of that, but I guess it is for the best. This time tomorrow it will be over. Wish me luck. I am still waiting on my ct scan...Praying to God that is good. If not then it will be chemo again for me.
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Like I said I'm praying with Michelle that your scan is good also
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Praying with, for & over you Michele. I'm on Femara; PM me if you have questions.
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how long have you been on it? What SEs?
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Michele-I PM'd you. Also the discussion board I mentioned in that message is in "Hormonal Therapy-Before, During & After" and the thread is "FEMARA".
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Onc called to let me know that my ab/chest scans were good...Oh happy weekend.
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yeah Michelle happy dance for you... have a great weekend!! oh the little things are big things that we can celebrate!
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Michele, I'm so sorry about your recurrence. It's not a fun place to be. My prayers are with you.
I can't take Femara but I'm doing the Faslodex shots, Cytoxan, Xeloda and Xgeva. However my cancer markers tripled this week, they were up two weeks earlier now even more. So they are planning another PET Scan in May. My right hip hurts some times as well as the femur, but what gets me is when I drive, cancer is in my spine from T1 through T11, sitting and driving seems to tighten my chest muscles and I always forget that it's in my fifth rib which I think the seat belt just for some reason doesn't make that area comfortable at all. My daughter is sewing me a special wrap to go around the seat belt and a special pillow that she cut from a themaform pillow with straps so it stays where I need it when driving. Trying to keep positive! I'm seeing along with my family a Oncology Therapist who is helping to plan and prepare for what will come. There is a Legacy Program that prepares videos, books etc., for family and friends. I can't have any radiation therapy, and as always my other medical conditions play into how treatment and SE's happen. So I have five new Oncologist Specialists along with a Heart Oncologist whom I asked why, and he said the heart sometimes weakens with so much stress and chemotherapy. Have to carry nitro and blood thinners, thank goodness my cholesterol is fine. It went way up when on Cytoxan the last time, and I can't take cholesterol medication because of my liver levels. So I've started taking vitamin B3 or Niacin, which I read lately an article not to take the time released or flush free versions but plain B3. Since starting all my levels are fine and not rising while on Cytoxan.
So that's what's going on with me.
I pray that all of you are doing well and I hope that Mary Louise is healing and feeling better.
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Oh, ((((((M360)))))). Can you tell us your real name?
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Oh Michele I'm so sorry to hear that you are having to go through this all again. What did they find on your hip bone - a recurrence of bc or another cancer?
Did you already get your port in? I can't believe how quickly this has happened to you.
I have been undergoing tests since the fall and so far everything points to benign osetoma but I'm having another PET on May 26th just to compare to the first one. So far all my bloodwork is coming back normal hopefully this next test will be too.
Thinking of you all and praying for better days ahead....
Marie
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Marie,I got my port a week ago. I got the dressing off today. I can't wait for a shower. I will start treatment most likely on Friday. They found a three inch lesion on my pelvis. It is strange since I really don't have that much pain. I had my first shot of zoladex on Tuesday to shut down my ovaries. I will have them removed in a few months. I will start on Femera next week as well a pamidranate to build my bones. I have decided to do a clinical trial called MEDI-537. It is for woman with mets to the bone, it is taken with hormone therapy to see if it can make the hormone therapy work better and longer, I believe. It is a small trial just over a hundred women in all. Wish me luck.
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Are you going to try to keep selling those awesome boots?
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Yup, I want to stay busy.
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That's good! Attitude plays SUCH a big part as I'm sure you remember!
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I haven't been here is a while, but decided to check for some reason today. Michele - I just can't believe it. I'm so sorry that you've been hit with this beast again. Please know that I'm available to chat if you ever need it. I will message you with my contact info. Big Hugs to you!
M360, Eph, and the others of my sisters who are also facing the return of bc - I won't say I know how you feel, because of course I don't, but I will say that I am sending as much positive energy to you as possible, to face the new challenges with strength and to lean on us when you don't feel strong.
Much love to all!
~Shelby
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Thanks Shelby
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Shelby, as far as I know I'm still NED, but I still could always use positive energy.
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Oh crap, Eph, oops! Wow, I messed that up. Goes to show I have been away too long...
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As I said, positive thoughts for energy are always welcome. Lots of other s%*t that can be on the plate that need good ju-ju flowing!
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Of course, heaping helpings of positivity are always welcome, and I am sending an extra big wave your way!
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Still sending positive thoughts and prayers to my sisters going through difficult times... Love you all!!
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I think of you all everyday ! You are always in my prayers. Michele ~ you will kick this cancer to the curb again ! We are all cheering for you. To any other sister fighting the beast again, you have a lot of cheerleaders rooting for you.
HUGS and Happy FRIDAY !
Alicia
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Well treatment one down, hopefully many more to come. It went well only took about 2 hours from start to finish, including blood draw and and everything else. I feel pretty much normal..Yah me.
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((((((((((Michele))))))))))))))))
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Michele congrats on getting 1 down!! How many do you think you'll have? Is this treatment different from the first time around? Will you have side effects?
What does the pain feel like? I feel something too on my right hip/femur but I can't tell if it's real or if it's because I've been told that there is something there.
Sorry for all the questioons...
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I totally got sidetracked with worry for Michele that I didn't post an update or even say Hello to everyone!
So HELLO EVERYONE!!
I hope that you all are having a nice spring - it's raining here in Vancouver but that's expected.
Lots going on in my life right now - my son is graduating high school (I hope) and my daughter is leaving a pretigious university after 2 years and going to art school. Yikes! My hubby has 3 long golf trips coming up and so will be away a lot and I hope to get some home renos while he's gone. He's colour blind and opiniated and it's impossible to make decisions when he's around. I will miss him but I look forward to getting lots done!
In the meantime I continue to see my ONC and follow up with these "suspicious lesions" on my right femur (at the hip).
My bloodwork continues to be well below the normal range (both tumour markers) and I had a repeat PET scan yesterday to see how it compares to the one I had done in January which also showed "suspicious lesions".
It's a worry but I've convinced myself that I won't worry until I have something definitive to worry about. It's working for me and I actually fell asleep twice (I was so relaxed) while having the scan done yesterday (I was there for 4 hours)!
I'm curious about your "pain" Michele because I have leg aches and pains and have had for years. Whenever we go hiking or take a long walk it's my right leg that gives me trouble and now I find out that there might actually be something there....maybe it's been there all along?
I see my ONC again on May 9 to discuss the results of this recent PET scan (he didn't want me to have repeat bloodwork this month) and we'll see what happens from there. The techs yesterday told me that everything looked good and that they would mail the results to my ONC. I'm not sure if that's a good sign or not - if it were more serious wouldn't they get the results to him sooner? I'm trying not to read too much into this but I have hope!
I had a follow up this past Monday with my ONC and I asked him about continuing with my reconstruction and he said to go ahead. So I'm having fat grafting on May 16 to "fluff" up my reconstructed breast. I tell everyone that I'm having lipo just for the shock value. You can imagine the looks I get! It's better than having to explain the truth - my reconstructed breast looks like a ripple chip and this hopefully will fix it.
Anyway that's what's going on in my life. Boring at times and somehwat normal but I love it!
Hugs to all...
Marie
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Marie, I will get this treatment till the end of time, or until something better comes along. No SEs so far. My hip pain feels like a deep bruise, but not all the time. That is what fooled me, it came and went..I was told cancer pain comes and stays. So I ignored it...bad idea. It feels like it is in my bum cheek but deeper. But the tumor is at the bottom front of my pelvis. Onc said it is pain transference, that is why it is not where I feel it..
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