Class of 2009 - Sisters in the same time frame
Comments
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Hey Jen, sounds like a rough weekend. Hope you are both doing better ASAP. At least you can both take care of each other and work on promoting a healthy lifestyle. I had a similar heart condition about 4 years ago. After three runs to the hospital they operated. It was a very simple operation where they go in thru the groin and burn off the little sticky part off. Now that's the medical terms. Hope it's not over your head. LOL Anyway after the operation I've not had a single problem. If it comes down to that with your DH I highly recommend the surgery. So there's your second opinion.
Hugs and I hope you both feel better.
Lisa
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Thank you Lisa- I appreciate your support. I think you are referring to cardiac ablation, which he was presented with as an option about 5 years ago when he had is last episode. At that time the procedure was pretty new. Maybe it would be an option for him now. We can certainly put it on our "things to talk about" list for the follow up visit with the cardiologist.
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Jburke, sorry to hear about your DH, I know how that job stress affects us.
M360 make sure you are comfortable with your Onc and understand the numbers. I was told I had a 13% recurrence without chemo and a 10% with so I choose no chemo. There are differnt ways to present the numbers so make sure you understand what they are using for risk criteria.
Psalm 121 Paulding Mom and all of you who are blessed with sons. They are wondeful gifts, mine are out in Vegas and Albuquerque and the past year and a half has been rough but they encourage me with their calls, words, wonderful e-mails and time together when I can get there or they can come home.
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Carollynn, isn't it sad when our boys grow up and move away? But happy for them to have fulfilling lives.
Jen, you all are breaking my number one rule... only one of a couple with medical problems at a time! I am hoping your DH will settle down now that he is back on medicine. It has got to be so scary, for you and for him! Sending good vibes for good control.
pam
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Pam, yes it is but it is also fulfilling to see how they have grown up and can take care of themselves. Now if only they would find good wives and give me my grandbabies. They tell me they are having too much fun living the single lives oh well.
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Jen ~ so sorry to hear about your hubby's heart problems. I am glad he is home now and hopefully it won't hapenn again. Hang in there.
M360 ~ I feel for you sweetie. Your oncologist sounds like an ass. I'd go get a second opinion. In the meantime try not to worry to much ~
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Jen, doesn't your DH know that he has to wait to get sick until you are done....
M360, still sending happy thoughts your way...
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You guys make me cry and make me laugh all at the same time.
My baby boy is going to L. A. in June to try and intern as a writer. L.A.! Don't they write sitcoms in Atlanta???
I second the No sick DH until your done as micheleboots wrote. LOL
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Oh, pauldingMom, it is terrible your son is going to LA! People LOVE it there. My DD lived all her life in Florida but married a fellow from Orange County CA. She thinks the weather is heavenly. no humidity, no mosquitoes but lots of traffic. SIL talked like he would move east but that is not going to happen :-( Then they had the nerve to have a baby!!! What happened to everyone living in the same little town, on the same farm, in the same house??? Well, maybe not the same house :-)
pam
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Jen -- when it rains it pours. Sorry you and your DH had to deal with that this weekend. Hope things improve for him.
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Hello, Wonderful Women!
M360 - I think your onc has a 100% chance of being a horses patootey. Limeade with agave - sounds yummy. Please share your recipe, and I will hoist a glass in your honor.
Jen - So sorry to hear about your DH. Saying my prayers for the two of you. Hope you start to feel better during your Tamoxifen vacation. I had lunch today with a pal who had to quit taking it for good. She said she was surprised how good she started to feel within just a few days of stopping the stuff. Hang in there.
Michele - the dream cottage sounds oh so nice. Hope you enjoy every minute. Can't wait to hear about it.
Pam, Carollynn, Lisa, Renee, Juanelle, Lilah, Alicia, Jojo, Psalm 121 - smooches and hugs to you all. And to those I forgot - XOXOX to you, too.
We have had some glorious days here in Texas. Summer will be here soon, no doubt. I have been happily working in the garden on the cooler days. It's been nice to have some strength back, and especially nice to feel the wind blowing through my hair! Oh, how nice it is to have hair. Now, I'm not joking - it came back so curly that I look like Kramer if it gets too long. Just did a cut last week, and we think the newest hair is calming down. Hooray!!!!!
Hot days are going to be a challenge. We had our first 80 degree day a while ago, and wowie it was draining. Had a little scare in the parking lot at the grocery store - actually thought I might faint. It was the Tamoxifen, no doubt. Can you imagine fainting and chipping a tooth or some stupid thing like that and then having to be in a dentist's chair to get all of THAT fixed???!! No more docs! I'm going on strike. They're just going to have to earn an income without me. I refuse to be a one-woman stimulus package!
Still taking Tamoxien though - half dose for the next two weeks, then up to 3/4 dose for the next month. If I can make it that far, then I go for the full dose after that. One day at a time. I've decided that this is going to be MY decision, and no one else's. My onc has been prickly on this issue. And the stats are slippery little buggers - wish she would spell all of this out a little better. Drama is not my thing - I'm not telling her this drug stinks because I enjoy the attention. If I cannot take it, I cannot take it. And If I get attitude, I may just have to get up off that paper covered table and windmill on her! Paper gown or not. Just saying my fuse is short these days.
Wow. It feels good to rant! Talk to you soon, friends.
XO, Mary
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Mary ~ good to hear from you. Take a picture of your curls ~ would love to SEE! Hopefully things settle down for you on the tamoxifen. I have to say I guess I am one of the lucky ones. So far I feel pretty darn good. I am a bit achey but blaming that on the after effects of chemo still and I have been very active too so I think my muscles are in shock ! I have to take senna daily as constipation is an issue with me and tamoxifen. A few hot flashes and that's all. No weight gain either, even lost a few ~ If it isn't for you ~ there are other options ! Keep your list and check it twice. Glad you didn't pass out in the parking lot ~ I always have granola bars and snacks in the car now because you never know when that will hit you.
Wishing all you girls a GREAT day ! Hope everyone is feeling good ~
Alicia0 -
Mary, what is Windmill...is that when you just twurl and twurl around and knock her on her ass?
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Love those paper gowns! Really, why can't they use cloth and just wash them?
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Michele - yes, you are correct. Arms around and around like a windmill.
Can you see someone hauling me down the corridor to the psych ward - little paper gown and all?!!!
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I second the hatred for the paper gowns! They suck! Mary, give 'em hell girl! If the Tamox isn't agreeing with you they need to work with you on making adjustments or subbing with something else. Is there an alternative to Tamox?
Hubby is doing better, he went to work the last couple days. He is still not 100%, but with my nagging he is taking it easy.
Thank you for all the well wishes. I did tell him he was stealing my thunder with all of this, and he needed to cut it out
Hugs to all you lovely ladies!
Jen
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OH, I feel so lucky, not one paper gown...just a bunch of ugly starchy gowns..
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No paper gowns here either. Thank goodness. The cloth ones are bad enough!
pam
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It's cloth gowns at my hospital, too.
Sherri
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Good evening ladies. Hope all is going well or getting better.
Jen, don't let that man steal your thunder. Get him well and keep him that way. This is all about you.
Mary, the days have been really pretty, except for the wind today. I am ready to get out and enjoy some of the nice weather.
michele, have a good time on your vacation.
M360, keep the spirit, the doctors should work for you and be there when they are needed. If not, then it is time to go shopping.
I raised boys and can't imagine what it would be like to have girls. My boys are great and one live in the same town as we do and the other is only about 150 miles away.
The outage is over at work and life is settling down. I am so tired. I came home from work today and just layed across the bed and slept for 2 hours. That is something I never ever do. I just hope I can sleep tonight. At least I don't have to work tomorrow.
I am way behind on my posting, but I will get caught up.
Juannelle
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Mary (magob) - I am feeling your pain now with the Tamoxifen. The last 2 weeks I have been having some severe pains in both my knees and lower legs and low back. It gets really bad after I go to bed at night and usually wakes me up around 1:30 or 2 a.m. The pain has been enough to keep me from going back to sleep the rest of the night. I haven't had but maybe one or 2 good night sleep in the last 2 weeks. The pain is really bad when it rains and storms like it has here in Alabama the past few weeks also with the cooler weather we've had. I've taken pain meds and it will sometimes take the edge off but it doesn't stop the pain because it is all the way down deep to the bones. Sometimes it even makes it a little difficult to walk and I limp around. But I am on the lowest dose of Tamoxifen that I can be on. I take 10mg one tablet everday. I started off with very minor side effects like just the creaky knees about 2 weeks after I started the Tamoxifen, but now I am into the 3rd month of taking it and the last 2 weeks the side effects have escalated!
Mary does any of this sound familiar to what you've experienced? I'm trying to be a good sport and tough it out, because I know that Arimidex and Femara can cause wors symptoms and pain. I also don't have an appt. to see my Med Onc again until August. I just don't know if I will make it or not till then.
Renee
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Hello My Friends,
Mary, thanks for the smooches, really needed them. And thanks to all for the thoughtful comments regarding sons----yes, they really are special and I just can't bear the thought of mine leaving home! He says he's not going to, so I guess that's still the little boy deep down inside him!
Jen, praying for you & your DH, sounds very scary and we already appreciate how fragile our lives are don't we, dearest? Glad he's feeling better and hope he continues to take things easy.
M360, I agree with these other ladies.....we pay these doctors, we hire them, not the other way around. So expecting respect and consideration is not too much to ask. My thoughts and prayers are with you to have the strength to act on your convictions of your own best interests.
I've missed y'all, been really busy the past couple of days and just don't feel like things are right til I've checked in on everyone. My day today was stressful, dealing with grouchy patients and I am blaming it on the full moon!
All my doctors have nice soft cloth gowns, and they actually don't smell all clinically either! I see my Onc on Tues and get 1st mammogram since diagnosis....so I'm kinda nervous the closer the appt gets. Oh and I do dread getting on that scale!
Love to everyone!!
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Renee, your symptoms do sound familiar. Sorry, friend. There is good information in some of the other threads about the SEs - it sounds like they can emerge for a while, then go away for several months, and then come back again. Weird, huh? Well I hope you feel better soon.
I know one woman who got sores all over her scalp and had to shave her head because of Tamoxifen. Her skin turned yellow and she started to have liver problems. That kind of thing is a sure sign that a person is just not tolerating it well. So far, nothing that awful has happened, but I am taking a lot of other medication just to be able to take half the dose I need. Just going one day at a time.
How are all of you doing with your eating habits? Are you on the good foot yet? I am happy to report that after a few months of eating right, I am used to it and the junky stuff just does not taste that good any more. It really does make a difference in the way a person feels. So put a blue star in the book next to my name today. Still taking Tamoxifen and eating like I should.
XO, Mary
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HELLO HELLO HELLO
MARY
I will give you two blue stars one for starting it up ,and the other for staying on it good girl Mary keep it up
JEN
Yes this is your platform he needs to stay well and keep his ticker pumping properly
JEUNNELL
Oh so glad that you can rest up now have a few days all to your self and do only what you want to do im sure your D/H will understand go out side and take a good wiff of the roses
RENEE and MARY
WOW hope it settles down for you guys sounds all very ouchy ill be starting that in a month or two.
Ive only got 5 boosts to go then I'm all done and im just not happy about it, and ive been crying ,it just feels like while im doing treatment i feel safe and soon there will be no more treat and that just scares me it feels like my safety net will be removed from under me ,ooooohhhhhh i need to deal with this fear, the tecs at rads are great ,i was having a bit of a cry and one guy offered to give me a big cuddle i just through my self in his arms and cryed like a baby he was very understanding, lucky ah ,he is also very cute with big strong arms so i think thats why i stayed in his arms for a bit longer lol im naughty ah
KEEP WELL LADIES LOVE LOTS
JOJO
OH PS
Who ever gave away some smooches thanks that was nice .
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To each and of you. Mimi- I hate to hear your having trouble with the S.E. from the Meds. I know mom is on the same stuff and having very similar problems. She's also having a heck of time with her weight.
Have you had trouble with the heat outside. She says she can hardly bear being outside for more than a few minutes when it's warm. She gardens a lot and has found it better to go out in the earl morning or later at night. She gets dizzy to and her age, that's pretty scary. Almost there JoJo!! I know the feeling of Now What? that follows Rads. I assume you will start on a hormone therapy. Can you redirect your fighting mood to the new meds?
TNeg here so no meds. I focused on eating better and exercise. I need to boost that a little more and, well, Fight Like a Girl! So I wanna blue start to Mary!Well, I got 5 little kids here today, and a garage sale and a interview for a new child. I really shouldn't be on the puter.
Have a great weekend! Rain here but I need to get some paperwork done and attack that treadmill.Pink Hugs, Lisa
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JOJO, you naught naught girl....I like it.
So far so good with the T...I hope I didn't just jynx myself.
Jojo. I felt the same as you , but now I am enjoying my NO-DR time and figure I have done everythiing I can do to fight this beast...so now I have to have faith that chemo kicked cancer ass.
Lisa, souynds like a busy day for you...relax and enjoy your weekend...
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This has been an absolutely crazy week for me. Last boost was Monday, then that afternoon I took my 15 year old for her learner's permit. Watch out on the Texas roads! I taught every morning this week, had class on Tuesday, Zometa and onc appointment Wednesday, and a workshop this afternoon. Not to mention up until 1-2 a.m. on Wednesday and Thursday night writing lesson plans. I'm really looking forward to getting more energy; I haven't had normal levels of energy since chemo started back in October! I don't know what I'll do with myself when I'm not so tired anymore.
Jojo, I understand the fear that you are feeling. Even though I didn't enjoy the treatments at all, at least I felt that I was actively fighting the beast. Now, I've just got to have my ooph and cross my fingers and hope.
Lisa, you're so self-disciplined, getting on that treadmill! (You too, Mary, eating so healthy!). I'm hoping that now rads is over, I'll be able to get moving a little easier now. I've actually finally lost my chemo weight, and my appetite has gone down significantly. Let's hope the weight loss continues - I'm going to Virginia Beach in June and I want to look good in my swimsuit!
Peace, love and hugs to all of you!
~Shelby
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Shelby, speaking of swimsuit. I just waxed my bush zone in preparation for bathing suit shopping tomorrow...wish me luck
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Michele!! TMI !!! I've actually been laying out to get a decent base tan before our big trip in June. Hard to do with an SPF 50 but at least I look healthy. I may not look good in a swim suit but I can get one on and that's my goal this year. I've had to go with the ones with the little skirt to cover my baby belly. DH says I look cute so that's what really matters I guess.
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ooooohhhhh, sounds painful :-(
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