Class of 2009 - Sisters in the same time frame
Comments
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Magoo-Ugh, sounds hot. I got a little tip for ya that many of us used during the heat last year when we were doing chemo. I kept a set tea towel in the freezer. When one of those horrid heat spells/flashes came my way I would put that on my neck. Worked like a champ!
It's so great to hear that your Relay walks went good. I haven't had goosebumps like the ones I experienced on my Survivor lap in a long while.
I'm trying to get my Mojo going again. Seems one week I'm semi-normal and then I'm back to zero. I even watched The Notebook on Sunday and didn't cry. Even my dang dog was crying and all I could think of was, "Do I have a load in the dryer to fold." Emotionally, I am numb. Ugh kick back in Lisa Jo.
Doc. took me off the Zanax and I think that has something to do with it. I miss my little happy pill.
Where are those pictures??? We want pictures.
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Good tip, Paulding. Towel will go in the freezer after this post. Can I put my undies in there, too? Hope your mojo returns. The Zanax might just be the culprit. That's a tough story about the dog even crying. If you don't snap out of it soon, we might have to prescribe Steel Magnolias followed by Old Yeller. Maybe with a mojito on the side.
Jen and Eph - wow. I get emotional just READING about your survivor walk. Really cool. XO.
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Jen and Eph ~ Congratulations on your walks ! You both did a great job and I am so proud of you~
I too like that towel tip I am going to do that too !!
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Jen YOU ROCK....I am so proud of you...don't beat yourself up about what you didn't do celebrate what you did do...
EPH you rock too...It makes me get emotional just thinking about it.
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So I went to my doc today...I have been having heart palpitations for the past week. I had an ecg and blood done....Damn, can't a gal get a break. I will keep you posted.
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I am so proud of you Jen and Eph, you are both amazing.
Michele, I don't think we catch breaks with this. Stuff just keeps coming at us. I hope all is well.
It is hot in Texas, we need some rain and a cool breeze. Anyone have any ideas?
Juannelle
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Michelle I hope everything workds out well with your heart. I missed the call from my breast surgeons assistance today. I assume she was calling with the results of my mammogram. I called and left her a message after hours to call me back tomorrow. I am praying for good results. I think if it were bad the doctor would have called himself... he called me before himself, it wasn't his assistant. I should know tomorrow.
Renee
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Good morning ladies~
Thank you all for your wonderful support, I loved every minute of the walk, wet and dry! If any of you are on Facebook, PM me and lets friend on there, I have all my photos from the walk up on my sight. I would love for you all to see them.
Michele- I am praying that you don't have any serious issues with your heart. Please keep us posted.
Renee- I hope you get good results on your mammogram. I am sure if it was anything bad, they would have called you to come back in right away. We are high risk and they don't mess around with results of survivors.
Hugs to all you ladies today
Jen
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Michele ~ do let us know what the dr says. I am sorry you can't get a break !!! Hopefully it is just anxiety or something.
Mimi ~ prayers you get a good mammo report.
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Michelle, Hope all goes well with your heart. It could very easily be something simple.
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I saw an eye Dr. today about my blurred and shadowed vision. Seems chemo keeps giving. It has cause my tear production to change and that is what is causing my funny vision. So bring on the eyedrops on my list of meds now. Keeping my fingers crossed my FP will let me go back on the lyrica.
Glad the walk went well. Your stories made me want to cry. I hope to one day be in your shoes. It sounds like a wonderful experience.
Hope all the test come back with good results.
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Jen and Alicia, thanks for the prayers and hugs! My results are Negative... NO CANCER!!! Doing the happy dance....
As for a quick call... I have mine done at the hospital in the regular mammo dept. and I asked my surgeon (who ordered the mammogram) if they would read it before I left or let me know anything quickly, he said, "No", they are slow and it will be business as usual. So apparently it doesn't make any difference where I go to have mammo's. We don't have a Breast Cancer Center locally. I would most likely have to drive to another state or several hundred miles out of the area.
Renee
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Congrats Renee!!! Such good news. :-)
Florida is such a competitive medical market that everyone is always trying to one-up the other facilities so we are lucky. I get my mammos read while I wait so that is sooooooo nice. But good news is good news whenever you get it. And I am really happy for you.
Wishing us all nothing but good news.
MIchelleboots, you are next for some happy results. Fingers crossed for you.
pam
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kittydog, sorry to hear about the eyes. I know I had to get new glasses and am having trouble wearing contacts. The gift that keeps on giving.
jen, I sent you a pm with my email. Would love to see your pictures.
Renee, glad the mammo was good. I go again in August for my second once since dx. So far so good.
pam, I also go to a clinic that gives me the results the day I have the mammo. If you go in for a regular mammo, then you have to wait, but if you have had any problems in the past, then your mammo is read that day and you get to see a doctor. I really like that, makes you feel special.
I went for my checkup with my Surgeon today. All is well and he doesn't want to see me again for a year. Woo Hoo, one year can you believe it. He said I could be his poster child for how well I have done.
Well, I have another snake story. When I got home from work yesterday,my DH said to go check in the garage and see what I had killed on my way out. So I go out and there laying squashed on the garage floor is a baby rattler. This is in my garage. I go out there with out the lights on and no shoes, my god, are they everywhere. I don't like any kind of snake, but they must be liking me. The best rattler is a dead rattler.
Juannelle
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Juannelle, wow a rattler in your garage. That is crazy. I would be FREAKED out bigtime...You need to get some steel toed boots to take out the garbage..
Jen I am on FB...michele Pantin Lebouthillier...we could be friends.
Pam I too have a place that does mammos and lets you know right away...it is nice.
Renee, yahoo to you...cancer free.
Kitty, well that sounds like such a relief for you. Will that go beck to normal at some point? Damn old chemo.
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Juannelle, wow a rattler in your garage. That is crazy. I would be FREAKED out bigtime...You need to get some steel toed boots to take out the garbage..
Jen I am on FB...michele Pantin Lebouthillier...we could be friends.
Pam I too have a place that does mammos and lets you know right away...it is nice.
Renee, yahoo to you...cancer free.
Kitty, well that sounds like such a relief for you. Will that go beck to normal at some point? Damn old chemo.
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Juannelle - that's scary about the rattler. Maybe you need some animals that will hunt them...animals that are less scary than snakes!
Renee - great news about your mammo results.
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Hoorayyyy, Renee!
Juanelle, those snake stories don't get any easier to read. DANG! Does it have to be a rattler every time?!
Pam, nice to see your post. Been thinking about you, hope all is rosy.
Michele, hang in there. Better days coming.
Abby, hope they get your eyes fixed up. How are you doing with neuropathy? It needs to go away. Summer is here and we have things to do.
Sending love to you all. XOXOXOX
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Nice to hear everyone. I have not had much to say as nothing good to say... nothing bad to say either. I hate to whine but just feel I am not gaining any ground in my recovery process. NO scary cancer stuff just not getting back to where I was BC (before cancer). Every day there is something that reminds me I am not as strong and I don't like it. I have a good exercise program, eat well, sleep good, take minimal meds... what more can I do? I suspect a large part of my trouble is from Arimidex but am too scared of cancer to stop it. My PCP does not seem to know anything about the SEs of AIs and my oncologist just told me to take a vitamin!!
Well, now I feel better :-) Just saying it (writing it) makes me feel better. Thanks for listening. I am going out and work in the yard and pretend I am 30 years old again. :-)
pam
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G;DAY LADIES
Hows it been , most of you girls are having hot days now and over here its getting cold 15 degrees, but I'm just not feeling cold, usually i do ,it must be the tamox .
Ive just been reading the last few pages about snakes, yukie , heart troubles ,keep us informed Michelle ,I think it was Renee who is going to pass out and come over for a visit, yeh, and congr on clear results for their mamo and yep ill do any thing for a holiday except tents , weight loss for me is 3 kgs ,i havnt been trying just cutting back on quantity and im a lot more active .Ive been staying at my parents place for the week, my dad went in for day surgery to remove polyp's from his bladder and ended up staying in for a week due to bleeding so i stayed with mum she carnt drive never learnt and she is so lost with out dad, they are the type of couple who never leaves each others sides , it was a good break for me as i was back to being the daughter and not the mother but it was nice to get back home to
Chat soon love lots
JOJO.
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Good morning ladies!
Michele and Juannelle, I will hunt you both down on FB and we will be friend on there also
Renee~ So, so happy for you that test results were clear! That desreves a happy dance! We have a breast health center by me, that is where I go for my mammos and they read the results right away. It is nice not to have to wait.
Juannelle- Not cool about the rattler! Glad you squished it like a bug though! That would scare me, that is the only thing that would keep me from moving to the southwest, those darn snakes!
Abby- I hope you get some relief soon! Now you have the blurred vision and more meds. God bless you sister, you are definitely in my prayers.
Pam- So goo to hear from you and so sorry you are feeling the BC blues. I can relate with the feeling of not being as strong as you were BC (before cancer). Here is my profound thought for the day, we may not be as strong on the outside, but inside we are tough as nails! We have been thru every healthy persons worst fear and we have come out the other side. We are fighters! We love you and are always here for you. You hold us up so much of the time with your positive thoughts and words, and we are here to hold you up just the same.
JoJo- Good to hear from you, Sorry about your dad, hope he gets better soon. I too have a mom that doesn't drive and never has. She is lost without my dad, when he was recently in the hospital she was totally reliant on my sisters and I to take her wherever she needed to go. Prayers for you and your family.
Mary, Alicia, Shelby (we miss you!), and anyone else I missed, hope you all are having a beautiful day.
Hugs
Jen
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Pam it takes awhile. I didn't feel quite myself for a couple of months.
Jojo, good to see you back...I might just have to take some good drugs and float on over to visit you. Here I go.
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Since everyone is hunting people down on Facebook... add me I'm listed as Renee Bartlett Loyd, Cullman, Alabama. Jen and Juanelle add me and Michelle I will try to look you up. I'm terrible with looking up people on face book.
Juanelle.... a BIG yuck to snakes in the garage!!! or anywhere close to the house. I hate them. EWWW!!! Don't like rats either. LOL!
JoJo... hope your dad is doing better. It's always nice to have a break from being a mom every now and then. We get to leave our troubles behind for a while. :=)
Renee
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Renee, We use to have a pet rat...they make great pets. Most people are a bit freaked by them. I like snakes as well, but I don't think I would want to run into a rattler in my garage.
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Michelle, Juannelle and Jen, I'd like to connect with you on FB, too. Renee and I are now connected. Michelle, I see your name above, I'll send you a request.
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I was raised in West Texas, the home of the rattlers. They have rattle snake hunts there in the fall. So you would think I would be use to them. I am not scared of them for myself, it is my grandchildren. I worry much more about them, than I did my children. I guess it has to do with age. When you are young you just don't have the time. Now that I am older, I would die if something happened to one of my babies while at my house.
jojo, good to hear from you, hope your dad is doing well. It is always so good to hear from you.
Renee, I sent you a friends thing on FB. I don't post a lot, but I do like to keep up with everyone.
michele, I am not one for rats, but we did have rats and all sorts of stuff when my kids were home. They had to take them all when they left.
pam, sorry you are having the blues. I do not seem to have any SEs from the Arimidex. I guess I am very lucky. I have been on them since March, so I think I have had time to develop SEs. Hope you get to feeling better soon.
Good eveing and love to Mary, Sherri, Jen and Kitty and anyone else I missed.
Love all you guys,
Juannelle
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sugar, sounds good
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Hi there all. I was diagnosed in 10/2009, had a left modified radical mastectomy (with removal of 7 lymph nodes), and the pathology came back as Metaplastic Breast Cancer. The path on the lymph nodes came back negative, even though they lit up on the PET. I've had chemo every 3 weeks for 18 weeks and then radiation every day for 6 weeks. I'm becoming more and more worried about metastis, as I am well aware of the propensity of this rare type of breast cancer to metastisize to the lungs, liver, digestive tract or bone. I may only have about 3 years left of life. I'm afraid that it may have already spread as my liver panels are coming back with unexpected numbers. I'm 58, my husband will be 60 in August & he's had brain damage due to nocturnal hypoxia. I'm worried about dying and leaving him on his own with no one to keep an eye on him, and leaving my son (he's not a baby, but he's MY baby). I love them both so much. I'm just afraid and feel alone & needed to talk...0
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I am unfamiliar with Metaplastic BC, but can offer you ((HUGS)). I think that we all worry about dying and leaving our families - I choose to try to enjoy each day as it comes. I used to be one of the biggest worrriers in the world and have realized that worrying only adds stress to my life, so try to avoid worrying!
Come back anytime to talk.... there is always someone here to listen (I personally usually lurk, but wanted to let you know that someone is here to listen!) 0 -
Thanks, Mary Louise. I appreciate hugs especially! Metaplastic breast cancer compromises only 1% of all types of BC's & is general comprised of 3 different types of cells. I'm told that the medical community doesn't know very much about it either (great...), and the treatment given follows standard medical treatment for BC in general since they don't know what else to do. I don't let the nature of the BC come to the front of my brain too often because I DO want to have the best quality of life I can have, with what time I have left. Gotta keep on keepin' on! Thanks, again...your message means a lot to me
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