Class of 2009 - Sisters in the same time frame
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{{{{{Rudy_3rd}}}}} Big hugs from me too.
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Will my nightmare ever end? I hate to keep posting bad post but my body just keeps falling apart. I woke up Sat. with my surgery arm hurting. Thought I had just pulled a muscle. The Rads Oncologist had me to start taking motrin and if it wasn't better to let him know in a few days. Well I wasn't even going to say anything today because it did feel better this morning. That was until I had to pull my arm from behind my head. I couldn't do it and lost it with tears and all. He had me go get an MRI of the shoulder. I have torn my rotator cuff and have fluid in there too. So I have permission to take pain pills and motrin around the clock now. I will have to see an ortho surgeon. The nurse said they will see if there is anyway to make it a little more comfortable for the rest of my treatments. I still have three more weeks to go and I guess then surgery. On a good note he said there was no cancer in the arm and shoulder....gee I never even thought it could be cancer. Glad he didn't mention it this morning. I would have been so worried.
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Aww, KittyDog! That's not good. I think those rotator cuff tears are supposed to be fairly uncomfortable (to say the least, huh?) Here's hoping good drugs do the trick. Get some good ice cream, and curl up with the kiddos and tell them it's a game, "let's spoon feed Mommy!" Wear a plastic bib tho'.
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((Abby))
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Kittydog,
I have wondered why unrelated health problems seem to proliferate after a BC diagnosis. Is it coincidental? Am I imagining it? Does the treatment beat down our immune system? Yes, I guess chemo does that, but what about us who did not do chemo? Is it the state of our minds? Can't be just age since so many of "us" are young. I have been the healthiest person you know... up until....
What do you all think?
So sorry for your new problem, kittydog, but glad it seems to be a mechanical problem that might have an easy (?) solution. That is if surgery is ever easy!
pam
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Awww Abby that really stinks that your rotator cuff is torn. Surgery will take care of it, but you will probably need several weeks of physical therapy after surgery to get that shoulder functional again (that is the nurse in me talking). But the good news is... you will be good as new and it's not a horrible surgery. One of the ladies that works for me just had it a few months ago and was back at work lifting resident's in 5-6 weeks. She was back doing other things sooner. Remember, "this to shall pass".
Ruby_3rd, big hugs to you!! Anytime you are feeling low just come around and like the others said someone will listen or send a hug your way. We'll even cyber hold your hand through a dark time if you're having one. Pray with you if you want to pray, whatever you want or need we are there for you. Try to remember to take one day at a time and put one foot in front of the other. Many others have felt the same way you do now and are still around 10-15 yrs later or even longer. It's the miracle of the unknown. Blessings.
Pam I sincerely hope you are feeling better. It is terrible to get aches and pains or just to be down. Everytime I think of you I think of you being down there in Florida in the warm sunshine and sand on the beach and it makes me want to come visit you. LOL! I am a beach bunny at heart.
Renee
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Thanks for the good wishes, Renee and everyone. I do feel better, at least mentally :-)
Warm sunshine? For sure! Hot here today. I walk 2 1/2 miles every morning and I am going to have to start earlier. I live two short blocks from the ocean so often incorporate it in my exercise. Nice to wade in the shallow water and lots of interesting things to see. No oil so far! But we are on the NE coast so hoping it does not make it this far. Years ago it was common to get "tar" on your feet at the beach but not a problem in recent years. I still have an area rug that someone tracked oil across.. spent a lot of energy getting it clean. Don't know how the Gulf coast can ever be the same again.
My walking partner had rotator cuff surgery and did great! She is back kayaking with no pain. Best wishes, Abby.
pam
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Thanks everybody. I know I will get through it but I really wanted to start feeling good again and then this happens. I worry too much!
Pam, I do think you have a point. I think BC has changed my body and how I handle things now. I thought I was just being a big baby about my arm hurting. Sometimes just the smallest amount of pain like stumping my toe will send me into a crying spell. I think my hubby thinks I have gone insane. Just wait until I have that hysterectomy...lol
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Abby, That sucks big time...but at least it sounds like you will be doing cartwheels in no time..I too feel like this will never end..when can we get a break...we so need it.
Pam, would so love to live near the beach. It is my dream. Perhaps when I win the lotto I will get a place on the beach.
Rudy, Welcome to our little group. A sucky place to meet, but we are all in this boat together so we may as well hold hands and have a cybor drink. We all have super strong shoulders to cry on and it is a great place to vent and feel normal. I have never heard of your cancer type..has it spread or are you just scared like the rest of us? I feel like I live in fear every day. Every time I have a little ache I freak. It is hard not to.
Welcome back Mary Louise. I see you are in Ontario. Me too. Where is Norwich?
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Abby - sorry to hear about your arm. Sounds like you're getting good care for it, which is really good. In time, you'll be as good as new!
Pam - ahh to be able to walk in the morning to the ocean...that would be wonderful. Can I live vicariously through you?
Rudy - nice to meet you...sorry about the reason why! I think there might be a thread on bc.org for the type of bc you have. I recall seeing it in "Active topics" a while ago.
Mary Louise - I was [probably still am] a worrier, too. I really think cancer is either caused, or at the very least, is aggravated by stress. I'm really trying to live day to day and stay in the moment myself.
I'm taking a program at Wellspring, a local cancer support centre, called "The Healing Journey." It provides simple, psychological and spiritual tools to promote inner harmony, peace and healing. I originally went to Wellspring to sign up for their breast cancer support group, which was full. They suggested this program and I thought...why not? I liked it so much that I contnued on to part 2 (8 weeks) and will graduate from part 3 next week. I'm registered now for part 4 in the fall.
I'm zonked and am signing off now!
Sherri
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Good evening, ladies - just winding down the day and thinking about all of you. Rudy_3, it's nice to have you here with us. It is hard to carry the burden that we survivors bear. No one on the other side of the fence could possibly understand. So we have padded our side of the fence with lots of soft places to land and good friends to talk with - so keep us posted, will you?
Abby, better days are coming. Just get through this rough patch - you can do it.
Pam, glad you vented. I do think the meds we take are a strain on the system. Some of us seem to tolerate them well, and others really have to work hard at keeping going. I have one friend who says she argues with her Tamoxifen pill every morning. And there is sure to be emotional fallout when all of the dust from treatment starts to settle. Sometimes I think back on some of the harder days and it seems surreal - almost like it wasn't me who went through it. Maybe we begin the work of resolving all of the trauma once the intense treatment stops.
My ailment du jour has been cramping, and lots of it. Turns out I have a uterine fibroid tumor. Not sure I can continue on the medication. I am only taking 10 mg of Tamox. a day, and just can't tolerate much more. It has caused what feels almost like palsy- during phys. ther. for my back, my muscles are weak and hard to control. If you ladies listen hard enough, you might actually hear my a$$ dragging all over Dallas!
Good golly we've been through it, haven't we? I say we start a monthly award for the one who has triumphed over the most adversity. Abby, I think you deserve a virtual rhinestone bathrobe and lots of hugs. You are one amazing woman.
Every one of you is amazing. Lots of love to you.
XO, Mary
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Michelle - don't forget to get your Max ticket for tonight (you might be able to get to the ocean every week end!)
Norwich is pretty close to Woodstock (on the way to London) in SW Ontario. We can be at the beach (lake Erie) usually within 40 minutes, but not the same as Florida!
Edited for typos
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HI ALL
WELCOME RUBY_3 so glad you popped in for a chat ,and its also sad about your husbands condition ,does your son live close by? and are you close? big cuddles to you try to be positive but remember when you want a good cry or a vent let yourself go and do it and remember were here always .
MARY
Goodness what on earth is a ailment dujour ????? what ever it is i hope it gets better for you , the monthly awards sounds like a great idea , i don't think i would win any im feeling great even better then before diagnosed and I'm on tamox now, have been for around 3 weeks and no side effects just a few strong hot flushes but were in winter now so when I'm a hottie ill just go outside lol
ABBY one more thing to get through hang in there you can do it just a little hicupp
PAM im just around the corner from the beaches as well and i go there every morning with my beautiful dog we also have a dog beach were the dogs are aloud of the leash he just loves it and he jumps in the water for a swim as well, its such a nice way to start the day .we also have the bush right behind us and we get a few snakes from time to time they dont really bother me but i wouldnt say i love them .
THANKS ALL for the best wishes for my dad i told my dad that all my b/c friends sent there well wishes and prayers he said to thank you all and he said how nice and i said yeh they are a nice bunch of women
Take care all the best
JOJO,
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Mary Louise - my DH got our Lotto Max ticket already!
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I have my lotto max as well. I only want enough to pay off my hous and send my kids to school...
Jojo, dujour is french for of the day. So she means, ailment of the day.
Mary, sending special big hugs for you...oh wait is that your ass I hear grinding against hot blacktop? I hope you have some granny panties on to protect yourself.
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Abby ~ so sorry to hear of your shoulder problem now. Grrrr enough already !
Pam ~ glad to see you are feeling a bit better. Sunshine sure does help push those blues away. Hang in there ! Give yourself time ~ and hopefully each day will get a little better.
Renee ~ so glad your mammo was good ! woo HOO
Hugs to the newbie with the metaplastic bc. Try to stay strong and take things one day at a time. Sorry you had to join this club but there is a fine bunch of supportive women on this board.
Juanelle ~ so happy you are feeling good ! and 1 year off from Dr's ~ you go girl. Now that snake... yucky. I hate snakes and bugs.
Michele, Sugar and everyone ~ GROUP HUG !!!!!
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Alicia.... love the group hug!!!
pam
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Good afternoon ladies,
Rudy- Welcome to our group, glad you found us. We will listen and help you any way we can, these women on this thread rock!
Abby- big gentle hugs to you! I am sure in no time you will be good as new. Take care and keep us updated.
Pam- You are so lucky to be able to take walks by the ocean evey morning, What a calm serene way to start the day! I also want to live vicariously thru you
Mary- Sorry to hear about your cramping, what will they do about the cyst? Will you have a procedure to remove it? They found some of those in me as well when I had my D & C back in February, they also caused major crampage in my too. Hope you feel better soon!
Michele, Shelby, Alicia, Juannelle, JoJo, EPH, and anyone else I missed, love all of you and hope you have a wonderful day
Jen
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Rudy_3rd - I have just stumbled upon a thread called "metaplastic breast cancer" under the "Just diagnosed" heading in case you are interested in meeting more women with your diagnosis.
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It is the weekend! Here's to sleeping in, relaxing, and doing things our way for a couple days! (In theory anyway)
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Happy Saturday! Jumping in to say hi and send love. And yes, Michele, your hearing is on target. My patootey IS dragging on the HOT Texas roads today. I need asbestos granny panties.
Jen, my doc wants to play the wait and see game. He says if the pain reaches a level that keeps me from doing everyday stuff, then we need to talk about removing the tumor. He isn't convinced that the tumor is causing the cramping. We know our bodies, ladies. I did not have cramping like this even before chemopause. Did a sonogram right before I started taking tamoxifen, and there was no tumor. Three months later, I'v got cramping and voila, a tumor. Never had a uterine fibroid before. Hmmm, let's do the math. What's different? Tamoxifen and a new tumor. Seems like this is the cause, but I'm just the one taking the meds and living with the SEs - who am I to say? I need to spit out the bitter bug. It might just take a minute or two to let go of it.
Sooo - working on changing my state of mind. Thinking of puppies and kittens. Puppies and kittens, puppies and kittens.....
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Hi ladies I'm popping in to say happy Saturday afternoon. Sending love and hugs to all of you. I will be MIA for a few days I'm heading off to Nashville, TN. I have to go for business meetings... can you say YUCK! Sitting in a classroom all day from 9-5 boring! Anyway I will be back home late Tuesday night. Hope you all have a good week and I will talk to you all when I get back.
Renee
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Bye Renee-try to have a 1/2 a$$ decent time-it's a trip away, anyway.
Magob, Hope the puppies & kittens thought process is working becuz I think I'd be chawing on that bitter pill for quite awhile. Why do doctors think we don't know our bodies, we've only been with them for however old we are right? What you say makes sense to me. Back when I had periods & had horrendous cramps becuz I'd had one of those Dalkon Shield IUDs that almost killed me & totally messed me up inside. But I had to do the game with the doctors for 20 YEARS before they took out my ueterus/tubes/ovaries that were left. Each annual exam I had to have some new fangled test so that everything was documented that my GYN insides were melted together, etc. When they finally took everything out, my doctor, who had been a reluctant supporter (becuz I was so "young") came into my hospital room and reported on the condition of everything and said, "No wonder you hurt so bad!" Like DUH! What had I been saying? Uh-oh - here I go!!!!!!!!!! This topic can have me in a rant in no time! Sorry!
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Mary - will your doctor consider removal of the cyst by D&C? Given what you've been through with breast cancer, it would surely put your mind at ease if they would.
Renee - have fun in Nashville. Who knows....maybe you'll see some country music stars walking around (when you're not bored in class)!
I hope everyone is having a wonderful weekend!
Sherri
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Mary,
20 years ago I was experiencing terrible cramps and heavy bleeding with my period. Saw my GYN who told me I had endometriosis and I needed a hysterectomy. He wrote the diagnosis on a piece of an RX pad and I stuck it in my purse. So... had surgery. All went well but turned out I had a large fibroid tumor. The doctor told DH after surgery I did not have endometriosis... where did I get such a wrong idea! All the trouble came from the uterine tumor. DH thought I was an idiot (we had not been married long) until I found the note and showed it to him. ??? Anyway, the hysterectomy TOTALLY solved my problems and I never regretted it. I had been borderline anemic due to blood loss and just generally miserable. Now I think they can perform a uterine ablation if the tumor is not too big. Hope you can get some relief!
Just had a nice day... went to 7 yr old GD's dance recital. What fun to see all the dancers, little and big!
Enjoy a day of rest tomorrow!
pam
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Renee, sounds like it could be a good time......you never know...have low expectations and I am sure it will be better than you thought. You have to eat, so enjoy not cooking, you don't have to make your bed, and go ahead throw your towels on the floor, don't forget to jump on the bed...whhaahoooooo. Can I come too?
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Renee.. maybe the family will miss you and be really glad to have you back Tuesday night. For sure, we will!
pam
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I just joined this forum today. I was diangosed on in 4/17/09, my mom's birthday. I felt "cured" the moment it was taken out. I opted for bilateral mastectomy with reconstruction. My previous mammo missed this and I didn't want to rely on me to find my lumps. I was supposed to get four chemo treatments, but had a severe allergic reaction during my second treatment (couldn't breathe, passed out, twitching, slight seizure). My chemo was optional. i'm not on tamoxafin and extremely anxious about it. I've been on for almost a year (I started last August), but I'm just starting to get uncomfortable with it. My attitude has been very good, until recently with my tamoxafin fears, but I do keep plugging ahead. I'm training for a triathlon taking place in july. I'm racing with a group called Surviving Strong, if you want to look them up. for cancer survivors in the PA, NJ area. Is there a forum that talks just about tamoxafin? I can't find it. I'm new here and I look forward to meeting you all.
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i just reread my previous post and I AM ON tamoxafin. I didn't put in my dx, but i was stage 1, clear nodes, grade 2, 1.5 cm.
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Welcome giovannalouise! You'll find a lot of support from the lovely ladies of this online community.
Sherri
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