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  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Jan ~ such a great news, yay!

    Theresa ~ Thank you for your uplifting prayer, I will pass it!! And about anti-depressant.  I had tried many kinds before settling to Wellbutrin.  I was initially given Prozac, the stupid psychiatrist was all about his time clock and money.  I went into this office, sat down and the seat hasn't even warmed up, he's already finished writing a higher dose of Prozac for me, and out the door I go.  I reported him (BTW).  That prozac almost killed me (read my story a few pages back, and my gf had to do round the clock phone check up on me becos DH was out of the country and children were too young, and I was just having tremors like a drug addict needing drugs.  It was Prozac O.D.  Changed psychiatrist but had to try different kinds.  The different name brands I tried will instantly made my stomach quizzy and head ache.  Only Wellbutrin.  I got off it after 3.5 years.  And yes, it did help me concentrate better and happier.

    ~ back to my studies ~

  • prayersareanswered
    prayersareanswered Member Posts: 26
    edited October 2010

    hello to all

    i have not been here for a long time but my prayers and my thoughts were always with you. i thank God for leading me to this wonderful group, it is truly a blessing.

    I wanted to share with those who are in the DC area that there will be a healing mass this coming Friday (Oct 22) at 7.30pm at St Anthony's Church in Falls Church, VA.

    please visit the link healingministry.net if you wish to know more about it.

    May God bless all of us. Just remember: allow God to lift you, guide you, inspire you...and heal you. With faith in His will and the power of prayer, ALL THINGS ARE POSSIBLE.

    PRAISE THE LORD !

  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Prayersareanswered:  (I know I should know your name! -- See what I mean about my name memory?)  I'm so excited about the Mass at St. Anthony's.  Coincidence?  My DH was just there on business (he works for the diocese) and was telling me about the place on our commute. I had no idea the diocese had that ministry.  I'd like to attend.  Are you going?  Anyone else in the DC area want to go and meet up?  My DH and I will have to stick around town after work instead of commuting home if we're able to do it.

    Paula:  thanks for sharing about your Wellbutrin.  I was on that once before and kept plateauing until I reached a dose that gave me the jitters so I stopped.  Maybe I'll start taking it this weekend... still on the fence.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2013

    Well I know chemo/anesthesia  brain sucks big time. And we had 2 in the house at the same time. We made up 2 words one was SPLAT. Which was like a fall and you arms and legs are going everywhere. Well thats what SPLAT with the brain is. Your talking along and then your brain is all over the place, or no place. Anyways, It was our way of communicating that whatever we were talking about was gone. Easier and funnier than saying I forgot or can't remember

    Paula ---Good luck=====go gettim girl

    The other word was tourrettes. Hope i don't offend anyone. How we used  tourretes was to ===indicate that something that we had been remembering/forgetting/remembering/forgetting was being remember at that moment and had to be blurted out before we forgot it again. 

     L&H Sheila--------Stayed up way to late last night.

    Oh by the way found out today the brain tumors gone. Sure wish the Doc told me on Sept 17th, when she called with PET SCAN results. I picked up the CD today. It says it now is sclerosis---means scar tissue. Even though it is old thinking that meningiomas are related to trauma maybe mine was. Fell and went splat for real, a few months before tumor found and BC found. 

    janv --great news happy happy

    Apple we need to chat in pm , but to tired tonite.  Don't let me forget

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Hello Sweet Ladies,

    Seems there is some good news flying around? Sheila, congrats on your sclerosis! (cancer makes other stuff seem better.) Since Sheila brought up the words SPLAT, guess what I did today? Yup, SPLAT! I misjudged the high curb after my boss let me off at a stop light. Some really great person with the patience of a Saint was beeping their horn, which scared me. I splatted like no tomorrow all over the concrete sidewalk..of course on the arm at risk for lymphedema, then down on my chest/tissue expander. I had to be helped up (thank you nice respiratory therapist in training) and my things collected from another nice person. It took me a full ten minutes to sort myself out and convince myself nothing was broken, just bruised up. I forget how vulnerable I can feel sometimes worrying about preventing LE, and just how much I don't want to go near a hospital unless I have too. The funny part is (and I always look for that part,) is my boss, who is a fabulous Nurse and a Nun (I am lucky and she's so neat, more about her later...) didn't see me go down and I must have just suddenly disappeared out of view. Bye Traci!

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Jan,

    YEAY!!!!!!!!!!!!!! So happy for you, fantastic.

    Torigirl,

    My favorite character happens to by Eyeore. One of my best friends falls into Eyeore category...I just loved the book the Tao of Pooh..have you every read it? Anyway, all I could think when I read your post is how much your do merit and are just as important and special as anyone else. Take your time, and share when you are ready. We love you just the way you are. Your prayers for us are so appreciated. How are you feeling today BTW?

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Theresa,

    I loved your post, and really felt close to much if not all of what you said regarding this being a dress rehearsal. My mother's death from pancreatic cancer did not give me any anger...but I had deep deep sorrow and grief for about a year before it got a little better. I do think (alright from what I have read,) that we in human form suffer, but back in our soul form, there is love and understanding, but we are the ones who have the pain of separation.

    So speaking of depression, I have had much experience with this human condition, and Paula, it almost sounds like you had serotonin syndrome on the Prozac. This is a serious side effect that most people do not get, I have a friend who did, and it was awful. You could conceivably have the symptoms you had if you dose is titrated too quickly, or if you are sensitive to meds, but it sounded more like serotonin syndrome the way you described it.

    Theresa,

    I have been on Effexor in the past, and it's great for anxiety! That's been a strong underlying current for me, and it will keep you from getting all up in the fight or flight mode (your sympathetic nervous system.) They started recommending it a few years back at lower doses for hot flashes in women going through menopause, and so if you think about that getting hot, flushing feeling, your body just stops before getting all into that. I used to blush like there was no tomorrow under the slightest provocation, and was so thrilled when I was taking Effexor because this became so much better, and I was noticeably calmer around my co-workers at the time. (they commented on it LOL) So it should be helpful with depression too, and I hope it's a good match for you. I think there is a good chance it will be, as I think you have mentioned anxiety before? I still get the red face/blushing nowadays without provocation and am on Prozac. I am way past menopause due to my hysterectomy at age 35, and am not on tamox. yet it still happens. I miss the Effexor sometimes and think about switching back.

    There is one caveat, to keep in mind. Effexor can not be stopped abruptly without having some side effects such as tremors, and other "stuff" I can't remember without Mr. Google. This would be more about after you have started taking it regularly. It must be tapered up to start and then tapered down before stopping. Also, it can elevate some people's blood pressures, so it is important to have your blood pressure evaluated after you start taking it. At least that was the old protocol...it's been 11 years since I was on it. But beside that, I really am a fan.

    I hope that helped a bit!

  • janet in virginia
    janet in virginia Member Posts: 923
    edited October 2010

    Jan & Sheila - way to go girls!!!

    Traci - my mother died almost 10 yrs ago and I sometimes start to reach for the phone to ask about a recipe or something.  I so wish I had taped conversations with her - especially about family history things.

    So - here's my latest list.  NV, KS, AZ, DC, 3 VA, MD, NY, NJ.  Did I miss anyone?  Where else?

    Thank you Lord from whom all blessings come. 

  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Traci:  Oh my stars!!!! How are you feeling tonight after your fall??  I've fallen as an adult and it ain't no picnic and I know the disconcerting feeling afterwards.  Oh, to be a kid again and only have a bruised ego and skinned knee!  I hope you're feeling much better.

    And thank you so much for the advice.  I have anxiety, yes.  I also have high blood pressure.  My doc warned me about going off Effexor and if I do, I have to consult her on how to do it.  I have a blood pressure cuff here, so I'm supposed to monitor myself between visits, which I do anyway.  I think I'll start it on Saturday morning, since you and Paula gave such good advice.  Maybe I won't wake up so much in the middle of the night with hot flashes.

    Yes, my mother's death had a much more sorrowful effect on me and it was a good year or so when I stopped tearing up so much.  Holidays were the worst!  We were really close.  But as I've indicated before, I know she's around in a much better place helping her daughters and grandchildren and great grandchildren.  She never really recovered after my brother's death.  I think losing a child would be the worst loss.  She was only in her 30s when my father died... with 4 children, no job and couldn't drive!  Those were different days.

  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Tori - how are you doing?

    I had to laugh at the Eyeore nickname.  We have a fellow who works with us in NJ ... big guy ... and he walks around the office seemingly depressed, monotone voice, but if you ask him, he says he's quite happy.  His nickname is Eyeore.  His name is Tore!!  Laughing

  • mmm5
    mmm5 Member Posts: 797
    edited October 2010

    LAST AND FINAL DAY OF NOVENA (Invocation)

    God of power and mercy, you blessed the Americas at Tepeyac with the presence of the Virgin Mary of Guadalupe. By her prayers enable all people to accept each other as brothers and sisters. Instill justice in our hearts that your peace may reign in the world. We ask this through our Lord Jesus Christ, your Son, who lives and reigns with you in the unity of the Holy Spirit, one God forever and ever.

    Refrain O Lady of Guadalupe, pray for the Church in America and walk with us in the new millennium of faith.

    Our Father, 3 Hail Mary's and a Glory be 

  • mmm5
    mmm5 Member Posts: 797
    edited October 2010

    Good Evening ladies

    It has been such a pleasure to pray this Novena together and I just feel such a connection to you all. Jan I am so excited to see an answer to your prayers, thank you Our Lady. Also to let you know that Rose has indeed woken up from a nearly 2 week coma, and is beginning to have some movement on the right side, another miracle. I felt when I was praying that many miracles are on their way and we need to keep praying. 

    I have a favor to ask all of you this evening, I am not sure if I am looking for prayers, advice or just an understanding from those that have been through all of this but here go's........

    Through this breast cancer ride I have been up and down, I actually made it through chemo and year of Herceptin and 4 surgeries fairly well. It has been the "aftermath" that I struggle with most. My Onc's believe it to be the immediacy of menopause, as I was only 42 when dxed and had a lot of estrogen, now I have none. I have suffered all the normal stuff like joint problems but have experienced more specific ones as well, I have had something like sciatica off and on since treatment, when I first experienced it, it was hip pain going into my leg and sometimes burning and also like a tight band through my pelvis like a pulled muscsle it went on for months and had scans, MRI's and were all negative for cancer. I am still struggling with this symptom and it really drags me down, but I should tell you that any symptom scares me to death, I have had vertigo and balance issues that I thought were brain mets, joint probes, that I thought were bone mets, and a cough I thought was lung mets.... I am really messed up!

    Yesterday I woke up and I had a really odd reflux feeling and have been nauseous since then, and of course now I worry about liver mets. The bottom line is I feel in a panic about 50 percent of the time and I broke down in front of my Doctor today and said I just could not stand the anxiety. I want to wake up tomorrow and not feel nauseous so I don't have to worry about it and put it down to a stomach virus. Beyond everything else I feel a sort of fatigue that is hard to define and it really drags me down, and they say "menopause".

    I guess I am just venting and feel really at a loss that I am 2 1/2 years past dx and I still don't have much energy back and I am still a basket case.

    Ladies before all of this I was a thriving Mom of 3 working a full time Career flying all over the country 60 hours a week and still having time to do a lot of volunteer work.

    I don't know what to do, what to think, so I am sharing with you as I don't know who else to tell, they just would not understand.

    Thanks for listening

    Michelle 

  • janet in virginia
    janet in virginia Member Posts: 923
    edited October 2010

    Oh Michelle.  First, thank you so much for the novena and all the work you did to pull it off.  And, Our Lady heard every word, knows YOU were the spiritual lead.  And am sure she's working on Jesus for a few more answers to prayers - including yours.

    I think what cancer does to our minds is almost worse than what it does to our bodies.  The psychological stress on top of the side effects of drugs on bodies recovering from surgeries creates an enormous emotional & physical burden.  What did your onc say?  Assuming you're on tamox or an AI, maybe ask if you can switch to another one to see if that makes a difference? 

    Our Lady of Guadelupe, please stay close to Michelle, intercede with Jesus to ease these burdens and fears for our dear sister and restore her physical and mental health.  Amen. 

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited August 2013

    Michelle,

    I just wish I could give you a big gentle hug right now. I really appreciate your honesty about where you are. To be in treatment for a year is incredibly challenging. No one knows but you and your Sisters what it took for you to get through that year of chemo, as well as four surgeries. Constant pain and an abrupt change in your lifestyle and abilities can be so devastating.  The fatigue alone is enough without the rest. Working 60 hours a week in a full time career, and not having that life anymore, be it out of choice or circumstance also comes with it's own stress.

    We all have different ways of dealing with stress, and we all still have to deal with our bodies as they go through normal ups and downs as well as trying to interpret new pains and sort out what is worrying and what is not. It's hard to get sick isn't it? It can just nag at you, and your mind can easily take off.

    I have to be honest, and I don't tell a lot of people minus my counselor, but being triple negative gets me really down as far as being able to plan for the future, knowing it was 1 mm away from the chest wall, and well, they are high grade vicious beasts when they come. The one thing that really hit me hard was knowing how my mother passed, then seeing myself following behind. I go there, not every day, but I would be lying if I said I did not.

    These are very serious, tough, tough issues. They aren't kidding when they say a new normal. But there are things that may help you Michelle, and for me...it's my weekly counseling sessions, my support groups and planning a few new activities that are offered to me because I have had cancer. I feel like Marsha Brady..sign me up! Anti-depressants are part of my day as well. So, if you don't already, (I'm sorry I cannot remember,) would you consider working with a counselor that specializes in survivorship after cancer/breast cancer? Do you have a support group that you go to, or are perhaps interested?

    We are here to listen Michelle, and it is terribly difficult. Please don't beat yourself up for not being where you think you should be emotionally. I am hoping that physically you can get in a better place, and I am going to noodle on a few things and PM you about the musculo-skeletal stuff as that has been my specialty (have mucho.) Even if you could get a jump on some of this pain, you might start to feel a bit better overall.

    talk to you soon, the dog is looking at me again.

    and happy happy news about Rose. It may take awhile for her brain to heal, but that's also the good news. I will pray for her. My father is still disabled, but we have a great relationship. Head injuries can take a few years to see where a person will get to in recovery. But that also leaves a lot of leeway for hope.

    Traci

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Theresa,

    Thanks for asking...I kinda got myself good. I am going to stay out of the water tonight and not push the arm too much. This is a good reminder to be more careful! Your mom losing her husband and losing her son must have been just devastating for her. I know so much the grief you speak of, as I too would tear up and cry at night. It was so hard to go throught this without her.

    Janet,

    I too so much wished I had tapes of my mother's voice. I once listend to an entire tape front and back of an olympics hockey game my father taped, praying to hear her once more. We do have one video that has my mom on it I am told. My father has it, and I have yet to see it. I think I am strong enough now. Maybe this XMAS :)

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    Theresa and Traci,

    Thanks for checking in on me!  Day 4 and still chugging along.  I sat around most of the day and worked on Halloween decorations that I want to get up this weekend (along with staying hydrated, rinsing my mouth, staying up on eating, napping,  etc) ...Got pretty into it until I cut a small part of the tip of my finger off with the scissors I was using...YIKES!  Didn't know a finger could bleed that much! Prolly had my finger over my head and applying pressure for at least an hour...craziness!  It finally stopped bleeding, but now just throbs and it kinda hurts to type...I"m just a mess, aren't I? :)

    Traci, sorry to hear about your "SPLAT"...believe me, been there and done that too many times!  I've always been a clutz..and pretty much just fall for the "sport" of it..often times just tripping over my own shoes or not making that "invisible" curb when I seem to get to it...Many times, I jump right up and yell to whoever is around or can hear, "I meant to do that!".  Even if there is no one around, it makes me feel better about it all...Most of the many times I've fallen, I"ve been sober, so can't even blame a few cocktails...oh well...it's my signature now, I guess!   

    Michelle, thank you for allowing us to be a part of the novena with you.  Thank you for all your effort to make sure that we all had the chance to pray with you...It has truly brought me a feeling of comfort...I know it has for all of us...

    Peace and prayers,

    Tori

    DE COLORES! 

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Tori!

    Your finger! Keep an eye on it, K? Good grief, we are a pair today aren't we? So you are clutzy too? LOL! Today I was even beyond the laughter, just got all quiet. But funny in retrospect, as all of my wipeouts are :)

  • Estepp
    Estepp Member Posts: 2,966
    edited October 2010

    JOYCE/HOOD Thank you for posting about our newest.......

    Sue... thank you for you offer.

    I pray for you all here, and on BCO daily.

  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Michelle, I echo the others and want to thank you for leading us in the NOVENA.  Your prayers are heard.  I agree with Traci, you may need some counseling and maybe some anti-anxiety meds to help you over the hump.  Maybe your diocese has a family services ministry that can recommend a Catholic or Christian counselor.  You can shop around for a good fit.  I had a great counselor for 3 years while going through separation and divorce, then graduated to a priest as spiritual director.  My DD had some horrible counselors.  You had a year of chemo?  That would take a lot out of you.  I am still having SEs from a month and a half of chemo 6 months ago.  I described my problems to my PC who did blood work and then put me on vitamins and D3 and told me the benefits of Effexor, which I haven't started yet.  She said it would help me with my menopause-y symptoms.  I feel like I've aged 20 years since starting treatment.  My bones just scream at me.  The balls of my feet hurt so bad.  The aftermath of cancer just lingers and lingers.  I don't remember my Onc being too sympathetic.  It was my PC doctor who took the initiative to give me relief.  Your PC should be able to work with your Onc to get you feeling better.  Yes, fatigue too.  Just ragged out, like a rag doll.  I was never as energetic as you were, but I swear my body feels 20 years older.  The vitamins have helped me feel better, but not all symptoms are gone ... esp the bones.  It's like a lighter version of the bone pain I had after my Neulasta shots.  So, yes, the aftermath of cancer, physically and mentally has taken a toll on me too.

    Tori:  You sound great!  Despite the finger incident.  You sound like you're handling the chemo very well.

    Traci & Janet:  About 6 months ago, I found a tape that I made YEARS ago when my Mom and Aunt Dot were still living.  I did an Oral History interview of their life and times growing up in Richmond.  I was just diagnosed, had surgery, chemo, so I was emotional anyway, but hearing them tore me apart.  I still haven't finished listening to it.  I will one day though.  I'm so grateful that I have it.  I'd like to figure out how to make CDs from it and share with my sisters and cousin.

  • torigirl
    torigirl Member Posts: 748
    edited October 2010
    file:///Users/Ricco/Desktop/Vicky/Jesus%20laughing.bmp
  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    One more good news....I PASSED MY EXAM ~ YAY !!!!!!! (my prayer's been answered too!)

    Jan, Sheila, Tori ~ Yay to all of you.  Tori, please take care of the cut!

    Traci ~ oh sweetie, how are you after your spill?  I had to had my knee x-rayed when I fell real bad in my kitchen 8 years ago.  I almost hit my face at the edge of the island counter.  

    Michelle ~ I know we all have gone throught that thought.  In fact that was the reason why I asked my med onc. for a bone scan, I even have my low grade fever and ringing in the ears and virtigo every time I turn my head to the right.  I told him that I am worried about mets and that's when he wrote the referral for a PET scan.  I got the scan but realized that they did not scan my brain.  I am also in constant worry like I'm a hypochondriac.  Please know that you are not alone! 

    {{{Hugs to you all}}}

    God Bless!

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    PAULA

    Congratulations!!!!!!!!!!!!!!!!!!!!!! We have had three pieces of good news today, isn't that wonderful?

     I am so thrilled for you Paula, what an accomplishment, and you went into the test brave and ready to give it your all.

    Thanks for asking how I am doing. The pads in my hand are swollen beyond their new normal, so I am not in a super great space in my head. I feel like today I am a breast cancer patient that fell. I don't even get to do that anymore without repercussions. I admit I got scared..I was thinking about seeing a PT anyway because of the pads in my hand having swelling...I honestly don't know enough about it not to be scared, and enough to be scared if that makes sense. So I will just have to be with this. I pray it will be better tomorrow, and I will keep it elevated. Do you mind saying a little prayer for me? You have one for every need, you are a great reference.

    Again, I am just thrilled for you.

    Traci :)

  • apple
    apple Member Posts: 1,466
    edited August 2013

    I went to a real Novena last nite. My husband goes every Tuesday and always asks me to go.  I prayed for my brothers and my sisters here.

    Being the oldest of 8 orphans is a challenge.  I have 2 brothers in their 40s with leukemia/lymphoma.  My youngest brother did chemo about 6 years ago.  He told me yesterday he had been coughing up blood.. He's never smoked or drank.  He was in peace corp for 10 years and got malaria... came home and was diagnosed with leukemia.  He is going to join a religious order by the way.. hopefully.  That was mind numbing..  poor George.

    My other brother is brain damaged.. a very functional autistic spectrum 51 year old adult with OCD issues.  I am taking him to a new primary physician to see about getting him on some meds for the OCD.  He was vacuuming the whole street with his lawn mower.  He has raked every house on his block and piled up the bags.  He has piles of washed to go containers inside his house to give to the poor.  Here is a link to something I wrote about him a while back.. he is a real dear.

    -----------------------------------------------------------------

    from my John Notes file... 2005

    "

    I spent Saturday with my brother, John.  He was born 16 months after I was.  When my mom was just about to deliver, the nurses pushed his head back inand gave her a drug to slow the contractions.  When he was finally born 10 days later he arrived blue with a cord around his neck.  It was determined when he did not learn to talk,  that he was brain damaged altho we consider him part of the autistic spectrum.  He needed constant supervision as kid... he would walk off the porch, run away or do something socially unacceptable like take off his clothes, so I was his constant companion.  He could count and build things.   I'd set him up with sand, tinkertoys or blocks.  He would build a building or count the pieces.  He learned to talk around age 5, got into a special education class and revealed a marvelous aptitude for mathematics and memorization.  He literally knew every baseball statistic he ever encountered and could do complex computations.. multiplying 6 digit numbers by 4 digit numbers in his head.  He somehow graduated from college and got a job with the post office.  He looks normal and seems to speak normally but he has a Jerry Lewis aura about him that is very unusual.

    My mother sold her 5500 sq. ft. home and is moving officially into her small bungalow on Monday along with John.  Saturday I helped my brother pack the things in his room.  He's an odd one - a very obsessive compulsive type.   He saves things just like my mom.. all the prescription bottles he's gone thru,  all the toothpaste lids he's owned..  every receipt for every thing he has ever bought - neatly categorized and shoeboxed, spreadsheets and computer printouts itemizing expenditures by category.  I am trying to throw these things out without him knowing.

    He is a very Christian man, taking to the heart the teachings of the gospel.    He grows spinach, corn and tomatoes for soup kitchens, mows the lawns of the poor elderly for free, and volunteers at a soup kitchen.  John has probably grossed $500,000.00 in his career at the post office,  and has probably given $400,000.00 away.  In his closet were 10 shoeboxes of thankyou letters.  Many of the letters were from missions in central and south America, Africa and New Guinea..  Hundreds of the  letters were handwritten. 

    "Dear John,  Thank you for the 50 dollars.  My wife had not been to the grocery store in 3 weeks.   We've been hurting for a long time and are touched by your generosity."

    "Dear John,  Thank you for painting my house (big sister Mary interjecting - "I wonder what it looked like").   Your friend Mrs.  Sweeney".

    Every year John does a thing called the Crop Walk.  3 months before the event, John walks the neighborhoods of Kansas City searching for sponsors to sponsor him per mile.  3 months after the events he walks to the their houses and collects the money.. every penny accounted for.  The Walk I think, is probably 20 miles.. John walks it twice.  The top donating person under John usually brings in about 100 dollars.. John somehow collects about 7000.00 a year.  Every year they try to schedule a television interview with him.  He says he'll be there but skips out to go collect the money.

    He was really angry with me yesterday.. He owns about 500 board games.. They are all the same but he multiplies the components, so that Monopoly for instance, will have doubly populated neighborhoods and a bank of 5 million dollars.  His games are a big problem because they really won't fit into the new house.  He doesn't want to donate them because they are not finished.  I kept breaking the rubber bands he has saved for 20 years to put around the boxes when he moves because they are so old.  "Please Mary - be gentle with the rubber bands.  They are my pride and joy."

    I somehow got all his stuff over to the new house.    He just called my up to ask me where the receipts for the spinach seeds were.. He has called me 5 times today about those silly seeds and their receipt."

    ----------------------- July 2010

    i had him come over for dinner.  I told him that now that he was on his own he'd have to watch his manners.. and he did.  People watch him eat and turn away because he is sooooo very slurpy.  He said he was in trouble with the post office for going slow.  He was going slow because he wasn't sleeping good because he missed mom.   Frown

    However, he seems suddenly very clear thinking and open minded.  I took a picture of him after dinner. this is probably one of the best pictures i have of him.  It helps that he had a REAL haircut to match the suit we made him buy.  (I think my other bro orchestrated that so his new girlfriend wouldn't be adverse to him).  he usually freezes/cheeses up for the camera, makes a funny face or just looks off into the near distance.  

    I am the oldest of 9, John is #2.  All the younger siblings have a totally different perspective of John.  They found him horribly embarrassing while they were growing up.. and rightly so.  John is the type who would go up to a mother with young children and ask if she was breastfeeding..  We still have to keep an eye on him.     I have to teach him about getting stains out of his clothes and not touching his shirt while eating.   

     mr. apple will be fine about taking care of John if I pass on.  I've taken care of both his parents in their dotage and failing and also his Down's syndrome brother.   He's a loving, giving man and very devoted to family.  

    We are really family challenged at the moment .  I have been feeding my husband's  father (and his brother 4 days a week) for 10 years now.  Suddenly at 92, Grandpa is rapidly deteriorating.. He can't walk over any more.  (He managed to renew his driver's license tho on his birthday.. but a week of deterioration has gone by)..  I better go see to him.  My kids are taking this all in stride fortunately.   (since I wrote this Grandpa has died).

    My brother who will soon go on chemo to treat his lymphoma leukemia seems to be doing well.  (I sent him your 'post' Sheila.. he said he is ineligible).

  • SmilingSpirit
    SmilingSpirit Member Posts: 16
    edited October 2010

    Apple, I'm not Catholic, I'm an evangelical Christian but I like to look at all prayer threads. Your last post has both moved and humbled me.  I can't believe what the nurses did to your dear brother John but I suppose they falsely believed that was okay at the time, but it's still crazy to do that (push the head back in?).

    You are one of the angels on earth and I pray that you live a long, happy, fulfilled life. You are an example to all of God's love on earth. Bless you, bless you, bless you, and may God bless your entire family.

  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Welcome SmilingSpirit!

    Apple(Mary):  I'm speechless.  You are truly blessed AND truly a blessing!  Thank you for sharing.

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    Good morning sisters,

    Moving a bit slower today..feeling kinda worn out and bit grumpy, (intestinal issues have been quite bothersome as of late) but I will be heading out for my morning walk soon and will be saying my rosary and lifting you all up in prayer once again...I am honored to be able to do this for all of you.... 

    Have a most blessed day.... 

    Tori

    DE COLORES! 

  • mmm5
    mmm5 Member Posts: 797
    edited October 2010

    Good Morning WONDERFUL Ladies-

    I so appreciate your posts last night, Traci, Tori, Paula, Theresa, Janet....you are all so kind and warm. I lost my Mother when I was 6 so have never felt like I had someone to bare my soul to except God, Husband (depending on the day hee hee). I have many friends but just don't get bc, no one does not even Docs just those that have been through it. I took a xanax last night for the first time in months last night, got a good night sleep, woke up feeling nauseous still but my Son did too, which makes me think stomach virus. Still something in my chattering mind is scared of something ominous. Is it not sad that we have to waste so much energy and great moments of life worrying about this stuff. I actually do see a great therapist weekly that helps quite a bit but still have some mini breakdowns. Anyway I am glad I can share my fears here.

    Smiling Spirit so nice to have your here stop by often, Traci I hope you woke up feeling better this am. i am sorry you deal with the worry too, I know trip neg is hard I truly understand and pray you can come to peace with that. If you have time go back and pull the posts from NoniJones, a TRUE angel on these boards and she is over 20 year survivor of trip neg similar stats as yours.

     I am sooooo thrilled about our miracles since praying to our Divine Image of Our Lady, Paula, Jan, Rose.....the miracles just keep coming and lets lift our hearts in gratitude. Lets pray for our same list of intentions on Friday as I think more miracles are coming I just feel it. 

    TORI take it easy ....drink so much water and remember to take naps, I used a meditation tape to relax me and visualize myself and my body building up and recovering, I did it for one hour every day and was so worth it. My thoughts and prayers are with you.

    I have such a warm feeling for all of you here and will keep you close all day in my prayers and heart. 

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    Good morning Sisters, (this is the First of my posts today, more will come...)

    Today is St. Paul of the Cross

    (click link) See St. Paul of Cross

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    Prayer of Thanksgiving !

    Gracious and loving God, you command us to pray for what we need but also to thank you for what we receive. 

    Make us ever thankful for the gift of human life and for new life in Christ our Savior. 

    Make us grateful for his personal choice of us, for the heavenly home he has destined for us, for the companionship of his Blessed Mother and of all the saints and angels, for his personal presence in our tabernacles, for Christian friends and relatives to encourage us, and for his persistent call to holiness.

    Blessed be the name of Jesus, now and forever. Amen!

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited October 2010

    prayers from Pennsylvania for my bc sisters! xo

  • janet in virginia
    janet in virginia Member Posts: 923
    edited October 2010

    Apple - I just want to give your brother a hug!  What a sweet, sweet soul !!

    Lovemyfam - I'll add Pennsylvania to my list.

    Michelle - I think a few more miracles are coming too!  Just saw in another post this morning about a breakthrough blood test just announced (I think it's still in study mode) that can detect a recurrence way in advance of current blood tests.  Keep those research breakthroughs coming!!!!

    Tori - think your Halloween project is just the thing for this week - just stay away from scissors!

    Look for God today in the little things & take some joy & peace from that!