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  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    SmilingSpirit ~ a warm welcome and I hope that you'll stay and post.

    Apple (Mary) ~ what a wonderful story, thank you for sharing it. We will add John to our prayer intentions. You are a kind soul and may you live long to help others :)

    Tori, Michelle, Traci  ~ prayer sending your way to gain strength, remove all bad feelings and heal from inside and out.

    Sheila, Theresa, Janet, Betty, Jan, Laura, pagowens, patsmom, LFMSM, Hood1980, GeeWhiz ~ morning prayer already said for you sisters too!

    Monika, Ellie ~ haven't heard back from you, hope you are well.

    ** I will edit this post later, I think I forgot someone and will check the names. (sorry)

    *** For the past month, I feel that this group has grown to trust and share our personal story, I know some of you by first name and some still use the call sign.  Would you like to share your first name so it will be easier to do the prayer intentions? (just a thought).

  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Paula:  Congratulations on passing your exam!!  What a load off your shoulders! Smile

    Thanks for sharing St. Paul of the Cross. :-)  I do the Daily Office and noticed that your webpage's patron feast days are different from mine... but same week.  IOW:  We celebrated St. Paul of the Cross yesterday, and St. Teresa of Avila earlier this week.  I love reading about the lives of the saints and their writings.  It's like reading Apple's story. :-)  .... reading the words of ordinary people doing extra-ordinary (saintly) things.  They inspire me to try and do good works.

    Michelle: I second the motion to pray the novena intentions tomorrow night.

    Yesterday must have been "clutz" day for the three T's on this thread.  I read of Traci's tragic fall (and I hope you're doing better today, Traci!), and Tori lopping off the tip of her finger  (how is it today?), so this T went to take a shower last night and hit my toes so hard I thought I was going to black out from the pain!!  Jiminy Crickets!  All I could think of was what am I going to do if I fall in the shower and can't get up?  I was upstairs where no one could hear me.  Nothing broke, but with my sensitive feet still from chemo and/or tamoxifen, the pain last night was definitely an awakening experience!

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    Oh Theresa!  It's friggin' amazing how much a toe can hurt, isn't it?  Gee, hope you are coping okay today girl!

    Finger is oka todayy...want to take  off the bandage and let it air out to scab over, bit it creeps me out to look at it... Still putting Neosporin on it with bandage, but will have to be brave sooner or later and let some air get to it...

    peace, love, prayers,

    Tori

    DE COLORES! 

  • kindone
    kindone Member Posts: 435
    edited October 2010

    Good afternoon Ladies, so many posts I love it.  I know we are all being watched over and our prayers will be answered.

    Paula Great job, I knew you would do well just knew it.

    Apple, thanks for sharing, I will keep you and your family (John) in prayer

    Jan, Praise the Lord, Good news.

    Tori keep hanging in there!  We are with you.

    Michelle, I know how you feel about the future..This is how I feel.  I was dx about the same time as you 6 mo before. When I got dx stage 3, my sister passed away 4 mo into my treatment from BC.  I know all about anxiety, I suffered from panic attacts all my life, up until about 10 yrs ago.

    I just got my kids raised and started to really live my life and then BC, now I live my life between scans and blood every three mos.  Every time I have to go for a scan, I have a breakdown waiting for the results to come in.  To make matters wrose my TM have gone up slightly out of the normal a few times.  So scans again (All negative that is why I  I believe  Jesus is with me.)  I truly believe the stress and anixiety in my life was a cause of my BC not what I eat.

    Any way I live from minute to minute now.  Do I always eat right NO, Do I exercise like I should no.  I work in a hospital and any on my feet running all day long the last thing I want to do in go to the gym and get on a treadmill.  I also take Armosin and it makes me hurt to say the least.  I take pain med daily.  So I diner out with family and friends go to the slots and even have a couple glasses of wine. Right now I don't want to lose any more time not enjoying life.  I just don't know when the other shoe is going to drop.  I watched my sister go fast.  I hope you understand what I am trying to say.  I feel guilty sometimes but I just want to be normal.

    Soon I will be going in for a reversion on my breast implants get them bigger and more even.  Then nipples I am 54 yrs old what do I need nipples for! LOL  Sorry I am so scattered in my thoughts.  What I know for sure is I truly believe in Jesus and I know God is in control.

    Betty

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Betty ~ thanks for your post today (and other posts too that kept our thread alive and well). Praise God!

    I feel that we are definitely becoming closer and closer to each other.  Almost everyone is sharing stories that we would normally just keep inside of us.  What a wonderful and caring group here.  I'm mostly smiling as I am reading and tearing up when there is something more serious and sad.  We are all so different but yet we are all the same in sooo many ways :)

    and that's why we are so supportive of each other.  We are like a mother ship in the middle of the ocean, there are days when it is calm and sunny.  Then there are days when it is a bit rocky BUT we are all here to hold each other close and be supportive.  I even want to say something funny....I used to wonder how people can find each other on Match.com or anyone finding their true love over the net.  Now I can sense how it is, I got the same warm fuzzy feeling here.  I feel so loved and cared for by each one of you! 

    I really hope that WE WILL BE ABLE TO DO A SPIRITUAL RETREAT TOGETHER!!

  • prayersareanswered
    prayersareanswered Member Posts: 26
    edited October 2010

    You ladies are just so GREAT ! I cannot come here very often but everytime I come, I feel so blessed. thank for being YOU all !

    Theresa, yes I plan to go to the healing mass tomorrow. We should definitely meet up there. Any other Northern VA folk out there who would like to join ?

    God bless you all

  • geewhiz
    geewhiz Member Posts: 671
    edited October 2010

    Nipples are in my "to be dealt with "pile as well LOL!!! Its funny how priorities change. I have a wonderful husband, who hasn't seemed to miss them and just wants me well. I will get around to picking up a pair somewhere!!

    Thanks for the prayers ladies, you all are in mine daily as well. I am still fighting some low bloodwork and heart scans and they postponed treatment this Friday. My scan and bloodwork today hopefully will be better.

    Speaking of praying to Our Lady...where is that field around Ohio that she appears in lights? I have  goosebump story there too! I want to go there now...seriously. I can't seem to find it in google though. I might call my friend who experienced it.

  • Estepp
    Estepp Member Posts: 2,966
    edited October 2010

    Paula, congrats! How awesome to Be moving on in life in the middle of BC... so, so many of us cannot.. GREAT! I prayed for each of you and it feels so good.. Stay upright sisters!

    A BCO lady and Vegas TATA just found out that the spots on her back...bone... are cancer. The MRI is saying so at this time. She will have a biopsy soon to give the 100%...or 0%. PLEASE storm heaven with me that EBANN does NOT HAVE METS.... God Please....

    Father, You have always been my go to.. I have had a personal relationship with You all my life. You have saved me so many times in my life, and I thank and Love You! I ask that you free EBANN from her cancer. You said, ask , in My name, and if you believe... you will have it. I believe You and only You can allow these spots NOT to be cancer. I believe. ............Father,if it is Your will. Amen,

    Judy L. is going to be having her mastectomy and recon. soon... then she will begin Chemo. I pray she does not have cancer in her nodes.....

    A woman named Debbie died from lung cancer. She was one I asked for prayer from you all quite some time ago. Rest in peace Debbie......

    The lady with Multiple Myloma will be starting treatment asap... please continue to pray for her.

    I am glad I have a notebook JUST for us cancer patients/survivors... WOW..... Our Father sure believes in us and loves us.

  • nonijones333
    nonijones333 Member Posts: 71
    edited October 2010

    Hello, Ladies, guess I heard you calling Michele. Need to get up on my podium again. First get out the Beads we need to stand firm and know that there is a devil and he likes to keep us down. The Bible tells us to PUT ON YOUR ARMOUR, we have a spiritual battle going on in this world and we must not let down our guard. Last week Michele you were being attached by that women who was trying to take away your joy and here you are today starting to dought that you are going to be just fine. Those aches are just caused by anxiety. I have had hip and leg pain for years, didn't you say you are a runner??? Well I must tell you I started to take Condrodents (not a very good speller) I purchased at the health food store, well thought it was a bunce of bunk, not so. I feel FANTASTIC. Take 4 a day and I'm good to go.

    Ladies did you ever notice when you come here to this place how you feel peace...well you need to stay here and STAY AWAY FROM THE DARKSIDE OF THESE BOARDS. I tell you you are going to hear the bad side of breast cancer but please, please remember there are so many more good sides. I am a 24 year survivor and know many many women who have survived this desease.  I joined a support group back 24 years ago and all of them are still around and kicking. Do you think there going to waste any time coming here...when you come here and hear only BAD STUFF and you start believeing that every little pain is the same pain that that other women had and now she has mets. Let today be the day that you are not going to look back and look at all the BLESSINGS that JESUS has for you. Put your trust in Him and He will direct your paths. Ladies, God answers prayers, start asking for Him to send you Peace and a Blessed assurance that you are going to survive and to go on and LIVE a fruitful FULL LIFE. Oh, how I wish I could wrap my arms around each of you and tell you it's going to be okay. Just the other day on the Today Show, when they announce those birthdays for 100 year olds well  one of the women said she had breast cancer when she was a young girl, can't remember how old she was but I think she mentioned that she was in her 30's. My neighbor when I was a young newly-wed had breast cancer with multiple nodes back in the 70's, she is old now and I love to ride by and see her in her garden....how many stories I could tell...these are the things you need to focus on.

    Apple, thank you so much for sharing your beautiful story. I was so touched by it, you are a very special women and your brother is amazing. God gives us all purpose in life and what a true blessing you and your brother are.

    FATHER, please hear the prayers of your Saints, grant us the peace of knowing that you are always with us and that you do answer prayer. So many suffering in both body and minds lead them to a place of rest, make your presence known and strengthen us in faith that we may continue to live as an example of YOU.

  • jan508
    jan508 Member Posts: 724
    edited October 2010

    Nonijones:

    What an inspirational post!  You have made my day!!!

    God Bless You!!

    Jan508

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Thanks Laura.  And yes Nonijones, we CANNOT give up!!!  Thank you for your affirmation.

    And yes I watched the Today show, Hoda is also a BC survivor!!!

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    Nonijones33,

    LOVE hearing from you!  You inspire to me to keep moving forward on this bumpy road I'm on.  I know eventually it will become smooth again...

    Peace, love and prayers,

    Tori

    DE COLORES! 

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited October 2010

    Feeling the love sisters!! xo

    Somos el barco, somos el mar,

    You navego en ti, tu navegas en mi

    WE are the boat, we are the sea

    I sail with you, you sail with me

  • mmm5
    mmm5 Member Posts: 797
    edited October 2010

    Yeahhhhh

    NoniJones is the BEST, listen to her ladies she has helped me soooooo much on these boards and she is right about everything. I am so glad you stopped by, I just mentioned you a few pages back and then you appear, I think you are probably an angel of some sort because you always know when to step in and what to say. Ladies I have had 3 such angels on these threads that seem ...well like angels and I met them all through this thread. They don't all post a ton, but when they do it is real, genuine and inspirational.

    I am Thanking God today for these angels, Laura (estepp) Noni Jones, and YATCOMW (Jacqueline) Love all you three ladies, really truly and am sending prayers for you and your families today. I included you in the Novena and just know you have offered many blessings here.

    I hope Traci joins soon to read NoniJones post as I had written to her about her before.

    God Bless all of you today, and many thanks for you very gracious ladies of this thread. 

  • mmm5
    mmm5 Member Posts: 797
    edited October 2010

    I wish there was a way to access this thread and only see the Catholic thread and not the others, it does feed my anxiety and I will tell you that many that started with me 2 1/2 years ago on the Her2 thread have moved on and don't hear from them much anymore, the good news is I think every single one of them is FINE

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Traci ~ I found this healing prayer per your request earlier....how's your palm and everything else? We will lift you in our prayers.  Please update us.  {{{Gentle Hugs}}}

    For Healing
    Lord, You invite all who are burdened to come to You. Allow your healing hand to heal me. Touch my soul with Your compassion for others. Touch my heart with Your courage and infinite love for all. Touch my mind with Your wisdom, that my mouth may always proclaim Your praise. Teach me to reach out to You in my need, and help me to lead others to You by my example. Most loving Heart of Jesus, bring me health in body and spirit that I may serve You with all my strength. Touch gently this life which You have created, now and forever. Amen.

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    Michelle,

    I know what you mean...Most of the time, I log in and hit "My Favorite Topics" as soon as I do so I don't get myself crazy with everything else going on...

    Does that make me terrible?  I hope not...

    Peace, love, prayers,

    Tori

    DE COLORES! 

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Tori ~ I hope you are feeling better by now :)

    I do the same thing when I logon and B-line to My Favorites, and to this thread.  Why does it make you terrible? Not at all.

    Hope your finger is better too!!! 

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    Paula...

    I'm on day 5, so I"m hoping the worse is behind me for this round...I always say by day 7 or 8 it should be getting better...so only a couple of days to go!  :)  I still have to be careful days 8-12 because WBC is down, (I will go for labs on day 10, Oct 25th) but I'm a hermit while husband is gone, so I should be okay!  :)   God willing...  :)

    How are your treatments going Paula?

    Peace, love and prayers, 

    Tori

    DE COLORES! 

  • janet in virginia
    janet in virginia Member Posts: 923
    edited October 2010

    Noni - I'm going to print your post and put it on my nightstand!!   God bless.

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Tori ~ thanks for asking.  I'm going for #6 rads today (27 more to go).  I have a swollen L underarm and not sure what it's all about.  I had an accidental bump by DH's arm as he was trying to hug me last week.  I cannot be sure if a bump like that can cause swelling?  Or could it be from the rads?  Rad techs were not helpful when I asked them on Monday.  I think I will see Rad Onc. on Thursday, so I will give you gals an update. 

  • mmm5
    mmm5 Member Posts: 797
    edited October 2010

    Paula what is your regime of chemo? I cant tell from your signature if you are Her2 or not.

    Hope you are doing ok today! 

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Michelle ~ I didn't need chemo, just 33 rads and Tamoxifen for 5 yrs.  Rad onc told me to stop Tamox a month ago. 

    I told my DH last night, my L armpit definitely felt swollen and I didn't complain much after surgery, and no pain medication at all.  So this is a weird thing for me.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    I will begin with Apple, as it feels like I have been to Church as I read through the posts today...

    Apple,

    I wish I could capture the words that would fully express what I felt when I read your story. So many things, all at once. Thank you for seeing John for who he is. My father, who had a brain tumor now exhibits many of the OCD behaviors very much like John. I love my Dad from head to toe, and know not to throw away even a twisty tie. We would often have to fight with him to come inside when he would become obsesses with the weeding (I DARE a weed to try and coexist with My Dad anywhere in our lawns past...) Don't even get me started on the pruning. Mom would look out and her bushes would be about a twig and a half after Dad's pruning sessions. I tended to laugh, where she yelled. Then Dad and I would laugh together :) So, I hear your love of John and your family. You have been a rock for them all. I thank you so much for your story, and you are quite the writer!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2013

    Paulaaaaaaaa------------YEAHHHHHHHHHHHHHHH.

    Sqid-Traci BOOOOOOOOOOOOOOO. hope all body parts are feeling better. I have weak ankles from post polio , other joints too, but the ankles cause the falls. I have uncounted-- several dozen because of ankles. The last caused a closed head injury which lead to my disabilty and not being able to work as a nurse. UgHHHH. Sucks. But what i said about potential relationship to meningioma. Well Igot the phone call from a nurse, who said dr____ wants you to know you have a brain tumor. My response was "Well when the shit hits the fan" .WE were walking out the door for the BX that we new was going to be positive. BX was positive. I was honest with the boss AND immediately relieved from work. That is one of the reasons I am such a big believer in appying for social security disability on day one. Had no idea what that head injury or brain tumor meant. I went into complete denial. It'll be okay. Well no it wasn't okay. I lost my career over it and it was an on the job injury. But I wouldn't do workmens comp. Idiot. ----son home --talking time, Love to everyone, be back sheila----Florida someones keeping track?????

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited August 2013

    Sheila,

    I am so sorry you lost your career, as I can tell you were a most excellent bedside Nurse. I do, however, think you have so much to offer with education/teaching. Be it Nursing students, or patient education. It could be written, or developing curriculum, but I believe once a Nurse, always a Nurse, and I know we both grieve our former selves. We should life each other up to help us stay active and contributing until we leave here. Would you consider writing an article for a Nursing mag that talks about your journey with BC from a Nurses perspective, or the importance of empowerment for patients, or any or the hundreds of other topics you know a lot about?

    I realize this is a bit "Nursey,"  but I write this after reading NoniJones post...and I think it's incredibly important for us to foster our passions and make plans for the future. I have shied away from future goals, and maybe that's not the best tactic as far as breathing life into life :)

    and PS'SSSS, I am sore and my range of motion is a bit compromised for now. But, I used this as a push to get that prescription for LE evaluation, and found the clinic's expert PT in LE is giving a free demo/lecture next Thursday, which I will take advantage of. She is great according to all, but my friend has been paying the majority of her 200.00 per session fee, and she requires the patient to submit to insurance, so that's a huge barrier for me. I am terrible at submitting for reimbursement for myself, but will take the freebie any day :) I learned about the little LE I had before the fall from the wonderful photos posted in the LE thread. I would not have known without those. So far it's still in the pads of my hand, and worse since yesterday. I will pray it stabilizes and recedes with a few days of healing. Thanks all for you thoughts and prayers (Good one Paula!)

    And as for you Theresa, oh my gosh, that must have hurt so very much. Neuropathy toes hurt with a gentle stub, so I felt for you when you told us what happened. Hopefully the three T's had their day, and it's upwards from here.

  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Noni:  I'm so happy to "meet" you!! What a wonderful post and so true.  I try to stay at my favorite threads.  Just joined one on exercise motivation b/c I really need something/someone to help me along.

    Traci:  I'll say a Chaplet of Divine Mercy for you tonight with your swollen hand.  I pray all will be well.  Paula, I'll include you in that too with your swollen armpit.

    Geewhiz:  I haven't heard of the Ohio apparition.

    Betty & Michelle: I've walked with some form of anxiety and panic since I was in high school.  To the point where I wouldn't leave the house or drive from one town to the next.  The mind can do such horrible things to us... but it can also overcome.  After 3 years of counseling and further spiritual direction from a good priest (no drugs), I was able to come out of it, by the Grace of God!!!  I still have some anxiety and am not comfortable in crowds, etc. but prayer has taken me a long way.  Meditation.  Peace and all good.

    Paula; I had to chuckle at your Match.com comment.  My DH and I met on a Catholic singles website.  I had no intention of getting "hooked" up with another man b/c the men I had been dating after my annulment were just too much and my two kids were teenagers.  My DH was living in Idaho and I was in VA, so I figured he was safe... we'd write to each other about faith and family and life from a good 2000 miles away!  Well, we fell in love with each other and had to meet, so he flew out to meet me and the rest is history!  My step-father had just passed away (cancer) and his father had passed away a few years before, so I think those two got together in heaven and put us together. :-)

    Prayersareanswered:  The website says Friday night, not tomorrow.  Am I confused?  St. Anthony's?  It would be great if we could meet up....

    http://www.healingministry.net/services.htm

    DD (works for the Red Cross) took an instructor's class today and wants to practice on me and DH, so I'm off to be a student.

    God's peace to you all!  Keep the faith!

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    Good evening sisters,

    I wanted to say I had an uneventful day - NOT!!! I got to my 3:30pm rads appointment on time and I was told to wait a bit.  Only 1 lady in the lobby so no big deal.  At first I thought my rad tech was just chatting and I was just sitting and waiting.  I have lots of patience so it's ok and I wasn't in a real hurry.  So I was called in at 3:45pm and went directly to change.  Saw about 2 - 3 men there (not the normal working techs) and I was told there was a problem with the machines.  Well I changed quickly and was right by the entrace to the rad chamber (the dungeon) when the Asian man (Korean as a matter of fact) spoke in some very hard to understand English to one of my rad tech.  Then I laid on the table and I asked if he's one of the doctors? She said "No", he one of the physicist tweaking the machine because it had a problem.  Just when she was saying it, the Asian man walked behind the curtains where the controls and the monitor was.  You see there are 2 surveillance cameras pointing towards the table.  I told my rad tech, why is the man walking towards your station, and she thought that he was behind the curtain, the 2nd tech said, "no, he walked in front of the curtain and he's right there".  My rad tech had the nerve to say he was just tweaking the machine!  @#$%^ - what the !

    I was getting mad as I was getting the tx, as I know that monitor is "clear" and can see everything.  I did not like the fact that a machine technician is watching ME.  I was just getting furious and when it was all done, I moved my arms back down and covered myself.  I usually leave it till they open the door and come in before moving around.  And when the my techs came in, I told the 1st one, she was just as stoic as can be, then I told the 2nd one, no apologies.  I wonder what they are going to feel like when their ta tas are wide open for anyone who passes by the monitor to see.  When I was talking with them the 1st time about scheduling my appointment I was even told not to stand close to it.  Gee, I do feel so slighted!!! I am truly upset up till now. 

    Ladies, who will you complain to?  Seems like this company has so many centers that there are days that there are no doctors around.  It is purely run by the techs.  I don't even think voicing it out would make any difference. 

    p.s. I talked to my sister on the phone and she couldn't understand why I was upset.  I had to spell it out to her, "that if she's half naked and laying on the table, she would feel vulnerable like me as well".  What's so hard to understand? 

    That really sucks.  Thanks for listening!

    p.p.s  Thanks Sheila.  Thanks Theresa for the prayer !

  • janet in virginia
    janet in virginia Member Posts: 923
    edited October 2010

    Prayersanswered & Theresa - not sure I'm up to it this week but definitely planning to go to the Nov. healing mass at St. Mary's.  I looked at the St. Anthony website and for some reason the priest's name sounded very familiar to me.  Please tell us all about it.

    Theresa - maybe there's still hope for me!  Somehow my knight in shining armor hasn't arrived yet.

    This is totally random - but I think the doctors need to lighten up.  Always so serious.  When the first onc I saw last week was talking about Aromatase drugs -- I said I would much prefer aroma therapy.  She got this strange look on her face and then finally laughed.  Thought you'd get a chuckle from that:)

    Time to head to the 2nd star to right and straight on til morning!  Wishing only sweet dreams in God's loving arms to all tonight!!  

  • Estepp
    Estepp Member Posts: 2,966
    edited October 2010

    Noni.... you are an angel!  THANK YOU FOR HELPING MMM... so much!

    Michelle.. mmm..... I will read your email soon... right now, I am doing all I can to  keep up here ( which I like to ) . I cannot believe you put me in your angel group! I hope you read and read/read the scripture I sent you forever ago... I read it whenever I need to BELIEVE.... ((((((((XXXOOO))))))))) I pray for your future ( business) ...

    NVDIANE........ a long time sister her on BCO and a fellow Vegas reunion goer... needs prayer. He mother suffers Dementia/ Alzheimer's... and it is getting bad... it breaks her heart and she need prayer. Please ladies.. offer one up as your read this... XXXOOO