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  • hood1980
    hood1980 Member Posts: 168
    edited November 2010

    Thank you all for the prayers & uplifing words of support.  My MRI is scheduled for next Wednesday & an ultrasound needle biopsy the following Tuesday on 30 Nov.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2013

    I have completely undone all my work of the week.---oh well

    Go to the stupidiest things people have said to you and look for my post re PUBLIX's ---have no idea why I could cut and paste to there and then not to here. . Just as well, Not appropriate to this site.

    Hood --good spirit and love for what you are going through in case Paula can't C&P what I wrote her in a PM.

    I tried C&P on that and it didn't work?

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    Good morning sisters,

    Sheila has asked me to cut & paste this on this thread...(see below)

    Paula you are such a good person. Well it hasn't been easy without Steve. He's been good about calling everyday. Sometimes twice. They are keeping him very busy . Theres the day work and then there into season for night stuff.

    The first thing I associate with sitting at the computer is a cig. Starting aromasin today. I have to get off norvasc. Cigs have an affect on my BP. So I have cut drastically, but it means not doing the things that lead to smoking. So, I tried no cumputer first. It has worked majorly. I am trying to cut to a half dozen a day. Going to bed earlier. Other things to , but the computer ist he biggest problem. I think, I smoke., I write. 2  fingers, and hold a cig.

    I do really miss Steve, I felt if I had him another 2-4 months, I would have been better off.  But the opportunity was too great. But he was here for the worst of it. Plus he's only 2 1/2 hours away. but I have his dog so any trip I take, I will have to make arrangements for the baby. I have friends and cousins and brother all over the state , but there is only 2 places I can take the dog with me.She's 65 lbs.

    I finaly returned one stack of stuff to the safety deposit box. I could have had everything done long ago, but have done a Scarlett O'hara too many days.

    Great work on your friend. I still would like you to consider talking with the elder abuse people. You can do it anonymously at first without names to see what the processes are, so, when you are talking with the nursing home folks you KNOW what Aspasia's rights are and what your rights are. That knowledge will let you drop into conversation phrases ,that they know, you know she has rights.

    Please trust me, they are appearing to be trying to do the right thing now. Talk is cheap without action. They can be saying they are doing the right thing and doing nada. Ask for the portable phone to be taken to her bedside. If they say they don't have one they are LYING Or in the dark ages. When patients in the NH start making random phone calls, they take their phone away. ASk what kind of roomate she has and if she can't be moved if this is the case. The more you ask the right kind of questions the better care she will get. For example. Is her roommate a screamer? And random phone caller. GET HER MOVED. A screamer will drive "A" crazy.

    If A's a screamer then it could be pain. You have that covered , but if that was the case and her pain is now controlled--move her if she's in the screamers end. She needs to be moved NOW. Had a dear aunt whose first night in a NH was on a wing with several screamers---I didn't know it. 2nd morning she had been so, terrified she was babbling. They had moved the screamers by the time I got there. Did I raise helllllllllll. That's when they told me about moving the screamers. I brought her there completely incontrol of her faculties AND next day her mind was addled because of fear. Yes that could have been because of stroke, but it wasn't. Pure fear. They assumed she was addled because they didn't know her. If I hadn't been there to INFORM them NO she wasn't. I have no idea how they would have treated her. She was ok within a day 1/2.

    If you are not getting the right answers please report them. The staff will not retaliate. In fact "A" will get better care because the staff will know they are going to get reported. Drop in conversation that it might be the best thing to have the Agency on Elder Abuse come in an evaluate the situation because you can't do it long distance and you would feel more comfortable with an outside person making an assessment.

    Make arrangements with the reporting agency that you are to have access, even when a guardian is assigned. In fact ask to be assigned as co- guardian.  OR Person with special privelege because you are the one that identified that she was not being given the care she should have been receiving. Keep talking until you get what you want. It can be done. If they say no. I do have a cousin whose a lawyer in OSHAWA. It's not is speciality, but who cares he puts his name on a letter with JD after it, they will sit up and take notice. Please cut and paste this to our board , you never know who might have the same problem and they don't know what to do.Of course, wait until Squid gives her opinion.

    DEar dog , still wakes me up at the same time DH got up to go to aquatics, except now we are on daylight savings time YUG.  Dh had't gone to Aquatics in 1 1/4 years. 

    Theresa_after what you have been through ---skip was heaven sent

    Squid---your spirit knows no bounds

    I'll loose my post if I try to respond to Hood---maybe I can c&P. Prayers for dealing with your new challenge. Perosonally I do believe simply because of family history- Off with both. But our family history ought to be seriously studied. 21 women 12 with cancer. The men have gotten off easy. several of the uncles with CA, but only one of the 22 male cousins---total uncles 3 + 1 ==4  --7 uncles and 22 male cousins=====sounds like a huge research analysis probability-----no one cares.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited November 2010

    Theresa , your response that effectively, covered your whole life was such a heartful story.It was so great that you could break the cycle of being attracted to the wrong type of man. I'm still young , at 60, the odds of finding someome like Greg that is healthy is small, that would except my hx of bc is small. It makes it some what easier since the brain tumor is gone. Doubly wammy-----run.

    What I'm still dealling with a lot is every day was based on our love . We had so much fun . we planned each action to please the other one. Now I don't care about anything. It's hard to even eat/ I cook no meals. I eat peanut butter, cheese and crackers. Thankfully we instilled good eating habits and cooking creativity in Steve, but now i don't care. I know all of you are going to jump all over me. But thats just it, Greg and I were so joined , The only thing that is keeping me moving is the schatzi.. I have returned to the church because of the priest that entered our life. 

    When I was a young one, the priests that were so instrumental in my parents life were often at sunday dinner.  Perhaps I should ask father tony to come to sun. dinner with several other folks and it might get me going . maybe ....not quite ready yet. 

    I loved those years when my parents did it, they were all festive, now matter what time of year.

    Thanksgivinging is coming up for the last, 30 years it has been at our place either in OH. or FL. now I don' t want to do it.

    I know you all going to jump in with prayers and support --- I pre bless your action.  May the Immaculate Heart of Mary bring support and solitude and strength for  my weaknesses at this time, and a belief of relief. 

  • theresap60
    theresap60 Member Posts: 849
    edited November 2010

    Sheila, when you're ready (and you may need for force yourself at some point), try to become active either in the church or community.  You are so smart and so loving and have so much to give!  That will help you to come out of mourning.  And yes, I will pray heartily for you! :-)

    When my kids were young, I would invite the priests over for dinner.  We all loved it!  The priests really enjoy coming to your home and hanging out, relaxing.  If you have nuns in the area, you can reach out to them too.  Many of them are far away from their own families and love the feeling that they're part of your life/home.  One of the priests came was stationed at another parish in theh diocese when my daughter was married, but came to her wedding to co-celebrate with the parish priest.

    That's one thing I'm going to do at the St. Elizabeth's in Colonial Beach.  Invite the priests to our condo for dinner and chat.

    Traci - the whole rosary lesson is posted on the Catholic Prayers thread.  We say, In the name of the Father (touch the forehead to keep the Father on our minds), and the Son (touch the breast bone to keep Jesus in our hearts), Holy Spirit (left shoulder, right shoulder to keep the Holy Spirit breath of life all around us), Amen.  Some of us cradle Catholics were taught to kiss Jesus on the Crucifix at the Amen.  You do the sign of the cross at the beginning and end of the rosary.... the lesson should say that.  You'll give them all a surprise at Thanksgiving!! :-)

    Speaking of signs of the cross... did you know that at the beginning of the gospel reading at Mass, after the priest announces the gospel reading (i.e., Matthew), we do tiny signs of the cross with our thumbs on our forehead, our lips and our heart?  You say internally, at each cross, May I take the gospel into my mind, proclaim it on my lips, and keep it in my heart.  Just a little Catholocity for your day! :-)  (I don't know if that's a word!)

    Hood = Joyce - ok, I should know that!!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited November 2010

    @&*

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited November 2010

    theresa -- the signing of the cross== that you have just described-----i do not remember being taught.

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited November 2010

    Theresa ~ when I do the mini sign of cross with the thumb (horizontal "across", then vertical "Up and down", I was not taught saying "May I take the Gospel...", I know I say as I am doing the 3 mini sign of cross I'd say "Glory to you Lord".

    Sheila ~ Theresa is right, you will take your time to allow the grief to subside, and you're right that we will be praying for you :)

    Please know that Greg is always with you and if you are not taking care of yourself, he will not be peaceful or happy. 

    And as your BCO sister here, I'd like to encourage you to start eating proper meals :)

    {{{{{{{{{{{{{HUGS}}}}}}}}}}}}}

  • janet in virginia
    janet in virginia Member Posts: 923
    edited November 2010

    Sheila, you're dealing with not one, but SEVERAL major life events at one time - no wonder you've lost interest in cooking/eating.  And, you already know all of this - but nutrition is just as important as all the meds and essential to withstand all the meds!  Do you have a Wegmans or something similar near you?  They have great take-home meals.  I've been alone pretty much since the kids went to college. And it's no fun fixing dinner/eating by yourself but you have to do it.  My son is back living here because no job when he graduated and he's in grad school.  As much as I'll hate to see him leave when he is finished, I want him to get started with his own life, find a career, etc.  And, I think that was part of God's plan - to have him here during this diagnosis, surgery, etc.  I'm sure it was the same for your son.  Anyway - back to food.  You will find comfort in good meals - when my son is gone for weekends, I'll fix something that lasts a couple of days (roasted chicken or something).  And, I love fresh veggies.  You can't fight cancer off without good food - and you need to be here for your son!!  So, even if you don't feel like it, do it for him:)    My aunt is 84 and lost my uncle about 10 years ago.  They didn't have kids.  She was devasted at his loss.  But now she still fixes herself complete breakfasts, even homemade soups for lunch, and dinners that are gourmet compared to what I fix!  Her joy in life is taking care of about 12 feral (wild) cats that show up at her back door every day. She feeds them and has named each one!  Goes to concerts with friends, senior lunch group, etc.  Life may be different but you will find joy again with your own interests.  God bless. 

  • kindone
    kindone Member Posts: 435
    edited November 2010

    Ladies, I will not be able to make to nights pray.  I am going to say my prays now for all of us.  I have to go to a school fund raiser.

    Theresa,  I was saying my prayers with my 2 yr old grandson and he was holding his rosary.  Well he kisses the crucifix and I had to laugh, I said who showed you that, he said Aunt Meme (my sister).

     Good night sisters, have to get my prayers in before I leave.

    Betty

    g

  • theresap60
    theresap60 Member Posts: 849
    edited November 2010

    That's interesting how differently we've been taught through life about the little gestures, etc. :-)  And I wasn't taught by nuns in a Catholic school! LOL  Like Betty's grandson, I must have been taught some traditions by family or reading or something.  I thought everybody did it!

    You know, I had an idea while reading Janet's note to Sheila.  Sheila, you said you and Greg used to cook together.  Maybe you can put a big 8x10 photo of Greg in your kitchen, on the counter, and cook together, talk to him... yeah, it might sound crazy, but it might be fun too. :-)  And that's a great idea about the hot food from stores like Wegmans or Harris Teeter... complement it with a salad.  I can understand not wanting to fix a big meal for just one person.  Maybe you and Greg can make a pot of soup and freeze it into containers.  Homemade soup sounds really good right now.

    Good night Betty --- thank you for praying... God hears every one of us.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2013

    I'm here and  not well.. I have been awakand by schatzi at 5: 30 am. that sucks evrey time I try to sleep until she wakes me. I love her , but i am tiered.  She so wants to hunt . This reallly only showed up in the last month, She's 3 /3/4 years. Putting in a fence, at extreme cost----------can't loose all three.

    Dear God Help in this time of trouble ---Take from me the fear--give to me the faith to conquer what I have to face

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Hi Sweet Ladies!

    Sheila, I am so glad you have posted more today, and understand that this is a trigger for you. I am worried about you, and Paula and I had shared a where;s Sheila in PM expressing our concern. I am so sorry that you are having to go through this. You and Greg were such a blessing to each other, and I let out a big awwww when Theresa suggested you putting a picture of Greg on the kitchen counter so you can cook with him. Do you talk to him as you go about your day? I know you think of him most of the time, and I am sure he looks after you Sheila. Tonight, I would like us to devote our prayers to you and the healing of your heart.

    Since we haven't talked about it, shall we come together the old fashioned way until we get a consensus on how best to pray?

    Betty, you have probably already gone to your grandson's fund raiser, but I know you will be with us in spirit :)

    Theresa, I thought you did all of the Rosary in the Prayer thread. You and Sheila have REALLY make that thread so wonderful, (and other's too) I am tickled that there is a way to easily access the info.

    So I will check back in a little bit to see who is "around."

  • Estepp
    Estepp Member Posts: 2,966
    edited November 2010

    Hood....... I see now that the Biopsy is  a week from next Tuesday. I pray you have peace. Love you!

    Sheila... I hope you are ok.. your last post did not sound good. I have been praying my little heart out for all of you, I will be here tonight in prayer.

    Love to all

    Laura

  • theresap60
    theresap60 Member Posts: 849
    edited November 2010

    Yes, Traci, I'll be here the old fashioned way at 10.  I'll find the evening hymn for tonight from liturgy of the hours.

    Yes, praying for Sheila - peace of mind, body and soul.

    I've been packing and am really sleepy.

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited November 2010

    Good evening all,

    I now have 2 more regular rad tx and 5 boosts.  Yay, counting down!

    Remember I asked if we should try out the Chat Room and I got an email from the Chat room administrator?  She said to go ahead and do our prayers there, the room is called : STAYING CONNECTED.  All you have to do is go to the very top of the page, you will see the word DONATE, it is to the left of it.  Click "chat room" and then another sign in area will come up.  Use your current log in name and password and you will be granted the access to the chat room.

    Choose the room called : STAYING CONNECTED.  It's very easy.

    Do we have a consensus to go there tonight at 10pm EST?

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    i'm willing to try....but you must lead all of the prayers (smiling) How will I be able to see the prayers without getting logged out of the chat room?

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    If you open another browswer, you can actually sign in to the chat room and also come back to Discussion Board.

    I use Mozilla Firefox browswer to get into the chat room.  

    If you log in, we can see who signs in there.  No one can "lurk" without being seen, so that's a good thing.

    Just "high-light the Staying Connected" room and ENTER ROOM.

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited November 2010

    You can see the prayers by switching the browser screen.  You will minimize one and get the other or print the prayers out.

  • janet in virginia
    janet in virginia Member Posts: 923
    edited November 2010

    I'm here and here is my byop...

    Lord, You invite all who are burdened to come to You. Allow your healing hand to heal me. Touch my soul with Your compassion for others. Touch my heart with Your courage and infinite love for all. Touch my mind with Your wisdom, that my mouth may always proclaim Your praise. Teach me to reach out to You in my need, and help me to lead others to You by my example. Most loving Heart of Jesus, bring me health in body and spirit that I may serve You with all my strength. Touch gently this life which You have created, now and forever. Amen.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    I'm hanging out here for a minute until we sort out  if the others are good with the chat room, and if we will be able to access our prayers?

  • mmm5
    mmm5 Member Posts: 797
    edited November 2010

    I am here with you ladies!

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Janet,

    Your prayer is gorgeous.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    so ladies, do you want to go to the chat room? stay here? Paula posted the how too's (Paula I don't have a printer :(

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited November 2010

    Do you want me to post the usual prayers here again?

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Theresa is joining us I believe...

  • theresap60
    theresap60 Member Posts: 849
    edited November 2010

    Evening Hymn for Friday, Week I

    When, in his own image
    God created man,
    He included freedom
    In creation's plan.
    For he loved us even
    From before our birth;
    By his grace he made us
    Freemen of this earth.

    God to man entrusted
    Life as gift and aim.
    Sin became our prison,
    Turning hope to shame.
    Man against his brother
    Lifeted hand and sword,
    And the Father's pleading
    Went unseen, unheard.

    Then in time, our maker
    Chose to intervene,
    Set his love in person
    In the human scene.
    Jesus broke the circle
    Of repeated sin,
    So that man's devotion
    Newly might begin.

    Choose we now in freedom
    Where we should belong.
    Let us turn to Jesus,
    Let our choice be strong.
    May the great obedience
    Which in Christ we see
    Perfect all our service
    Then we shall be free!

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited November 2010

    Beginning of the Prayer Meeting

    We have gathered today to pray together, that we may grow in our understanding of the mystery of faith and follow God's path ever more closely.  (time of silence) [ the leader of the group will say the following] Lord, pour out on us the spirit of understanding, truth, and peace. Help us to strive with all our hearts to know what is pleasing to you, and when we know your will make us determined to do it.  We ask this through Christ our Lord. Amen.

      

    Memorare

    Remember, most loving Virgin Mary, never was it heard that anyone who turned to you for help was left unaided.  Inspired by this confidence, though burdened by my sins, I run to you for protection. Mother of the Word of God, do not despise my words of pleading but be merciful and hear my prayer. Amen.

      

    A prayer for Cause/Cure (by JanetinVA)

    Our Father in heaven, thank You for this day and for all of our many blessings.  We know miracles and healing come only through You.  We pray for a cure for the terrible disease cancer.   Please, dear Lord, guide the hands of cancer researchers all over the world.  Open their minds to understand the mysteries of cancer so they may discover the cure in Your name.  As You have taught us, we believe with all our hearts that You need only say the word for this to come to pass. Amen.

      

    Prayer to Saint Peregrine

    O great St. Peregrine, you have been called "The Mighty," "The Wonder-Worker," because of

    the numerous miracles which you have obtained from God for those who have had recourse to

    you.  For so many years you bore in your own flesh this cancerous disease that destroys the very fiber of our being, and who had recourse to the source of all grace when the power of man could do no more. You were favored with the vision of Jesus coming down from His Cross to heal your affliction. Ask of God and Our Lady, the cure of the sick whom we entrust to you.

    (Pause here and silently recall the names of the sick for whom you are praying)

    Aided in this way by your powerful intercession, we shall sing to God, now and for all eternity, a

    song of gratitude for His great goodness and mercy. Amen

      

    Prayer for Healing

    Lord Jesus, You are my physician who comes from heaven to heal me. Help me to resolve to put all my trust in You alone and to patiently undergo my treatment. Lord, You can uproot and heal my sickness and ease my fears. I ask You please for my healing. Amen!

    Closing Prayer

    May the Lord bless and keep us. May He make His face to shine upon us and be gracious to us. May the Lord look kindly upon us, and grant us a lasting peace. Amen

      

      

      

    End of prayer meeting

    Through this meeting Jesus himself has spoken to us. Since our task is to conform our lives to the Word we have heard, let us raise our minds and hearts to God, praying that he may guide us through the Holy Spirit and give us the power always to do what is pleasing to him. (a moment of silence and say The Lord's Prayer = Our Father).

    [then the leader says the prayer of blessing with hands joined]

    We thank you and bless you, Lord our God. In times past you spoke in many varied ways through the prophets, but in this, the final age, you have spoken through your Son to reveal to all nations the riches of your grace.  May we who have met to ponder the Scriptures be filled with the knowledge of your will in all wisdom and spiritual understanding, and, pleasing you as we should in all things, may we bear fruit in every good work. We ask this through Christ our Lord. Amen.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Why don't we do it here, for tonight, then we will have a plan in place for next week

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited November 2010

    ok, I'm here.