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It's a quiet night tonight, so I'll just send a quiet little reflection & prayer to everyone. I was thinking this morning that despite all the turmoil going on, I've been at more peace the last few days - a sign all our prayers are working? It kind of reminds me of Christmas Day. It's my favorite day of the year. Have you ever taken a walk on Christmas? I swear I can actually feel "peace on earth" settling all over the world. So, tonight, Lord, send us the peace of Christmas to calm our worries, heal our bodies & renew our spirits. Amen.
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Amen.
Lovely Janet. I'm so glad you are feeling more peaceful. I am waiting for my laundry to finish, then I am off to the pool where I am swimming under the stars. I look up and think about my mother, the ladies here and where we are all at in our journeys, also friends and family. I float even better now with the TE's and bigger butt
so I get that same lack of sound that we have after a snow. Peaceful, and kind of like Christmas. Blessing to all here, and to Jan. May Jan have a peacful night, may her pain be well managed, no nausea, and be able to drink some ginger ale. I pray she had good news, and that she knows we are all right by her side in spirit.
God Bless you all,
traci
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I'm feeling fatigued the past few days, but I'm standing by you all!
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Diamond... You and I both! I am happy and healthy.. but fatigued.... BUT I know it is because I take way to much on, in my life. Such is me.
I hope you all feel peaceful and ok. I pray this for you... ALL!
I have grankids... and I SO know who spongebob...is..LOL.... I LIKE the name Squidward!... OOPs.. I mean Squidwitch....HEHE
Jan... you have been in my heartful prayer... I want you to be healing comfortably and emotionally doing ok too.
The night before my surgery... I raged... like I never had before. I screamed at the top of my lungs.. for HOURS. It was one of the worst days of my life. After I got home... I felt real good. I do great with surgery I found out.
What I don't do well with, is loosing body parts that I loved so much.
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Please dear Jesus, watch over my sisters and me, help us to know your will and to follow it. Please help all our sisters cope with whatever will come before us. I love you so much Jesus thank you for all thatyou do for us. Amen
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Amen,
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Ladies,
There is a thread on BCO called
WHAT IS BCO WORTH?
It was started by our KATE33..:)
This is BCO's TENTH year...
I wanted to post this for all to see... if you can give any kind of donation... BOY...this is a GOOD THING! BCO has been here for all of us..... and hopefully will be here for ladies who come after us. They have PAYPAL.... and Kate posts this in her heading.
Let BCO know... how you thank them.
Laura
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Paula and Laura,
Wishing you both a restorative sleep.
lovemyfamily,
I liked your prayer, thank you.
good night all
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Good morning sistas! (my 2nd time typing this post, the first one just went poof and was gone)
I bought some Catholic prayer books and received them yesterday, very happy with them. Read some last night and had a decent sleep and didn't wake up groggy. The infection site is still sore and am worried. Been on antibiotics since last Friday night, will be patiently waiting for it to kick in and work.
Thanks Squid and Lovemyfam and others for the continuous prayers here. In the prayer book it talked about praying in the morning, 3 o'clock and evening. Have a suggestion, since we all live in different time zones and have jobs, why don't we just volunteer to pray any one of the prayer slots (whenever possible) and it will be for the whole group here. We can get a chain prayer going and we can do a chart. My home is quiet after the kids leave for school, and evening after they are in bed (but I'm in the west coast time zone). My 3 o'clock is often very chaotic and quite impossible (I know I need to make my best effort).
I'd like to hear your feedback. If it's a "GO", then I can volunteer to type up the prayer and email them to you.
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I say GO!! xo
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I am in!
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love it!
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I'm game for whatever schedule - probably evenings are best for me.
Is there a standing Friday night group prayer time? I was too tired to stay up for it last week.
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Janet,
It would be great to have a standing Friday night, and the time is completely flexible. We can weigh in on what would be best for Fridays. I'm good from 7 PM on Eastern Standard Time/
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Goody, I'd still like a.m. for Fridays.
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Hello ladies, I post on the other thread, but I would love to join your pray chain. I live in NY so Friday evenings are great. Please just let me know.
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I am in for Fridays as well
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I am in... I can take the dreaded 3pm... it will do me good to have a SET ASIDE time for prayer. I pray ALL DAY LONG... but I need to set aside time.. for ONLY prayer... not just while I am driving or in Church.. or in the tub..etc.....
Let us know how this will work.. and it sounds like many of us here are on board.
The lady I told you about with multiple myloma... is not starting treatment until oct.11th. She is waiting to get to Ark. as they are #1 in the USA for this treatment. Please continue to pray for her...
another prayer I am asking for.. one CLOSE to my heart...Her name is KAREN... she used to be very active on BCO,,, and they found a 11mm mass on her lung. She is NOT stage 4... but if this is cancer... she will be. THIS IS BREAKING my heart.... God, please do not let this be cancer....
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Laura
There are some days that I can just get so down about this stuff and today is one of them. I have been depressed all day. My hip hurts again it is off and on and just when I think it is gone it comes back strong (Hormonal therapy SE), then I just can't get past it and I kind of hide out for the day and don;t see the beauty in the day ...then I get even more mad at myself, then I come on here and see many women dealing with so much fear and same feelings as I...then I see your post with wonderful women having to worry again about mets and chemo ..some days it is just too much and I want to be away from all of it.
I will take time in prayer tonight and pray for KAREN, (God hear our prayers) let them find some other cause for the nodule on her lung. and for the lady suffering multiple myloma may she have the best treatment available and may her mind and soul be filled with hope.....AMEN
I continue my novena for all here and your special requests!
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awe MMM... I would have come over and hung out with ya if you lived closer...:(.. but.. we all don't live closer. So... in Gods perfect way.... allowed this site to be created.. so we can ALWAYS be next door. PM's are good for this... remember that!
Depressed and fear... anxiety.. horrid feelings. I pray.
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Thanks Laura
Do you all go through a lot of peaks and valleys with the after math of BC, I could be feeling so great and healthy and energetic then go through a week of misery and sadness and fear. Also get to the point where I feel no energy and tired as well. For Petes Sake I am only 45 and have young children and I can barely move around after 6 pm. I am so faithful that God is Good and yet I get to these dark places and have to climb back out.
Just sharing with you all as I feel I can here!
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mmm,
I am sorry it's so tough for you right now. Pain is the ultimate form of distraction and disability. Trying not to show it, or push through it can zap even the strongest. Is there anything you can do to address the pain? Please don't suffer needlessly, I really speak from the heart on this. Pain is also extremely exhausting and isolating, as you already know. I will put you in my prayers and this will be daily.
My answer to the questions do we all go through peaks and valleys...yes, but I am 6 months post chemo, 4 months post rads and have a thyroid issue that needs to be treated. I think you are further out? Have you have had any recent blood work? (thyroid levels, electrolytes (including magnesium,) vitamin D and calcium. I would really try and rule out something medical. The thyroid can be a tricky little buggar, and there are also other things like the epstein barr virus (mono is one of these) that can zap a person. chronic fatigue is finally being recognized as a virus as well. Anyway, it might also be worth a check with a rheumatologist, and a naturopath if all bloodwork is normal. I'm not the one to talk about nutrition, and I am trying. Maybe there are some supplements or foods that may help give you some balance.
I am not on hormonal therapy, and I see you related your hip pain to SE. I have read a lot of posts regarding side effects while on tamoxifen and arimidex. They certainly seem very unpleasant. At any rate, please don't be so hard on yourself. You are allowed to be human, and I really understand withdrawing. I'm pretty good at it, and I know how bad it makes you feel. I would ask that you be forgiving of yourself as I know you would be of others. I want to give you a gentle push to have this evaluated. Instead of getting mad at yourself, get mad at the fatigue and pain, and make this unacceptable. You deserve a better quality of life, and you deserve to be heard. You deserve to be free of pain, and to not fall out at 6 PM.
So I am going to pray for God to intervene and help you discover some answers. Ask God to guide you through this, and ask healing angels to send you messages on what you need to do to feel better. Listen to messages that are being repeated, be open to others stories, and see if any of their trials resonate and what they have done to get better. And please excuse me if I am being too directive, I'll blame it on something, just not sure what yet...
God Bless You!
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Laura,
I will absolutely pray for this to be a benign finding in Karen's lung. She must be having terrible anxiety over this, and I pray for her to be infused with God's love and peace while she waits.
I also send prayers for Bridget, that she conquers this multiple myeloma. May the experts be guided by the wisdom of God and his healers. I also pray that she feel's God's strength and asks for help when she needs it. She will be in our prayers all throughout her treatment.
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Yeah, I feel this way sometimes. I don't feel like BC is coming back. I have faith in this part... yet, I know everything is in Gods time... so...
But, I do get the down weeks... after looking at myself.. and seeing what BC did to my body. Most tell me I look so amazing... I look so fit and... about 35 yrs old.... blah blah..... but.....cancer did so much to my body .. the obvious... amputated... no real breast... fake ones by my choice( which really look amazing)....SCAR tissue that is really extensive.... no lymph nodes left on the left side,,.. and the area HURTS.... LE due to all this.... having to rebuild a business that once brought me a great living... until I left it for 8 months... nerve damage they call Fibromyalgia... whatever.... and did I say I gained like 27 pounds... and I am 5ft tall.
Well... I am getting better.. my pain is about a 2... and THAT is doable.. I can work out now.. and have lost about 20 pds... so... most things are better 2 + yrs later Michelle... but....still... there are days,,,
Today.. I started crying because Obama Care is signing their first bills Thursday,,, stating that we no longer have insurance caps...and I realized.. that even though I HATE all this Obama anything.... that this actually might effect me... you.. US.
Anyway... you are normal and so am I.. and every other cancer SURVIVOR... it is just HARD some days..... and.. this is just the way it is.... for now
Someday,, I really do have the faith that we will NOT think of the scary part of BC daily.. or even monthly...
Bless you all and every day!
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Betty,
I want to extend a warm welcome! I am originally from Rochester, and I don't miss the COLD.
Friday's sound wonderful, and I will wait to hear what works for you all, as I do have some flexibility and no children's bedtimes/dinner to work around.
Good Night All, wishing you a better day tomorrow, and healing for all.
God Bless.
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Good evening sistas,
Kindone, welcome to this thread!
I've been reading the threads between mmm5, Estepp and Squid and can't agree more; and I'm considered the newer one here (only 8 weeks post surgery and not even really started any treatments yet). Started Tamoxifen for a month but was told to stop. Then because of the infection at 7 weeks, the radiation has to be postponed. These few days (not sure if it's the SE from my antibiotic), my breathing is shallow and I feel soooo fatigued by mid-day. Not to mention the pain that I'm starting a bit now vs. I didn't have much pain after surgery. My ears are ringing and I have dizzy spells now and then. I feel just like you guys, seems like we are on this perpetual roller coaster. Our mind and body is definitely not the same. I wish I could just turn back the clock!! I used to complain about my body and in hind sight there was nothing as bad as now. LOL - how dare I complain and not appreciate what I had !!
I am patiently praying and waiting for this nightmare to go away. That God is Great and has a plan for me, that I need to appreciate each moment and each day.
I do feel depressed too, still choked up when someone extends their kindness or watch somebody make a big accomplishment. I'm also grateful knowing that things could be worse. Sigh! I have mixed emotions everyday, although suttle, there's no denying about it.
So I want to embrace our strengths and comradery thus far and hope to conquor this disease together.We will not fall.
And about the Obama's Health bill, I wonder when the medical insurance companies will have their set of protocol in place. The last time that I asked about it, the rep said that they will not roll out the new guidelines any time soon.
Thank you for sharing the thoughts on this thread. Good night and God Bless!
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Thank you all and God Bless!
Surgery was successful, 5 nodes...all NEGATIVE!!!
Waiting for oncotype test. All doctors next Tuesday.
I have cleavage!!!
Thank you so very much for your prayers!!!!
I felt your spririts go with me to surgery and God's healing hands on me.
Love ya,
Jan
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again, I can't believe how this group of ladies has grown. go Catholics!
i will join the prayer chain. please pray for the family of a friend of mine (Mike).. who died suddenly Sunday at age 50. it was quite a shock.
i know this sounds trivial, but thank you God for our new car. our old one was dangerous.
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Goodmorning!
I'm another Catholic with BC. Coming up on my 1 year anniversary of diagnosis - not wanting to celebrate this anniversary! Completed the 6 months of chemo and 33 sessions of radiation and now on Femara therapy.
I also feel like an old lady at 57 (aches, pains, SEs of everything) and have turned my attention now to exercising more and better nutrition to rebuild my strength and endurance. At least I can say that I'm doing something for me, rather than having something done to me - and that helps. So does reflection and prayer.
I have custody of my 4 year old grandson (since he was 2) and his presence reminds me of God's kindness and love - he's a joy. But, like others of you, I'm knocked out by 8 pm after a full day of work and home stuff. I've prayed that God gives me the strength and future to be able to do what I can for this sweet and loving child. His dad is my adopted son (I adopted him when he was 12 from the state foster care system) who has severe emotional and addiction problems and his mom is in prison for 6 felonies (a sociopath and heroin addict) and comes from a severely dysfunctional family. I hope you can keep my grandson in your prayers - he's gonna need courage in his life. I would ask for prayers for my son also but I've realized that he is making poor choices in his life and has to find God to draw on his strength to turn his life around. Unfortunately I haven't heard from him in over 6 months - I'm guessing the chemo/cancer was too much for him since he's a great avoider of conflict and emotion. So, this 4-year old child has "lost" his mom and dad and has this old grandma (and kind grandpa) standing by him as best as we can. This part of my journey has taught me that cancer is not the worst thing in life that can happen to you and put all that in perspective for me.
I'd like to join the Friday prayer group and hope you can keep my grandson in your prayers as well.
Thanks!
Pat
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Ladies - just want to say I LOVE all of you. Thank you so much for being here and sharing your stories - on the good days & bad. It is invaluable to have your support and I hope you feel mine!!!
Squidwitch - thyroid is very manageable once they get the right level of replacement thyroid hormone! I had thyroid cancer & removed when I was 20! So, I've been taking total replacement synthroid for nearly 40 years and never any problems.
Jan - just so thrilled for you to have surgery over and good news. I'm still on pins & needles waiting for Tues surgery! YUK!!!!!!
So many posts & hard to answer all of them but know I read each one & pray for your intentions. God bless us all.
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