CALLING ALL STAGE I SISTERS
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Hello Everyone,
I am a frequent reader but I don't post too much. I first want to thank everyone for all their information that I received by reading everyone's posts. I have a question that I hope someone can answer. I went to see my BS yesterday for a checkup on my lumpectomy which I had on August 6th. The followup I received from him is a mammogram and ultrasound in December on my left breast ( by that time I will be finished with radiation) I asked why just the one breast . ( I have read that ILC can often spread to both breasts) and he told me the next mammogram will be for both and basically not to worry. Is this typical ?
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DEE.....Ilike how your onco things but i feel with diabetes you are in control by checking your blood like few times a day. Adjust your diet accordingly. (My mother was a diabetic)
Yes it might damage other organs.......
But I cant put those 2 DX to the same level if they were just both are like chronic illnesses.
BC took something away from me. As an example I cant book a flight until I have my last blood result from my Oncologist. I'm not saying cancer took over me but it will always be part of me and I don't like it.
Hugs to you and To all my Sisters
♥♥
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good news Charmaine.
thinking and praying for you granny!
seyla, one day at a time. that's all we really can do, right? drive myself crazy thinking about the future. one foot in front of the other.....
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fayebu...We are practically neighbors I live in lower Westchester.
The answer of one of your question; When you see the radiologist he or she also wants a mammo to pinpoint where the radiation will be. After 6 months of that Mammo I got a regular Mammogram for both breasts. I hope this will help you some how.
Sheila
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Hi Sheila( neighbor)
Thanks for the reply. All this waiting between proceedures is getting me antsy.
Lorraine.
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Fayebu, the mammo on your affected side will show if there is any growth after the rads. It will give them a baseline to watch for your follow-up i.e. calcifications and scar tissue. At this time, they are probably not expecting any changes in your other breast since you dx.
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Shelia & Dee - It does drive you crazy thinking about the future. For Labor Day had invited a few friends over & then I decided to invite my sister & her husdand and my 3 sister-in-laws and their husbands. The day before another friend called to invite us over so I wound up telling them just to come over my house. My husband was like, "I can't believe you invited all my sisters over." I said I had been wanting to have them over and why not now. Who knows how much time any of us have. He said he never thinks of life that way and I said that's because no one ever told you you have cancer. It turned out to be a wonderful day and I'm planning on doing it again soon.
Sue
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Lorraine & Sheila - I'm not too far from you guys either. I'm up near Poughkeepsie.
Sue
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Thank you . That does make sense. I just got home from work a nd there was a message from my oncologist office. they want me to fo for a thyroid ultrasound. Does anyone know why? I will call in the morning but I am curious. Is that common before going for radiation?
Thanks
Lorraine
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Hi Sue
Maybe we can make a lower Hudson Valley club
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Hi Neighbors and Sisters.....
Sue...I dont think about BC every day. but it does effect me. good for you for what you did on Labor Day weekend and enjoyed yourself.
lorraine... I forgot to remind you you can only post 5 times in 24 hours until you reach 50 posts.
You can Private Message (no limit) by clicking on anybody's name and follow instructions.
Sheila
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If I'm remembering correctly, I heard Nancy Brinker talk about treating cancer as a 'chronic' disease on a recent interview. I was very surprised to hear that as that is the first time I had heard anybody say that.
Lorraine ~ Welcome. I did not have a thyroid ultrasound before I began Rads.
Sue ~ Bless your heart, what a wonderful thing you did for your Labor Day get-together. My DH would shoot me if I ever invited his sisters over to our home. They do not get along & any reason I might give him for doing it would not be accepted.
Dee ~ Nice to 'see' you again.
Yesterday when I was shopping in Wally World, I had to return something & the lady, probably my age, in front of me started talking about this light bulb she was returning. Long story short, she was talking about having to change it herself in the garage (she put a small ladder on her car to reach the socket) because she was all alone now. She used to go to FL with her husband to their trailer home to get it set up, but he would always go before her. He made numerous trips without her. One time he went & didn't come back to get her. He left her. He had another woman down there after 38 years of marriage. She talked about having to learn how to take baby steps again, she couldn't function for months. And how she leaned on her Church, how much she was helped by her friends & family. I looked at her, she was so nice & so welcoming, & I said, "I have never told a stranger this before, (except for you sisters here!), but I am a breast cancer survivor, so I know about learning how to progress from baby steps & getting on with my life." She talked about how her life had to move forward, she couldn't dwell on what had happened, it was what it was. Life was too short. We must have talked for 20 mins or more.
I don't know if I'll ever see Angie again, but as I walked away, I felt a sense of calm. I know I was smiling. I don't know why I'm telling you all this, just wanted to. I had never told a complete stranger before that I had had bc, I never wanted to say it aloud other than to my drs or family. I surprised myself. It felt good.
Love & Hugs to all. You give me strength!
♥♥
Sorry for the long post.
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Val - thank you for telling us your story. I was smiling reading it. So happy you are feeling stronger and reaching out to others in pain - I'm sure Angie appreciated your concern and I bet she was smiling when she walked away too!
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A very touching story, Val.
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Val..what a wonderful story.baby steps.i just told a friend im acting like when i got divorced 30 yrs ago.brought me right down to my knees.took a while to get up but i did it.raised 4 kids alone.
MY SON ALWAYS SAYS MOM IF IT DONT KILL YOU IT WILL ONLY MAKE YOU STRONGER
my new motto...FIGHT LIKE A WOMEN.
God bless all my sistas.
gentle huggggggggggggggggggggs
K
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Wow Val, you look good in blue!
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Val...I love to hear those kind of stories.♥
Meece LOL
MIA?????????????????
Micheeeeeeeelle
Reneeeeeeeeeee
Can You hear me?
♥
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Wow! I could hear you all the way in CA. They have to answer you!
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Still here Shelia! Just kinda quiet but boy did ya have to yell so loud??!!
I am heading south to visit my BS and PS next week to try to get to the bottom of the pain issue I have been having ever since, FOREVER... I have self dx'd my self
as having either PMPS (post mastectomy pain syndrome aka nerve damage), possible scar tissue adhesions or I am just a plain hypochondriac. I don't want to believe that the discomfort from LE can be this bad for this long and my LE therapist agree's. I am hyper sensitive to touch, have burning pins and needles sensations that never seem to go away and progress through out the day (feels almost like a prickly heat rash or like when your foot falls asleep or combination of both).
This constant discomfort is wearying on me and making me cranky... wahhhhhh!!!!!!!!!!!!!!
Thanks for thinking of me!
(((HUGS)))
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Sorry for shouting Michelle♥.
This pain you described could it be from the first chemo. I know some sisters that were on Taxol had numbness and pins and needles. I hope they can get to the bottom of this.
Was it bad when you were on Herceptin?
(((((HUGS))))
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It's ok Shelia, my ears have stopped ringing♥
I had Taxotere (in the Taxol family)...I honestly cannot say what the discomfort is from since I don't remember ever not having discomfort since my BMX. At first I figured I just had a body part amputated so yeah I am going to hurt, then I started chemo, then I had my exchange, then I was dx'd with LE... I have noticed that it seems to have gotten worse over the last few months, especially as the day progresses. Honestly I am not sure if its the discomfort that brings me to tears lately or the frustration.
I am truly doing really well and am so grateful to that done so well through out my whole treatment process (God is good!!). I am just tired of constantly being 'aware' of my chest because of this. I miss the days when my breast were just 'there' completely ignored and unappreciated...
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Michelle, Oh how I agree with what you said... I miss the days when my breasts just hung there and were ignored! That rings so true. I dare to say that we probably have all felt that way at least one time or other during the course of our journey with breast cancer.
Renee
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Michelle ~ I am praying you get an answer as to what is causing the pain you have to endure daily. You should not be having to live with that after everything else you have gone through. ♥
{{gentle hug}}
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Renee - thank you! As imperfect, lopsided and gravity deprived that my original girls were, at least they were mine. I don't know if I will ever be able to accept these new, perky foobs as my own.
Val - thank you for your prayers and for the hug!
I'll let you know what the doc's say next week.
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Val--my onc said the same thing to me a few weeks ago, that drs. are looking at BC as a chronic disease just like diabetes. I had never thought of it that way. And now you say you've heard somebody else say the same thing. Must be something to it.
o2bhealthy--I really hope you're able to get some relief and answers! Praying.
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C
U
T
E Sheila!The pink face makes me laugh! I feel like you are looking at me no matter which way I lean!
Michelle ~ Love your new avatar! You look lovely.
My DH was very lucky to have worked 10 hrs overtime today, YAY!! (football games at the school for Community Ed.) That puts a smile on my face.
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hello
well my big day finally is here.TOMORROW im having the surgery.FINALLY. dr #3 is gonna remove the cnodes that dr#1 left in.dont know how many but im a little wired,.everything is set for 7.30.please remember me in your prayers.thanks and huggggggggggggs to all.
be back as soon as i can type.God bless.
K
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