CALLING ALL STAGE I SISTERS
Comments
-
Glad to see we have a home. Some of the other threads sort of made me feel insignificant compared to what the other ladies are going through.
I too was told the day of my dx to get off my hormone therapy and I am thinking that the intense hot flashes I am getting is the worst of this whole mess. I am relieved to see that I am not the only one that had to quit cold turkey with the hormones. I know it is worse just stopping the stuff. I am in my 16 rad treatment of 28 and 2 booster of 5 to go through yet. I have not had any problems with SE until the boosters started. Tired and red plus it is bothering my asthma some.
0 -
I wonder if insurance companies can choose not to pay for mammos under 50, even with the clarification of the guidelines.
Interesting...
0 -
mmm5,
Hi again! My estrogen receptors were also only "weakly" positive. My path report did not give a percentage, but I am assuming "weakly" positive numbers must be somewhere around what yours were. I have asked my onc more than once about whether I will need hormone therapy after chemo and each time her answer is the same--YES! She told me that being "weakly" positive is like being "kind of" pregnant. You either are or you aren't. She also told me that the hormone therapy would also be just as much for my healthy breast (since now we are at an increased risk of a 2nd bc) as it would be for the current situation. This whole hormone therapy question is one of the questions I am bringing up at my 2nd opinion appt at UCLA on Dec 15th. I have an appt with a doctor who works closely with Dr.Slamon. I will let you know what new info I get after that appt.
0 -
Hi, guys! Had my follow up after surgery mammo today...ALL CLEAR! Yippee!
0 -
YAY!!!!!!!!!!!!!!!!!!!!!!!!! Have some cake!!!!!!!!!!!!!!!!!!!!!!
0 -
hello
0 -
Hello ladies,
Went for another mam on my right today. Which led to another ultrasound and two spots were biopsied. YUUUUUUK. So sore,,a little surprising. Why would it be sore after the biopsy they needed to see the placement of the metal markers. Oh yeah they are on the side...squeeze, twist and really smash. Six pictures later we can see them.. OUCH!! And I am scheduled for the final on Tuesday. They are trying to rush the results. But, I hate the feeling that I should have done both..I just could not wait (2 weeks). This time they thought to be just cysts with needle aspiration...wrong. I am just venting because I was coming to home stretch and why did they not do this earlier!!!! Anyways 5 hours at the hospital. Nice way to celebrate 45 birthday..eh? I figured BDay B9. Going to take a pain pill and nap and maybe have one cocktail (ok maybe 2) will see.
I wined about all of this bc stretching and pain and my sweet DH said "then dont get it done" eruugh..not to supportive that day. That led me to this thread. Thanks for letting me vent. Bday...B9
0 -
Weety, If your onc. says weakly positive means positive, why did they give you and ER- ? Who are you seeing at UCLA? I love my UCLA Dr. What an improvement on the medical care I got elsewhere during my BC chemo and rads! Good luck.
Meece
0 -
(((((((((gcarter))))))))))) praying for everything to be okay!
0 -
YEAH, that is awesome news cake♥
(((((((((gcarter)))))))))) keeping my fingers crossed for good results.
Hey I see you got the smiley central toolbar.
0 -
Hello, I am Stage 1 , lumpectomy May, radiation July/August complete 8/26, tamox, my question is I am told the "standard" of care is repeat mammo 4 months after rads, but my radiologist asked when I usually get mine I told him April and he scheduled me for April instead of January should I question it, how long do most wait for their follow-up Mammo? I will be 50 next week. thanks for your input
Carol
0 -
Thanks Sheila for the warm welcome! Yes, I have started to get some SE. My feet, toes and ankles hurt most but also hands and wrists. Have some nausea on and off but not too bad with that. I have had the hot flashes bad since I was taken off the estrogen and I don't know that they are worse but have noticed that I get extremely cold a lot now as well. Anyone else have this? (and I live in Florida) I would imagine if you are on the outside looking in, the nighttime routine of covers, no covers, fans on, fans off would be pretty funny. Just wish I could sleep through the night once in a while. I have read that the SE can get better as you go on. Is that true? Do you have any?
Well, have to go eat dinner now. Take care ladies!
0 -
cake is great..
me to!!!!!
deborye...you showed me.
Thanks for the prayers. Heaven hears from those. Besides he finally has a index card for me. Thanks to my dearest Angel...... my mom.
0 -
<< Yippeee for cake for your good news>>
<< gcarter for your Birthday and support for your long day>>
And please share!!!!!!
Sheila
0 -
Sheila and all, I want to snorf that whole tray of food........YUMMY! Sue
0 -
Welcome sunnyfornow...My breast wasn't very happy with radiation either. I used the cream but didn't help much.
KAC....Beside some hot flushes at the very beginning Didn't get any SE. I'm sure being on antidepressant helps me a lot.
0 -
Carol..I kept a journal during the first 2 years. i can give you exact dates but again every DR have their own scheduling. I also had a RB lumpectomy and chemo.
1-12-2006 Last day of Radiation
6-1-2006 First Mammogram (Both Breasts)
And every June since then.
Good Luck
Sheila
0 -
To Sheila and all sisters:
All I can say is thank you and many more thank yous for this site. You have all been an inspiration. I am anxiously waiting for the 15th for my next fill of the TE. Ugh. Have to find my pain killers! Otherwise not to much to report except I protect my TE like its gold.
You all have wonderful stories to share. However, talking about journals, I have started one.
It is helped me quite a bit to see how I am progressing, with highs and lows.
And as for those idiots against mamos under 50, if it were their families would they still want this.
Hi Deborye too.
Love, Ronna
0 -
Carol~ my first mamo was in six months after treatment. They found cancer in my other breast at that time. It is important that we get our mamos as soon as possible.
I have a question for anyone that maybe can answer. I was dx in Jan with invasive cancer. Did not have Chemo. They found cancer in my other breast. One of the girls at my counseling session said "if they did chemo back then, would I be facing this again?" I said I have no idea, Who's to know???
0 -
Seyla888~ I forgot to say, that is a wonderful plater. Did you make it?
0 -
Hello all,
Just checking in and saying "hello". Wow, what a week at work, seriously on high alert, busy, busy, busy... but the therapy I need is always back here on these boards:)
Sheila, I think we all thank you so much for opening this thread!
Cindy, I don't think you should second guess the "what ifs", you didn't do chemo and you got a second bc... with this said, they were both caught at an early stage, thanks be to God. So, with this said, I think you need to look at it from that angle, you caught it early and you are on top of your preventative care.
Cake, so happy to hear your good news, how is the kidney infection??? Hopefully better.
I think I have shared on this thread that I have therapy 3 times a week for my lymphedema, in my breast, back, and now arm...:( It was a hard diagnosis as I wanted to be DONE with this chapter, but let me share with you ladies that the therapy has helped me IMMENSELY! So, goo news
0 -
Cindytree..Thank you for your compliment but no I didn't make it. I goggled it.
It looked so delicious.
Nicole...I'm glad we have some kind of sisterhood here. I care for all of you, tell me more about your Lymphedema, I always thought it was related to the arm.
0 -
The wonderful world of lymphedema, didn't get the symptoms for some months after last RADS... my scar tissue in my affected breast is really thick... because I had two surgeries, lumpectomy followe by reexcision, the surgery left some permanent "drainage" issues in my breast and back. It is called truncal lymphedema" and it goes undiagnosed because so many people are more familiar with it in the arm...So, after two infections, they realzied my lymphatic fluid was not draining properly so I have a LE therapist who helsp route it for me, so to speak. I have learned the techniques but she has made such improvements, I look forward to going to see her 3 times a week right now. She also uses a "laser" to help breakup the scar tissue. I am so grateful because I thought I was going crazy and thought recurrence because I had back pain with the fluid in my back... so I am one grateful sister to know it is fluid and not cancer
0 -
I also had 2 surgeries exactly like yours. Here comes the stupid question is scar tissue where the incision was made?. Mine is under my breast 6 o'clock position. Its a long scar and on top of it the radiation burn, also sentinel node was moved which is a completely different area.
Thank God they realize what was wrong and your getting therapy for it.
0 -
I have scar tissue that I can feel when I do a BSE, it scares me sometimes. I feel myself up for so long and press hard I get sore the next day, lol. I had to be opened up twice, my bs just opened up the samy incision, it was just starting to heal, OUCH! The incision is around the top of the areola, the tumor(s) were in the 1 o'clock position, so she was just able to do a flip-top-tit excision. lol The scar is about 2 inched long sort of a semi circle. At first I had no feeling all around the nipple area but I have feeling now, the nipple is different though, the color and texture especially when there is a chill. lol.
0 -
Deb, I had similar tumor position!... my scar tissue is so hard!
Sheila, my scar tissue is where the incision was...
0 -
Deb do you have a separate incision for the lymph node removal?
I forgot I have a scar about inch long from the port which always remained reddish.
My right breast also shrunk BS took a big chunk from it. LOL
0 -
Good night Ladies. Thanks for the tray. I have leftovers! Ha.
Real sore and going to sleep.
gina
Ps Good luck tommorro on the two surgeries.
0 -
Hi Sisters,
Had my biopsy this Thursday morning. I didn't see BS afterwards, but he told my DH that he is pretty sure what he removed was just scar tissue. Will have lab results next Friday, same day I get the stitches out. He fixed the indented scar from 1995 biopsy for a large cyst & couldn't use disolvable thread (darn! - something about being too close to the nipple) so will have an "ouch" I'm sure when he removes them. My scar tissue was right below the old incision, & as I said previously, he wanted to be sure it was just that.
My first post mammo on affected breast after rads was three months & then had my regular yearly bilateral in Oct.
cakeisgreat ~ YAY! on your clear mammo!!!!
don23 & gcarter ~ I also had no chemo (oncotype DX 14), & have not joined a support group. When I had lunch with several bc sisters last May, all but me & one other had had chemo. The other gal who didn't asked me if I felt guilty not having had it while all the rest had & I had to admit that I did. There are times that I feel different because I did not have a mastectomy, either....just a lumpectomy...
gcarter ~ I am holding positive thoughts for you.
Shelia ~ For my lumpectomy & SNB last November, it was done in the same cut, as my mass was in the armpit area at 1:00 near the lympth nodes.
deborye ~ I had to laugh when you discribed your BSE, lol, as I've done the same thing! I scare myself so often, it's a wonder I'm still sane!
Good night ladies,
{{hugs}}
Valerie
0 -
Valerie....Yes I'm thankful for being stage I, But being stage I doesn't make us any less fearful we
experienced the same fear, had all the scans its just that it turned out to be an earlier stage.
I will never compare myself with all our sisters who are advanced stage.
But I also need acknowledgment that I fought this #*&# disease. Am I making any sense?
Sheila
0
