CALLING ALL STAGE I SISTERS
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To All My Sisters who have not been feeling good
To All My Sisters they are waiting for test results
To All MY Sisters they are having procedures done
In The Month of December
This is for you.
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Valjean MI.!!!
I appreciate the thoughts. I am so happy to have found a place that feels the same about things that we did not have to do.
Sela88
You make me smile and yes we are going through our nightmare too..its just different buy emotionally I have been a wreck at times.
gina
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I find it interesting that when it comes up that I had BC, very rarely does anyone ask what stage or lumpectomy or mastectomy now. I mean, now for me. A few years ago, and especially when you are going through it, people feel freer to ask about what you are dealing with.
I had a very agressive cancer, if I had waited to have it removed a month down the line, maybe I would have been stage two. People outside of the BC world don't understand why there are are so many different combinations of tx. We shouldn't have to feel guilt over not having to have one or more of the typical treatments. I have felt guilty that I "only had a lumpectomy" but when I lost about 1/3 of my breast size, partially due to the lumpectomy, partially due to radiation, it didn't feel that far off of a Mx. (My feelings, remember). I feel I am on th eoutside looking in because I can't do Tamox.
The wonderful, scratch that, ONE of the many wonderful things about this forum, is that we have the opportunity to learn about what others deal with and there are so many others who have had the same experience as you.
What a great place!
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Meece - well said. Before I was diagnosed with bc I had no idea there were so many variations of this disease and the treatments involved. I thought it was "one size fits all" kind of thing. Boy was I wrong!
I don't know what I would have done without this forum. It has picked me up many times. I do not post a lot but like to read what others have gone through and know that what I'm experiencing is not so unusual. Thank you for letting me be a part of this forum!
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I agree - this forum has been a blessing. I check it daily, even though I don't post that often.
Meece - I know what you mean. I had no idea that there were so many variations on bc type and treatment options. I feel like I've gotten my PhD (or at least my Masters) in bc over this past year.
Happy Friday, everyone!!
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I went through my treatment without this forum! I should get an extra star on my forward for surviving that! I only discovered this place a few months ago, and it is helping me even now, six years down the line. You know, BC never leaves your life, once it has shown up. You can kick it out like an unwanted guest, but you always have the reminders it was there like when you find a dirty sock under the guest bed.
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KAC,
It looks like you and I might be the few that are having such a hard time with hot flashes!
I am in Texas and I get so hot from the energy surges, then I feel the cold so much more after the hot flash finishes. I am suppose to start femara but I am having second thoughts on it if one of the se is more hot flashes. I don't think I will be able to bare it when summer gets here. I can't afford to keep my house at 70 deg. that would for sure put me in the poor house. Does anyone know what the percentage is when taking medicine after rads. Does it really help that much to make a big difference? I am suppose to start in January, Has anyone decided not to take medicine?
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I need help with a decision. I was diagnosed in Aug. and had a lumpectomy in October. My oncologist recommends chemo because my tumor was 2cm and the nuclear grade was 3. My onco type test came back low with a score of 11. I don't know if I should take the chemo or just radiation? Anyone else have this issue?
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MezNY,
By no means am I a doctor and I am not sure your age... but I do want to share with you that if I were in your shoes I would do the chemo... (I was in similar shoes, I am just unsure what my oncotype was as they never told me...) The reason I mention age is I am looking for another 60 years to live!
I was 36 at diagnosis and, I too had a Grade 3... my dr said due to the high grade and the fact that my tumor was invasive I would be doing chemo. (I'm assuming yours is invasive, too?)
I want to also share that chemo is manageable, it is just a lot to wrap your arms around... and when you get dropped the "bombshell" that chemo is part of your treatment, it can rock your world.
With this said, other woman on this board may disagree and give you their perception from a different angle.
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Sheila,
Yes I had 3 nodes removed from under my left arm.
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Thanks. I was set to have just radiation but I know I will always wonder what if...My radiologist called me also and without saying it I felt she wanted me to do what the oncologist recommended. By the way I turned 50 in July. The tumor is invasive. How manageable is the chemo? And how long did you have chemo for? I hope you don't mind me asking these questions. I am so new and nervous about all this.
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It's official I am negative on my right. I got the news today. I am so excited to celebrate. Now I can have a drink for my birthday. Moving on and putting this past me. I cannot wait for 2010. I am axious about Tuesday but, I AM A WARRIOR!!
Someday I would love to meet all of you. I saw pictures of the Vegas trip..looked like fun.
Gcarter
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Doing the Happy Dance for you♥
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WE ARE ALL WARRIORS
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Yeah gcarter!!!!!
Had my onco appt today...bloodwork good, everything looks good. I asked about Tamox and why I'm still getting periods, and she echoed what someone else here said about 25% still get it...but she said it's still working and I dont have to worry. She is going to do the Tamox mutation next visit...I think that's the non-metabolizing thing. never heard it called mutant, but whatever!
Saw the urologist today. He didnt seem too concerned that I still have kidney pain, but wants me to get an ultrasound just to see if there is anything. He did say....dont worry you dont have kidney cancer!
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He would not say that if he had any doubt.
I think I have anal fissures. What a pain in the ass.
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I also though lymphedema was in the arm or legs until my friend got it in her breast. One more thing to deal with.
Nicole~ So glad it was fluid and not a recurrence.
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Congrats Gcarter!!!!!!!!!!!!!!!!! Enjoy!!
Cake, I still get periods regularly and I have been on Tamox for 1 year.
Deb, you crack me up!!!!!!!!!!!!!
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gcarter Do you have a designated driver? I can imagine the celebration will be a big event.
Hi Mez Chemo length depends. I know one thing for sure if you are not HER+ no Herceptin and that took 1 year once a week for me. Do you have all your path reports?
Hi Ladies I had a good dinner and I used little butter on my baked potato.
cake... I know someone who actually had a stone in the kidney. I thought they only grew in gallbladder. Could be that maybe?
This is not a joke since I joined the BCO I feel I already got a degree of something, so much knowledge, didn't even know what grade my BC was before.
Deb...I had to google anal fissures to find out what it meant
Hi Joni
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Deb, you are a kick in the pants OUCH !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Sheila, LOL!!!!!!!!!!!!!! You googled it!! I can imagine the results you got!!!!!!! LOL!!!!!!!
Dr. Sheila, I also got a degree since breast cancer. That's why you call me Dr. Linda!
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Sunnyfornow,
I don't know if the hot flashes are that much worse than before I started the Femara as they were awful the minute they yanked me off of the estrogen!(that was in the middle of summer) It's just now when I get cold, I'm freezing! I keep several small fans around the house so I don't have to lower the air as much and it works pretty good. I know I wasn't sure of taking the Femara until they told me chemo was recommended and since I decided to decline that given my percentages, I told myself that I had to take the Femara. I never had radiation since I had TE put in same time as mastectomy. Everyone has to make their own decisions of what they can live with regarding not only se's but being able to sleep at night and not look back and have regrets. It's a tough decision but you will feel much better when you make it. The only recommendation I would make is to get all the info you can during the next month. I made several lists and asked the drs. a lot of questions and I read quite a few of these threads.
Take care and keep in touch.
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DR Linda... Believe me I saw enough hahahaha Google Images are also very educational.
I am overwhelmed with everything I learned so far. LOL
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I'm sure they were very graphic too! Deb, see what you started!!!
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Makraz, I like the new avatar, looks warm. We are having freezing fog for days now altho the sun did come out today and is supposed to come out tomorrow (now's the time to break out in song from Little Orphan Annie)!
Prior to April 2 I never realized that bc could be treated in so many different ways. I too thought it was the "one size fits all" thing! Such an education we've all had! Joni
Hi Sheila!
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If you want graphic, when you go onto google over the upper left side click on images first then type in anal fissures, I crack you up, it's not the crack that hurts when I poo, LOL.
I think I'm gonna puree all my food.
I think Arimidex shrunk my sphincter.
How embarassing.
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I am afraid to even google it, although I think I have a pretty good idea what I might see. Ouch!
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Some things are better left to the imagination!
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Deb... thats what I always do, suddenly all the pictures of A$$ ..... were on my face. Then I knew what was your condition. Sometimes I have difficulty with English words. I never heard this word before. Now I have to google the word sphincter to see what it shows.
Sorry must be painful
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Just popping in to say Congrats to gcarter!! YAY!! Great news!
Off to bed,
hugs,
Valerie
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