CALLING ALL STAGE I SISTERS
Comments
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This could be from Sugar77:
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Sheila, I am so very sorry for your loss.
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Welcome Angelight and Rohana-glad you gals found us it is a geat place for support.
Sheila ((((((((((((((((((HUGS)))))))))))))))) so sorry for your losses.
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Sheila......sorry for your loss....hugs and prayers for you.
Rohana, welcome, I too am like some of the other ladies..........Lumpectomy, no node involvement, and now doing Rads.......I am getting 28, plus 5 boosts.........so far I am doing very good........not even pink............but then i don't want to jinx myself.
My MO is putting me on Femara..........all the Al's have SE, it is just what can you tolerate.........I will not be starting Femara till I am done Rads.........that is what they decided, no me...........Glad they did, although I could have done it along with Rads, but I thought if I have an option, I will hold off on the meds. until after Rads.........I am not happy about going on any meds, but I guess I have too...............had a heart attack, so I don't think Tamox. is right for me...............also, I have read where Femara can cause headaches............Go on the Femara theread and you will see what the ladies on it have to say.
goodluck and hugs.
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rohanna-I do the gold Femara pill every night just before bed. There's a Femara thread; you might want to pop on there. My personal recommendation is take the pill @ night, most of my main SE went away when I began that routine-not all mind you, but most!
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Can I just tell you how wonderful you all are for being so warm and welcoming? I came home from my rads. consult feeling very down because they have extended it to 7 weeks instead of 5. Then I logged on and felt comforted by your encouragement. OK, all better now. Hope you all had a great day. oxoxoxo
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Welcome ((Clyn)) ((rohanna)) ((Angelight))
♥♥♥
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Welcome Clyn, & I think I forgot to welcome Angelight; if I did, I am sorry.
We look forward to getting to know you & supporting you.
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Thank you for the Femara info, Eph3_12. I'm going to try that. duckyb1, thanks for the Femara thread, I'm going there now. I will let you know how the pill works out for me. Don't know why I'm doing Femara and rads. at the same time. Clyn, I'm sending you prayers for your surgery. I was scared silly too, but it wasn't half as bad as I imagined. Has anyone suffered from insomnia and have some good remedies? I haven't slept much since I found the lump on March 3rd. Prozac is helping with the panic attacks, but I just can't sleep. I'm so glad I found you ladies. It helps so much to have someone to ask questions to that understand. God bless you.
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rohanna - I did have sleep problems but found 10mg timed released Melatonin at Wal Mart. I take it about 30 minutes before I go to bed and do get better sleep.
On the issue of rads and Femara at the same time. I was supposed to do rads and Armidex at the same time but was unable to tolerate the terrible nausea. My onc told me he was just trying to get a jump start on the 5 years but he usually waits until after rads. In other words, it really does not make any difference when you start Femara.
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Thank you for the warm welcome .. Sheila so sorry for your loss
much love
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I may be late, but welcome to all you ladies who are new to this thread. I am sure you would never have posted here had you not seen the wonderful support and advice that is offered. Hope you get all that you need here.
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rohanna...I took Femara for 5 years.
I'm also on AD. If you have any questions I'm here for you.
♥
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Hey, Guys...it's been a long time. I have been trying to not think about BC for awhile, but I just got an xray back that showed a .4 cm lung nodule. Doctor said it's probably nothing but have to get a CT in July, and I am SCARED it's mets.
Any happy thoughts to ease my tension???
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haven't been on for a few days- so much to catch up on...missed ya all.
angelight, clynn and rohanna- welcome new friends- sorry you had to join us but glad you found us...
cake-waiting for those damn scans are the worst...I was flat on the floor waiting for mine last month for spots on my liver....they thankfully were b9...I will be thinkin gof you and sending all the positive thoughts I have
Sheila....so sad for you to go through two traumas like that together...you did so much for your dad and everyone else in your family....that matters...please rest...love you
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cake,,,Im very happy to hear from you but not under these circumstances.♥
Why did you have a chest XRAY? Is that routine?
annette....I love you too.♥ I have Kahlil Gibran's book. I should start reading it again.
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Hi, Sheila!
Yep, it was a routine chest xray. I hate this stupid BC!
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Cake I'm new here but my prayers go out to you that the nodule is nothing!
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{{{CAKE}}} prayers going up.
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I too have been AWOL for a few days.
Sheilsista/friend.I have no words for you.just a gentle hug with much sympathy.
Hi Valjean----and a wlecome to the newbees...bc sure does suk
huggggggggggsK
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OPPS Annette-you want some rain?????come to NJ.we are drowning.its raining every day all week.missed you too.
did i forget anyone?????brain freeze with all the catching up i have to do
JO JO----im gonna get to my emails soon.
huggggggggggggs again K
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Seyla words aren't enough to express my condolences for the passing of your father and aunt. (((hugs))).
Welcome to the newbies, rohanna, clyn and angelight. Hope I didn't miss anyone. Lots of love, inspiration and generosity of spirit here. Great group of ladies.
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cake! Oh, it is so good to see you & I have missed you! Like Sheila said, "but not under these circumstances." I am so sorry for this worry now ~ I know in my heart you are strong enough to reach the other side. I will keep you in my thoughts & prayers, dear sister/friend.
grannyD ~ You know it is always great to see you! How are you doing?
(((((Sheila ♥)))))
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Welcome ((Clyn)) ((rohanna)) ((Angelight))
So glad that ya'll found us over here.
Cakeisgreat... they found an area on my right lung back the first of December when I had a chest x-ray, they immediately did a CT scan with contrast and praise the Lord it was scar tissue from the rads I had taken, it just took the scar tissue a while to show up. I will be praying for you that all is benign.
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Valjean!!! It's so good to hear from you!!! Thank you so much for your thoughts and prayers...they mean so much to me. We are always sisters now, right?! Even though I'm back cuz I'm scared out of my wits, LOL, I'm glad to be back here where everyone understands...so understands what I'm feeling!
Thanks mimi1964 for the xray info...I truly hope hope hope it's just scar tissue or infection or something. I did get radiation...but the nodule is on the side where I didnt get it
, but I did have the DIEP flap reconstruction, so they were all over my chest...maybe something came from that? I hooooopppppe it's nothing! (And believe me I'll be praising the Lord forever if it's B9...well, I'll praise Him anyway My eye will just be twitching while I do it, ha ha! ) I really need some cake...!
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Cake, it is good to see you back and ditto to what the others have said.
I had a CT scan for other issues and they found a couple of areas of concern on my lung. They did a repeat scan about 6 mnths later and with no change, they have figured it was scar tissue but will continue to watch it for a couple nmore years. I too had rads on that side.
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Hi, Meece! Great to see you!!
Thanks for the info on your lungs. It seems like a lot of us (or at least some of us?) have had these nodules and it ends up being okay, so this is giving me hope. I guess this is another step in BC...I kinda hoped that after all that h-e-double hockey sticks (
) I went through one/two years ago, that I was hopefully not going to have any other scares, but these bleeping tests sound like this is yet another part of the journey."Life is like a box of chocolates, Forrest...you never know what you're gonna get." Forrest Gump's Mom
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I have a vent to make - hope you all do not mind. I have seven siblings and my husband has eight so my choice for keeping them informed is email -- which also served as a pseudo journal - I added to this sibling and in-law email list four close friends from work and three friends from college - so the list was long.
I was deciding between a lumpectomy or MX and working through/explaining options - TEs, NSS, rads, etc. Lots of personal information. I felt that by including this in the email that they would (1) become a little more educated on BC, (2) understand the struggles we make with the decisions we are required to make, and (3) not ask me the same questions over and over and over (you begin to feel a bit like a freak show, right?). I sent out four mails - the original DX, an update after the BS, and then an update after the PS. Then one more quick email with the scheduled date.
So I then got an email from my boss' boss stating that she hopes I don't mind that Eric (my boss) forwarded me the mail and that she knows I am 'strong and can get through this' (how many times have we heard those words - gag me now) -- The email that my boss, Eric, forwarded to her is the one that I sent to family and close friends. Turns out one of my four close work friends felt the need to share this email with my boss -- really? And two of the other close work friends (the fourth work friend was DX'd with BC five weeks before I was) feel that I am over-reacting because Leah did not mean any malice in sending the mail and that I should 'not yell at her'. UGH!
It may be petty, but I did not know that I needed to prefix the email updates I send with 'do not forward'. Needless to say, these three 'friends' will be getting separate, sanitized updates.
Sorry - I know this does not compare with what you all are going through - but it has been really bugging me so I needed to vent.
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Clyn - right! thanks for understanding - by doing this, (beyond the embarrassment of the private details - i mean i NEVER wanted to have a conversation with my boss about NSS) they are negating the seriousness of BC but relegating it to gossip. Whew. just getting it off my chest (no pun intended) helps.
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