CALLING ALL STAGE I SISTERS
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{{{ANNETTE}}} Anxiety is my middle name since BC.
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Barbara - My middle name is the same.
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Melmes hope the results are B9
Anxiety Anna ( Annette) hope your mammo and ultrasound are clean
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haven't been here lately, so sorry, seyla...3jays0
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Thank You 3jays♥
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I want a new Onc... I had my 6 mo app't today and spent all of 5 min with her! I waited nearly 40 min in the room because they were running late. It's now 12:00 noon and I got all of 5 min. She took a look at my recent blood tests (that I asked to be done elsewhere - they like to do them in their office so they can charge an office visit). said the blood tests look good... How am I feeling, and that was the end. See you in a year! WTH?? This woman doesn't like the fact that I'm seeing an acupuncturist and I don't like the Al's. She couldn't care less that I've been exercising, eating better, etc.etc... i didn't dare mention you guys.0
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samsue - It definitely sounds like you need a new Onc. Ask your BS or rad onc if they can recommend someone. Heck, see a couple and conduct an "interview" that they don't know about and then pick the one you feel most comfortable with. In my opinion, the Onc is the most important person on my medical team. Mine calls all the shots and I like it that way. Annual Onc visits? Are you kidding me? I go every 4 months.
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(((samsue))) - are you sure your weren't at my last onc appointment??? It is like devja vu...
I am so sorry you walked away feeling...WTH??? Not a fun way to feel when after seeing the one doctor who is supposed to follow you for the the rest of your life.
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In my location the onc's belong to a LARGE group so they're all connected. There might be 5 in our town that are out of the office grouping. I thought when I switched from the first one to the second it was a different "group".... duh... They already had my paperwork and said, oh, yes, you were with dr.... and she has given the OK to switch to dr duhhhh. My rad onc has been the biggest help for me along with the PCP. The rad onc ordered the oncotype test, the MRI, mamo's and has me come every 4 mos. I feel like the onc has left me hanging out on a limb! I felt she was disappointed that my bloodwork didn't look bad.
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Hi sistas---what a buch of crap on here....
THANK YOU GOD WE HAVE EACH OTHER.WHERE WOULD WE BE??????
up shits creek without a paddle
good luck Sheila with the tests.
I have to say after 4 BS i finally found a TEAM that i love.there is a light at the end of the tunnel...huggggggggggs to all K
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Morning all...just wanted to pop in and give you all a big hug:) I am a bit nervous about the appt next week as I said for mammo/ultrasound( I guess since bmx that is how BS does it) but the other branch of anxiety is I am out there with "no support" in terms of my supplements for the next two weeks (and past week) as I have my nipple surgery (how whacked does that sound?) on June 8 and PS had me stop all supplements as all pretty much contribute to bleeding....it is all so confusing some times...so I am hestitant to take my blood work (which the Onc ordered me to have in June to monitor my levels since I am not AIs-she was not happy about my decision but is a good soul at heart and so will test my blood every 90 days to ensure the DIM and grapeseed extract etc are doing their jobs)....I am supposed to have that done this next week (have the orders already) but I am thinking I should wait until after my surgery and am back on regimen....for I can truly feel the hormones rushing through this old body the past couple of days (after being off pills for a week now)....argh. did I ever mention that I HATE BC (only good thing to come out of it is meeting all of you goodhearts:)
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I will have my one year mamo tomorrow and then on the 6th my PT Scan. I am really anxious and nervous. Made the appointment tomorrow for first thing in the morning and plan to do some retail therapy afterwards. I hope everyone has a great weekend.
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annettek - I also have my mammo next week - Jun 3rd. When is yours. I am also anxious about it. I tell you what - I will hold your hand if you hold mine. We will get through this and come out the other side with flying colors. Don't panic too much about not being on the supplements - you body will take care of you.
GuyGirl - Good luck on the mammo tomorrow. You will do great.
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Annettek- Be thinking of you on June 8. Are you having the areola grafted or tattoo later?
It's the last stage surgery! With that said, hope it gives you some relief of all that you have been thru. I am curious-what will grapeseed do for you. I know it is a great supplement to rev metabolism and an antioxidant. DIM, what is that? What does it do? I should just go back and read but I will ask-mamo/ultrasound- is this preventive or diagnostic? Just want you to know I am thinking of you, hope all goes well.
My nipple/areola will be 2 weeks after yours. Keep me posted on how you are doing. HUGS
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I am still a couple pages back, but am responding to vhshea's experience with people taking it upon themselves to tell someone about her BC.
I was going through a divorce and kept my BC VERY quiet, telling just who needed to know. I didn't want to have it used against me in court about caring for the kids. Well, I vounteered for a youth organization and held a statewide position. It meant doing some traveling, so I told one of my co-volunteers about my BC and why I couldn't do as much. Evidently she felt the need to spread the news.
Imagine how surprised I was to see my ex show up on my front porch asking if it was true because another person had called his house looking for me and told him everything he knew about me. This man who told my ex is a lawyer and was a legal advisor to the organization! He knew I wasn't living with my ex, so why did he even call there? Grrrrrrrrrrrrrrrrrrrrrrr!
Sidenote, I kept the kids, and Ex got limited visitation (29 hours every two weeks.) HA!
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Annette, Jo and guygirl good luck on your upcoming mammo's. Will be praying for clean reports.
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Annette,guygirl and jo jo---good luck with those mammos.B9 for all of you.
Meece--its nice to have the last laugh with your X...im laughing with/for you.
and the beat goes on...God bess all of us goin through this nightmare....dontch wish we could all wake up from this bad dream?????
still prayin for a cure/vacine anything.hugggggs K
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Granny - I've tried pinching myself to make sure this is not a nightmare. All I got out of it was a sore spot - darn it all.0
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for me what makes bc even harder is that fact that we don't feel sick when we start the treatments... just seems surreal (as you said, jo - like a bad dream).
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everyone knows i was not gonna do the rads.i waited and waited and did research and made my family,friends and everyone on here crazy...i waited so long that there were no statistics saying it would even work but again everyone was cryin and begging me to do it...and i did...if i had the choice now would i do it?????probably yes because im not taking any of the ALs.BUT IM NOT A HAPPY CAMPER EITHER.
vhshea--i felt fine before tx too.
huggggggs K
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Thank you so much for your support, girls!!! Annette, I am throwiing clean scans in your direction. I am hurling them as hard as I can at you - did you feel that one that just slapped you in the gut? I am sure you are clear!! (HUG)
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Annette, I'm surprised the PS wants all the supliments stopped before you have surgery. I can understand the Omegs's but the multi, DIM and grapeseed? I too use those and the blood-work was good, or I think it was because my MO said it was but didn't explain any of it to me. Just said we can see you again in a year! Now that I know what blood-work she had done, I'm going to ask my PCP to do all that for me. I'll have to research what's good or bad and what it all means. I'm not sure I want to have a MD degree!
Thanks too for reminding me I'm supposed to schedule a MRI and mamo before my end of June app't with the RO. (I do like him... talks to me like teacher would a student, trying to teach me all I want/need to know). Maybe I'll get the MD degree after all.....
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GuyGirl- we will be thinking of you tomorrow...and retail therapy is the best one of all
mtks- i take those supplements to help mimic the role of a traditional AI (arimdex) for even though at my stage and grade and surgical choice an AI is only a suggestion as a possible help for avoiding recurrence I feel better taking something. This will be my first mammo/ultrasound since my diagnosis last last Oct (BMX in Nov). It is my six month visit with the BS.
I am only having nips as my PS is not hip on grafting the aerolas- he just does not like doing any more surgery than absolutely necessary sp those will be tatooted on when my nipples are getting tattooed....hoo haw...how funny is life? I had decided two things in my life....no boob job no tattoos and here ya go I will land up having BOTH:)
Jo- you and I have been through a lot of milestones together and we're getting through this one two side by side. Some of Melmes clear scans bounced right off me and landed up on you!
Ok..so tomorrow is gonna be weird...youngest son has to go to hospital for outpatient surgery to have his annual dental work done because when he was 8 the head of pediatric dentistry at Texas Children's Hospital pulled out three of his teeth when I thought he was givng him shots to numb the area...when my son (autistic) leaped out of the chair screaming with blood coming out of his mouth and I was freaking out the rat bastard had the nerve to say...no big deal THEY DONT FEEL PAIN LIKE YOU OR ME...I swear it is fortunate for him I had to take care of my son and calm him dwn or I am sure I would be in Huntsville. As it was despite a litany of complaints against him he was *connected* and 15 years later I believe he is there still. The result of it all is my son will not allow ANYONE no matter how gentle or kind to go inside of his mouth...all the valium in the world only results in a very loopy guy shaking his head un oh no....hahaha nothing dumb about him...so he has to have all of his work./checkup down under full general anesthesia once a year...it makes me nuts the risk each year we do it....say a little prayer for my guy please...he is a pain in the butt but I love him so much:) I am a pain in his butt I am sure:) we have to be down there at the med center at 530am! argh.....
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omg. annette. omg. i am so shocked at that a$$hole doctor. omg. your son is in my prayers.
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annette - OMG! What a jerk that dentist is. (((HUGS))) and I will keep both of you in my prayers.
Yes, you and I have been through hell and back but have come out on the other side smarter and stronger.
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positive vibes all around!!!
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annettek - praying for you both.
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Annettek: prayers for the little guy is coming your way - and you for peace of mind that everything will be ok.
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GuyGirl ~ Keeping good vibes for a clear mamm tomorrow.
Jo & Annette ~ Early good thoughts for your upcoming mamms & scans.
(((( ♥ K ))))
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