CALLING ALL STAGE I SISTERS

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  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    And also good Luck with the trouble makers.

    Sometimes I don't understand how they have a job when they don't even know how to help.

    I was in a similar situation with QUEST Lab. I understand you. Like you said tomorrow will be a better day my sister.

    ((((HUGS))))))

    Sheila

  • Meece
    Meece Member Posts: 10,618
    edited December 2009

    I had issues with Quest in Sept.  They are not helpful at all.  I have decided to have all my labs, scans, and tests through UCLA.  That way all my records are together, besides my PS stuff.

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    It took them 4 months to resolve it, after insisting that I changed Insurance thats why. Which I never change anything. You know sometimes you get this thick head person doesn't even want to listen what you are trying to say. I involved the Supervisor finally they believed me.  I wanted to slap them. 

  • sue-61
    sue-61 Member Posts: 262
    edited December 2009

    KAC, once I have another cup of coffee, I will PM. Thanks Sheila for the instructions on how to do it!

    I had to fight w my ins co as I had a colonoscopy and the path went to an out of network lab. I told member services that I was too snorked on the medications to ask if they were using an in network provider.  Keep in mind I worked for this company for 8 long, very long, yrs. I do have a contact in the claims dept and it got fixed. Talk about stress tho! I will read the rest of your questions and send u a PM...........Sue

  • gcarter
    gcarter Member Posts: 53
    edited December 2009

    Sheila loved the PM it did make me laugh. Not that queeszy this morning but, have not taken a pain pill in 12 hours..ouchy. Thanks for the support ladies.

    Gina

  • sue-61
    sue-61 Member Posts: 262
    edited December 2009

    Gina, not sure what you are on for pain meds, but all of them make me queasy, and sometimes sweaty. Instead of Percocet post op, I took Ibuprofen. Wonder if you took your pain meds with food that it might help the nausea. Sue

  • kac
    kac Member Posts: 43
    edited December 2009

    Thanks Sheila, I'll give it a try.  I'm glad I'm not the only one having insurance battles like this.  Sorry for everyone else that has gone through it.

    Sue, I'll try to pm you later tonight I have to go get ready for work.  Not sure if I'll get to leave work at 7:30 or end up staying til 9.

    Gina, hope your feeling better.  Not sure what you have but I could not take Percocet cuz it made me nauseated but am able to tolerate Vicodin as long as I drink it with a full glass of water and have something small to eat with it.  Could also be anesthesia still in system.  That makes me totally sick and stays with me for a while.  Only good thing that comes out of that is that I end up lossing a few pounds.

    Meece, love your tree.  Still have to go get one.  We always get a live tree.  Been trying to talk DH into artificial for years.  Who knows, maybe this year.

     Take care ladies and let's all have a great day.  BTW my name is Kelley 

  • carolinachick
    carolinachick Member Posts: 135
    edited December 2009

    KAC - hoping today is a better day for you and I am now craving a hot fudge cookie sundae at 9:30 in the morning.

    Gina - pain meds also make me queasy.  I second the Ibuprofen idea, but be sure to take it with food.  My DH burned a hole in his stomach by taking too much on an empty stomach.

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    Today is the day. DD wants to come over and put up the Christmas Tree.

    I was going to do it alone but since she insisted, I took the offer. (Love the idea)Embarassed

    I will fix her a nice dinner. Once its up and decorated I really enjoy it.

    Gina how are you feeling today?

    Hi My Friends.

    Sheila

  • gcarter
    gcarter Member Posts: 53
    edited December 2009

    I think its a combo of everything. My skin itches fiercly after anesthesia so they thought it was the victotin. Now I am on Darv and I just need to stay away from that much. Last surgery I got sick three days later and I think I would have done the same thing if I took anything yesterday.

    My body doesn't like that stuff I think but, I was afraid to feel the pain.

    Gina Carter

  • louiebern
    louiebern Member Posts: 23
    edited December 2009

    Gina, its definately better to stay ahead of the pain.  At least you know it may have been too much too soon with the meds.  Hope you feel better soon!  I didn't take a look at my Girls until 5 days later. I walked the 3 mile Susan Koman 9 days after my exchange.  If that helps at all to know it will be good soon!!

    ~Mona

  • Meece
    Meece Member Posts: 10,618
    edited December 2009

    After surgery 3 weeks ago, I opted to go light on the pain meds.  On day 4 I was in a lot of pain and took a whole Vicodin, it through me for a loop for an entire day.  I get sick to my tummy and dizzy.  I may not have had enough on my tummy, but I don't do well with pain killers anyway.  Eat, eat, eat.

  • louiebern
    louiebern Member Posts: 23
    edited December 2009

    Ok... Before I get my butt motivated and finally get some things done around the house, I had to log on to get this off my mind.  Everytime I log on I think of these things, then get caught up in reading other posts and totally forget what I wanted to vent about. 

    I wouldn't call it "anger" or "denial" but there has to be a word for it!  I keep saying I am in a rutt.. truth is I don't know what it is, but all I do know is this time last year I had long beautiful hair, fairly nice shape and a nice rack!!  Today I am stylin the Military cut, fat butt and a rack that has no description.  I lost my job the same day my doc called to tell me my biopsy was posative.  OH and by the way, in June my employer screwed me over and hired someone else.  I kinda think it has something to do with me being on the company insurance, but no proof of that yet.  Anyway most of my frustration is because it's so hard to get my life back to normal and even my job (which I am fighting to get back) situation is adding to the BC stress.  I am a changed person but am working hard to get myself back. 

    WHEW!!!!!! That felt good!  Like I said.... I just needed to VENT in the worst way!  OK... back to cleaning toilets!! Laughing LMAO!

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    Mona..Venting feels good doesn't it? not the toilet cleaning.

    Sometimes every worse thing happens at the same time. But Your hair will grow, I'm not sure about your fat A$$. LOL  Do you exercise,? Being ER+ you must be taking Hormone Therapy, its very hard to loose weight.Please don't stress yourself too much. Have a nice cleaning dayWink

    Sheila

  • susu1976
    susu1976 Member Posts: 94
    edited December 2009

    Hey everyone!  I'm new here. Age 51 and diagnosed with bilateral breast cancer in Feb 09 (no family history), had double mastectomy in March 09 with reconstruction at the same time (implants). In April, both sides got infected and the implants had to be removed. In May, left chest wall got infected and the surgeon left the wound open to heal without stitches (that took until late June).

    In June I started chemo (4 treatments every 3 weeks). Had an allergic reaction to the 3rd treatment which delayed the 4th treatment, but finally finished everything a couple of months ago. I'm on tamoxifen for now (pre-menopausal). I have my first 3 month check up with the oncologist 12/21. I'm putting off the breast reconstruction until spring.  Just can't take any more surgery this year. 

    Now I'm dealing with the eyebrows and eyelashes falling out and the hair on my head that doesn't seem to be growing.  Of course, my pubic, leg, and underarm hair is growing back just fine!  LOL

    Has anyone experienced severe bouts of itching?  I have it often, but not every day.  And sometimes it is my arms, other times it is my legs and feet.  The worst is when it is my scalp.  Ugh.

    This has been the year from hell, and I'm really looking forward to 2010.  Oh yeah, I am married and have a 10 year old son--this has been pretty hard on them, too.

  • louiebern
    louiebern Member Posts: 23
    edited December 2009

    susu, I probably sound like the most negative person today.  Actually I'm upbeat most of the time, I think I just hit my boiling point with my journey.

    I had 4 treatments just as you.  Every three weeks.  I started losing my hair before my second treatment.  Eyebrows and lashes were the last to go too, but I didn't lose them all.  My scelp was pretty sensitive.  Didn't really itch much, but didn't feel good to the touch.  Although I couldn't keep from rubbing my head every hour.  I just never got use to being bald.  I did have the itchies on my hands and feet as well. 

    I am 41 by the way.  I have a motto.... If you're going through Hell, keep going! 

    Glad to see you on this site!  I have been a member since Feb, but have only been active about a month.  I wish I had been more vocal earlier in my treatments.  It really does help to know we are not alone and none of us WANT to be here, but we can all openly talk about what we might think is silly, and someone else can really help for us to see things clearly.  Take care!

  • susu1976
    susu1976 Member Posts: 94
    edited December 2009

    Thanks, Mona!  That's funny--I did/do the same thing...can't stop rubbing my semi-bald head.  Hair is about 1 inch long, but the back and sides are thicker than the top--boo.  When my hair fell out, my scalp was super-tender and actually hurt.  No one ever told me that would happen!  I should have found this site earlier, too.  Haven't been to any support groups either.  Dunno why--I guess it just wasn't high on my priority list while going thru all the treatment and surgeries.

    I had the itching during chemo and everyone said it would go away after treatment. I've still got it occasionally, but now I'm wondering if it is the tamoxifen?? I don't have any other SE with the tamox and I've been taking it for almost 2 months now.

    So glad that I found this site!  Looking forward to sharing with my fellow travelers! Don't worry, I'm sure I have a huge "vent" in my future--we're entitled to that much, right??

  • Meece
    Meece Member Posts: 10,618
    edited December 2009

    Welcome to Susu and Louiebern,

    I understand how frustrating things can get.  I had just got a job when I was Dx'd, it carried me through until the Summer since it was a school job and I had surgery and started my chemo.  I got another job, and made it through the rest of chemo (I had 8 tx three weeks apart), went through 6 wks of rads and thought I was doing well.  Btw, I was going through an ugly divorce and had sole custody of two teens.  Christmas came, my divorce went through and it was smooth sailing until my employer fired me because we weren't making enough money.  (That was because he was spending more than we made)  So I finally got back on my feet, found another job, found another husband Wink and have moved on. 

    Life has it's ups and downs.  They haven't stopped, BUT I think when you are going through a life altering disease and it's treatments they hit you harder.  You have to focus your fight in too many directions. Sooooooooo

    Come here, vent and cry and you will be understood.

    One positive thing about the hair falling out, is that with my wig, I never had a bad hair day, which is more than I can say now!

    Best wishes,

    Meece

  • ronqt1
    ronqt1 Member Posts: 565
    edited December 2009

    Hi all, my goodness, so many interesting stories, and wonderful interaction.

    When we were away for the few days, I started to chat with a woman who was waiting for her spouse to finish the conference as was I, and believe it or not, she too is a recent BC survivor. We hugged each other and I could not believe that a stranger I just met became my BC sister.

    It is freezing here in East Hanover, NJ. OOOh,toooo cold. Again, I really do not have anything significant to write, but thankful for this site.

    Just  counting the days to the 15th, my second TE fill.

    Love, Ronna  - For those in the northeast, try and stay warm.

  • Hannahbearsmom
    Hannahbearsmom Member Posts: 266
    edited December 2009

    Hello. I have been reading the boards since October but just recently started posting. I am 46 years old and was diagnosed with stage 1 bc in August. Had bilateral mastectomies with tissue expanders in Sept and am happy to report that I am done with my fills. My exchange surgery will be in March. This week I had ooph/hysterectomy because my tumor was 90% er+ and I have a strong family history of premenopausal bc. I am currently taking tamoxifen also. Didn't have to do chemo or radiation. Just wanted to say hello and introduce myself.

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited December 2009

    Hi, guys!  Wow, 3 pages to catch up on in only a few days!

    Still on drugs for that kidney infection. Calling tomorrow to schedule an ultrasound.

    Did anyone have an ongoing pain in their left side below stomach while on Tamoxifen?  I have this and I'm not sure if it's my kidney giving me pain (not on back tho...pain is on the side/front), or my stomach (maybe too much Starbucks?) or my liver (just checked bloodwork and it's fine) or what!  I NEVER used to worry about stuff like I do now.

    I decided I'm going to give up coffee (WHAT?!) to see if it helps, but all I can say to that is....OUCH.  

  • Meece
    Meece Member Posts: 10,618
    edited December 2009

    Hi, Hannahbears.  Nice to meet you.

    We've missed you, Cake.  Sorry to hear you are still feeling puny!

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    susu1976...Glad you are here with us and the year from the hell is almost over.

    You vent sister, we even slap people here sometimes. I meant people who deserve to be slapped in real world not us.   LOL

    Hello Hannahbearsmom...  Please drop by anytime for whatever reason.

    Cake...Sorry you are still not feeling good. But are you crazy for quiting coffee for good.?

    Have 1 cup in the morning, don't make it very strong.

    I only drink 1 cup each morning I call it my relaxation time.

    Take care Ladies

    SheilaSmile

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited December 2009

    susu - I had full body itching that started around chemo tx #3 and it got worse after tx 4 - lasted about 1 1/2 month after my last tx...I thought I had FLEA'S!!! We have 2 dogs and 3 cats...treated the WHOLE house and all five animals TWICE...Finally figured out it was just me...must be one of those rare se's that only hits a privileged few.    I am happy to say that the itching has pretty much gone away (except that associated with the mild neuropathy in my feet and hands).   You are not alone!

    Shelia - I love that my new avatar reminds you of the pre-chemo me!! Your comment made me smile!

    I always have such good intentions of responding to everyone but I lack the patience to write notes as I read and by the time I catch up I am so confused as to who said what I normally don't post anything soooo....

    Welcome all newbies!!!

    Congrat's on those who have recently finished their exchanges, chemo and rads!

    Healing HUGS to everyone!!!

    Good Night to All!

  • deborye
    deborye Member Posts: 2,441
    edited December 2009

    o2bhealthy,  DITTO

    Healing HUGS to everyone♥♥

  • gcarter
    gcarter Member Posts: 53
    edited December 2009

    Welcome hannabear

    Not much to say today. Just getting through the day.

    gina

  • valjean
    valjean Member Posts: 1,110
    edited December 2009

    Anxious because tomorrow I find out the results of the biopsy I had last week. Also had a chest x-ray pre-op & hope that was clear. But, I do get these stitches out, thank goodness; have only ever had the dissolveable ones.

    I will post pics of my villages when I get them transfered off my camera to the computer.

    deborye ~ love the Angel picture. My Angel is my Mother, I sure do miss her. She just loved Christmas....

    {{hugs to all}}

    Valerie

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    Valerie  You will be in my thoughts tomorrow. try to post it as soon as you get the results.

    ((((HUGS))))

    Sheila

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    Nicole...Its been 2 days since you posted. Are you feeling okay?

    Because I see you here every night

    (((HUGS)))

    SheilaSmile

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2009

    This is my actual Christmas Tree that we put up Tonight.

    You think is it too dark or I should go back to my bright color Xmas tree Avatar?

    Some of you might think I'm a nut case. But I need a honest opinion. Can you really see the tree?

    Thank You My Friends and Good night!

    SheilaEmbarassed