CALLING ALL STAGE I SISTERS
Comments
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annette - You are not being self-centered. What you are dealing with is real and you need to sort is out. You know we are all here for you. We are good listeners. You are a strong lady - take it one step at a time. ((((HUGS))))
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Annette, as I always say, "as if BC weren't enough" ...
Most women who have been through this end up realizing it was necessary.
Trouble is, it's not about "most women" - it's about you. What an insult to have to be in the same space as she was.....but now that's done and you can take steps forward.
I'm about to have a pre-midnight snack before I start my "fast" due to procedure tomorrow. I hope I'll be home tomorrow...could have to stay over. I am jittery, but resigned....once again, as if BC weren't enough......life goes on.
Love and hugs to all,
Joan0 -
Jumping in your pocket Joan.
good Luck.
Hugs♥
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Good Night All.
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Thanks, Sheila
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Goodluck Joan!!
Sheila my Tumor marker CEA 27-29 was 25 this time. Stress, sickness, etc can cause the numbers to be off a little. My hemoglobin/iron was a little low and I had been sick. But they tell me as long as it stays below 40 all is well. Of course if it goes above 40 it doesn't mean anything negative it may only mean you have some kind of virus or bacterial infection going on. Different things can adversely affect the number that is why my MO doesn't do it, my RO is the one that orders the test.
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All the bes to you Joan!!
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I'm in your pocket Joan
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Joan - I am joining the pocket party. Good luck today.
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Joan---im there with you...move over sistas.
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In your pocket too, Joan!
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Hello, ladies!
I have my Onc score 18. My doct said no chemo, but I;m so scared.
I want to ask you if you had vascular, lymphatic invasion on tumors? Is that usual or it is a bad sign?0 -
Joan - praying for you.
Isa- my onco score was 14 and my MO said no chemo either and at first I was relieved. Now I am scared. 14 is still high. I do not have vascular lymphatic invasion.0 -
Joan,
Hanging out in your pocket as long as necessary. Sending gentle hugs & prayers.
ANNETTE - Vent as much as you need to and please don't apologize. We are here for you...
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ISA-did you go for a 2nd.opinion?0
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Isa: My score was 13 which is considered low risk and no vascular invasion. A score of 18 is considered low to moderate risk which means you might not even benefit from chemo, but if you are concerned, it would be wise to get a second opinion.
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It is considered intermediate risk, but if you look at the chart the benefit it's very close to "low risk" . You can bearly see the difference on the chart. And it's not even 4 procents if you read that.
It's difficult to get second opinion. I'm going in a private clinique in another country . In my country I don't trust doctors and they don't use Oncotype at all. I am thinking to try to see another opinion in Germany, but I don't know doctors, where I am going? I trust the hospital there, but very important is the doctor you talk with
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Mimi, Kaara, Sherry, Jo, Granny, Hawk, Odie, everybody,
Great News - After driving 60 mi. in snow and rain to be there by 6 AM, I was pretty calm and happy to go in early. I was clinging to my anti-anxiety props (iPod, listerine tabs) and I discovered my gown had a pocket in front to hide stuff
I peeked in and had to smile - thinking of y'all having a party in there
I was able to sleep through under IV sedation - I even had my iPod on when I went in the lab so I went to sleep with music and woke up with music...and was told immediately that they found no blockages in my arteries and I could go home!!! I slept on and off all day/evening.
Thanks, my friends.
Joan
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Yay Joan! Great news. Glad it went smoothly for you.
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Great news Joan...so happy for you!! I found out yesterday as well that the echo cardiogram they did on me was normal, so we both have something to celebrate!
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Joan, great news!
(((Annette))) What Ducky said and take it a day, an hour at a time. You can do this.
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Isa: I don't know your age, but that factors in as well...I'm 71 so my early stage bc was slow growing and less likely to recurr than if you are still in your 40's and 50's. That also has to be taken into consideration when you think about chemo. You don't live in the USA, but here a conventional doc would never not recommend chemo if he thought there was any possibility it was needed. I was thrilled when my doc said I didn't need it.
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Good news on the ECHO for you, Kaara! It's nice to hear good reports, and each one is a reason to celebrate!
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Hi everyone, just stopping in to say hi!
Rejoicing with good heart news!
Had my post op appt with BS and met ONC and Genetic Couselor. They took their time to explain things, early stage, caught very early, clear margins, clear node, but I am waiting for the BRCA test results. Going ahead with the RO, set up appt for next wed.
I am still struggling with being tired all the time. I can just fall asleep anytime. I am back into my regular routine of working and all, but just have to force myself to interact with people. I'm thinking if I keep going through the motions it will get easier. The good news is I seem to be seeing lots of doctors, so I can keep mentioning to them this fatigue and I am not even in active treatment. They keep asking if I am depressed, but I don't think so, and drugs are not always the answer. Anyway I am walking forward and glad I am not alone.
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Kaara, I'm 34 . I will go for chemo and before I will talk to doctor face to face and I will see if something changes to my decision.
I am wondering if I delay hormonal tratement (wich seems to fits me better than chemo), it can be a mistake too. I mean I will loose some time for hormonal with something it's not clear if it has any benefit for me(chemo) 0 -
Ladies, it is true that animal protein can help cancer to grow? Here it's a habit to become vegetarian. Did you change things like that in your diet?
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isa: At 34 you have a very different prognosis than someone my age of 71. You have a lot of years ahead of you and you want to do whatever possible to prevent any kind of aggressive recurrence. I would get a few opinions before making a final decision. Do some research on bc in individuals your age and look at the statistics for recurrence and long term survival with and without treatment.
In the states, most young women do surgery, chemo and anti hormonals. It is "standard of care" from the medical community.
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Congrats on the great cardio news Joan & Kaara... Has to be a huge relief. Hope we didn't leave too many crumbs from the pocket parties...
Isa - As Kaara mentioned, here in the states, treatment generally consists of surgery, chemo if needed and the antihormonals. I am 41 yrs old and had an Onco score of 13 thus no chemo. (thrilled not to need chemo as the long term effects scare the bejeebies out of me) ... I have changed my diet to eat more food in its natural form and eliminated any Soy but have not gone vegetarian. Not a huge meat eater but do like a good steak and get protein from chicken. I do try to buy organic or hormone free meat & milk. May sound overcautious but I figure with my age, I need to do as much as reasonably possible to reduce any recurrence risk....Wishing you the best luck on treatment, go with your heart......
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odie16: Very good choices on the diet...I'm doing the same...what can it hurt? My naturopathic doc said meat is ok as long as it's grass fed, chicken should be hormone free, free range, and fish must be either wild caught if salmon or a small fast growing fish like mahi mahi so it doesn't have time to collect mercury from the contaminated waters. Soy or Almond milk is better than regular. If you are on hormonals, avoid the soy products; otherwise they are protective.
Diet and supplementation are a huge committment, but the benefit is that I lost 12 pounds and people think I had a facelift or something...LOL...when I tell them I had bc they can't believe it. I probably could have had a facelift for what it costs now to eat this way:)
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Thank you very much.
The clinique that I'm going to is in afiliation with John Hopkins and I think it's kind of american too. Even Oncotype is used mostly in US those days. This is a plus for them, in my opinion.
AS I know soy is not that inoffensive to the hormons. Better not.
Doctor said 4 times chemo, every 3 weeks will be enough for me. God help me to choose well. My son is to young for that.
(Sorry if my English give you headache
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