CALLING ALL STAGE I SISTERS
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I feel so blessed that I haven't had any anger about this disease so far...just frustration and disppointment in having to go off all my BHRT and in some of my treatment options, but I've been able to sort through those and pick the ones that I think are right for me. I think it helps to have friends and family who are loving and supportive and for the most part mine have come through 100% for me.
My journey is long from over as I am just beginning the hard part, post surgery treatment with tamoxifen. I am going to go into it expecting few SE's. In spite of the recommended dose, I am going to start on a lower dose to see how I tolerate it and then step it up as I go along. If I can't tolerate the lower dose, then I will know it's not for me, and will need to take another path.
It's all a crap shoot IMHO! I'm looking forward to that cancer vaccine seeing the light of day in time to help us all. I think we're on the cusp of a new era in medicine...it is now being recognized that the body's immune system is quite capable of killing off disease, so now we harness that power and let it do its job! This is the premise of the new cancer vaccine and I love it.
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I agree totally on the crapshoot theory Kaara:)
Anger about the disease? I wouldn't call what I have is anger at the DISEASE....more my self for thinking me invincible. I realize we can never truly prepare for disaster...but geez. I finally did some filing today (only 1 and 1/2 years past needing to) and reread all my reports....I wish I could go back and hug myself then at the beginning, it was so damn scary....I see all the notes I scribbled all over everything...questions marks...CT PT Bone scans....blood work....path reports...onco test....since I can't go back in time I think it is a good time for us all to give ourselves a hug right now....this crap really is like the tiltawhirl....once autopilot turns off, it spews you out and then you start spinning....I truly think I would have los tmy mind had I not found this board....groups held no interest for me....I hate admitting being scared so it was easier on here....I love you all:)
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Big group HUG to all!
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Hugs to everyone! We're all in this together:) Annettek...agree totally...could not have kept my sanity if not for this site! Boyfriend would not have kept his either!
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is this a group huggggggggggggggggggggggggg
IM IN.
((((((((((((((((((((((((((Annette)))))))))))))))))))))
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Ah, that felt gooooooooooooooooooooooooooood:)
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Welcome Staminia. I'm glad you found our group. Each of the girls here have had different experiences with their MO, RO, BS.... with each of the med team trying to prevent a recurrence. For me I couldn't take the tamox because the risk of blood clots so my MO wanted me to try the Al's. Didn't have a good response with them so I'm doing DIM with other vitamins. Follow your own gut feelings about all the information handed to you, and there will be a lot. Take one day at a time and know the ladies are here for you.
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Count me in!!! Couldn't have said it better myself Annette... HUGS!!!!!
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HERE COMES A BIG GROUP HUG!!!!!
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My silly computer is giving me fits.... It keeps wanting to search and do shortcuts while I type!
just want to get in on the ((((((((((((hugs))))))))))))
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HHHHHHHHHHUUUUUUUUUUUUUGGGGGGGGGGGGGGGGGGSSSSSSSSSSSSSS
ALL AROUND.......................................................................HUGS
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Welcome Stemanita - You have to decide what you will feel best about in the long run. It's all a guessing game for all of us. Either way, you'll find support here.
Thanks for the group hug Sheila & Jo. I'm just crawling out from treatment #3 and gaining back some of my sunny disposition. Three more to go
, and then I hope I never have to do chemo again
. Hugs back to all of you who make this so much easier.
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I'm in!
((((((((Grouup)))))))Joan
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Me too!
{{{HUGS}}}
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Me too!
(((((HUGS)))))
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Staminita, is OK to be angry, I am NED after 9 years and still angry, just don't let it be an obsession. Take your time to make any important decisions and keep asking questions. I had been through a year of hell before my bc diagnosis, lost my Dad to his 3rd bout with cancer (he had colon twice, passed with throat and lung cancers) and then diagnosed myself with colon 4 months later, so when the breast cancer dianosis came so close to my finishing chemo I was VERY angry and scared. I thought long and hard and decided (early stage 1 bc and felt guilty talking on this site to those in worse trouble) and chose to not do chemo or hormonal therapy with little support from ANYONE here or at home, like I was just being a wuss. I decided to ignore the flack and do what I wanted instead and have not regretted the decision. Since then I have met others here who do not judge your decisions and know it is a personal experience. Best of luck with whatever path you take and I hope time passes swiftly for you.
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Is the group hug still going on or did I miss it????
(((((Huuuuuuugggggggg))))))))))
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I love group hugs
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Me too here's a {{{{HUG}}}}!!!! Love all you ladies
I couldn't survive without each and everyone of you. You each make my day special in your own way. I'm still searching for a job, but there was one I sent in a resume for before Christmas that is suppose to start interviewing in Feb. I sent them a follow up email last Friday and they told me they would be intouch with me to schedule an interview within the next 2 wks. Please keep me in your prayers. I really need a job. There is also another job possiblity at the hospital for a cardiologist as a office manager, but he had trained his last manager to go into surgery with him.
My meds from the doctor for stomach has me feeling so much better these days. I haven't felt this good in a while. Now if I can just get back to work.
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mimi1964: Sending you a prayer that you will find a job that you love!
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Mimi - hope you find a job you like soon!
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Mimi - Keeping my fingers crossed and prayers said for you to find a good job soon... So glad to hear you are feeling better.
And to everyone, ((((( HUGS)))))))
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Mimi - Glad you are feeling better and hope you find a job soon.
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OMG...I am 20 pages behind...suffice it to say....can't get it all read. I can, however, get in on this great group hug!!!
Hands are almost back to normal size post Arimidex and edema in the chest area is going down, though it is still very present along the side of my ribs and my back...looks like backfat....but moves like fluid! thank goodness for lymph massage..if nothing else, she reassures me that it is moving and leaving...My energy is back and I feel more like me than I have in a year....still hav enot told the oncologist that I have quit the Arimidex...guess I need to make that phonecall soon....just do not want to be called re. another drug...
Going to be 50 next month....tired of waiting for test results to get on with my life. Does that make sense ? Oncologist, breast surgeon, cardiologist all have said ' get on with your life' and I am sometimes afraid to..in the sense that right now, right here, I am near a hospital...11 months ago, I was planning to be on a mountain top in Nepal and now I am afraid to travel unless there is a facility nearby....WTF? Need to work on that obviously....
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Sandee - I do know how you feel about this "get on with your life" stuff. It sounds like you are in a much better place than a year ago so make plans to do something totally fun and exotic. Don't worry if there is not a medical facility close by - you are not going to need it. Life is too short - go out and enjoy it sista.
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Thanks Jo....I AM in a much better place all around...am waiting on a job thing in China for a month...that would be cool...coukd visit my sister and a friend while getting out of my own way ...otherwise, if nothing materializes in March, I plan on taking off for a week or two just to go and BE for awhile...life is short indeed. no regrets
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Mimi - I am so glad you are feeling better. Happy job hunting and prayers for that perfect job for you.
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Mimi - they won't be able to resist ya! Good luck
Sandee so glad to hear you feeling better buddy - I am looking for an adventure too!!!!0
