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CALLING ALL STAGE I SISTERS

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Comments

  • Meece
    Meece Member Posts: 10,618
    edited March 2012

    How much Biotin do you take?  My hair has thinned terribly and I have Biotin, but perhaps I dont take enough.

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    I take tamoxifen and it lists hair loss as a SE.  If you take biotin supplement, it is supposed to keep that from happening...approx 5,000 IU's daily.  Also, my MO tested my blood and liver when I went for my check, so I assume that is what he is checking for.  These are powerful drugs we are taking and not without some toxic impact to our bodies.  Make sure you get those regular blood tests to make sure you aren't getting too much toxicity.  As I said, I am only taking 1/2 of the dose recommended by my doctor and I'm still getting SE's but they are getting better.  When they subside, I will try and up the dose to the recommended one.  This way my body can transition properly.  I don't always play by the same rules as the doctors...hehe!

  • Meece
    Meece Member Posts: 10,618
    edited March 2012

    Thanks.

  • hawk
    hawk Member Posts: 255
    edited March 2012

    I second truebff & the rest! - call your MO and then get a 2nd opionion.  There are different AI's so your MO should help you find one that doesn't have SE's for you. I am not sure about Arimidex - but is is a generic?  I have read on here that even different brands of the same medicine cause different SE's.

    Talking about AI's and SE's, Joan, how are you doing???

    Sherryc - thinking of you and hope you are doing really well.

    I need a Ducky rant about hating cancer right now!.  My mom was just diagnosed with uterine cancer.  If you pray, please say a prayer for us.  

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2012

    ducky

    granny

    Joan

    Jo

    Judy

    We missed you...please come out and report that you are OK

    ♥♥♥HUGS♥♥♥

  • onvacation
    onvacation Member Posts: 521
    edited March 2012

    Heather, sorry to hear about your mom - sending healing thoughts and prayers your way!

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2012

    Hawk...So sorry i missed your post or the end of it...

    Sorry for your mother.....Hugs to both of you ♥

  • tinat
    tinat Member Posts: 2,235
    edited March 2012

    mimi - Is your MO available via email?  If so, I would at the very least ask a few questions that way.  I always gather a list of questions between appointments, but if something was really bothering me I wouldn't wait and stress about it for many months.

  • annettek
    annettek Member Posts: 1,160
    edited March 2012

    Meece...I have more hair than what I know to do with and I credit the biotin....I added it in after the BMX because my hair was thinning anyway and now I have a full crop along with the strongest longest nails in my adult life. I take 5000 mg per day.

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    hawk:  Very sorry about your mother...hopefully they have caught it in time.  Sending prayers and hugs!

  • annettek
    annettek Member Posts: 1,160
    edited March 2012

    Oh Hawk...I di dnot see the post either...I am sorry buddy, sending prayers.

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2012
    ANNEEEEEEEEEEEETTE ...............Smile
  • deborye
    deborye Member Posts: 2,441
    edited March 2012

    THANK YOU ALL♥

     

  • annettek
    annettek Member Posts: 1,160
    edited March 2012

    hiya all...thanks sheila...I am needing a little hug right now.. I wasn't going to say anything but what the hell here goes.... my sister has dumped my mom....literally...in a nursing home so she is free to be &IN LOVE&& for the fourth marriage at 62...after two years she is ready to live (mind you she has never missed a beat and has a full life and career (that I got her at my company)...anyway, about three weeks ago, after meeting her new LOVE three weeks before that, said take mom or I am finding a home for her...I SAID WHAT THE HELL ARE YOU TALKING ABOUT>?! She has fulltime care for mom (paid for by mom) and is not trapped in any sense of the word...she went on to tell me that since I am home anyway with my youngest (with his autism) what is the big difference if mom lives here too...that i can hire someone to "look at them" at myhouse instead of hers...this is vile and I cannot believe she would do it so I say there is no way, not with the past year...the BC, the BMX the reocnstruction and oh yeah in the midst of divorce after 35 years and the kiddo spiraling out of control because he does not understand why papa does not live here and he only sees him a day or two if lucky a week....my sister said yeah i know you have had a rough year or two but this is MY TIME TO SHINE!!!!

    so next thing i know she announces mom is moved in...that was just this wednesday...I WAS FREAKED OUT THAT SHE DID IT>..i know selfish and self centerdness but this is ridiculous...I never dreamed she was so....well...i went there yesterday and completely lost it...my mom....who has given everything she ever had in her being to all of us was laying in a dingy room on a metal bed with all of her world reduced to some pics on a cheap three drawer chest..I WENT BERSERK...I had just left a funeral for my friend's father...so my mind was already reeling....I had to calm don so mom did not get upset..she was just laying there looking like life was over....i stayed and faked it and got her to go for a walk and then got out of there...I could not call my sister last night for I feared I would go over there are literally knock her out - we were NOT RAISED THIS WAY...I slept on this and prayed for strength and knew I would keep the promise I whispered to mom before i left...that I would be bringing her home...I called my sister this morning (which is weird since she friggin works in my office and calmly said I am taking her home how do I do that...she asked why....i aid well she will die there and i cannot let her stay...there is no reason for our mother to be in a nursing home...she is not sick...she is old...my sister said fine but can you get her out before saturday so billing does not hit! HOLY GEEZUS....I could not breathe but i kept my tongue and said just get moms stuff together that is at your house so I can set her up and I will bring her home....she said great.. but most of moms *stuff* is gone...not surprising....I was no sooner off phone when my lovely sister rushes out of office to go SIGN OFF on my mom at the nursing home (which is 25 miles away from any of us -always good to keep loved ones close!!!!!!!!!!) and then calls me and says SHE IS ALL YOURS...and "by the way Annette, she won't have any more checks come in until May..."(I am guessing she is taking Mom's April money as a little bonus for her martyrdom- that all the money and the house that her and my brother looted from mom was not enough-she's gotta take the small pension and social security mom gets as well)....I said no problem ....and she said you can;'t change your mind...i just shook my head....

    so.... my mom is coming to live with me and you know what, it is all going to be ok, because that is how it should be...i only wish i could have done it sooner...So this is not a downer in any way for it will finally be as it should be....

    here is the picture I took of mom and me yesterday before I left...isn't she beautiful!!!!!!!

    momandme

  • annettek
    annettek Member Posts: 1,160
    edited March 2012

    sorry that pic is so big could not make it smaller

  • onvacation
    onvacation Member Posts: 521
    edited March 2012

    wow annett - sorry you are going through this, but yes your mother is beautiful and you are a good daughter.

  • deborye
    deborye Member Posts: 2,441
    edited March 2012

    You are a good daughter, give yourself a big pat on the back.

  • hawk
    hawk Member Posts: 255
    edited March 2012

    Annette - you are the one who will be blessed by this. Sending love hugs and prayers.

    Thank you all for your love and support.

  • mostlymom
    mostlymom Member Posts: 378
    edited March 2012

    bless you annette - the sun shines on you and your mother.  i feel sorry for your sister, she lives in the shade....

  • Sherryc
    Sherryc Member Posts: 4,503
    edited March 2012

    Annette so sorry you are going through this with your sister. You will be the one blessed by all of this.

    I came home yesterday from surgery and healing.  Still having pain and I think my rt is not draining properly.  I am going to call the Dr in the morning and I'm pretty sure I'll need to go in and see him.  However everything else has gone really well.

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    Annette:  My heart breaks for your Mother and for you as well to have to go through this at a time when you are just beginning to rise above everything that has happened to you.  I would never want to live with my kids.  I have purchased and carried long term care insurance for that purpose, so that I will never be a burden on them.  Hopefully it will buy me a nice place to stay when I get too old to care for myself, and they can come and visit me if they choose.  Your sister sounds like a real bitch to do this without any discussion and you have every right to be angry with her.

    Sending you prayers and positive energy that everything will work out as it should.  Your Mom is a very beautiful lady with a lovely smile...I can see the resemblance. 

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    Sherry:  Glad you got through your surgery ok and are on the mend.  I'm sure it's a relief to have it all behind you...at least that's  how I felt!

  • chabba
    chabba Member Posts: 3,600
    edited March 2012

    Annette, your Mother is beautiful and you look just like her.  I know you will be blessed having her with you.

  • Vicks1960
    Vicks1960 Member Posts: 393
    edited March 2012

    Annett

    You are doing what I believe we are supposed to do.  Scripture tells us we are to honor our mother and father, and I believe that means treating them with respect all their lives, not just when we are children.

    You will NEVER regret doing everything you can do for your mom!!!!  I know because I have been there and done that for my parents and helping my DH with his parents!!!!

     Blessings to you!!!

    Vickie

  • joan811
    joan811 Member Posts: 1,982
    edited March 2012
    Sherryc, sending gentle hugs and long-term prayers for your complete recovery.  There is nothing routine about your surgery....you are a brave lady.   Please feel better soon.
    Heather, I am so sorry to hear about your mom's diagnosis.  How does this all work ... why does it seem that just when we get our feet back on the ground, we end up being the emotional caretakers once again? And thanks for the call out - I started the Femara - couldn't deal with it with my other meds....decided to split the pills (night/day) but got sick and my meds schedule got interrupted.  Turns out I have missed quite a few days this past week, and actually felt better.  But I have to get back on track.  
    My work schedule is sooo crazy right now that I have only been on BC.org maybe once a week.  I am always falling behind, always exhausted, always grabbing the wrong food.....unable to keep up with life lately....
    How do I get back - centered once again, and keeping all those promises i made to myself?
    My last visit to MO I got my vit D test results and mine's really low.  She prescribed 50,000 units to take weekly.  That sounds excessive to me. I wonder how much is being absorbed??
    Annette, I think there are 2 kinds of people in the world....those who do the right thing and those who do not. I just cannot believe with all that is going on that you are taking on this change in your life with no preparation. You are a special lady to embrace this so graciously. And yes, your mom is so beautiful and deserving of home and family.
    Missed you all this week.....
    Joan
  • valjean
    valjean Member Posts: 1,110
    edited March 2012

    Joan ~ I also feel like I have been running around like a chicken with its head cut off. (gross) Before I went on vacation last month I ordered my Aromasin (generic Exemestane) & set it up to be delivered Mar 6. Well, it did not arrive! On the 7th, & since, I have been going around & around between Pharmacies, Dr offices & insurance co. I won't go into the whole thing (it's crazy!), but the stress level is unbelievable!! The med was finally shipped as of today. I know my BP is up.

    And I have my 6-mo Onc appt next week, Thursday (it was rescheduled) & I am really, really stressed about it. The labs were done last week & I feel like I am obsessing about it. I'm worried & I don't know how not to be. I feel good, no pain anywhere as they say. I'm sure part of it is that I have been having to take the generic brand that I don't want to take - more SE's - more grrrrr moments! I had a hard time not taking somebodies head off on the phone when trying to get the whole Meds thing resolved.

    I just feel more scared this time........... scared of the results......

    If your doctor has prescribed 50,000 units of Vitamin D for you to take weekly, then that is the vitamin D2 & it just gets the number up more quickly. (they say - I don't believe so) My DH had a parathyroid removed & was on that for a couple of years. I finally got him to question his doctor in taking it because the over-the-counter Vitamin D3 is the one you need to take to get the level closer to what we bc gals should have. (and what he needed to get back to after surgery) My last result was 72. The first time it was checked they did the wrong test (Vitamin D, 1,25-Result 32. If I remember correctly, that checks the D level in your kidney-if this is wrong, please feel free to correct me anybody). The test we want is 25-Hydroxy D total (D2+D3). I take 6,000 IU daily & plan to have the Dr add the test on my next work-up in 6-mos.

    Anyway, the only thing I can suggest is - what am I saying? I hardly know what to do myself - anyway, I guess the first thing I plan to do is take a very deep breath & look around at all I love, the nature, my family & try to start from there. I need to practice what I preach!

    That is a good question, Joan.

    Anybody????

  • valjean
    valjean Member Posts: 1,110
    edited March 2012

    Annette ~ I can't begin to tell you what a wonderful thing it is that you are doing. God bless you. What a beautiful picture of your Mother & you. I remember the pictures around the pool you posted last summer (?). She is a lovely lady. She is very lucky to have you for her daughter. I won't make any comments about your sister. I'm sure you can guess what I might say & that is not my place. Hugs to you & your Mother. (You are soooo fortunate to still have her in your life. March 6 was the 34 th anniversary of my own Mother's passing.... hey, maybe that is something else that is upsetting my applecart these days...)

    Sherry ~ I hope you are resting comfortably & continue to heal. ((Gentle hugs))  

    hawk ~ I will add your Mother to my prayer list. I hope she is doing well.

    Well, I must go. It is 2:24 am here & the alarm goes off at 4 am for the DH, so must get to bed.

  • Galsal
    Galsal Member Posts: 754
    edited March 2012

    Annette!  Bless you for doing what is RIGHT.  Your mother deserves FAR better than your sister gave her and she's about to get just that - with YOU!

  • Snoopsmom
    Snoopsmom Member Posts: 42
    edited March 2012
    Annette - My mother lived with me for 11 years and it was a true blessing! I'm a widow as well so we were able to travel and just be together for those years before she passed. I'm so glad I had the opportunity to spend those last years together because I had lived out of state for so many years before that and we didn't get to see each other much. I'm sure you'll come to cherish this time together as well, as difficult as it may be for you with your son, etc. God bless you!
  • truebff
    truebff Member Posts: 322
    edited March 2012

    Annettek, You are such a GOOD daughter!!!!!!  Such a GOOD woman!!!!! WOW!!!!!

    (After you get your mom's stream of money positioned back to her and you, find a way to  -legally- fire/downsize your sister and never look back.)