CALLING ALL STAGE I SISTERS
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Carrie I choose BMX and glad I did. I figured healing from two was just as easy as healing from one except both arms are limited for awhile but pain wise I don't think it is much different. I currently have TE's in. I went for my last fill this morning and will have my exchange to silicone implants mid August. I am happy to be getting to the end of all this and then just continue on with my Tamoxifen and Zometa.
If you can find out what type of BC your mom has you could do some research and help them out. it is very overwhelming at first but once you get all the test results and starting making decisions it all gets easier.
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joan---glad to see you back....seems like i keep missing you and Sheila...hugggggggs to both of you.
I finally got an appt.for PT for the lumps...i worked hard cause i already had 1 for july 9th and i know it was just for evaluation.Well I found a hospital that has a large PT dept right near my house and i go for evaluation on the 26th of June.I just wanna know what it is and what I could do until the PT begins...
Anyone hear from Annette?????????????its been quite some time now....getting worried.
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Announcing FREE Grass Lake Sanctuary Women's Wellness Retreats!!
All Breast Cancer Survivors who have completed active treatment, who sign up for the first 2 retreats are guaranteed to go for FREE!! (June 22-24 & June 29-July 1).
You will enjoy a weekend of pampering, heart-centered experiences and life-style balance skills for wellness and living healthy. If you wish to register or have questions, please call 734-408-1552. There are still spots for this weekend, so call right away!For those of us in Michigan or near enough or able to get to Michigan:
(sorry, I do not know how to remove the font thing - have tried several times)
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Your the first to know, thanks for all your prayers................my daughter called..............it is a fluid filled cyst and it showed on the us.............................no aspiration, no anything........."COME BACK NEXT YEAR".........GOD IS GOOD...................I'm leaving for the shore around 8pm with her and her husband...........and I will have a drink tonight............................yowza, yowza..............Love you ladies...................
although you would have loved her, I don't want her anywhere near this place..........lol.
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ducky: That's great news! Now you can enjoy that drink! Stay cool!
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Good news Duckie! I am.happy not to meet her here! LOL
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Releived and very happy ducky..♥
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Awwwwwwwwwww Ducky...yes GOD is good.Enjoy the weekend.Have that drink for all of us.
Again anyone hear from ANNETTE???????
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No granny.....We should start doing some research......
How are you?
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Sheila---AS you know i did some research...nothing....nada...does anyone have her phone number?annette does do a vanishing act when things are rough....hope to hear from her...please lets all keep her and her mom in our prayers...
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She logged on June 19
Anneeeeeeeeeeeeeeeeeeette...We missed you♥
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hi ladies, i have been telling my mom about all of you wonderful ladies and how hard i am trying to understand your initials! I am getting there. So the name of the cancer she has is lobular..so feel free to give me any and all advice. I am relaying all of your info to my mom. She is due back here early next week and has an appt with an BS on Monday 7/2. I am going with her and my dad. My dad isn't getting that i am suggesting a BMX and if i didnt say it before, I am a true daddys girl and we are very close so we are now at odds...
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careyomomof2 - My "main" cancer was ILC (invasive lobular carcinoma). Lobular is not exactly rare, but it is not as common as ductal cancer. Lobular is extra sneaky because it tends to be weblike rather than lump-like so is harder to find and is often larger upon removal than measured on imaging studies. Lobular also tends to be multi-focal (pops up in more than one spot), which is why I chose to have bilateral surgery. I ended up having more early lobular cancer found that never even showed up on my MRI. Like I said.....sneaky.
So many emotions tied up with these surgical decisions. I had people question me about being "too drastic" by having bilateral surgery and others who said, "I would do exactly the same thing." If your dad is unhappy with the idea of MX or BMX I'm sure that's extra confusing for your mom. My husband gave me no inkling whatsoever of his personal feelings about surgery, just wanted me to do what my gut was telling me. I was able to have nipple-sparing surgery and I am really pleased with my reconstruction. I'm not thrilled about the whole thing, of course, but I had no idea that these types of surgery even existed. It's pretty amazing! There are lots of options out there if you can find a great plastic/reconstructive surgeon.
I'm happy that you're being so supportive of your mom, but sorry that it's causing some family tension. It's tough, all of it, so keep gathering all the information you can.
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filterlady so glad you are getting the hummingbirds, I would love to see some in our area,we have seen hawks,herons,storks and regular birds & bees & bugs but no hummings. Do I need a special flower for those?
Anyone know what we can do if we need dental work? My PS said no dental cleaning until after I do my exchange but I think I got a little pain and worried I might have a cavity after all these yrs of being good. Just my luck! I have gotten a lot of calls and talked to women at work and never said a word about my issues but they start telling me about their chemo and then I get home and cry about my mom who had ovarian cancer and then saw it on Dr Oz and got depressed and then was set to attend the Music Fest in St Aug with fiance but now he wants to cancel that and us have dinner with his son. That got me depressed too. Has anyone continued with the mouth sores after Arimidex? I quit it and got 3 ointments but still have angular chelitis and the mouth sores are coming back. I cant stand it anymore,I never had all these problms b4 bc darkened my door.
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carey: By all means, attend the next app't with your mom and dad. They need someone who is there for the purpose of taking notes on everything that is being said. Also have a list of questions for the BS so that they can be answered to your satisfaction. If note taking is a problem, take alone a small tape recorder that you can listen to later.
One thing I learned from having bc is that you must be your own advocate and do your own research in addition to what the doctors are telling you. I wanted to be completely informed about every aspect of my tx and that was the only way I could reassure myself that I was making the right choices. In the end, I decided to do things that my conventional doctors were against, like taking a more holistic route, but that was just me.
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Carey
I totally agree with Kaara! There is a LOT of information to be 'digested' but the more informed we are the better treatment we can get. For me, knowing helps A LOT!!!!!
GOOD LUCK.
Vickie
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Carey, I also agree!.....and note taking or recording is invaluable! Several times my DH and I would have different recollections of what we were told during an appt.....we'd go back to the notes and clarify. It really is a great help to have a note taker!
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Tape recorder is much better.When I first came on here(quite dumb is putting it mildly) the wonderful sistas told me to bring it...no one can remember all that you or the dr.says unles he/she is an elephant...I still play things back cause i forget!!!!!0
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Granny, the PT sounds like a good idea. It's time consuming, but you deserve a shot at feeling better.
Ducky, sooo glad to hear the news...hope the shore is wonderful. Today was awesome. I slept 4 hours this afternoon, woke up, went to the beach for a few minutes, and was so bummed about missing a perfect day! But my body said "sleep".
Carey, there are so many factors when there are options, including the type, stage, grade, mom's age, her preferences...her doctors should be able to give her information about the chance of reoccurrence. But the main focus should be a long, healthy and beautiful life for your mom.
Hugs & Prayers,Joan
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Ducky so gald everything turned out OK, sign of relief
Carry I agree go with your parents. It will help them with keeping the information straight.
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Carey, I highly recommend Dr. Susan Love's Breast Book. It has lots of illustrations and explains things simply in ordinary language. My BS recommended it. You might also think about asking your Dad how he's feeling. My guess is that he's afraid he'll lose his wife or that she'll need some sort of awful treatment. My DH was lucky to have a supportive group of men to talk to. I'm sure it's easier to have BC than to watch. I think for him it might be like a new baby - the focus is on someone else and he's left to deal with his feelings.
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Carey, I agree that you need to just ask your Dad how he's feeling. My DH felt totally helpless and the fear for him was even greater than it was for me.
The staff at the cancer center here were and continue to be just wonderful. My DH went to me with most of my appointments, he took notes, asked questions, etc. He also goes to our local breast cancer support group meetings. I told him he didn't have to go but he loves to interact with the other survivors and the other husbands that attend as well. He said it makes him feel like he's a part of everything.
When I was undergoing my radiation treatments, he was able to come to the back with me and the techs explained everything that is done and why. He actually got to watch me have a treatment and it made him feel so much better since he understood the why and how everything is done.
He has been my "rock" and continues to be. I've also had wonderful support from family and friends. I have been lifted up in prayer continually that I really don't think my feet have touched the ground.
The best thing you can do for both of your parents is just be there for them.
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Hey everyone!!!!!!!!!!!!
Just got a message from Annette cause i did pm her here and fb....so i guess the few words she sent me means she is ok.She said its been hectic,say hi to everyone....
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Thanks granny, I for one, have really missed that woman.
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Thanks granny for the update on Annette
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I was relentless..kept on sending her messages so she did the 1 liner.lol.
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Sheila, i did review the website and it was very helpful. I finally understand the PR's, ER's and HER's and the TE's...next up the study of oncotype:)
TinaT: thanks for the info on Lobular. I wonder why the BS in Florida told her that it rarely travels. That doesn't seem like what i have been reading.
Sherry, I noticed that you are BRCA negative with no family history. What made you decide to do the test if i may ask. I was wondering about that myself and even if i would want to know. If a person has no family history,wouldn't it be unlikely that they would be positive?
Oh this is all so confusing and scary. I think that i have just been riding the "i will never get it because i have no history bandwagon", not that i have history, i am frantic over it. Everyone that has daughters, do your daughters panic over whether or not they will get BC or am i just a hypochondriac? One thing i do know is that i am pushing for the MRI for sure.
Good night to all.
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carey...I have 2 young adult daughters....
I told them both they should get a baseline Mammogram when they turn 35.....
No you are not a hypochondriac when it comes to our children...
We always thing the daughters but the sons are also high risk..........
Sheila♥
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