CALLING ALL STAGE I SISTERS
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uuggh! So if i understand this all correctly, even if my mom decides to have a double MX, she may still have to get chemo or radiation depending on the pathology report of ER, PR, HER, onco type etc.?
Well i am going to the appt on Monday with my parents. My HR manager is giving me a hard time which is not normally the case. I have a pretty good job and my local office (which my company is national) is normally really good about flexibility. We have 2 new hires coming in on Monday and all of a sudden I have to be there "my name is one the door next to the company logo" - yeah right!!! Sounds like i need a pay increase!
Meanwhile, any pediatric nurses around out there? i took my 12 yo, persistent cough - i mean all day and night. thought it was allergies, claritin to no avail which normally works. doc said a little wheezing but no sinus, temp etc. gave breathing treatment - worked for like 10 min. also prednisone for 3 days with an inhaler but yet he coughs and we are all up and i feel horrible listening to him cough! no luck with delsome either. i need sleep so does he!
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TinaT- Good that you actually make a decision about no chemo in your case, I'm still at a very early stage as to do chemo or not. I hope the hormone receptor results are going to help me decide. Didn't know waiting for these tests results after the surgery was that nerve racking. I mean I thought since the cancer tumor was no longer there it would make a difference in how I feel about waiting for results.
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Annette,
Your idea of "normal" and my idea are quite different!!! Sounds like you did an awesome job of getting that peace of mind which happens when you cross things off a longtime list.Kaara,
I really don't worry that much...but the AI drugs do play games with my mind and well-being. The good news is, I recognize it for what it is.Well, my 4 yr old DGD is probably going to be up soon. We are having a sleepover.
Good night all0 -
Annette, it is so good to hear from you. I have missed you. Thank you for the update on your Mother. I will say this: I feel your Mother is everybody's Mother, you know. We all care what she is going through, we wish we could be there to help you. Please give her our love. Think of you often.♥
K ~ LE, well, that sucks!! I'm sorry it turned out to be that.... I know you will kicks its arse... If you need some back-up, you have my number! Huggggs, sis. ♥
Joan ~ You gave me comfort when I posted I was feeling down because of the news I shared concerning a couple of bc sisters. (a new Angel & a recurrence) Sending you strength & hugs to help you through this low time. You have a beautiful outlook on life. You always look ahead to the future. You are an example I should heed. ♥
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Carey, Did they check for whooping cough? We have an epidemic in Washington - even adults are getting vaccinated again.
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The result of my Mammogram=
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yeah Sheila!!!!!!!!!!!
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careyomomof2 - Radiation is a "localized treatment" and is typically only used when a lumpectomy is done to help ensure that there are no cancer cells left behind in the area of the tumor. Chemo is a "distant treatment" to ensure that there is no recurrence outside the breast (mets). Chemo can be indicated whether lumpectomy or mastectomy is chosen and depends on many factors (stage and grade, hormone receptor and HER status, lymph node invasion, etc).
sheila - Yahoo!
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well i went for my first tx.like her a lot but she doesnt think the lump on my other arm has anything to do with the bc.so what is it.she dont know.AND she also claimed i never had edema that it was always LE just that stupid pt made a mistake...the bug bite just set it off...oh joy!!!!
Sheila and Val....i got to see both of you at the same time.lolSheila im goin to brooklyn for a few days..i will only be in and out fo the car..WITH LONG SLEEVES AND PLENTY OF STUFF TO KEEP THOSE BUGS AWAY....and YAY for that big smile
Val...sista/friend...you do a wonderful job of uplifting the sistas up...I know you had heartache and when you hurt we all hurt...
everyone else-----I love all of you.enjoy the 4th.ill be back for my next appt.on thurs.
damn its gonna be close to 100 deg.for quite a few days...I hate the summer.
hugggggggs K
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odie16 How are you? You are right...we have come so far.
Val, Thanks for your kind words. I know in my heart how I should be -- not always easy though. I hope you are having a good summer doing the things you love most.
Sheila,
So happy for you! (can you tell?)
Joan
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Yes Joan you even changed your avatar for this occasion ::))
Nice to meet you
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Shelia:
I'm doing the happy dance for you!
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woohoo Shelia!
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Happy dance for Shelia!!!!
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Nothing like a good mammogram to encourage all of us!
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Sheila: That's great news! So happy for you!
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Sheila, That's fantastic. I go for mine on July2. Hope my news is just as good.
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Shiela, wonderful news. Ptdreamer, hoping for the same for you.
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Sheila ~ Wonderful news, sis, on the mamm. I am so happy for you!
ptdreamer ~ I am also hoping the same good news for you.
Huggs K.
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Hi there, i am plugging in to the stage 1 group here. Wondering ...... What do they do at the 3 month check up? I am due for mine in July. Mammogram would hurt! I am going to have BMX though so maybe I can forego 3 mo check (thinking out loud). Anyone else having trouble sleeping? Ugh!
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Had my surgery in May and don't have my first mammogram until November. I am sure I will be pretty nervous for that! Then, I guess, we just get used to it.
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Belinda: welcome to the thread...lots of good support here! The time will pass fast for you. I would suggest that you not think about or focus on the upcoming mammogram but continue to live your life moment to moment, enjoying each day as it unfolds.
Sending you lots of positive energy!
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I'm going in for my 4 mo appt on July 20. No one has mentioned mammo and they don't want blood work. I'm sort of wondering why I'm going to the Onc's office. I'll see what they do/say. If they're just going to look, my GP can do that for $25 less than my specialty co-pay. I am curious to meet my ARNP - hope I like her better than the Onc. My impression of the Onc was that he doesn't appreciate women looking up stuff. I didn't get excited when he said no chemo because I'd already figured out that I wouldn't need it.
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Hey ladies,
My doc told me that after BMX direct to implants, the regular check ups will be Ultrasound and phyical exam to the breast area, he said that since I have no breast tissues, I won't be doing a mammogram. I don't understand how a mammorgram can be done since I have implants. Won't the machine squash the implants? I don't even think a mammogram is even possible.
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Hi Soyaandpepper - Some women here have had lumpectomies and some have had unilateral, not bilateral, mastectomies. So mammograms would still be in order for remaining breast or breast tissues.
That said, is there anyone here who has had bilateral implant reconstruction and is still getting mammograms (ouch!)? I was told I would be followed up with manual breast exams, although I've actually had a number of ultrasounds and an MRI since exchange surgery to evaluate several lumps. In fact, waiting right now for a call to schedule another follow-up MRI.
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I think follow up exams are to check healing and overall recovery. I have not had any tests since before surgery. Dx July 2011, next mammo July 2012. No MRi or other tests. I have had follow up exams with BS, MO #1 and MO #2; RO and survivorship RN. Each does exam and assessment.
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Love checking in to see good news. Happy dance Sheila!!
ptdreamer - hoping for similar news for you as well!!
Today is a bittersweet day for me as it was one year ago today that I realized I am not as invincible as I thought. Words simply can not express how much the friends and support I have found here have meant to me.
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Hi odie....congrats on your anniversary. I also thought I was invincible but found out I'm not. I'm looking forward to my one year anniversary....it's been a scary and yet wonderful year for me.
Me and DH spent the afternoon with our younger son (33), his wife and our 2 youngest granddaughters (ages 3 and 4) at a local waterpark. We spent about an hour and half there before it started thundering so we left and went to a local hamburger place (Backyard Burgers) to eat. What a wonderful way to get tired.
Just watching those grandbabies having so much fun with us is so worth it. They really love us and once we got there, they "forgot" about their Momma and Daddy. They grow up so fast and I am so blessed to have them in my life.
The support here has been wonderful and I think the biggest message I've gotten is that life is short, make the most of the time you have and never think that you are alone in your fight against this demon that is breast cancer.
I hope everyone has a great weekend and a wonderful 4th of July!
LaDonna
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Odie, It is a bittersweet memory when we think where we were a year ago. Most of us on this thread are doing well and can really celebrate putting a lot of this behind us. But it does change our lives...glad to hear you are doing well after a year.
Filter Lady, I totally agree - time with the grandkids while they are small can be magical.
My DD and family were on vacation nearby last week, and I spent so much time with them. I had my 4 year old DGD spend the night and I spoiled her so much! I am still finding little toys and kid stuff around....and while I miss her, I am so glad for the time we had. So glad you got to spend time with your grandkids.I have finally started walking on the beach each day for exercise....and that is what I was doing a year ago at the time of dx. I can't get the picture out of my mind of my daughter, husband, new baby, and big sister, surprising us one day and walking down the beach to meet up with us. We had the best time... and now, a year later, it is even better in many ways.
My new college graduate ( my youngest, who is my grandson that I raised) is about to get a real job offer. I am so proud of him...they told him he would be hearing from their HR department. He's mostly away now, in NYC with his girlfriend. It's pretty empty at my house; but I know it is a good thing for him. When I got my dx last year, one of my wishes was to be well enough to see him graduate and move into self-sufficiency. It's a prayer answered.
Hugs to all,Joan
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