CALLING ALL STAGE I SISTERS

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Comments

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2012

    Good info Renee-thanks on behalf of those just starting this ridiculous journey.

  • Mini1
    Mini1 Member Posts: 1,309
    edited November 2012

    Scottiee - Try Biotin for your hair loss. It worked well for me.

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Mini1.......I was taking large doses of Biotin and the Dermatologist told me to stop as the body could not absorb so much. Kept going with a much smaller dose, with no results....

    Oh well, just hair.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    I started hair loss about 2 years ago...just the front is getting thinner....again it could age related

    maybe Femara caused it who knows..........Undecided

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Sheila....it is definitely a SE of Letrozole.....I also have lost more from the front and the sides.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Scottiee.....It started the last 6 months of Femara....i was almost finished

    The first 4 years nothing was going on........

    If I put my glasses on I can see very clearly the front is so thin......like you cen see the scalp.......

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Sheila.....I have the same .....can see right through to the scalp....I have another 4 1/2

    yrs to go....yikes....think I'll have to be shopping for a wig soon......lol

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Are you having any other SE?

    Letrozole is generic Femara right?

    I never wore a wig......When i lost my hair always used a scarf,,,even i went to bed with it so the daughters won't see me bold.....Wink

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Yes it is. A few aches and pains from time to time but that could be just age, how about you??

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    I didn't have any SE except some cold flushes the first few months....no aches or pains

    I was 53 when was DX...now I'm 61.......

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    So happy for you Sheila.....keep well and strong.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    You too my sister...

    Hugsโ™ฅ

  • mimi1964
    mimi1964 Member Posts: 851
    edited November 2012

    Sheila have you tried taking the Biotin? you only need to take one pill a day... try it and see if it helps. I also changed my shampoo to a milder one and I stopped bleaching/foilingย my hair blondeย for a while all of which has helped with the hair falling out.ย  Of course if you don't bleach or color your hair that wouldn't be an issue. LOL.ย  I also had my hair cut and layered a bit to make it look thicker while it grew in.ย  Amazing what a good beautician can do Winkย with some layers and dark hair color

  • hawk
    hawk Member Posts: 255
    edited November 2012

    Renee - praying for clean results for your mammo!ย  I just had my one year this morning and I got an all clear!!!!!!ย  The nurse told me and I started crying! She said you should be happy so I started crying and laughing Smile

    Clariz - my stats should all be below... I finished radiation on 3/6.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited November 2012

    Hawk,.yay!

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Hawk......way to go๐Ÿ’ƒ

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Hi Sisters.....

    Renee I didn't try anything...have a Dermatology appt in 3 weeks......my scalp is also very itchy....I was DX with some condition...used medicated shampoos with not much help.........

    Finally I changed to Neutrogena T-Sal and is helping me a lot.....

    How is everybody doing?

    Today I did some special food shopping to send it to my DD#2 (Hawaii one)...i send them what we call care packages....No she is not in the army.......for the new sisters who don't know.........DD moved to Oahu with her boy friendย  in January 2009 and they got married this past july in Hawaii.......They miss certain foods from NY...so i send it to them.......Smile

  • mimi1964
    mimi1964 Member Posts: 851
    edited November 2012

    Aren't you sweet to do that for dd#2 Sheila :)ย  and Hawk congrats on the good mammo report!!!ย  When I go on Dec 4th for my mammo I won't know the results that day... never do! Boo... they make you wait for a letter or a call.ย  It really stinks but oh well, and sometimes it takes up to a week.

  • auntienance
    auntienance Member Posts: 3,917
    edited November 2012

    Sheila, hair care products cause the same problem for me. I've used t-gel for years now with excellent results. And Walmart has a generic version that costs half as much and is just as effective.

  • hawk
    hawk Member Posts: 255
    edited November 2012

    Renee that is a bummer - where I go, we sit and wait until they come back with results.ย 

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    hawk......I know the feeling..i always schedule it when i can get the results right away..

    Lately I'm just saying it's a DX Mammo when i make the appointment.......waiting for a week it's way too long...........

    Nancy....the one I'm using it's T-Sal not T-Gel...don't know the difference but if it's helping me i don't care.......I'm wondering if CVS has their own brand less cheaper.......

    Hugsโ™ฅ

  • auntienance
    auntienance Member Posts: 3,917
    edited November 2012

    Sheila, I think t sal is salisylic acid and t gel is coal tar based. I've used both and the tar based worked better for me but I'm sure it depends on what your issue is.

  • wren44
    wren44 Member Posts: 7,953
    edited November 2012

    I just realized that yesterday was one year from my diagnosis. I plan on being here for many years in the future.

  • auntienance
    auntienance Member Posts: 3,917
    edited November 2012

    Congratulations wren!

  • valjean
    valjean Member Posts: 1,110
    edited November 2012

    wren ~ Sending Dancing 'nanas your way! And while I'm at it, I love to dance, but please don't make fun of me!! I do have rhythm even though I'm not yellow! Laughing

    Congratulations on your one year-'versary!!

    Hugs!

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Wren.....congrats...๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    wren...we are all celebrating with you my sister

    โ™ฅ

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Nancy......My DX is SEBORRHEIC DERMATITIS

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Sheila, did you get any kind of medication for this????

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Iย HAVE SOME TYPE OF LOTION (rx).......i'm supossed to squeeze it on itchy areas......

    Since hurricane Sandy don't have any itch or anything so that's almost 18 days....

    You think I need a RX for it.....