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CALLING ALL STAGE I SISTERS

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Comments

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Annette....i can't wait to meet you........Reach out my friend I love to see your flying goat...Cool♥

    Today is a normal day everything is working like it was before Sandy and Nor'Easter..........

    People still without power all over NY.......

    I'm so Thankful for everyone's good wishes.........

    ♥♥♥

  • valjean
    valjean Member Posts: 1,110
    edited November 2012

    Stopping by to hopefully find all my sisters safe & warm, toasty warm in their woolie blankets.

    Annette ~ I hope you have a wonderful time in San Francisco in the moments away from the work. I loved it when I lived there even though I was only a teenager. I understand your taking of this advantage of time to let go so that you may move forward. I understand completely.  I wish you peaceful retrospective moments. ((hugs))

    ((K, Sheila, Joan, Renee, Moonflwr {how are you doing?}-hugs everyone))

  • annettek
    annettek Member Posts: 1,160
    edited November 2012

    Ahhh you sweeties! I am a total netball- I accept this and when it comes to the ex even more so....time to let go, quit torturing myself and let my inner goat really fly

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2012

    Dang goat woman-wish you could head up I5 about 7-8 hrs worth!  Just for few minutes? 

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited November 2012

    Annette, its gotta be faster as the goat flies!

  • clariz
    clariz Member Posts: 14
    edited November 2012

    Hi,

    I'm new here,I had total hysterectomy because of large fibroids compressing my kidneys and around the same time dx with breast cancer,tumor is 1.8 cm,had. lumpectomy,stage1, low grade node negative,margins clear I just finished my radiation treatment (35 rounds for 7 weeks excluding Sat.&Sun.)Oct.26th,2 weeks ago,and now is  a little worried about the cancer coming back.I managed well physically, but the emotional part is really hard for me to deal with.I have an appointment to see my MO on Nov.13th so she could write me a prescription for Arimidex.

    I joined to gain some insight and inspiration from all of you.Smile

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Welcome clariz....

    Emotional part is the hardest one.....In time it gets better

    I'm glad you're done with your treatment.......

    Anything you want to know...we are here for you...♥

  • valjean
    valjean Member Posts: 1,110
    edited November 2012

    Welcome clairz. As you can see by my signature line below, I also had a lumpectomy followed with 33 rounds of Rads. Not a picnic but I made it through. You have made it over that hurdle. I am on Aromasin, an AI sister drug to the Arimidex. There is an excellent thread here at BCO on Arimidex that you might like to check out.

    We do what we must to make it through the low times. Someone is always here to answer any questions you may have or help to allay any fears as well.

    As the sisters do here, I am sending you a cyber hug.

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2012

    clairz-I had lumpectomy, chemo, rads & now have been on Femara almost 3 full years.  Hugs to you,  

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

  • hawk
    hawk Member Posts: 255
    edited November 2012

    Welcome clariz.   This is an awesome group. 

    Praying that everyone's power is back on - glad to hear from all of you though.

  • mimi1964
    mimi1964 Member Posts: 851
    edited November 2012

    Welcome Clairz! I too had 39 rounds of radiation and took Arimidex for almost 8 months but now I'm back on Tamoxifen. I'm 3yrs out... if you have any questions the ladies are right there is a good board for arimidex on here but some of us may can help out as well.  I know I can relate my experience.  Good Luck Smile

    Hi Sheila, Val, Granny, Annette, Joni, and all you other beautiful ladies!!  Hope you are all having a great Monday... had to call today and reschedule my Med Onc and mammo appt.  instead of this Friday I won't be going until Dec. 4th because of insurance.  My ins. will only pay for a mammo once a yr and it has to be a yr and day since your last one... well, my last one was Nov. 29th last yr.  Ugh!! is that not ridiculous?!! And I have Blue Cross and Blue Shield.  Oh well

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Welcome Clariz....lumpectomy, rads....16 plus 5 boosts and now on Letrozole for 5 years.

  • clariz
    clariz Member Posts: 14
    edited November 2012

    Thank you all for the warm welcome!

    I have a question for all of you ladies...

    **How long after your radiation treatment you started on the hormonal therapy? (Arimidex,Aromasin,Femara, Tamoxifen etc.)My RO said it's usually 1-2 weeks, just wondering.

    **Anyone had the oncotype dx test done? My onco. did this to determine if I need chemo. or not and the result is low, I don't know the number exactly because my MO told me I could just see he after my radiation treatment, she just called me to tell me the results, which I thought was very nice so I don't worry any longer and started my radiation with her approval.

    Also, was it covered by your ins.? The Genomic lab.has filed the claim for me and I still haven't heard if my ins. will cover it or not, but when I callled my ins. they told me that as long as the documents/necessary health records sre submitted it should be covered, I hope so because it's a $3,000+ testing.

    Mimi1964,I have BlueCross BlueShield too and yeah, you have to make sure that the appt. and procedures they do is a day after your last one.

    What about the 3 mos. after surgery mammo. did they cover it?goodluck on your appt. next month.:)

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Clariz.....can't help you on the insurance as I'm in Canada ......but I started Letrozole

    before rads....my MO said it was OK.....just wanted to get going on it ASAP.....most ladies, I believe start after rads. My oncotype was 18 or 19 and my MO said there would be no benefit to me regarding chemo....I'm 65 and ER and PR +

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2012

    Clariz, My last rads was Friday Nov 13 '09 & my at Femara pill was Monday Nov 16 '09.

    My onco was 42-surprised the hell out of the BS & the MO

    My oncotest was covered by insurance, I'm assuming.  I never got an explanation of benefits from them about it, but I never got a bill from Genomic.  I had Blue Cross at the time & I am not positive but I think they covered a 6 months out mammo. 

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

    Hi claris...I remember finishing radiation in mid January 2006...and started Femara on march 23rd

    I can't help with the oncotype never had one.....I don't beleive they were doing it in 2005??????

  • clariz
    clariz Member Posts: 14
    edited November 2012

    Thanks for the replies.

    **Scottiee1; I guess all dr's and hospitals do things a little different, like you I don't want to waste anymore time to start with the pill, 'just hope I will not have a lot of SE's.

    **Eph312, Yeah, your onco. test is high, my onco. told me that if it's less than 15 is okay if I remember it right.(I'll have to ask dh, since I can't absorb everything dr.s told me 'cause I'm so nervous)I take it as a good sign that I haven't receive anything from my ins. or genomic health then.

    ***Sheila888, The onco. test maybe a new thing they're doing now? I'm glad I had it , it helped me made an informed decision.

  • ptdreamers
    ptdreamers Member Posts: 639
    edited November 2012

    Eph3 Were you offered chemo? Based on your numbers that certainly should have been presented.

  • Mini1
    Mini1 Member Posts: 1,309
    edited November 2012

    My score was 18. Borderline, but my MO said the risks outweighed the benefits. My insurance covered the tests.

  • tinat
    tinat Member Posts: 2,235
    edited November 2012

    Hi all and welcome to the newbies.  Has anyone else been having problems posting on BCO?  Perhaps it's my compooter, but for a few weeks I was getting a cursor, but no text would fill in.  I finally gave up and have only been lurking :)  Looks like it's working now.  Weird......

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Mini1......you and I have a similar dx and oncotype....I was told the same thing from my MO.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2012

  • elimar
    elimar Member Posts: 5,890
    edited November 2012

    Eph, The day of your last rads is the day I started Tamox.  Figured it was a date I could remember.

  • Mini1
    Mini1 Member Posts: 1,309
    edited November 2012

    Not too much difference on the dates either, Scottie. I finished up the rads in late July. No meds though.

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Mini1.....I finished rads at the end of May .....have been on Letrozole for 8 months now



    May I ask you why no meds?

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2012

    Friday the 13ths have a tendency to be memorable!

  • Mini1
    Mini1 Member Posts: 1,309
    edited November 2012

    Scottie - Bad reactions. I was barely functional. They have them listed as allergies on my chart. I do DIM and the other natural supplements my stomach can handle and I have a careful diet.

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited November 2012

    Thanks Mini1 for your response.....I "guess" I'm lucky in that my biggest SE is a lot of hair loss....get a few aches and pains......nothing to do with the fact that I'm 65 of course.....lol......my hair loss used to bother me more than it does now.....in the scheme of things, it's just hair.

  • mimi1964
    mimi1964 Member Posts: 851
    edited November 2012

    fyi mammo's are usually covered by ins. co before a yr and a day if they are written for diagnostic testing, if they are written as routine then it has to be a yr and a day for ins to cover them (or for most ins co to cover them-my mom use to work in mammography medical billing) If you have really great insurance some of the companies make exceptions to the rule... but most like BCBS and UH follow the above.  But the diagnostic follow up is how we got our mammo's paid for at 3 mos and 6mos out from BC surgery.  The big thing is all in how the physician writes your script that goes to mammo for billing purposes. 

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