CALLING ALL STAGE I SISTERS

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Comments

  • wren44
    wren44 Member Posts: 7,948
    edited March 2013

    Granny, I would worry if you weren't nervous. Just keep breathing calmly and distract yourself until Tuesday. (((((HUGS)))))

  • joan811
    joan811 Member Posts: 1,981
    edited March 2013

    GrannyK, this is the time to let those proper drugs do their job and take the edge off. 
    I'd be nervous too.  Thing is, nobody can do this but you...and we can only wait in your pocket and send gentle hugs your way.  Hope we don't wiggle too much....this guy's gotta get it right the first time!
    HUGS!

    Mimi, this would certainly be a prayer answered....am hoping for this change for you and sending positive thoughts and prayers. 
    No about the snow....it was very inconvenient - rain/snow about 2-4" but roads were clear.  Still I get nervous because I drive 60 miles each day, some at night, and worry about ice.  It's warmer now and it's melting!
    I hope the storm keep passing you by.

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2013

    granny...I'm jumping in your pocket all 180 pounds of me...

    Good Luck my friend

    will be thinking about you

    Hugs...♥

  • joan811
    joan811 Member Posts: 1,981
    edited March 2013

    (((Granny)))

  • seabeal
    seabeal Member Posts: 108
    edited March 2013

    Granny - Today is your day and the first person I thought of when I woke up was you. You are a couple of hours ahead of me so hopefully you are nearing the end of this partidular journey to better health. If thoughts create miricals, there is a great big one headed your way!

  • joan811
    joan811 Member Posts: 1,981
    edited March 2013

    Granny, we are all just hangin' out and waiting for good news...


  • LibraryLynn
    LibraryLynn Member Posts: 33
    edited March 2013

    You're been on my mind today, too, Granny! I know all went well for you! 

    Sending healing white light...

    Lynn

  • Sherryc
    Sherryc Member Posts: 4,503
    edited March 2013

    Granny hope all went well with your surgery.  We all love you here.

  • valjean
    valjean Member Posts: 1,110
    edited March 2013

    ((( K )))

  • hawk
    hawk Member Posts: 255
    edited March 2013

    Granny - praying everything went well. 

    Welcome to all the new girls here. 

  • onvacation
    onvacation Member Posts: 521
    edited March 2013

    HUGS granny!

  • mimi1964
    mimi1964 Member Posts: 851
    edited March 2013

    Big hugs Granny hope all is well!

  • joan811
    joan811 Member Posts: 1,981
    edited March 2013

    Any word from Granny anyone??
    Mimi, when will you know about your shift change request? 

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2013

    Copied from another thread

    2 hours ago jo1955 wrote:

    Hey Everyone.  I just talked to Granny on the phone.  She is well but in a lot of pain.  The doctor is talking about sending her home tomorrow.  She says she will go kicking and screaming - she is not ready to go home.  I don't understand why they would do that. She lives alone and in pain?  She will call me when she does get home.  I will keep everyone updated

    Thanks for the update JO

  • mimi1964
    mimi1964 Member Posts: 851
    edited March 2013

    Thanks for letting us know Sheila I've been worried about "our Granny" she is important to us all Smile

  • LibraryLynn
    LibraryLynn Member Posts: 33
    edited March 2013

    Thank you, Sheila. She's been on my mind, as well. I hope they keep her, if she's in pain like that. I'll keep sending her healing, calming white light!

    Lynn

  • Mini1
    Mini1 Member Posts: 1,309
    edited March 2013

    One word - insurance. Actually, with the right meds and a visiting nurse, home can be the best place to be. The infection rate in hospitals is high and people often get secondary illnesses in the hospital. I prefer to be home where my germs know and love me.

    Get well soon, Granny!

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2013

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited March 2013

    Fast healing Granny!

  • purple32
    purple32 Member Posts: 1,767
    edited March 2013

    aaaah,  sheila.

    I love this picture !  WHERE?

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2013

    Oahu  Cool

    i believe is on North Shore........

    Purple......i'm obsessed with beach houses.......

    hugs

  • wren44
    wren44 Member Posts: 7,948
    edited March 2013

    I thought it looked like Hawaii! I would so love to be there now.

  • SheaJ
    SheaJ Member Posts: 9
    edited March 2013

    Thanks Chabba nice to know You and are are a match yet sorry we are a match...

  • SheaJ
    SheaJ Member Posts: 9
    edited March 2013

    So last week was once again another rough ride on the BC rollercoster! It started on the thurs before my right side reconstruction that on the 25th I has to have surg to have the hemotoma evacuated, well it started to get pink and I started to drip from the drain hole and small Ooze from the incision. By Sat night it was red, hot painful ooze that had a smell. Called ps sun first thing he called in antibiotics and made an appointment for me for Monday. Went in Monday not good sent to infectious disease they said I need an ultra sound with an aspiration of the fluid. But all the radiologist that do that prose endure we're go for the day. The radiologist said continue your oral antibiotics and come back tomorrow for the aspiration. I said the ID and PS will not like this you need to talk to them they want me on IV antibiotics today. So after they conferenced they redid the ultra sound marked the site and cave the coordinates to the PS and he aspirated 60 cc of fluid. Just that helped on the pain. Then the sent me to infusion for the IV antibiotics. PS told me not to eat anything after midnight he was adding me onto the surg list for tomorrow if it did not start to improve. So Tue morning it was lighter more pink than red but still hot and painfull. he called me in the morning said he would rather schedule me than have be as an add on and if it was not worse..... He then when on to explain that then infection had compromised the TE and it had to be removed. So Wed. I had surg and the TE was removed I am still on daily IV antibiotics at the infusion center ( re- evaluation today) have to was at least 6 weeks for right side to heal before that can put another TE in. I am frustrated, depressed and trying to find the good... I am holding on to the fact that at least I do not have to have chemo! I teach and advise on a college campus I thought I would be back in 4 weeks it has been 2 months today. I'm still having physically therapy to get my arm motion and strength back! I thought I had researched and planned..... So much for best laid plains! AND can you believe our dog was diagnosed with type 3 mast cell cancer they same week I was called back in for my mamo... Here's is terminal and she is not doing so well right now but trying to be happy and there for me! Guggenheim I need to stop I could go on and on. Thank you for listening.

  • seabeal
    seabeal Member Posts: 108
    edited March 2013

    I'm so sorry for your set back. It is depressing and discouraging. I've had wound healing issues in my radiated breast after my second reconstruction (DIEP flap) and have been on antibiotics for 8 weeks and wound clinic 3x week since the first of January. It is starting to heal but still has a ways to go. Since my CA DX my acute back pain has turned to chronic related to degenerative disc disease. I had steroid injection in spine 11  days ago and still have had no relief if anything it is worse cause pain meds aren't helping much. I honestly can see why some people would want to commit suicide due to chronic pain and disease but. . . .

  • ptdreamers
    ptdreamers Member Posts: 639
    edited March 2013

    seabeal, sorry its so rough right now. I have a huge seroma that has been drained numerous times. Surgery has been mentioned but I am declining because that breast has been irradiated and I have heard too many stories of poor healing etc. Hope yours is better soon.

  • AllieM
    AllieM Member Posts: 7
    edited March 2013

    Hello everyone,

    I am new here and not sure if this is the right place to post. I have to decide tomorrow if I'm going to have chemo or not and I've been going back and forth in my head since my MO brought it up. It caught me by surprise because I had a bilateral mastectomy, clear nodes and thought I was done (even though my surgeon said there was a chance I'd have to do chemo I didn't hear her :)  My oncotype DX score was 27 (17% chance of recurrence) which puts me as intermediate risk and my MO wants me to do a clinical trial with either TAC or TC (they choose). I am getting a second opinion tomorrow, but would appreciate any input. I'm  getting the impression the docs recommend chemo for just about everyone.

    Nice to meet y'all,

    Allie

  • Sherryc
    Sherryc Member Posts: 4,503
    edited March 2013

    Shea so sorry for your infection and surgery.  I hope you are able to get healed up and back on track

    Allie- Not knowing what your stats are here are a few things to consider. What is your KI67.  My onco score was 23 but my KI67 was less than 10%, I was also stage 1, grade1, so I did not do chemo and went with the Zometa protocol.  My MO thought I was an excellent candidate for it.

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2013

    Welcome Allie....

    It's good to have a second opinion......

    How big was your tumor? 

    Are you hormone or HER2 positive?

    someone with more experience will come soon and help you

    I just had a Lumpectomy...

    good Luck to you..

    Hugs

  • ptdreamers
    ptdreamers Member Posts: 639
    edited March 2013

    Allie, How old are you? That would be one of my considerations. If you re younger I would think strongly about doing the chemo. If you are older than it would definately be a harder decision. As other have said size, type. er,pr and her + are all considerations. Hope you get the  knowledge you need you need to make a decision you are comfortable with.