CALLING ALL STAGE I SISTERS
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Sorry i was wrong one Caltrate has 800 U..I take it twice a day
So that brings it to 1600
My levels are on the very low level of 36
I'm not a believer of any high dose of anything unless it's medically necessary
I have a very healthy diet.....so I did before my diagnosis but i still got it
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Try looking at Nature's Way DIM on Amazon...read that somewhere
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Hi Ladies. I am Stage One, diagnosed in February at age 49. Currently undergoing chemo (just started three weeks ago). My Oncotype score was 20 and there were a couple of micro cells in my 1st node biopsied (the other three were clean). I'm on a milder regimen of chemo where fortunately I won't lose my hair. I was hoping for rads only, and was led to believe that was my future treatment but the darn oncotype and the one node pushed me into chemo. So here I am, trying to maintain a healthy lifestyle and gear up to kill the beast.
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Welcome Longislandl8dy---good to see your post---life throws us the damndest curveballs sometimes. You will find lots of inspiration on these boards. You take care and keep us all informed of your progress. We all grow stronger as a group and there are lots of tips here that help.
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Longislandl8dy--we share a diagnosis date and a surgical date!
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Hi there Red, and Blues. It always feels good to have something in common here aside from the cancer itself. The chemo was a tough pill to swallow for me, but it came down to knowing that I was doing everything within my power to kill the beast. For myself and my family. I wouldn't want the regret of looking back saying I shoulda, coulda, woulda... This Tues. will be my second round. Then only 4 more to go. Then rads. Then tamoxifen. How are the rads going for you, Red?
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longisland--the rads are ok. I am doing #13 this afternoon of 28. My skin is a little pink, a little itchy, but I am only using my crème and not the hydocortizone yet. I think the secret is using a good creme and covering the entire area from your throat to your mid section and your breastbone toyour side and your whole underarm/front of arm near chest 3 X daily---but never closer than 4 hours to treatment.
I did develop a fungal infection Friday a.m. underneath the breast being treated. This is not unusual, I usually struggle with it every year when it heats up--as I am big busted and fungus likes dark wet environments., HA.
My RO had me get lotrimin to use 3X day and is rechecking today. It does not look better. I am sharing this just because it is funny. I needed to keep "skin from touching skin" so I made a prop for my boob. I took a empty toilet paper roll and put it inside a cotton sock and stuffed the sock ends inside the tube. Then I tucked this under the overhang to keep the "skin from touching skin". It stayed put pretty good inside my "slimming" camisole. Maybe I need to patent this.
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Oh Red that is TOO funny! You just might be on to something there! I'm not large busted but I have gotten a rash there before from working out and sweating. Maybe I should start saving my TP rolls!
Blues, my onco type score was coupled with the fact the 1st of the 4 nodes removed had a couple of micro cancer cells in it. I think if it were solely my oncotype I might have been given a more even option of going with just the rads. It's all good though. I am at peace with my choice. Tomorrow is treatment 2 of 6 so afterward I'm already 1/3 of the way done! 
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Ok, red bumps, lots of itch, and fungus under the treated breast is not healing. I doubt it will since I have to keep putting lotion under there and that is just keeping it moist....UGHHH
My double d's are in a teeshirt, a turtleneck and a cordurory jacket, and that is ALL.. If I bounce and put out the construction worker's eyes, today, so be it....
Cold dreary day in IL.
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Redheaded - try bacitracin ointment.0 -
Honey has been used to treat open wounds in humans and animals.since antiquity. It is known for it's ability to heal without scaring.
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My radiation physician prescribed silvadin to treat the open area. Mine was very mild and no pain. I also used the miaderm and pure aloe for lotion.
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Hi I'm back, I had a great time on vacation with my girl friends. I have just finished my first week of radiation, I am in pain, My Dr. is surprised that I'm feeling pain already. I'm a hairdresser, maybe it's from the shampooing, Or my hands up to chest height all day, or the over extension when having the radiation. I don't know. has anyone else had this problem?
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Is the pain coming from the skin or inside? My pain did not start until much later and it was because of raw skin touching skin. Sounds like your pain is different. Is it a cording issue? I don't understand a lot about that...hope you find some relief, I am sorry you are in pain Moe.
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Ok, Girls--here is what my RO said about my red bumps---use Benedryl Cream, CORTAID or Hydorcortizone 1%. She is quite particular abot ingredients, and only wants me using things that hve been in clinical research. So, I went to the CVS pharmacy where a lovely man had helped me in the wee hours of a Sunday a.m. when my mom was quite sick, and I took him the tube of Bendryl crème and the tube of Hydrocortizone OINTMENT (3 tries to find Cort-Aid--none) and he said----Use the Benedryl for itching and the Hyrdorcortisone for inflamaation. So I came home, put on the Bendryl and it killed the itch immediately and lasted until the next am. Itching flared up a few minutes when I put on my moisturizing crème, but that is it.
I have a sulfa allergy, so silverene is out.
1Moe--were you having a stabbing pain in your breast? or a burning from the radiation? They ask me each week if I have had pain, and I haven't really except an occasional twinge. I won't mince words here, if you are big breasted ( I am) and on your feet all day, and trying to wear a cotton sports bra, that is probably it. the girls need support and these cotton things don't work. I have done this with some success in the first 3 weeks. I wear a mans cotton u neck sleevelss t-shirt first, and then put a more supportive bra--in the loosest setting you can for the band over the top. BUT NO UNDERWIRES. My doc was absolutely adamant that I not wear an UNDERWIRE .
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Any one had any lymphedema issues? I went to my Dad 's this am. to help him with his compression wraps and he hadn't showered yet, so I took the shovel to his raspberry patch and dug out little tree's and weeds until he was ready. about an hour. Came home at 1:15, ate a sandwich and slept on the sofa till 5pm. then went out and mowed my lawn (until 6pm).
Guess I will know in the morning, right? I am scheduled to attend a lymphedema education class Monday a.m. my RO requires it of her patients.
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I never had LE issues but still my right arm is off limit for Blood work and BP
It might be a myth but who wants to take chances?
I flew to Hawaii to visit my DD and my SIL it's a long flight about 11 hours and didn't wear a sleeve
Hugs
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Lymphedema clinic update---went this a.m. Speakers were a Physical Therapist and a person from a Prosthetic place--they do the sleeves, comprsession things, even had some bra's that I wish I had seen before I started rads. Anyhow, they measured our arms in a bunch of places, and recommended that one be obtained if you fly. You need a prescription for one, and some insurance will cover it, even if you had lumpectomy. Just need to check. I pray I don't get this---they had these things that some people have to sleep in that looked like a potholder from your hand to your shoulder---can you imagine saying Honey come here, wearing that????LOL
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Red - make sure you clear whatever you use with your RO. I was told that there should be nothing on my skin, even the Radiagel or aquafor, on my skin at the time of treatment. It can magnify then amount of the dose that your skin absorbs. I had morning treatments (finished on 4/3) and was told I could use the radiagel before bed, but no closer to the treatment than 3 hours. I put the auqafor on at least 1 hour before the bedtime radiagel treatment. I also had to be careful how close in time I was using the different gels and creams because mixing them would weaken their affectiveiness. Stay well!
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Still running----I understand completely---she told me nothing closer than 4 hours. before treatment/ She told me not to use the hydrocortisone more than twice a day, but the Benadryl she didn't say any restrictions. I don't use it any more often either---but of the two, the Benadryl did the best for me.
Today she encouraged me to use the aquaphor on the area under my boob, where it looks like I was branded by an underwire....... But she thought it was improved. I only have 8 treatments left, so with Friday being a machine off day, I will get a 3 day weekend to hopefully heal some more. I have the tiny smple tube they gave me I really don't like it, but I may ask the nurse tomorrow if I can just snag a couple more of the samples.
I want to knwo----did the tattoo hurt? and did anyone have any side effects from it/ It got to be 85 here today and the sticker between the girls is melting.......I hate to do it this near the end, but my doc also said IF (BIG IF/NOT LIKELY) the C came back in the other boob, they would benefit from seeing where the field ended (in case I shrink or something)....
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Sheila, to my dear friend ~
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Redhead, my RO had me do a solution of 1/2 water, 1/2 hydrogen peroxide & soak a washcloth in it. Lay the washcloth on my burnt/blistered/raw area on my L boob for about 10 minutes & then let it air dry (didn't take too long) It really helped with the pain and I believe it healed quicker than it would have otherwise. I started that when I had about 3 regular blasts, + my boosts left to go.
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Sheila - Is it your birthday??? I hope it is fantastic. I just noticed you're about it hit 25,000 miles, uh posts. Wowza!
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Thank You so much Val for remembering my Birthday
Thanks farmerlucy...Maybe today I reach 25.000
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red - i was afraid of the tattoo, I hate needles. The rad tech let my husband hold my hand, but I honestly didn't need him to. I sew and I have caused myself more pain accidentally sticking my finger with the sewing needle. They place a drop of the ink where they want to mark and just poke the skin with the tip of a needle. It is very quick and not painful. Hope this helps
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BB I can really talk..I just reached 25000 POSTS
Thank You for Birthday Wishes...Here we are all sisters...i do care
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Woo hoo! Insert picture of fireworks! Sheila - You are awesome!
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Thanks everyone for the info on the soaks and the tats. Nurse checked me today and said she was very glad I had a day off tomorrow. Still Weeping, so still doing Saline----she also gave me some longer gauzey pads (we laughed cause they look lke Kotex and she said I could use those too to try and keep the breast skin from touching the underneath skin-----I swear, I need a harness to just hold the girls up off my chest wall. I am going to look for some roller type gauze I think, that I can just tuck under there. ( I don't know about the kotex ting, but maybe a tampon would work.....LOL. Can you imagine walking thru the mall and having it drop out of your shirt???? Just saying...0 -
BB- I have 6 more treatments left---4 more this week and then Mon and Tues of next week. God bless my RO, she texted the nurse on Friday and asked her to check on me, but I had turned my cell phone to silence Sunday at church and never turned it back up. But, I was working Sat evening at a charity plant sale and my nurse popped in to look at plants. Then today, when I was leaving, my RO came running out to ask how I was. Don't know if that should make me feel good or make me worry. It's tolerable, but it I can't see any improvement. I guess if I had to choose, maybe the skin degradation is easier than the hair loss and the risk of lymphedema. I am grateful I got to skip the chemo, but IF the Cancer comes back, I will probably tell them to take the breast off. I am someone who likes to be on top of the game, and this is the most untethered, drifting, lost, out of control I have ever felt. How did you get to skip radiation? Did you have your breast removed? Have you had any probs with Lymphodema?0
