CALLING ALL STAGE I SISTERS
Comments
-
yes Chabba we did start around the same time
U could meet us anytime u want
We always try to get together
That would be sooo nice
I guess u remember how crazy I was in the beginning
It does get betta,it will get betta
Find a damn cure was my motto
0 -
Hey FK..nice to see you here again.....♥
0 -
I came home for a visit
And
To see all my buddies
Do u remember when I drove everyone crazy here?
And how the sistas embraced me
OMG it's a wonder anyone is still talkin to me
0 -
Yes...We all remember and love you ♥ ♥ ♥
0 -
thanks
I'll be back
FireKracker
0 -
Nice to see my friends checking in here...
Not sure if I will make my appointment for the lump check...came down with somthing last night at work --sent my students home an hour early. I am waiting to see if this developes into a flu or respiratory things. If so, I won't go to the cancer center and will continue to be anxious!BBlues, sorry you have to wait for reconstruction...you are right, that will help you take the focus off BC and get back to a more normal life. I hope the time goes fast. Be sure to tell the office if you are flexible and can take a sooner appointment if one opens up.
Sending hugs your way,
0 -
1Moe - I was on the Tamoxifen for about 2 months, then stopped it for my radiation. I had hot flashes, night sweats, heavy periods with painful hips, thinning of my hair (which is fine and thin anyway) and GI issues. My MO thought the SE would probably subside, but that was a week before I stopped for radiation. I am hoping for the best when I start up again on Monday.
0 -
I don't know if I joined earlier or not--do know I have been here and like this thread. I do consider myself one of you. Just stopping in and saying, "Hi!".
0 -
I don't know if I joined earlier or not--do know I have been here and like this thread. I do consider myself one of you. Just stopping in and saying, "Hi!".
0 -
BB...i want my vitamin D levels to be higher than 35
I take Caltrate twice a day....Dr doesn't say anything because it's in normal range (hardly)
I want sunny days so i can stay under the sun and suck that D
My diet was always healthy so won't change anything I need to loose about 10 pounds less fat less space the C cells to grow
HI DWILL ♥
0 -
Actually i learned so much from BCO
2 years ago asked my primary to check and it was 47 when it was checded again it was lower
I see my MO every 6 months he does blood work and Tumor marker test
I asked the nurse who draws the blood that i needed D levels checked
So when i go back I want it to be retested
0 -
Hey Ladies.........I was taking Vitamin D 2 or 3 yrs. before I was diagnosed with BC. Continued with it thru chemo and Herceptin and still take it. I have a prescription for 50,000 IU for once a week. If your onco won't order the test then ask your PCP. Hope this helps.
0 -
I was also taking Caltrate at least 10 years BEFORE DIOGNOSIS
I tablet has 800 IU twice a day = 1600IU
BB...I know between 30-100 is in normal range
But for us we need to be much higher than that.....I really don't know what's the perfect reading
0 -
BB...I totally understand how you feel, that is scary to me and a wake up call. I guess earlier on I believed I would be ok because it was found early. Not to be a downer I also learned that it is possible for your SN to be clear and others not. It was my understanding that if the SN was clear the rest were clear. I try not to focus on this type of thing but I do keep one eye open. I started my Tami yesterday, I need to educate myself more about this beast. But then I think their is no way to stop reoccurance....sigh.
I just found this thread a little while ago and have been following a bit.
Hello Sheila nice to see you here.
0 -
Hey Everyone-----I think I fit /found my/this category! Nothing like figuring out where you belong!
I am 56, was diagnosed in Jan, lump (upper outer quadrant) Feb 24, and had a Oncotype DX score of 8 (6% reoccurance rate). Did my rad simulation on Wednesday. Got a question about the Oncotype DX scoring.
Does anyone know if that is based on no additional treatments other than the surrgical removal??? I was so happy to have a score below 18 so I could skip my chemo (zero Node involvement) that I didn't ask. I have a great MO but he is soo busy and I have rquested a copy of the report but it isn't hear and the radiation stuff is starting to give me the Willies......
0 -
BB- You can take too much Vitimin D--but 2000 or lower won't hurt you. I am low, and my PCP has me taking 5000 daily with it being checked every 3 months. I take Caltrate slow release 1200 calcium with D and a multivitimin tht has 500 D and then I take 3 more gelcaps 1000 each. No side effects.
Also, just started 1000 of B12 after having that tested. Just not enough sunshine in Central IL i guess.....
0 -
So BB--does it also assume radiation??? The oncotype? I know all about the little cells that broke out of the duct and how we have to kill them off before they hit the lymph system and find a new favorite place to set up. But it seems like we all get the same dose, same amount of time, etc. regardless of our uniqueness.
Have you done rads and what kind of cream did you use? I am so fair skinned the thought of what this is going to do to my skin has me cringing already. I don't give a damn what it costs, I just want to keep the SE to the minimum.
0 -
Hello Redheaded1,
Thought I'd respond to your post about fair skin and having radiation. I am a redhead and fair skinned as well, and I did not get any burns at all. Maybe it depends on the actual time our skin is being radiated, may be worth asking that question if you are scheduled for radiation.
I had 25 regular zaps, lasting about 8 seconds from the left angle, and about 18 seconds from the right angle, then I had 8 days of boosts, forgot to time them, but they did not seem very long, and I never did get burned. The RO gave me aloe Vera to use, and I used it 3-4 times a day during and even after radiation was done.
Best of luck to you
dsgirl
0 -
Red, I did not have chemo but I had 30 rads plus 5 boosts. I am very fair blonde and elderly enough to have very fragile skin. Used vitamin E oil after each tx and aloe Vera lotion frequently the rest of the day. Did have some minor burning but no peeling.
Come back and keep in touch we are here to help each other and have fun too!
0 -
When my MO discussed my Oncotype score, he showed me the different graphs/charts with different recurrence rates. I don't remember if radiation was included in the one graph we were viewing. I think that Tamoxifen WAS included. My guess would be that radiation treatment is assumed. In my case, I had already completed internal radiation(Mammosite) by the time of my first visit with my MO. With an Oncotype score of 29(19%) recurrence rate, I opted for four TC chemo treatments, giving me a true 30% reduction in risk of recurrence. Sounds like you really need to get that copy of the report. Good luck.
0 -
Hi everyone----Had my first rads yesterday---went really well. My cncer center has a new machine and I am on it. I told the gals I could tell it was the new one cause there weren't any kick marks yet. I asked for a copy of the Oncotype report from my doctor, and when I picked up, BB you were right on the mark--it didn't mention Radiation but it is based on my taking "Tamoxifin" which must have been the only drug out there when the clinical trials were ran which drive this test. My doctor wants me on Arimidex to try first-even though my bones are already osteopenia and I have joint pain due to arthiritis. We will see, we will see....
My boob felt warm and itchy soon as I came home, so I did what someone had previously suggested-- I put on a cotton "wife beater" t shirt from Mens dept at Target and then my cotton sports bra on top---keeps lotion off my clothes and the bra. They came 3 to a pack, so I am good. when i did my sim--they laid a thing on my tummy to measure my breathing and RO had told me their machine is set up so that when I would normally be inhaling, my boob moves away from my chest and the machine will zap me then. No holding my breath or watching a screen or anything yesterday. I will ask today to make sure I am right. I must be, cause RO told me that I could just close my eyes and relax wh ile the machine ran around me.
Just wanted to say Thanks for the love that has sustained me and the good done by everyone who posts here- It has lifted me when my spirits are low over the BC, especially since I started posting a few days ago. (Confessed lurker)
0 -
BB - I understand how you feel about change. I noticed that my hair was starting to thin in the front when I was on the Tamoxifen before my rads. I got a break during rads, but started the Tamoxifen again on Monday. Wednesday morning I went to my hairdresser. After some discussion we decided to go for a short hair cut that is off of my neck when I run. That way, I won't need to cause extra stress on my hair putting it up in clips or elastics. It looks great, but I cried as she was styling it. I would have never tried this hair cut if they hadn't found my Stage 1 breast cancer. I also wouldn't have a a lumpectomy that has left behind a scar and a flat spot on my breast. I am very grateful that they found my cancer early and that the treatment has gone as well as it has, but I am having trouble adjusting to the "new me". I guess it is a process and I just have to work my way through.
0 -
BB - I hadn't thought of that. I will have to wait for the swelling from rads to go down, but I will do that.
0 -
Hello all,
I had a lumpectomy and radiation about 2 1/2 years ago with one negative node removed. Stage 1 grade 1 Est + Pro+ HER 2 - so I feel very lucky.
One question,
Things are now changing and I'm getting fibrous areas as well as 'dents' in lefty, and pain in my armpit. Had a few cysts looked at and am due for a mammo in June.
I have no insurance right now due to world's worst housesitter who failed to notify me or mail me updates on COBRA so it was cancelled.
A few questions.
Have any of you had pain after a "simple" surgery like this? That gets worse?
Will repairing the 'dent' be covered when I get insurance.?
It's not too noticeable except if I lie on my side.
I know that these things are minor, but I'm in the process of getting my tattoos removed. First time didn't completely remove them and I want to move forward.
Still have a few years on AIs
Thanks!
0 -
Ok, I have now had 9 of my 28 treatments. I noticed that my neck seemed red and my face too today when I was done. I am wondering if my night crème that I put on my face /neck area could somehow be involved w/radiation. I was told to only crème my chest from my clavicle down to below the bust and center of bust to the side, including my underarm and top of upper arm. Tomorrow is doctor day so I will ask. Some of you describe your treatments in number of zaps. I think I get 4 zaps, a short and long on each side???? The fatigue is starting to set in, I notice after my treatment the rest of the day and evening is just downhill, and I go at 1pm each day....... Retired, so its ok, but I try to be a caregiver to my 86 year old dad--have home health at his house from 9-1 each day since my surgery, but I feel so guilty if I don't see him. We are all we each have. He did radiation for Prostate cancer at Mayo's in Rochester MN 8 years ago, but he doesn't remember being tired like this. He keeps asking me if I am hydrated enough.... How would you know???
0 -
BB do you still have that bump on your middle finger??? I wonder if maybe it is a seed wart and if so, the dermatologist will zap it with liquid nitrogen. I have had a ganglion cyst, and they are usually at the wrist or back of the hand.....
You gals use a awful lot of initials ----what is NED? and is it good or bad?
0 -
bosumblues, sorry just saw your question. I take 10,000 units of Vit D daily and the recommended Calcium dose. I don't know if this answers your question; if not let me know.
0 -
It was almost impossible to walk this winter
I'm planning to adopt a regular walking pattern..I love to walk but don't run
Comfortable with 3 miles walk ...can handle 5 but it was little too much
0 -
I think 10,000 units of D is too many unless your doctor says otherwise. ---they say not to exceed 5000, and 2000 is a good maintenance dose. I'd be very careful of supplements unless MO or RO approves. Some of the studies have shown that taking antioxidants from other than food sources WHEN YOU HAVE CANCER may encourage not only the good cells to replicate, but the bad ones as well. .... Just saying this is what I think is best for me. And some vitamins are soluable and your body flushes out what you don't need, and others are not excreted and can make you toxic.
0
