CALLING ALL STAGE I SISTERS
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Oceanbum, I took Clomid from age 27 to 31, with about a two year break then I took an injectable, don't remember the name, started with an m... But I never could take the shot that would release the eggs because each time I made so many of them. I eventually had to have my ovaries drilled and I never tried again. I adopt my son when I was 30.
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Wised, I just took the fertility drugs. I had my tubes checked and there were no blockages. We got to the point where they felt like IVF was our next step. We decided to stop all fertility treatments and pursue adoption at that point. My doctors had told me when I was a young teenager that I would have a very difficult time conceiving a child if I ever did at all. I had a surgery when I was 6 on one of my ureter tubes. It had veins growing through it pinching it shut. It had caused my left kidney to swell to 4 times it's normal size when they discovered it. When they did the surgery to correct it they did x-rays of that area while my abdomen was open. They said they covered my reproductive organs with a lead blanket. But I've always wondered if that caused my problems. Of course, this was in 1969. Things were done differently then. But once I started my periods when I was 14, I would have 1 a year. One horrendous period a year. I always missed a week of school with my periods. Once after I got married I ended up in the ER it was so bad. They first thought I was having a miscarriage or hemorrhaging. So needless to say when chemo forced me into menopause and my periods stopped I wasn't too upset!! Lol
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Oceanbum, back in the 60's they were pretty clueless about protecting future fertility.
I was told when I was diagnosed with factor XIII at the age of 10 that it could have a negative impact on my fertility. Fast forward to the 80's when I was seeing a fertility specialist at Ohio State who was also incredibly arrogant. When I told him that I was diagnosed with Factor 13 at the age of 10, he told me that there was no such thing as Factor 13. So I kept going along with the fertility treatments even though my body could never carry a pregnancy because I can't create an efficient placenta. It was heartbreaking
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Wised - I too took Clomid, in the late 1980's. I was like a raging maniac if I recall correctly, like a woman having PMS in overdrive. I never concieved. Is there any link between Clomid use and BC? I never thought of it until I stumbled on your posts.
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Hi Cindy,
They say there is no connection between Clomid and BC. But my question is there a connection between Comid and BC when a pregnancy was not achieved? I fall into that category as do you and Wised. I've read that women who haven't had a full-term pregnancy or have their first child after age 30 have a higher risk of breast cancer compared to women who gave birth before age 30 are at higher risk of breast cancer. So I wonder if Clomid adds fuel to that fire. It does make you wonder?!
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Ocesnbum- yes it does make you think.
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. Oceanbum, I truly wish someone was keeping track to what happens to older women who took hormones early in their twenties and 30s. And you are correct my doctor did tell me that there is a correlation between not having given birth and breast cancer.When I went for my mammogram that was one of the questions they asked to assess my risk of breast cancer. when I looked at my paperwork later on after my diagnosis, I saw that my lifetime risk was 26%. That's actually pretty high.
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I'd love to see the statistics on that as well.I have to believe there is a connection between taking hormones in your early 20s and 30s, having no pregnancies and developing BC later in life. But I'm sure they don't want to do the studies on that because that would open the pharmaceutical companies up to many, many lawsuits.
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Just popping in to say Hi ..Such a busy time of the year trying to bring Christmas together 🎄
Hope you are all well , and having fun 🌞
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Merry Christmas to everyone. How’s the weather today Lucy? We were about 55 degrees F today. Great for us.
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Hi Farmer ! We are heading for 34 Celsius ( 93 F ) ..but the humidity is disgusting....😟..Enjoy your nice cool temp !!
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Hi Lucy and Farmer,
Wow, that's pretty hot in Australia! That's more like the summer weather we have in Florida! We are in Massachusetts for Christmas with our kids and grandkids and it is very mild up here - about 65 today! We love it but all of our grandkids want snow. Not me!! I don't miss it at all.
My Christmas shopping is done finally, I think, I'd like to get back to just one or two things and let's remember what it's all about, anyway. Not sure that will happen but we'll see.
Merry Christmas to everyone!!
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Lucy55- I like that! Back at you, and all of us on this site.
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I am so glad I found this thread! I am relatively newly diagnosed. Here’s my story:
I’m a teacher with no children (by choice) and a very loving older hubby. We have been married 20 years as of this past October.
I was diagnosed on August 31 at the age of 44. I have had call backs for every mammogram I had (started at 40) and had a negative biopsy on my left breast last year. When I was called back in for further testing and biopsy, my husband was out of town for work but I wasn’t too concerned. He was headed back when I got the call and fell apart. Luckily my mom lives close by and my best friend also came over and kept me calm til he got home. Two tumors, one 10mm and the other 18. Initially the test had me weakly PR positive, however after surgery and sending out tumor for Oncotype, they couldn’t Oncotype due to Negative hormones, so basically triple negative. Underwent genetic testing and other than finding that colon cancer and precancerous polyps were running rampant on my dad’s side of the family, no genetic defects at this time.
Decided to go the double mastectomy route since I already had scares on left side as well and since my tumors were high grade I will be starting chemo the end of January. And lucky me, I have chemo scheduled for Valentines Day! I am going to try to work through chemo as I used up all my paid sick time for the double mastectomy recovery, but will see how I react.
Thanks for listening, I have so many things to vent about other posts I have read on this thread but this is long enough!
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Wised I am just curious who you saw at Ohio State. I went there for 4 years before I finally conceived in 1988 via IVF. I took so many infertility drugs for such a long time. My doctor was very arrogant. He and I had a very heated argument on the phone at one point when I discovered quite by accident from operative notes that they had put 4 embryos into my left tube that was blocked during a Gift/IVF combination procedure. Big mistake on their part but fortunately it did not result in a tubal pregnancy.
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He was Chinese and arrogant as hell. I I think his name was dr. Lee. I told him that I was diagnosed with Factor 13 when I was 10 years old. Factor 13 inhibits an embryo from implanting successfully. He told me there is no such thing as Factor 13. I believed him. I just went through life as a bleeder and didn't know what to tell my doctors. I was re diagnosed with Factor 13 three years ago when I had colon cancer and almost bled out a number of times. I should have saved myself a lot of grief and never gone there or walked out when he told me that there is no such thing as Factor 13. But I was so desperate for a child I wanted to believe anything. Over the years I've really thought about how such a distinguished doctor could have not known something so incredibly basic. Especially since it does have something to do with a woman's fertility.
Edited to add: I also had a very bad bleed on the table right after the hysterosalpingography.
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Wised, I knew some girls from here (Chillicothe, about an hour south of Columbus) that saw Dr Lee. He was the go to doctor for infertility back in those days. And we can now also add lettsgogolf to our growing list of gals who took fertility drugs and ended up with BC.
Welcome, Mncteach! I'm so glad you found us. Though I'm sorry for your diagnosis.
Merry Christmas everyone!!!
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Merry Christmas to everyone! I am thankful for all of you and this community
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I was diagnosed at 50. I also had some fertility treatments in my late 20’s. Did provera a few months and clomid a few months . Did conceive and did not go onto stronger therapy. I have often wondered if that contributed to my cancer . Interesting to see others stories
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Hi Keepongoing,
I took both Provera & Clomid, too. It makes you wonder, doesn't it?!
It looks like you're a Journey fan - me, too!!
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A very Merry Christmas and a Happy and Healthy New Year to all of my Stage I sisters. You are the best!
An
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definitely a journey fan! With the name Sherry kinda have to be !😂😂 Hope all of you have a healthy , happy holiday 🎄
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Wised, I saw Moon Kim at Ohio State. He was Korean. He was the head of the department and began IVF in this area of the country. He must be over 80 years old now. Last I heard he had transferred to California. I started on Clomid and graduated to the high potency drugs such as Pergonal and Metrodin. I always imagined that I might eventually get ovarian cancer from the drugs. Never even gave a thought to breast cancer.
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Letsgogolf, I had a hysterectomy 2 years ago and was grateful to get my ovaries out for that very same reason! I did two cycles of metrodin but always grew way to many eggs to get the shot to release them. My bc was highly hormone positive for both hormones, so it probably played a part in this, but I'm sure there are many factors. I never did have a baby, so that's one factor there.
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Wised, We sound very similar. I always developed many follicles and had to be stopped a few times because getting the shot would have been dangerous due to hyperstimulation. My BC was also highly ER, PR positive. One wonders about the connection, if any.
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