CALLING ALL STAGE I SISTERS
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my oncologist had private rooms in his office but they looked too depressing. I didnt really need privacy and sit there all by myself, so i choose to have it in our local Hospital which was one room and I was with other women and men where we could talk. lunch was provided or dinner depends what time is your appointment is.
For me that was the best decision.
The first one was difficult i was nervous. But you just seat there and you get up with your ivy attached if you need to go to the ladies room which you will.
I didn't really want anybody with me. My DD used to pick me up after.
Did you get a port?
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Welcome tude....I also had 2 surgeries to get clear margins.
It is a long journey of course you are nervous.
What kind of treatment are you having?
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tude-Is that 'tude as in attitude??????????? Hope you can find strength-it definitely helps, but we can be your shoulder to cry on, so spill it girlfriend, so you can move on!!!!!!
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Welcome Sandra! You will find much knowledge & comfort here. I am extremely grateful for all the loving arms that have helped hold me up when I was about to fall apart. We are here for you. Ask anything at any time.
You will find, I'm sure, as time passes, that you are stronger than you thought you were. You WILL make it to the other side.
{{hugs}}
Valerie
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Welcome Sandra.
I am sorry to hear you are feeling so emotionally fragile. You have been dx with a nasty disease and the trauma, both physical and emotional, will take its toll. It is a frightening and uncertain time for you right now but it is good that you are being honest with yourself and letting yourself 'feel'. I agree with Valerie though, you will find the strength from somewhere to get through what you are facing and by reaching out to this group you have made a fantastic first step toward finding that strength - we can help you because we have 'been there, done that'. Here there is information and emotional support to help you every step of the way - all you have to do is ask! Keep us posted on your journey.
Jean - LOL, my hubby would FREAK if I mentioned botox - would love to see his face though! I think I would probably freak too - I have seen enough needles to last me a lifetime lately!
10.30pm Monday night here - off to bed as I have work tomorrow.
Enjoy your day wherever you are ladies
Rae
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Sheila, you are too artistic and computer savvy with all the lovely stuff you insert.
And good morning to you, too! And to all, Sue
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Sue....Thanks but thats all I can do goggle the picture copy and paste.
I cant post real pictures. I'm not even on FB.
Sheila
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Good morning (it is morning here too - 8.30am Tuesday 4 May). I get so confused about times and days you ladies are talking about doing things. Apart from the fact that I am so far ahead of you, you ladies have several different time zones in one country (we are all the same time in NZ) which is even more confusing for me - guess you grow up knowing about the differences and can adjust in your head easily.
Enjoy your day
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Jean: I have to keep these earings in for about 6 - 8 weeks being newly pierced, but yes will be wearing them quite often and will probably every few months buy me a new pair of earings
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Good for you Charmaine.
Hi raeinnz....
Hi Everyone.
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Well tomorrow ladies I go in for my 3 month follow up visit with my Rads Onc. Hard to believe it's been 3 months since I had my last rads treatment. Time sure does fly when you're having fun doesn't it? LOL! I'm not excited about seeing him as I have posted before... he is not my favorite person in the world, but hopefully I will get through it. Before every time I would go in my blood pressure would be up I dreaded seeing him so bad, I hope it's not this time. He and one of his nurses just "rub' me the wrong way. Praying for a Great check up!!!
Renee
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Well tomorrow ladies I go in for my 3 month follow up visit with my Rads Onc. Hard to believe it's been 3 months since I had my last rads treatment. Time sure does fly when you're having fun doesn't it? LOL! I'm not excited about seeing him as I have posted before... he is not my favorite person in the world, but hopefully I will get through it. Before every time I would go in my blood pressure would be up I dreaded seeing him so bad, I hope it's not this time. He and one of his nurses just "rub' me the wrong way. Praying for a Great check up!!!
Renee
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Good Luck Renee.
Is he the one who charges $500.00 to your insurance?
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Seyla888: I did not get a port. I didn't want to go through another surgery and postpone my chemo even longer. Since I am only having 4 treatments and have always been told I have good veins I opted not to. Hopefully I won't regret my decision.
Sandra: Welcome. I also had to have 2 surgeries to get clear margins. When they went in the second time they found 2 more tumors, but the outer margin was clear. I am going to start my chemo next week and then after the chemo go back and have another reexcision to make sure we get a larger clear margin. As far as all of sounding so upbeat, I can only speak for myself, it;s because we have this place to vent, cry, complain and laugh. this has truly been a godsent for me. I have a great support system, but no one knows exactly what you;re going through then someone who's been through it. Good luck with the rest of your journey
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Renee: Good luck tomorrow. Maybe he will be your favorite doc once you get your all clear!!! I'll be praying for you.
Barb
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Renee ~ I'll be thinking of you tomorrow. Maybe that Rads onc & nurse will be having a good day & you'll be in & out of there so fast you won't even remember you were there! Let us know how it goes.
{{hug}}
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Lol, Sheila! - I remember that conversation.
Renee - don't let them make you feel bad - they only have that power if you give it to them. Go in with your head high and your shoulders square and make them treat you properly.
Try this on them
, lol. Fingers crossed for a good report!Night ladies - Rae
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Hi everyone, Just checking back in. Had my 2nd opinion yesterday at Dana-Farber. First medical oncologist scared the heck out of me and this one brought me right back to the place I was a month or so ago. "This is a speedbump I need to get up and over, and you can get back to living your life". I'm all for that. We have put any chemo treatment on the back burner and proceeding as planned with 30 treatments of rads- first treatment on May 12th followed with 2 1/2 yrs of tamoxifen switching to Aricept?? for the remainder of the 5 years. I'm that lucky group of pre/post menopause. I have also decided I need to stop reading SO much and trust my self, my own being. That is where I find the peace and answers I need. Too much out here to scare us and make us live each day out of fear- thats not what I want to do. Just ready to get these rads done so I can book my tattoo appointment!! On a serious note,, I am so glad I found this place- I feel like we truly are all sisters and seeing as I don't have a real one, I'm grateful for all of you. Nancy
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Hi, My name is Gwen this is my second go around. I not sure yet be I think it is stage 1, my surgery is on the 6th of May. I'm 52yrs old the first time I was 30. I found the lump this time like the last time. I hope I do as well it time as I did last time. 0
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HI, Nancy, I also go to Dana Farber. Small world, huh? Are you being treated there or "at home" (meaning your local docs).
I never read anything scary if I can help it. I avoid some of the sites on BCO. I try to keep positive thoughts about my treatment. I do try to learn a lot and I have learned alot on BCO, but try not to scare myself unnecessarily.
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Welcome, Gwen. Sorry to have to see you here, and very sorry that you are going through this again. You will probably be amazed at the changes in treatments in the past 22 years. One thing I have heard has improved is that nausea is more controlable than it used to be.
Redbarb, I was never offered a port. I too, had great veins (in fact they were quite pronounced.) I remember on my first chemo watching someone get their i.v. in and he was being such a baby! I thought "I would never act like that!" I did well for the first half of tx, but after getting blood draws once or twice a week, and then the i.v.s from chemo, my veins started breaking down, Since you should not have needle sticks on the same side you have your lymph node removed, that cuts the vein choices in half.Towards the end of chemo, I started acting like a baby when they did the i.v. There were certain nurses I would not let attempt the i.v. and I would tell them exactly where they could try. Now, six years later, I still have problems when someone needs to take blood or start an I.V. All that being said, if I had the chance tro do it again (which I pray I never will) I would definietly have the port put in.
You will be in my prayers today, Mimi.
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Charmaine--glad to hear that you will put those earrings to good use in a little over a month. I hope your next month prior to 50th is good! There is sexy and sassy after 50! Remember that!!
Gwen--I am glad you found this thread. I am new and the ladies are so awesome! I can't imagine how you feel going through this a second time. I was dx at 52 (last Oct). Please post when you can and get support here. You are not alone!!
Nancy and Sue---I live in NH and go to Dana Farber for onc and brigham's for breast surgeon and plastic surgeon. I see Dr. Tolaney at Dana Farber. Small world.
Nancy--I am glad that you are comfortable with your onc. That is so important! I did not go through rads so can't comment on that tx. But I am impressed with your faith in yourself and what you know is best for you! That is so important. You have done research, which is good, but at some point you need to just make your decision. Informed AND what you feel is best for you. There are alot of women who have gone through rads so you can get alot of support. I am a recent member (3 weeks) and have gotten a lot of support from the boards. Never was one to be in chat rooms, discussion boards, etc.. But this has been such a big help for me. Hope that it helps you, also.
Renee--I hope that your visit went OK with the rad onco. I am frustated that the visits have caused you so much anxiety! That is just NOT OK. Hopefully you will not have to visit too much after today! Don't know how often you have follow up app with rads.
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Hi all you wonderful ladies!! And YES Sheila, he is the one that charges $500.00 a visit to his office. haha!! But I didn't stress over it and it wasn't bad at all. Actually I didn't mind it. I guess it's a lot different when you aren't having radiation done.
All is good! He did draw a CBC and some cancer markers which will be ready on Friday, so I will call then and get the results. I'll let ya'll know when I know. Keeping my prayers sent up for no postive results on that. Welcome to all of you new ladies and to all of you wonderful pink friends that are soon to be having surgery or starting treatments best wishes and sending prayers and hugs your way.
Renee
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mimi1964: I am glad your visit wasn't too stressing, because of the doctor. I will be praying for good news on Friday!!
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Thank you barb!!! I am praying for good news as well!!
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Renee...Don't you have an Oncologist for this blood tests?
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Renee ~ I knew your dr. appt would go well today, I just had that feeling! Great! Keeping good thoughts going for a good blood workup as well.
Nancy ~ I'm sure you're feeling much better knowing your tx path now. Good Luck! I had 33 rads, so if you have any questions, feel free to ask. There is a lot that scares me on some of these threads here at bco, I just stay away from some as Sue has said. It does not help my emotional well-being to have negative thoughts roaming around in my head day & night. I need to stay positive as much as I can, as we all do. Stress I do not need.
Gwen ~ I am holding postive thoughts & prayers for a good report for your Thursday surgery. Please keep us posted.
Love & hugs to all you beautiful sisters!
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See you in 3 weeks.
Wishing All My Sisters Good Results and Treatments.
Sheila♥
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Have an absolutely WONDERFUL time, Sheila!!!!!!!!!!!
I'll miss ya! Be safe!
love & hugs
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