CALLING ALL STAGE I SISTERS
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Did you ever get some sleep, Seyla?
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Only 3 hours.
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Early to bed tonight then?
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Zzzzzzzzzzzzzz
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I'm always up late. Sometimes 2 am before I get to bed. At night is my time to keep in touch with everyone, to read articles (sometimes I'm a political junkie), & any research or bill paying is done at night. On BCO, lots of times I read threads I don't normally post on.
edited to change 2 pm to 2 am ~ must have been a bit punch-drunk (lol) when I wrote that!!
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Val...I also come alive at night time.
All the important things like you mentioned is done sometimes even after midnight.
Its nice to know Im not alone.
Hey we are not bothering anyone and who cares right?
Did anyone hear or know how cake is doing?
Hugs
♥
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Sheila ~ I have noticed that sometimes I have just missed you here, you posted just after me & I didn't check back in. I will more often. Most times I think I'm the only one up so I just wander around if my other "chores" are finished. I'm happy to know you are "out" there as well.
You know, Sheila, one of the best things that has ever happened to me is knowing that I am never alone. I honestly don't know what I would be like now, how I would be coping if I did not have this blessed group of ladies to come to every day. Some days I have the most scariest thoughts, and I can't stop them, they won't leave my head....
No more negative thoughts for today!! No more!! (maybe that will work if I keep telling myself that-lol)
I am worried about Cake as well - I sincerely hope everything is okay.
Please check in Cake!
{{hugs to you, Sheila}} & to all my sisters!
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Hi, guys! Soooo sorry it took me a few days to get back to ya. It has been cool that life after BC seems to finally be returning to normal. I would say that is the best thing that my year cancerversary has given me.
I think the only residual thing I have regarding BC is that now that I take life so much more preciously, I dont know what to do with it from here on in, LOL! I dont want to waste it and I want to make a difference (positively) in society, and I dont know what I want to do first! Has anyone else ever felt like that?
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In-cognito - Not sure if "welcome" is the right thing to say here... I had a "bonus tumor" too. After the surgery all the surgeon said was that he didn't suspect node involvement so I went away for the weekend and had a nice time with my family. Then on Monday we discussed the pathology and that he needed to go back in. Since I was already on the fence about lumpectomy versus mastectomy, I did some more research and decided the multi-focal was a gift - maybe a gentle message from my guardian angel - so I had bilteral mastectomies and reconstruction.
Swanseagirl -- My onco ordered the OncotypeDX. Not everyone is tested - depends on the type of tumor I think, but you should discuss it with your docs. Avoiding chemo is a high priority for me because I have a really sensitive system and my home life is too chaotic and not conducive to downtime.
Cake - Congrats! I'm right behind you (6/26). Yes I think about what matters and what doesn't in life, and I think more in terms of what kind of world I want to live in. And I have moments of greed when I actually think about MYSELF! What would Gail want to do with this beautiful afternoon? laundry or find a cushy lounge chair outside and read? hmm 401k or vacation with my girls (who are growing up too fast)? no brainer! DH and family don't get it though. DH thinks I'm being morbid because I'd rather have less stress in my life now than a nice retirement.
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I had clear tata's also, tomorrow is my F/U (follow up)
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I love clear tata's. LOL to F/U.
Soooooo Happy.♥
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Hi Astorm. . . I'm beginning to think I should have done the bilateral mastectomy. My results aren't back yet from my re-excision - but I had it done Monday and technically should have had the results back by today. No one returned my call this afternoon about the results. Granted, he did tell me before the surgery "If I don't call you it's because I don't have the results." That's B.S. It's been 5 days now. And to top it off he's on vacation next week. I feel like it is taking forever to get the ball rolling! The surgeon reassured me that a mastectomy would not be necessary unless the reexcision showed something weird. I should have just done it from the beginning now. I think if the surgeon tells me that the re-excision is clear, I will always wonder if he got the right spot that he was supposed to get. So frustrating!
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Hi in_cognito....I believe those tissues are sent out of State Lab sometimes. Thats why it might take longer.
I also had a re excision and it was fine. Maybe he left orders to the nurse to call you if the results came in. Waiting is very frustrating. Once the treatment starts at least you know where you stand. Good Luck to you.
Sheila
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Hi Shiela!
Thanks for the reply - I'm actually a nurse and have previously worked at the hospital I had my re-excision at - that's how I know the results should have been given to me by today at the latest. The lab has a quick turnaround time with malignant results so perhaps it is a sign that there was nothing found. Will have to wait and see
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Waiting suks, I had re=excision also, I don't remember how long I waited for the results. But it was fine, also.
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If I am repeating myself, please excuse:
deborye ~ Wonderful to hear of your clear mammo, what a relief!
Hello to in_cognito (waiting sucks just like deborye said!)
And a welcome, also, to Astorm! Things that did not seem to be much of a choice before bc are more of a thoughtful choice now or what you call a no-brainer.
Cake ~ Good to hear from you! I have found that I am more attentive to my family & I don't mean in the things I do for them, but in that I listen to them, really hearing them. I have not thought ahead much further than that, I guess my thinking is if my family is content, they spread that to others.
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Hi Valerie.....Most of us are sleeping. I'm still awake. I'm doing Internet hopping. this is my last stop. I agree with you i get great comfort when i connect to friends. Either is funny, sad or nerve wrecking situation. i believe we all have a connection and genuinely care each others outcome.
God Bless all of us in this journey old and newly diagnosed.
Big and Sincere Hugs To All My Sisters.
Sheila
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Hugs to you Sheila! One more place to hop to (I am a birdie, therefore, I hop - lol) & I hope to finish my book before I go to bed. Reading Atlas Shrugged - only 16 pages to go. 1168 pages total. On deck: The Host by Stephenie Meyer
Sleep tight all!
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Hi Ladies,
I am stage 1 and just heard that my final pathology is still Stage 1 !!!!! So happy but will get details when I meet with my BS next week. I get so much information and comfort from reading these boards. Right now I am still in significant pain and came home from the hospital one week ago from Bi Mx with Diep. My eyes are droopy after that percocet I just toook...back later...and looking forward to getting these annoying abd drains out sometime soon!
mrdrn
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Welcome In_cognito and MRDRN ( I hope you heal fastly and feel well soon).
Renee
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MRDRN ~ Welcome! Wonderful news on your final pathology report. Rest easy.
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i am a stage 1.first surgery insitu.2nd surgery centenal node stage 1.the dr.called it a lost node.1mm.hr HR positive.dont even know what all this means except that the dr.said no chemo no radiation.arumidex for 4 months.its killing me.i have many stomach issues and its kicking it all up.yesterday i took myself off the meds.i feel a little better.if ithey got all the cancer why do i have to take chemo????does anyone know anything about DIM????its supposed to be natural.i am 65 yrs old.no breast cancer in family,active,skinny but large breasted...im so confused.does anyone have any kind words for me.i know i should be thankful that i dont have to do chemo or radiation but i feel so sick mentally and physically...
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Hi grannydukes....Glad you found us. Welcome. You are not alone.
In one of your statement you said no chemo, and the other one you want to know why you have to take chemo. Someone with more knowledge maybe can clear some of your worries.
I'm also HER+.
I wouldn't just stop the medication without talking to your DR first. At least let him or her know if you already didn't tell them.
Hugs to you.
Sheila
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Hi Grannydukes, I also resonded to your message on the "...NJ..." thread.
Sheila, I think granny may be thinking of all "cancer" drugs as chemo drugs. Where I'm confused is the 'taking arumidex for 4 months' - that's the first I've read of that short a period on arimidex.
Granny, I feel you have to read your path report thoroughly once again and speak with your doctors about your exact diagnosis and treatment plan. Your signature is showing one positive node. I don't have the knowledge but thought LCIS meant it had not gone anywhere else - again, I could be very wrong.
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patoo...I think Granny meant she started taking Arimidex 4 months ago. since she wasnt DX until April why they put her on it.????????
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seyla, she says she had one positive node which is strange for LCIS dx, no? When I first came to the boards my dx showed as LCIS with no node involvement and I was scheduled for rads and arimidex. Turns out I had misread/misunderstood my path report and the sisters helped me to understand that although LCIS was stated I had a primary dx of ILC.
Hopefully granny is going to review her path again and ask questions of her onc.
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Thanks...right now my SNB site is BURNING and I am waiting for the percocet to kick in. I just took a 30 min walk, which made me feel good but I was sitting most of the day. One step at a time I guess....this is pain like I never had had to feel in my life before though.
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granny...I sent you a Private Message. You will see a pink sign right on where it says Private Messages <1 New> just click on it and read it.
Sheila
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Sorry you are in pain MRDRN.
Hugs
Sheila
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MRDRN ~ The nerve endings take a while to recover (for some of us, a long while, not to scare you) after a SNB. I still have some discomfort there myself & have had some burning as well. The crap we have to go through.
All we can do is take the prescribed meds & if it is really still bothering you in a day or so, I would call my onc or his/her nurse to see what they recommend. I have found that if I lightly massage the area as I have my surgical scar, it helps to relax the surrounding nerves. Maybe that would help you. Things are still swolen as well & that certainly doesn't help.
{{gentle hug}}
Grannydukes ~ Welcome & I hope you find the answers here that you are looking for. {{hug}}
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