Sign the Petition Against the new Mammography Guidelines

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  • MelissaG
    MelissaG Member Posts: 2
    edited November 2009

    Melissa

    diagnosed age 43 with DSIC Nov. 1996;   diagnosed age 50 with DCIS right breast, invasive lobular left breast, Pagets, 7 positive lymph nodes -  Stage 3, July 2004  Bilateral mastectomy, chemo, radiation   

    If not for mammograms, I would not be here.   I thank God everyday for taking care of me.  These new guidelines are insane.  We must join together and let them hear from each and every one of us.  Let them hear our stories and how our lives have been saved because of early detection through mammography!

  • MelissaG
    MelissaG Member Posts: 2
    edited November 2009

    It's not the healthcare legislation that is doing this - it's the insurance companies.  They don't want to pay for these added tests.

  • JayneE
    JayneE Member Posts: 1
    edited November 2009

    age 48-Mamo, MRI, MRI BIOPSY, 2 findings of DCIS in left breast.  

  • ramlinrose
    ramlinrose Member Posts: 1
    edited November 2009

    i was diagnosised with atypical ductal hyperplsia in 2007. my grandmother and mother had breast cancer,. This is crazy to stop yearly test for breast and cervical cancer

  • meenadc
    meenadc Member Posts: 1
    edited November 2009

    Marjorie Chiba diagnosed at age 44. Found through self-examination and confirmed on a mammogram. Had I not practiced self-examination, I am not sure I would be alive today (4 years later) as the very small tumor had already spread to lymph nodes. I am an American living in Japan where the majority of women still do not get mammograms and consequently cancers are diagnosed much later with lower survival rates. Please do not change the guidelines in the U.S. Doing so will not only endanger millions of American women, but also women all over the world who look to the U.S. for guidance on screening and treatment.

  • Dena
    Dena Member Posts: 1
    edited November 2009

    Wardinia E. Grant  I was diagnosed with Breast Cancer June 2006 about on month before my 47th birthday.  I had had a false positive a couple of years earlier.  This time my doctor insisted on a mammogram at the Cancer Center.  We found a couple of tumors and pre-cancer cells with a growth rate of 70%.  I would be dead if I had waited until I was 50 for a mammogram.  I have been frequent visitor to BreastCancer.org since 2006.  I have always preferred to maintain my privacy.  This is worth giving that up. 

  • kimae
    kimae Member Posts: 1
    edited November 2009

    Three years ago, dx 45. Found with mammogam.

  • PAlady
    PAlady Member Posts: 56
    edited November 2009

    Diagnosed at 42; Stage 1. No family history. Not considered high risk.

  • Anninardmore
    Anninardmore Member Posts: 1
    edited November 2009

    As I approach the five year anniversary of my breast cancer diagnosis, I am shocked to learn that the routine mammography that caught my otherwise undetectable, lobular cancer, at age 45, would no longer be recommended. I would like to better understand the study that has lead to this conclusion. I sincerely doubt that I would be alive today, had I waited until my (recent) 50th birthday for my first mammogram.

  • prumery
    prumery Member Posts: 1
    edited November 2009

    Diagnosed at the age of 45 with Stage 1 during a routine mammogram.  What stage would it be if I had to wait until age 50???

  • seaofhope
    seaofhope Member Posts: 5
    edited November 2009

    I don't understand why they also recommend against self-exams.  If they don't want you getting mammograms, and say "don't do self-exams", how the hell are you supposed to find it?  Self-exams don't cost a dime, so why don't they recommend them?  The message seems to be "just let the women die" - you are only a number to the government.

  • Nancyab
    Nancyab Member Posts: 1
    edited November 2009

    Diag 11-20-06 with stage 2B 2/19 at 48 after yearly mammograms since age 30. My Mother passed in 1990 from BC. It can come on so quickly that going with those new "guidelines" is just insane!  Nancy Bauer, OHIO

  • MStrahm487
    MStrahm487 Member Posts: 1
    edited November 2009

    I was diagnosed at 44 1/2 with DCIS stage 1 with microinfiltrations.  I found a lump in the shower at the end of February, after seeing my GYN in November and a clean manual breast exam by the doctor.  I had my mammogram script and an appointment for a week after I found the lump.  As soon as the tech put the film up I knew what I was looking at, upper outer quadrant of the left breast, microcalcifications all over that area on the film.  My mother was diagnosed with DCIS at 51.  I had a lumpectomy and then a mastectomy because they couldn't get clean margins and followed up with Tamoxifen.  If I had been left to wait until I was 50 (which is how old I am now) for a mammogram and not done my monthly breast exam I imagine I would have been dead by now.  I have known many other women with breast cancer and several have died, including one diagnosed several months after me at the age of 43 who died last year.  She found her lump with self examination as well and was diagnosed with stage 1 DCIS also.

  • Diane0803
    Diane0803 Member Posts: 1
    edited November 2009

    Diane R. - Dx at age 54 last year. Tiny lump close to the chest wall was not palpable by OB/GYN or surgeon.  Was found ONLY by routine mammogram. Mammogram really did save my life.  Stage 1, grade 3, triple negative.

  • JanElly
    JanElly Member Posts: 1
    edited November 2009

    dx age 43 (found by my husband). Not in lymph nodes. Had a recurrence in same breast at age 52 detected by mammogram that was HER-2 positive. Mammogram at age 42 probably would have revealed tumor since age 41 mammogram was a bit questionable. Please don't change the screening guidelines.

  • ronkay1466
    ronkay1466 Member Posts: 1
    edited November 2009

    DCIS in my left breast was found with a mammogram in November, 2003.  In February, 2004, an MRI found a tumor in my right breast that was determined to be Stage 1a breast cancer.  My cancer would not have been found by mammogram for two more years.  My DCIS would not have been found by a breast MRI.  We need BOTH tests annually ladies.  BOTH tests saved my life.  They're trying to take women backwards instead of forward.  Are we to go to back alleys in order to get yearly mammograms and breast MRIs???  This nonsense has to STOP NOW.  They can't take our voices away.  Speak up now.  Thank you, Marisa.  

       

  • 2GIRLSII
    2GIRLSII Member Posts: 4
    edited November 2009

    Dr. Susan Love, I have one question for you. Since when does America strive to be like other countries??? Because some are years behind us, does not mean we should take a giant step backwards to be like them!! I am literally sick to my stomach over this issue.

  • lizzy68
    lizzy68 Member Posts: 4
    edited November 2009

    MARY RAY  I had my 1st mammogram Nov-2008 right after my 40th birthday, I was diagnosed 12-26-08 w/IDC  1 lump was 1.5cm the other .6cm. Only one other person in my family has had cancer and hers was Ovarian....  So I would be sitting here right now w/a tumor growing... SCARY!!!!

  • saja713
    saja713 Member Posts: 1
    edited November 2009

    Staci Allen - dx at 35 stage 3 spread to lymph nodes, FOUND with Breast Self Exam. NO family history.

  • bkc
    bkc Member Posts: 31
    edited November 2009

     I was diagnosed Feburary 14 2008 age 42 thru routine mammogram.Cancer was found at stage 1. 

    Sister  died age 41 diagnosed at 40 after she found a lump. Aunt died  at 32 after she found lump. Mom died at 62 after finding large lump at age 58. My life has been spared because of annual mammograms from age 30!

    My children will grow up knowing about self exams and early mammograms.

  • kjm70
    kjm70 Member Posts: 1
    edited November 2009

    KM, diagnosed at age 32; no family history. dx 11/04: HER+/ER+ Stage II

    This post is dedicated to the many, many courageous women who have battled this disease and are no longer with us in body, but certainly in spirit.

  • demiagarner
    demiagarner Member Posts: 1
    edited November 2009

    Diagnosed at 49--found the lump myself.  Had a mammogram 6 months prior with nothing showing. The recommendations to not encourage self exams is crazy!  Multiple diagnostics are needed to head this thing off--every situation is unique.

  • chapstickmom
    chapstickmom Member Posts: 11
    edited November 2009

    The 'new ' screening recommendations would be the same as the UK which has an 88% greater death rate from Breast Cancer. Brilliant !

    Don't forget the cost to the taxpayers to raise the kids of the women who die due to late diagnosis. 

  • dkerler
    dkerler Member Posts: 41
    edited November 2009

    Diagnosed at age 55. IDC found by digital mammogram. Stage 1 No family history of BC.I am signing this petition for my two daughters and two granddaughters.

  • suzmarks
    suzmarks Member Posts: 20
    edited November 2009

    My yearly mammogram detected my breast cancer last year. Is there really a reason to question the authenticity and effectiveness of a routine mammogram? Do your statistics bear out a reason to sentence women to an unnecessary death? Didn't we just finish October as breast cancer month where we double our efforts to make women aware of the need to be proactive about cancer awareness? Enough nonsense with changing mammogram screening, earlier is better.  

  • b1mkcg37
    b1mkcg37 Member Posts: 1
    edited November 2009
    . Lynda Gibson......I found a lump in my right breast that a surgeon kept looking at and taking bi-opsies of and sending me for two yearly mamograms of  ( that said it was not cancer)....and finally just before Christmas I did my "mirror exercises, as shown in a breast examination video"...hands on hips and tighten and move your shoulders up and forward and there I saw  it !!!!....my right breast nipple area puckered in  with the skin drawing in ....Right there I knew I had cancer . I was imediately examined and booked for surgery Jan 9.2002 . My worst fears were told ..I had a lumpectomy and it was cancer...in three of my lymph nodes as well.... I picked the "Red Devil". treatment CEF....  of 6 months chemo and it sure was harsh, and then a 1 month following  of radiation. Thanks to my oncologist , and my radiologist , I am still here to talk about it . But ladies !!!!...don't ever take it for granted ...if you have a lump get it seen to and get more answers ,  right away . Don't wait like I did.  Please!!!!
  • nene2059
    nene2059 Member Posts: 53
    edited November 2009

    Jennifer-age 36 when I found a lump in my right breast.  This would be doing one of the "discouraged" self exams.  I am BRCA 1&2 negative.  No known risk factors.  Mammogram and ultrasound confirmed mass was highly concerning for carcinoma.  It was. MRI found another separate Invasive Ductal Carcinoma in left breast.  Bilateral Mastectomy at 36 years old. Doesn't take a scientist to recognize that 36 is NOT 50.  Guess I am part of the "not enough" lives saved. The phrase "don't bring problems, bring solutions" comes to mind. I would be all for the mammograms at a later age IF there was a better screening tool that would include screening younger women.  But to just say we are not going to screen anymore-crazy. Do your stats from this site-breast cancer patients in 30's and 40's are not outliers on here-we are probably majority.

  • herlanda1
    herlanda1 Member Posts: 1
    edited November 2009

    Screening should begin at age 30 NOT 50. The many women of whom  I know were diagnosed in their late twenties and early thirties. Three are no longer with us, and have left children to be mothered by someone else.

    Triple Neg. DX 10/23/08,age 57. Stage I,Grade II, O node. DCIS & IDC found thru self-exam.

  • TeresaTN
    TeresaTN Member Posts: 1
    edited November 2009

    When I had my first diagnois of breast cancer, my doctors were great they put me on a train that did not stop until my cancer was gone.  I still had to go through chemo and radiation but,  If I had not had my mammogram when I did I would not be alive today.  My children would not have a mother and I would not be a  grandmother.  Don't change the way mammograms are done that is the only way of saving lives

  • Ihavehope
    Ihavehope Member Posts: 42
    edited November 2009

    Cathy Mracek

    Diagnosed late at 46 had I waited until I was 50 I would be dead.

    Edited to add: I am responding well to treatment and will live with cancer as a chronic illness for many many good years.