Sign the Petition Against the new Mammography Guidelines

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Comments

  • Ihopeg
    Ihopeg Member Posts: 92
    edited November 2009

    Diagnosed at age 46, due to self exam, then mammogram. I would not be writing this if I did not have mammogram b4 age 50....

  • jarvisjudi
    jarvisjudi Member Posts: 1
    edited November 2009

    JudyAS - I am 69 years old and was diagnosed just 5 months ago, have had a mastectomy, radiation and now on Aromasin.  I know I am older but I have nieces who I do not want to end up with breast cancer at a later age and have it be too late, just because some board members who know nothing about breast cancer have decided we don't need it.  Next will be limit on age 65, so let all us women make a lot of noise on this one.  I am for mammograms at the age of 40.

  • JReeves
    JReeves Member Posts: 1
    edited November 2009

    No family history.  I was diagnosed at age 48. Mammogram revealed, biopsy, then lumpectomy. Still cancer free at age 56. If I had waited until age 50 it would have been too late with metastic cancer and much, much more costly to treat; if treatment effective, ok; if not, I would not be here to sign this petition.  Please do not change age for routine mammograms.  That would be a disservice to all women and yes, men too.

  • Caring
    Caring Member Posts: 1
    edited November 2009

    It was a mamogram that discovered a 10 centimeter lump in my mother's breast, which was removed.  She is now a survivor and I am so grateful.  The chemotherapy nearly killed her, but she is as strong as she is loved.  We need to respect the strides we have made by rejecting the new guidelines.  Send this petition to all your female family members, friends and their families.  There IS power in numbers.  God bless you all. Kiss

  • ArizonaStateFanatic
    ArizonaStateFanatic Member Posts: 1
    edited November 2009

    Russell Katarski and Nancy Katarski (my mom was diagnosed at age 40 with breast cancer and is a survivor)

  • sballas
    sballas Member Posts: 1
    edited November 2009
    My tumor was too small to be felt.  My annual mammogram detected a .6 cm lump.  How large would it have gotten if I had to wait another year?
  • njgirl44
    njgirl44 Member Posts: 1
    edited November 2009

    Diagnosed at 42 DCIS Intermediate grade - lumpectomy-radiation-Tamoxifen (ER/PR + Her2 Equivocal) at routine mammo (calcifications) -no lump.  All these post/all the stories I've heard in the last couple days - where in the world did they get 1 in approx. 1950 are diagnosis in their 40's.(and why don't we count)  Where would I be at 50, 8 years later letting it run its course -don't know - but I know I'd rather not find out. 

  • purplehaze66
    purplehaze66 Member Posts: 49
    edited November 2009

    michele solari diag 39 stage 2 b 6TAC rads bilater mastectomy

  • BCinMN
    BCinMN Member Posts: 1
    edited November 2009

    51 and diagnosed with breast cancer.  My cancer was detected from a mammogram.  No family history of cancer.  The proposed changes are ridiculous. There has been such great strides in breast cancer detection, why take a step backwards?

  • mochaviv3
    mochaviv3 Member Posts: 1
    edited November 2009

    I was diagnosed at 45 at Stage IIIa.  I doubt I would be still alive if I had to wait until I was 50.  

  • beckylynn
    beckylynn Member Posts: 1
    edited November 2009

    If anything, the trend should be to start mammography earlier, not later.  I was diagnosed at age 31 and discovered mets at age 34.  No family history and BRCA 1&2 negative.  By the time I found the original tumor myself, it was almost "too late" for me.  I'm 38 now and 4 years NED, yeah!!  However, since my own diagnosis, I have met increasing numbers of young BC survivors.  If mammography has limited benefits for young women because of dense tissue, imagine how limited self-exams must be.  So, what other line of defense do young women have?

  • dee500
    dee500 Member Posts: 1
    edited November 2009

    I was diagnosed with Stage 0 DCIS at 43 and Invasive Lobular Carcinoma 6.5 years later.  Both breast cancers occurred before my 50th birthday and I did not have many risk factors.  I am grateful the mammogram detected DCIS and I was able to have a mammogram, ultrasound, biopsy and MRI to diagnose the second breast cancer. 

  • Chattypatti
    Chattypatti Member Posts: 17
    edited November 2009

    I was diagnosed at age 51 after I FOUND A LUMP.  If I had not been doing regular self checks, I wouldn't have known how different this lump felt from the "usual lumpiness" of breast tissue.  I had no risk factors for BC.  I ended up needing a mastectomy.  The proposed changes are indeed a step backward and I have been telling my friends NOT to follow them, no matter what they are hearing.  It is a matter of life and death. Aren't those who are diagnosed before age 50 worth saving?  I just don't get this and think it is a ridiculous recommendation.  My husband and I are outraged that this is even being considered.  Thank you Dr. Weiss for defending the previous recommendations.  I am quite perplexed and very disappointed by Dr. Love's statements in the media.

  • Tuna_56
    Tuna_56 Member Posts: 2
    edited November 2009

    Age 49 at dx, premenopausal & no family history of BC. Since I was diagnosed, one sister (age 47 also premenopausal), two first degree cousins (sisters ages 54 and 59) have been diagnosed.  Three out of four cancers found on screening mammograms. The 59 y.o. had inconclusive mammo then mri after younger sister diagnosed. The new "guidelines" are a travesty. 

    Oh, yeah, sister-in-law was was 40 when diagnosed 11 years ago. My daugher went from having no family history of BC to having family history on both maternal and paternal sides. Her doctor ordered her baseline mammogram last year at age 29.  If the genetics are not on her side, then I want her to at least get diagnosed early like I was.

  • MacDee
    MacDee Member Posts: 1
    edited November 2009

    I'm signing for me and my two sisters -- all three of us diagnosed before age 50.

  • joescal
    joescal Member Posts: 1
    edited November 2009

    These new guidelines will cost lives.  It can't be allowed to happen.

  • babymama
    babymama Member Posts: 1
    edited November 2009

    My mother died of this disease at age 55 in 1977 and I was 15 at the time.  Her first diagnosis was at 50.  My niece (my sister's youngest daughter was diagnosed at 30 -- Stage 2, grade 3.  I was diagnosed at age 46, 2 spots DCIS and calcifications in my other breast.  My niece and I are alive today because we practiced self-breast examines and we got mammograms yearly.  It is only through early detection are we alive today to raise our children.  My niece is a breast cancer researcher and I am a science teacher -- we would have left behind not only our children, but our knowledge of this disease!  We are strong advocates of early detection and we are outraged by the government's guidelines!  Had it not been for our vigilence and our knoweledgable doctors, we would not be here.  I was followed for many years and told to watch my calcifications and sure enough, it was only due to multiple images over time, did my doctor note the subtle changes in my breast tissue.  I am NOT a second class citizen because I am a woman -- I VOTE and I MARCH and I GIVE, so watch out Washington you have ticked off the wrong group of woman -- we have battled worse than your misguided understanding of this disease!  I also want to mention that breast cancer comes in different forms and it has been deduced that we are not BCAR 1 or 2, but some other unknown and unassayed gene!  So much work has yet to be done!

  • tullja
    tullja Member Posts: 1
    edited November 2009

    Diagnosed at age 56 thanks to mammogram.  Should lower age guidelines, not increase them!  We want to save lives, not catch cancer when it is too late.

  • imadonnr1
    imadonnr1 Member Posts: 1
    edited November 2009

     Donna Sherrer - Diagnosed at age 45, routine mammogram found micro calcifications, positive biopsy, high grade DCIS, mastectomy performed 2007. No family history. EARLY DETECTION SAVES LIVES!

  • Trish676767
    Trish676767 Member Posts: 1
    edited November 2009

    I was in my early 30's  with my first mamogram. Everything was fine at this stage. At age 42 alot of woman my age was positive for breast cancer. I had asked my doctor for a test just for the sake of it. Her answer was I was too young. Well 6mths later stage 3 advance breast cancer. Lost one breast continued to lose the 2nd for preventive reasons. Had my ovaries removed due to the link between breast cancer & ovarian cancer. (another preventive measure). Well guess what too late. My breast cancer went metastic into my bone. Now I am in therapy once a month for the rest of my life. Can they tell me how long I have ?. No. I am very strong & postive person, but when I hear that they want to restrict age limitation for screening it is disgusting. How dare they! Who are they to determine who is in eligible & who is not. For me there is no previous breast cancer in the family. The medical system is worried because of the cost for screening. Well let them keep in mind the cost of medication, radiation, chemo, & everything else associated with medical drugs & therapy. Maybe they just want let things get so bad that the majority of us woman die. Let them & everyone who has never had cancer walk a mile in our shoes. Just maybe they may react differently if it was them or someone close to them. Shame on them & God forgive them for even of thinking of changing the guidelines.

    I am from Toronto Canada

  • Tuna_56
    Tuna_56 Member Posts: 2
    edited November 2009

    babymama, you rock!!!  You are eloquent and passionate. Thank you for your post.

  • KattyC
    KattyC Member Posts: 4
    edited November 2009

    I had no family history of BC, yet my 2nd mammogram at age 41 dx breast cancer.  Where would I be without the mammo?  Keep the current guidelines!

  • mhollen
    mhollen Member Posts: 1
    edited November 2009

    If this goes through....millions of young women will die neddlessly from breast cancer.

    Judi Hollenbaugh...diognosed in 2005

  • heitur33
    heitur33 Member Posts: 1
    edited November 2009

    My best friend was diagnosed at the age of 30!  She is CANCER-FREE and a proud advocate for breast cancer awareness!  I would sing this petition 1000 times if I would help save more women like her!  Love you Steph!  =)

  • Sandraj
    Sandraj Member Posts: 9
    edited November 2009

      Sandra Johnson -I had a routine mammogram at age 47 and was diagnosed with breast cancer. I had no family history and no lumps. Three more years and who knows what would have happened.  The new guidelines will cost a lot of lives.

  • cindyhinnc
    cindyhinnc Member Posts: 1
    edited November 2009

    Both this delayed mammogram recommendation and the delayed pap smear recommendation are suspect given the timing of the national health care debate. No, I don't see a conspiracy around every corner, but it does make one wonder.

  • nana56
    nana56 Member Posts: 1
    edited November 2009

    Mammogram at age 56 .... 1.5 cm...Lump could not be felt by Me or Dr.....There is no Family history in my Family of anyone having BC.Please keep the  yearly Mammogram for us women . So many have died when they could have lived if we could have  had our Mammograms at  age 30 or younger.

  • LImomof3
    LImomof3 Member Posts: 1
    edited November 2009

    Stage 1 IDC at 43.  My lump didn't show on mammo due to dense breast tissue.  If it weren't for self exam who knows how long my cancer would have gone undiagnosed. Self exam still needs to be taught and screening still needs to be done for women in their 40's. 

  • barkingbeagle
    barkingbeagle Member Posts: 1
    edited November 2009

    I was 39 years old at the time of my diagnosis....not 50!  I was 2 months shy of my 40th birthday....I repeat 40th...not 50th!  I had a lumpectomy two weeks prior to my 40th birthday and thanks to my mammogram I have had 4 more birthdays since.  I had an aggressive form, triple negative, and had I waited even 6 months longer my prognosis might not have been as good.  I had stage 2, and had chemotherapy and radiation.  I am alive today due to early screening and mammography.  These new guidelines are a huge step backwards.  Tell every woman or young woman you know to continue self-breast exams and also to get a mammogram, even if we have to pay for them ourselves.  Breast self exams and Mammograms are not painful.....Chemo and Radiation are no picnic, but do-able and much better than the alternative! 

  • kmcintee
    kmcintee Member Posts: 1
    edited November 2009

    I didn't have a mammogram for 5 years because I didn't have "risk factors". I found a rapidly growing mass in my breast when I was 49 and celebrated my 50th birthday in the hospital recovering from bilateral mastectomy surgery. None of the women -all in their forties- that I had chemo with had a risk factor.  As a nurse practitioner, I tell my story to EVERY WOMAN I treat in my office. I tell them there is NO KNOWN true risk factors except having breasts. Just check them and get your mammogram-yearly! How do you get appointed to that task force? We need some cancer survivors strategically placed.