Sign the Petition Against the new Mammography Guidelines

1171820222355

Comments

  • tkg1
    tkg1 Member Posts: 1
    edited November 2009
    I do not feel there should be a age for when you should receive you`r mamagran. There are woman in there 20`s dignsed with breast cancer. This should be our choice.
  • sherryw
    sherryw Member Posts: 9
    edited November 2009

    Obviously the people that came up with the new recommendations never had someone they know and love be diagnosed with Breast Cancer.  They should all be made to spend a few hours in a Chemo infusion room.  Better yet have to hold back the hair of a women in her 40's that is puking her guts out due to chemo, (oh my mistake they can't do that because she has LOST ALL HER HAIR from the chemo) that would not be necessary if her BC had been caught earlier had she had earlier screening.  If these are men who came up these recommendations, I wonder what they are telling their wives and daughters to do.  I would bet a million dollars they are telling them to do self exams and mammograms.  And if there were women that were part of recommending these new guidelines,  I would bet another million dollars she is doing self exams and mammograms and telling her daughter to do the same.    

    No one is going to tell me not to do my self -exam.

  • littlebird75
    littlebird75 Member Posts: 7
    edited November 2009

    Cindy Scillo - age 34, found a lump with BSE, mammography, MRI confirmed stage 2 invasive ductal carcinoma, no family history. We need early detection - period.

  • jwren
    jwren Member Posts: 3
    edited November 2009

    This is all very sad. I lost my Mom to bilateral breast cancer, she was 49 when first diagnosed, but the doctors said the tumors were most likely already there for 7 years before it was detected (she would have been 42 when it started then), she wasn't getting yearly mammograms back then, as that was not the recommendation. Her first one was at age 49 only due to a lump she found. I also lost my best friend to it a year ago next week. She was first diagnosed at age 30, passed away at age 42. Her Mom also died from it, she was diagnosed at age 35 and it came back at age 57. I have other friends that were diagnosed young in their 30's. My sister and I have been getting yearly mammograms since we were 27 years old. We also get yearly MRI's. If I have to I will pay for it myself, I will not go without my yearly mammogram just because someone decides that they know what's better for me than my own doctor. What is this country coming to? Very sad today.  :(

  • Elisa
    Elisa Member Posts: 1
    edited November 2009

    Are you kidding me???? I was diagnosed when I was 44, I found a lump through self exam, thank God! My tumor was close to my chest so it was easily felt. If this tumor was anyplace else and I had to wait till 50, I would not be hear to talk about it .I also would not be able to enjoy my wonderful life with my husband and children, not to mention all my wonderful family and friends.

  • slotzie7
    slotzie7 Member Posts: 1
    edited November 2009

    I too am outraged at this idiotic change in the guidelines.  I was 62 when diagnosed, but nonetheless, all women should be screened beginning at least age 40.  My daughter, age 33, has had several screenings since I was diagnosed because now she has a family history.  So now, she gets to wait until age 50 for her next one!  Guess these "guideline experts" don't have daughters to worry about.

  • mermaidjls
    mermaidjls Member Posts: 3
    edited November 2009

    IDC, Stage 1, Grade 3.  Triple positive/ 0/2 nodes. I was not in an 'at risk' group.  Found through self examination at 46.  I might not have lost my left breast had I gone in for the recommended mammograms starting at 40. ACT, Herceptin, Arimidex. 3 years and still cancer-free.

    It is irresponsible and morally reprehensible to lower the standards for testing and to state that self examination does no good.  Had I not found the lump through self exam, I might not be alive today.

    Janet Shawver - Duncanville, TX

  • wblibrary
    wblibrary Member Posts: 66
    edited November 2009

    Please don't change the guidelines - we need MORE check-ups - not fewer.  I went through scares all my life with cysts and dense breasts.  It lulled me into thinking all my lumps were nothing to worry about - until I finally found one that was something to worry about!  Don't let women think they are safe - they NEED to be vigilent in their search for new lumps! 

  • Mich1011
    Mich1011 Member Posts: 1
    edited November 2009

    Michelle Nelson diagnosed 46, annual mammograms starting at 40.  Sister BC at 38, diagnosed 5 years ago, Mom ovarian CA diagnosed/died 22 years ago,  

  • tambrown72
    tambrown72 Member Posts: 1
    edited November 2009

    I am a 37 year old mother of three who was diagnosed with stage 2 breast cancer in June of this year.  I have no family history of breast cancer on either side of my family.  If I would have had to wait for a mammogram until the age of 50 I would have likely been dead.  I am appauled at the news to up the age for yearly mammograms.  What I heard Dr.Love say was that it was ok for a few to die as long as it does not effect the masses.  Well there are more and more women being diagnosed with this deadly disease everyday.  I was under the impression that I lived in a country where all life was sacred!  Was I wrong? 

    Tamara Brown aka still alive in Sacramento 

  • MzzHope
    MzzHope Member Posts: 9
    edited November 2009

    Hope

    DX at age 48. Stage 2 IDC

  • anniemcelfresh
    anniemcelfresh Member Posts: 1
    edited November 2009

    Annie McElfresh - Diagnosed at 48 - IDC Stage IIIA

  • nonijones333
    nonijones333 Member Posts: 71
    edited November 2009

    I was 39 twenty three years ago. Found it myself doing a monthly BSE, my daughter however went for a baseline mamo at 34 and breast cancer was discovered in both her breasts. That was 5 1/2 years ago and if it wasn't for a mamography she would be dead as both the surgeon and oncologist could not feel her lumps. IT WAS DISCOVERED IN A MAMO, BUT WHAT DOES IT MATTER SHE IS ONLY ONE LIFE. This is very scary stuff....

  • amandawr
    amandawr Member Posts: 1
    edited November 2009

    There's no comparing the value of data vs the value of a lifetime. 

  • Margerie
    Margerie Member Posts: 5
    edited November 2009

    Margerie Manning, diagnosed stage IIIA at age 38, no family hx, found lump during SBE

  • dhorak
    dhorak Member Posts: 3
    edited November 2009

    I just can't believe this new report.  I could just scream.  I'm afraid that this is just the begining of Obama Care.  If I had to get cancer, I'm glad that I got it last year and not next year. 

  • Abster49
    Abster49 Member Posts: 1
    edited November 2009

    At the young age of 35 I was first diagnosed with breast cancer.  A mere seven years later at age 42 I had a double masectomy to avoid further complications.  Mammograms and ultra sounds together rapidly increases the chance for early prevention and survival!  How can anyone who knows this vote to deny women the right to be tested until age 50?  By then, for people like me, it would have been too late.  Please stop these proposed guidlines before we lose any more women to this horrific disease!

  • donna39
    donna39 Member Posts: 1
    edited November 2009
    I have had yearly mammograms since I wass 33. My mother was diagnosed at 45 with breast cancer and lost her battle at 52. That was 5 yares ago. All she wanted was for me to keep a check on myself and I have a daughter age 16 and worry for her as she gets older.
  • caitlin1025
    caitlin1025 Member Posts: 1
    edited November 2009

    Magge C. - dx age 42 (found my lump in the shower). Triple neg, neo-adjuvant, double mast. Clinical stage IIB or IIIA. Five years out - NED. Please continue to save lives through base line mammography at 40. We are moving forward - - please don't go backwards with this disease.

  • ladyinbrevard
    ladyinbrevard Member Posts: 1
    edited November 2009

    Linda S., diagnosed first time at age 47, lumpectomy and rads.  Tumor discovered while still very small.  Diagnosed second time at age 56, unilateral mastectomy.   Second occurrence found solely by digital mammogram which identified calcifications near three tumors.  Having no siblings,  it is impossible to have family history indicating high risk.

  • Joanus
    Joanus Member Posts: 1
    edited November 2009

    Joanne Landau diagnosed with Stage 1 invasive bc at almost 7 years ago at age 47.  Felt a lump, looked like a cyst on ultrasound.  Got mammo 6 mo. before and it looked like a dirty cyst.  Followed up with another mammo just 6 months later because lump was still there, and the cancerous lump had been hiding behind the cyst.  This was discovered within a 6 month time interval!! My boys were ages 6 & 9.  If I would have waited 3 more years, my kids might not have had their mother with them now.  These new recommendations are ludicrous!  Statistics are just that -- statistics.  This is our lives we are talking about.  Women in their 40s are not expendable!!Stop the madness!!

  • stillme
    stillme Member Posts: 1
    edited November 2009

    Eileen McNally

    Dx age 48.  Onc. surgeon said bilateral ILC tumors were probably growing for 10 years.  Found by self exam after clean mammogram @ age 45.  It sure seems like there is a monetary motive to changing these guidelines.  I think its now time to start routine breast MRI's instead. 

  • JeanManos
    JeanManos Member Posts: 1
    edited November 2009

    My first breast cancer was diagnosed via my baseline mammogram at age 36. Although my maternal grandmother had died of breast cancer, no one in my mother's or my generation (of a VERY big family) had had breast cancer. My second diagnosis was at age 46, also via a mammogram - luckily that prompted my 4 sisters to have mammograms and two of my sisters also had early stage breast cancer. Turns out we have the BRCA 2 defect. In neither case were my tumors palpable.

    I believe these guidelines are extremely dangerous to women's health.

    Perhaps if my cousin's doctor had recommended a mammogram, her two beautiful daughters would have their mother. Her doctor felt the lump couldn't possibly be cancer because she was too young. She died at age 42.

    Please do everything possible to discredit this recommendation.

  • kayll
    kayll Member Posts: 1
    edited November 2009

    If the new guidelines were in place when I was diagnosed I would be dead right now. I have no family history of cancer.  I was diagnosed at age 43 after having felt a lump in my breast for two years.  My gynecologist didn't listen to me and a radiologist misread my mammogram so by the time I was finally diagnosed 18 months had passed and I thought that was dispicable.  With the new guidelines I would have never been diagnosed in a timely manner.  It was hard enough getting diagnosed as it was.  It is so scary to see these recommendations and the many important, young and productive lives that will be lost because of it.  We all need to stand up for the rights of women to be cared for.  This bill is like going backwards not forwards.  As it is I am very lucky to be alive even after treatment. 

  • secondrodeo
    secondrodeo Member Posts: 2
    edited November 2009

    Diagnosed because of my 1st mammogram at age 41, ONE MONTH AFTER MY OB/GYN DID A MANUAL BREAST EXAM and didn't find a 3 cm lump.  Almost 5 years later now, and I am thriving.  Without the mammogram, I'd be dead. 

  • momschools2
    momschools2 Member Posts: 1
    edited February 2010

    I was 48 when I felt a lump. It was then confirmed by mammogram. I have no prior history of breast cancer in my family. I have small breasts and I didn't think I was at risk. My Doctor said she is seeing more women getting breast cancer at younger and younger ages.We need these interventions!!!

  • marilaws
    marilaws Member Posts: 1
    edited November 2009

    Early detection is the key to surviving this deadly disease. I was diagnosed eight years ago with a 1.5 cm ER+/PR ductal carcinoma, node negative. I had a mastectomy & reconstruction with a subcutaneous mastectomy on the other side. I have two daughters, age 40 & 42. They deserve to be able to have testing so if they ever have breast cancer, it can be caught early & they will have a better chance of survival.

    There is no history of breast cancer in my family.

  • kkopen
    kkopen Member Posts: 1
    edited November 2009
    I would not be alive today if the new guidelines had gone into effect..I am 45 years old diagnosed with dcis on a regular mammogram,no history of breast cancer in family,also brca1 and 2 negative.
  • lazeee3
    lazeee3 Member Posts: 1
    edited November 2009

    Was diagnosed at 48, first found the lump myself, had mammogram and it was confirmed. I have been having mammograms since my early 30's due to my mother dying at age 33 of BC.

  • amaichan
    amaichan Member Posts: 1
    edited November 2009

    My sister, age 44, went for a routine mamogram.  A mass was found in one breast under the breast which could not be felt.  The other had smaller pinpoints deep in the breast.  StageII Cancer, double masectomy, chemo and much more... She is fighting for her life.  I am the older sister.  Without the mamaogram, this would not even have been detected.  The proposed new guidelines are WRONG.  My sister is (yet) living proof.