Just Diagnosed- Get Prepared

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  • [Deleted User]
    [Deleted User] Member Posts: 942
    edited May 2014

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  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2014

    member name delete: it's all the Gists' with their own body parts, not paying attention to what the other Gist' are doing.

    (insert Nystatin powder---that powders good. I'm talking non-medical powders as being a breeding ground for bacteria and fungus --yeast).

    Sorry we were talking yeast infection in vulva area, not bladder infection. Ironically everything applies. With the addition for both- culture and sensitivity of urine and vaginal opening. Should have mentioned that above, but here it is now.

    Yeast is a bad neighbor. It is kept in check by the other good bacteria. When antibiotics are taken, they can kill not only bad bacteria , but good bacteria(bug) too. That allows the yeast(bug) to overgrow. Elevated sugar(glucose) levels is their nirivana food, and warm moist environment.

    Any ways before they give you an antibiotic - try and tell them that you will only take them, if it's based on "culture and sensitivity". Culture --they grow the bug to see what it is. Once the bug or bugs are identified, they then test it sensitivity against all the antibiotics usually used for that bug or bugs. 

    Bugs can become resistant to antibiotics which means the antibiotic no longer works. Also, there is a rating system-- one drug may be a 1 in sensitivity, another may be a 8. The better drug is a 1. It's more sensitive to killing the bug. 8 would be weak.

    What happens too much, is gists order drugs without testing. You could be taking a drug that the bug is resistant too. The drug isn't doing you any good. Bug wins. OR the drug is weakly sensitive to killing the bug. If the bug is strong enough, it can overcome the drugs ability to kill it.. Bug wins again.

    Each time you take an antibiotic it affects the whole body. Antibiotics can over time affect the immune system. This is why you want to take a drug that is going to work. Less wear and tear on the entire body and the bug is dead.

    Know what bug it is by culturing. Know the sensitivity of the bug to the drug.  (lol just made that up it rhymes)

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2014

    Bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2014

    Hi, popping in. I was posting with another member. I thought sharing the below information may be helpful to you Winking.

    The link www.needymeds.org is to a web site started by a Social Worker and a doc. It is a tricky site to use. The first page leads to a several hundred resource pages. But I think this first page, does not project the wealth that lies beneath. Be patient when following the links within the site. There are sections that are disease and drug specific. The specific page then links to lists of organizations that provide monetary or other types of assistance.

    Register first and do the request for assistances form. Reason: the request for assistance form is filed. If you apply to 1 or 20 organizations/companies, the forms don't need to be repeatedly filled out.  The system is designed to pull information from the original form. There may be a few particulars that need to be added to a companies/organizations form.

    All the pharmaceutical companies have patient assistance programs. All the drug manufactures are listed there

    The other way to reach drug manufactures is 1. call the manufactuer patient assistance number(goolge keywords: drug name and manufacturer, then to webpage>>>patient assistance. Very time consuming.

    There is so much more on www.needymeds.org. It took a bit of time to wander through the whole site. I've shared a telephone walk through with many friends and relatives. I even called healthcare facilities to tell them about this link.

    For completeness, there are many ways to get financial assistance for whatever you need. There are organizations that will do things for you i.e volunteers that buy groceries, drive, install handrails, build wheelchair ramps.

    How to find the info besides from the link above?  FIND the SOCIAL WORKER(SW).  It's there job to know these things :)  Talk to all of the following 1. cancer center SW,  2.hospital SW, 3. Insurance companies SW, 4. County SW. 5. church outreach leader.

    I requested from my insurance carrier, a consult with a SW. That one appointment with the insurance carrier Social Worker, led to grants totaling $10,550. The meeting with the cancer centers SW, led to coverage of neulasta  for $4000.00.


  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2014

    BUMP

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2014


    Bump

  • [Deleted User]
    [Deleted User] Member Posts: 942
    edited May 2014

    BUMP

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2014


    Bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2014

     Winking.

    The link www.needymeds.org is to a web site started by a Social Worker and a doc. It is a tricky site to use. The first page leads to a several hundred resource pages. But I think this first page, does not project the wealth that lies beneath. Be patient when following the links within the site. There are sections that are disease and drug specific. The specific page then links to lists of organizations that provide monetary or other types of assistance.

    Register first and do the request for assistances form. Reason: the request for assistance form is filed. If you apply to 1 or 20 organizations/companies, the forms don't need to be repeatedly filled out.  The system is designed to pull information from the original form. There may be a few particulars that need to be added to a companies/organizations form.

    All the pharmaceutical companies have patient assistance programs. All the drug manufactures are listed there

    The other way to reach drug manufactures is 1. call the manufactuer patient assistance number(goolge keywords: drug name and manufacturer, then to webpage>>>patient assistance. Very time consuming.

    There is so much more on www.needymeds.org. It took a bit of time to wander through the whole site. I've shared a telephone walk through with many friends and relatives. I even called healthcare facilities to tell them about this link.

    For completeness, there are many ways to get financial assistance for whatever you need. There are organizations that will do things for you i.e volunteers that buy groceries, drive, install handrails, build wheelchair ramps.

    How to find the info besides from the link above?  FIND the SOCIAL WORKER(SW).  It's there job to know these things :)  Talk to all of the following 1. cancer center SW,  2.hospital SW, 3. Insurance companies SW, 4. County SW. 5. church outreach leader.

    I requested from my insurance carrier, a consult with a SW. That one appointment with the insurance carrier Social Worker, led to grants totaling $10,550. The meeting with the cancer centers SW, led to coverage of neulasta  for $4000.00.

  • [Deleted User]
    [Deleted User] Member Posts: 942
    edited May 2014

    Bump

  • jwoo
    jwoo Member Posts: 931
    edited May 2014

    bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited June 2014

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  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited June 2014

    A reminder about dailymed.nlm . If you are looking for a web site to review your medications this is the best. The company that first produced the drug will be identified as the original packager. The original producer is required by law to include all the pre approval info --Trials, and after market reports. Very useful when deciding to take a drug, or learn about what is being given you :)

     

  • 2nd_time_around
    2nd_time_around Member Posts: 14,084
    edited June 2014

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  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited July 2014

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  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited July 2014


    bump

  • 2nd_time_around
    2nd_time_around Member Posts: 14,084
    edited July 2014

    bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited July 2014

    bump

  • 2nd_time_around
    2nd_time_around Member Posts: 14,084
    edited July 2014

    bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited March 2015

    Hi I'm sas-schatzi---I often send this list to newbies. These are all links that I keep in my Favs, b/c they are related to stuff that happens to us. Some I've worked on. Others I haven't. I keep them in case someones has a question about a particular topic that is fairly common. Some are my threads, LOL like Constipation.

    Just put them in your Favs and read later or as needed. You can always delete them if you find no value. Don't let this list overwhelm you. It's a resource list.

    Click on them, look at the name, click on Favs.

    The one you should start with is Just Diagnosed-- Get Prepared. -sassy

    http://community.breastcancer.org/forum/5/topic/74...

    http://community.breastcancer.org/forum/69/topic/7...

    http://community.breastcancer.org/forum/69/topic/7...

    http://community.breastcancer.org/forum/93/topic/7...

    http://community.breastcancer.org/forum/62/topic/7...

    http://community.breastcancer.org/forum/67/topic/7...

    http://community.breastcancer.org/forum/102/topic/...

    http://community.breastcancer.org/forum/102/topic/...

    http://community.breastcancer.org/forum/90/topic/7...

    http://community.breastcancer.org/forum/64/topic/8...

    http://community.breastcancer.org/forum/8/topic/77...

    on the above link a synopsis is on page 25 and 26

    http://community.breastcancer.org/forum/6/topic/78...

    http://community.breastcancer.org/forum/8/topic/79...

    http://community.breastcancer.org/forum/64/topic/7...

    http://community.breastcancer.org/forum/44/topic/7...

    http://community.breastcancer.org/forum/78/topic/7...

    http://community.breastcancer.org/forum/69/topic/7...

    http://community.breastcancer.org/forum/73/topic/7...

    http://community.breastcancer.org/forum/79/topic/7...

    http://community.breastcancer.org/forum/44/topic/7...

    http://community.breastcancer.org/forum/44/topic/7...

    http://community.breastcancer.org/forum/44/topic/7...

    http://community.breastcancer.org/forum/8/topic/77...

    There are oodles of other forums and topics, but these may help get you started---sassy.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited July 2014

    Bump

  • 2nd_time_around
    2nd_time_around Member Posts: 14,084
    edited July 2014

    thanks Sassy!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited July 2014

    2ta- :)

    This link is to Smarrty's thread on tips etc :)

    https://community.breastcancer.org/forum/6/topic/8...

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2014

    Bump-------Add your goodies too the list

  • 2nd_time_around
    2nd_time_around Member Posts: 14,084
    edited August 2014

    bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2014

    I have been working on finding auto &home insurance. I'm due to re-up on Auto in September. Found this link. Ranks the 50 worst and 50 best insurance companies. I'm changing companies b/c the company I had was AWFUL to deal with on a claim in 2013. Now I find out they rank the worst of the top 50.

    These insurance companies cover a mix of HEALTH, car, homeowners, and flood(administered for FEMA). See how your company ranks?

    http://www.badfaithinsurance.org/indexdetaillist.h...

    This link is to another page on FBIC---Fight Bad-faith Insurance Companies web site. This page has a listing of all 50 states that link to each states Department Of Insurance--DOI. If you study the 50 worst and 50 best page>>> then go to the State DOI page, it's VERY INTERESTING.

    http://www.badfaithinsurance.org/doi.html

    This link on FBIC is to all kinds of agencies under specific topics

    http://www.badfaithinsurance.org/links.html

    There's also, a link to flood insurance for each state on their DOI page. I've had flood insurance since 1998, it wasn't required just made me feel good. But it's managed for the government by the company that has my homeowners. Going to change that too! It seems that when you get flood insurance the plan manager for FEMA ends up being the same company as you have your homeowners is through. The question that arises from that : If the insurance has a reputation of "DENY, DENY, DENY" a claim, how does the same company managing your flood insurance respond in an adjusters evaluation?

    -------------------------------------

    More research UGH! It's a learning process. May be TMI, but what I've learned is trying to find a company that can be trusted is VERY VERY hard. One of the companies suggested a couple more consumer type web pages that independently evaluate insurance companies. They felt that the FBIC reponses were from people that had only negative things to say about a company. It's not that I agree that these companies are any better at evaluation, I felt I should add them here as another option to review.

    Frankly, at this point I'm frustrated b/c these sites counter what FBIC states. No clue really who to believe.

    This link is to MSN MONEY. It's posting of the top 15 companies is based on Insure.com survey results.

    http://money.msn.com/home-insurance/best-home-insu...

  • 2nd_time_around
    2nd_time_around Member Posts: 14,084
    edited August 2014

    bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited September 2014

    bump

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited September 2014

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  • 2nd_time_around
    2nd_time_around Member Posts: 14,084
    edited September 2014

    Bump