Calling all TNs
Comments
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Hello InspiredbyDoce,
I was glad to see that you are still looking at the threads. I hope all is well with you.
Fond thoughts.
Sylvia xxxx
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Cocker, I have no words. I just want you to know I am sending you my love and prayers. You have always been a source of inspiration for me on this board and you always have the right words to say. Your family, of course, are also in my prayers. I think it is so much harder on our families! My God be with you all during this time. Remember, tears are acceptable! (((HUGS)))
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Broken...
recurrence...
only got 4 months out of taxol...
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nrsteph - Praying the next chemo will be your magic bullet. Time to continue the fight. We'll all be with you every step of the way.
Hugs,
Kathy
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nrsteph,
in these trying times, the only thing all of us can do is pray. And i think collective praying is more effective. Better if we make it a habit to pray for all of us on a specific time of day. I will start offering my prayers at 7 o'clock in the morning. You and the rest can pray with me at this same time. There's strong faith in group praying. A small sincere prayer will do. I hope this helps.
gmmiph
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cocker, nrsteph and who ever is suffering.. adding you to my prayers .. may god give us strenght to bear our burden to come out victorious from this fight! the one who never relent, will never suffer defeat!!
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Curly, I'm happy to hear your good news!
Cocker, you've always been our rock and now it's our turn to be yours! I'll lift you and your family up in prayer. I'm hoping and praying too that it's just a nasty infection, and a benign nodule on your lung. We all love you sweetheart! We are here for you and waiting with you. (((((HUGS)))))
Steph, I'll also pray for you dear. I'm so very sorry to hear about your recurrence. (((((HUGS)))))
Damn cancer!!
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hugging you tight, COCKER
Nrsteph , you too are in that giant hug, so sorry about your news. please be strong! fight and win.
Dolce, so good to see you!
Georgie , so good to see you. how are you? Please update if you can, and were you able to start back on the bike?
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Info on Clinical trials
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Hi Cathytoo,
It's nice to see you again.
I've seen the link in your last post and I wish I could be one of those ladies chosen in the clinical trials. I wish we have it here in the Philippines. But unfortunately, I have to undergo my FEC chemo a short week from now, Nov. 3, and I'm really terrified. I have a long list of family relatives who all died of cancer dating as early as the 1900s', both treated and untreated. I cleared with my MO on what regimen I would be given and she says 3 rounds of FEC and probably a taxane-based drug, but nothing certain yet.
Did you see nrsteph's last post? Bad news again, just like cocker. I am new to this BCO community but I feel heartbroken whenever I see bad news like this. I see all the caring and closeness that you have for each other and I feel like I am already a part of it.
Let's continue to pray for cocker, nrsteph, and all those who are suffering, including their loved ones.
Take care Cathy, See you soon.
gmmiph
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agreed, gmmiph , you are so definitely part of this thread, of us. And I am so glad. yes, support and prayers to our dear ones struggling right now.
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Meadow , I havent got back on the bike, maybe in the spring. The weather is lousy now anyway. Im doing much better. A 2-3" scar on my face that will hopefully fade. No more head aches or concussion aftermath. I need to get out of town to a specialst for my hand. Apparently, i've done something to a ligament or something. I kept waiting hoping it would get better, but still can hardly use it. Thank you for checking on me. I love all of you women, thank you for the support. I think of you all and my heart has been aching for those with threats of recurrence. I'm really trying to be grateful for every single day.
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Thank you to all of you ladies. I will take all of your prayers and comforting words with me to my appointments and/or treatment. And I will keep putting my hands in my pocket and know you are with me with every step of the way.
Nrsteph I know exactly how you feel and will always be in you pocket. You can beat this and with all the prayers the ladies are sending us, you will be ok.
Ladies my bad news is not to get any of you feeling down and thinking you may have a recurrence. I may not be able to but all of you can beat this and will be absolutely fine. Remember to find something to make you laugh every day, something to put your minds at rest and always to rejoice in your families. YOU will all beat this, don't ever let cancer win. Love you all. xxxx
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Yay Cocker. Annie.
I am a newbie here but from the short time that i've been thru the threads, yours seem to be the most popular. I admire you for getting so much respect and friendship from people all over the world, all rooting for you, including me. You must have done something nice. It is my pleasure to know you.
Please try to carry on, people are looking up to you for inspiration. My best wishes for you Madam Annie.
See you again mam.
gmmiph
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Cocker......I haven't been on in the last week or so and I don't have words to convey all I want to say to you right now. Damn this disease. You seem sure it's a recurrence...are your doctors talking that way or are they taking a wait and see approach? I hope you don't mind me asking. I'm just in disbelief, as you're so close to 5 years. As others have said, if you were sick, it could be something residual from that. Regardless, I'm going to pray for you daily and hold out every bit of hope possible for you. I'll be checking in daily. Please keep posting and keep us updated. We're all here for you. I hat this for you. Sending you love and the tightest embrace possible from across the oceans. xo
Sister - sending you hugs from a fellow Michigander.
Simple - I'm in the exact same boat as you. To the T. Hoping it's bursitis...arthritis...or anything benign will do.
Curly - very happy your nodule is out and benign!
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Hi everyone.
I'm a newly diagnosed TN. I'm glad this forum is around so we can all learn from each other. (((hugs)))
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Amw5, Welcome!
Ally, I love the new avatar picture, you cutie
Georgie, so glad you are doing better. Hope you get improvement with the hand issue.
(((Cocker)))
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Ally my x-ray shows a 24mm mass and hilar lymphadenopathy in the chest. It also states highly suspicious for cancer and may also be correlated to breast cancer. So it doesn't look good at all. I am absolutely petrified of the treatment which is, as I understand it, chemoradiation which is chemo and radiation given together. The difference is the radiation years ago was to the breast, this will be to the chest and throat as well as the lung and apparently you are unable to swallow even after the first treatment, you have no saliva and are unable to eat. I have gone from 64kg down to 58kg at the moment so not eating wouldn't be a good idea. Apparently the side effects are really gruesome, far worse than my last chemo which wasn't exactly a walk in the park so I am scared silly. You can ask me anything you want I truly do not mind and will answer if I can. The thing is I wanted to tell you and all the ladies on here not to get down about this. Because of all the support on here that I have received since my cancer journey started I wanted to be truthful but neither do I want any of you worrying. This is an isolated case and I feel 99.9% that none of you will get the same. If treatment is offered and I decide to undergo it, I will have to go up to the cancer lodge again and be away from my family, unable to swallow and so sick which is really bothering me. Having said that we do what we have to do (if we can). I will weigh my options up once I get the CT scan, specialist appointment and bronchoscopy out of the way. Thank you for your prayers, as I thank all the ladies on here and I feel your warm embrace around me. That will keep me going through the darkest days. Remember I will always be waiting to hear (that news!!!!) it will really make my day. Love you. xxxx
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Continuing to lift you up in prayer, Cocker. Please dont worry about scaring any of us. We need to support you, just like you need our support. Xoxoxox
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cocker....❤️❤️❤️
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My breast biopsy and axillary lymph node biopsy was on 10/13/2016.
I was diagnosed on 10/24/2016.
I had a breast mri done on 10/25/2016. I had a PET / CT scan done on 10/27/2016.
I meet with the oncologist this week, and then have a follow up with the breast specialist this week as well.
As of now, I will be doing chemotherapy first, then surgery and then radiation.
I filled out my signature area as best as I could. I will update the stage after I find out, and I will update the node information after surgery).It's comforting knowing there are so many other ladies here to communicate with. (((hugs))) I'm still reading up on triple negative bc so I can become more knowledgeable on all of this. I've always been very proactive about my health, and I will continue being that way.
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anw5...I wish you the best of luck on your treatment journey. We are all here to support you, encourage you and offer answers to any questions you might have. I am one year out from my diagnosis and I have to say...it was not so bad. Just keep in the front of your mind that you are kicking that cancer to the curb...forever‼️ Based upon my own experience and research I've recently read...you might want to ask your doctor to check your vitamin D3 levels. It's important that we are in the normal range. Good luck. Stay strong. ❤️
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hugs Cocker!
So i've been missing from the boards for a few months now, trying to live and enjoy my life without thinking about this whole damn breast cancer debacle. Found an amazing man and things have been great.
So of course on Friday I go for my 9 month post rad checkup with my oncologist and my blood work comes back all wonky. My bilirubin (which has always been all over the place during chemo) is back up to 1.3 (it did get down to 1 after treatment) and my CA 27-29 is up to 39.1 (it had dropped to 15). I've been crying since they told me they need to do more tests. I'm going for an ultrasound of my liver hopefully this coming week, I wish they would just do a PET but they need to start small with insurance apparently.
Everyone please send good thoughts and prayers.
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Cocker, I haven't been on the boards for a long time. Just been trying to live my life not thinking about the beast as much as possible. I just graduated from 3 month visits to 6 month and that makes me a bit nervous. You are one of the first women that I met on here and you have always been so encouraging. I will be praying for you and your family. Sending lots of hugs your way!
Wishing you all the best, lilyrose
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StefLove,
I am sending tons of good thoughts and prayers your way. (((hugs)))
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amw5, We are so glad you are here with us.
Steflove, good to see you, Thanks for sharing the good news about the new relationship. Keep us posted on what you find out
Lily, good to see you too
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Is anyone taking Metformin to help prevent a recurrence?
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Cathytoo- I am!
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Cathytoo,
I am also taking Metformin.
Avmom
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Hi Cathy
I'm trying to persuade my wife's GP to prescribe it. More research is needed into its use for TNBC, but certainly in the lab it helps to kill breast cancer cells and some of the trial data coming through seems to support its use.
The other interesting one is tetrathiomolybdate - this is used to treat Wilsons disease which is caused by copper acculumation. It appears that by depeleting copper you create an enviroment that the TNBC cannot grow in. There have been two small trials with it and the results are promising. The work is being led by Dr Linda T. Vahdat. Both trials appear to show the effectiveness of taking tetrathiomolybdate - the only criticism is they were single arm studies. This means all patients were given the drug rather than having a control group Vs treatment group. However, the data (in my opinion) was very good. Also, tetrathiomolybdate is tolerated well, and any side effects can be managed.
I've personally contacted Dr Vahdat about this both as a husband who will do anything to keep his wife safe and a sceintist, and I will of course pass on any relevent info.
Love and hugs to all. The biggest hug goes to Cocker today though.
Tom
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