Calling all TNs
Comments
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OMG..I'm so stupid! Russell (Crowe)..Sheryl (Crow).. Can't really blame this one on chemo brain..can I?
Pamela Jo..know what you mean about seeing doctors all the time..keep waiting to hear the onc say..see you in six months instead of three..but no go...
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Titan- When I went for my rads yesterday, I ask point blank if I could put aloe on my skin and the answer was NO! The tech said that she knows that every hospital has their way of doing but were I am, they only want you to put the cream that the RO will give to you IF he thinks you need it. I see my RO next tuesday and he better have a darn good reason for not letting me put cream on!!! To top it all off I have a cold.... DH and DS had it last week and now it's my turn. I just hope it will be over before my next rad next tuesday because it makes me cough alot.
Have a great week-end everyone. (((HUGS)))
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Russ says Hello and wants to confess that he did a pretty good job of removing his wing wrap during the night.
He has switched his room to the penthouse level and is enjoying the room service in this hotel.
This morning he ordered boiled egg, 2 night-crawlers and a house sparrow nestling.
He's still contemplating the nestling. I suspect it is due to his sense of intelligence... does one *eat* house-guests or entertain them?
And yes,... he did have egg on his face...
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Russ has such intelligent eyes!
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He seems to pose for the picture! He does look well fed..
Babs.I didn't use aloe..I used aquaphor...the only time I wasn't supposed to use it was the morning b-4 my rads...I could use it as soon as I was zapped though.
I put the aloe on my bald head to help the hair grow..I read that somewhere on here...I'm not sure if it helped or not but it did help keep my scalp cool.
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Isabelle - that is weird! My RO said cream, cream, and more cream, just not less than 2 hours before rads. How is your skin holding up so far?
Heidi - what a smart bird Russ is, lol. Very stately looking too!
Pamelajo - so glad to hear the Xeloda is kicking butt! I might be going on it after rads myself, so good to know it is manageable on top of effective.
Guys, I'll be disappearing for a few days. I'm a little too sensitive at the moment, and taking things a bit hard these days. Another thread kind of set me off a bit, so I'm going to regroup and be back. Not sure I'll venture out of my own safe space though, lol. I'll be back in a few!0 -
Hi ladies,
I don't come to this site very often lately, have been crazy busy and trying to get my butt outa my desk chair. But wanted to share this resource with you. This help line just for Triple Pinksters ... http://www.1uponcancer.com/breast/
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Heidi: I love Russel Crow (the bird, lol). I also love that you rescue animals.
Suze: Hang in there and I am so sorry another thread put you off so. I am very careful where I allow myself to hang out on BCO. I try to stay with ones I feel safe and protected in like here. Hugs!
Babs: I would still PM Estepp as she had such great results and skin after radiation. There are many things I did to help me do better during treatments and I get not doing anything right before, but after??
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Suze..you take care for a few days ok..and come back when you want to..I have to admit that some threads totally piss me off but I just take a deep breath and sign off b-4 I can get into trouble...People aren't going to change their minds about things...and I think sometimes people just get on here to stir the pot...I try to avoid those too even tho its kinda hard sometimes.I feel that I am right and they do too...
Bottom line..we are triple negative..that scary cancer..and we are all just trying to live and move on once we are past our treatments... I know that we all have BC but we have to admit that there are some types that are a little bit scarier than the rest of them...we are are dealing with that.
Ok..and Suze...I don't even know what your issues are so I may not be going down the right avenue here...
But dang..if anyone hurt your feelings..well..maybe we should send Russell after them..ha ha.
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Heidi..how is our Russell doing? I told you that I'm not a nature person but we do have a snake (OMG>>I'm freaking)..living under the front porch steps..I want my DH to move it somewhere but he won't..the kids don't seem to mind...I just remember my mom's total hatred of snakes..I grew up on a farm and whenever she saw one she got the hatchet out..and good bye snake..she hated them..and b-4 you guys think my mom is this huge, hatchet wielding lady..she is not..she is a tiny woman..but strong...I want to be like her when I grow up.
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Titan--- way too many snakes meet the wrong end of a hatchet by people who don't understand them. Unless your snake is poisonous and poses a threat to you you should probably thank him for keeping down your rodent population.
Crawl on under your porch and get a good look at him. Better yet, take his picture so I can give you a positive ID. Just kidding....
Russ says hi.
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Alecanjb. I was diagnosed with poly cystic ovarian disease many years ago. However, I have never heard of there being a connection. I did however have my daughter after my diagonosis. I have 2 children and I did not have to have fertility treatments. I do know many women with pcod that did have fertility issues but were able to Concieve with help from a fertilty specialist. I also was put on a diabetes medication but discontinued it after I was pregnant.
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Hey Russ hang in there .... you look mahhhhvelous
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Hi everyone...thanks for the good wishes re: my pathology results...I am just having a hard time getting ok with it (not that it really matters whether I am ok with it or not...). I've spent the last 6 months focused on only TN, and thinking that at least if you get through the first few years then the chances of recurrence go way down. Now I feel like I get the worst of both - greater chance of recurrence in the first few years from the TN, then chance of recurrence FOREVER from the ER+. I know that's a glass half-empty outlook but I can't seem to shake it. Get another 2 weeks off before I restart chemo so am going to try and enjoy feeling good and getting back, at least for a short while, to a more normal routine. School gets out in a few weeks and this is a crazy busy time with parties, recitals, etc. so that will give me lots to do to keep my mind off cancer for a bit.
Suze35 - sorry that something upsetting happened on here - I too have learned that there are places I just shouldn't go as I end up feeling really upset afterwards....hope you are back here soon and feeling better.
Heidi - I love the bird picture and your post about the snake. My entire family (in the South) thinks the only good snake is a dead snake - my aunt once had my uncle kill a large king snake while it was in the process of eating another snake! I was advocating for leaving it alone and letting it help her control the snake population but she wouldn't hear it...makes me sad. We have a couple of small rubber boas that live in our stacked stone wall (turns out it's great snake and black widow habitat..). They always give me a start when I first see them but I am glad to have them around.
dlcw
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Testing out a new Boston Terrier canine containment system on one of my carriages. What do you think?
Surprisingly, they were quite content in there and it reduces the worry of lose/lost dogs and pinched paws. It's not attached to the carriage (that would be unsafe) but is *is* secure on the backstep.
As O'Reilly would say... am I a Pinhead or Patriot? Oh wait... they're Boston Terriers... I must be a Patriot!
Trophy Dogs?
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Heidi: Trophy dogs, lol. They are soooo cute!!!!
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Yeah, they are good pups. Today was an initial fitting to see how they'd act when put into them. We plan on cutting out more ventilation holes for warmer weather. It would be great if this works for them, as plenty of dogs ride on carriages but I am fearful of these two getting loose or possibly getting a paw or nose caught somewhere in an excitable moment. If we can keep them cool, secure and happy this is a good way for them to ride along. They *love* being on the carriage and watching the scenery, but I always worry they might get loose. Since I have to keep 99% concentration on the horses knowing the pups are safe and secure is a big load off my shoulders.
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Heidi - the pups are so cute (...and well behaved). Thanks for sharing!
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Heidi, That is so cute! I hope it works out for them because I bet they really enjoy riding- wonder if someone makes "child seats" for dogs?
I love all cats and dogs but have a special place in my heart for Boston Terriers. When I was a 9 yr old kid, a 15 year old Boston stray with heart problems & epilepsy became my best friend. We took him in; he took several pills a day along with his food. Unfortunately, his leg was broken when he had a seizure (his meds didn't completely control his seizures) and my mother backed over his leg with her car - she didn't see him. He survived that and had a pin put in his leg but he never used the leg again but it never slowed him down. He ran - fast! - huffing and puffing with three legs and would chase much younger, larger dogs any chance he got! He was such a character and I loved him so. I think he lived to be about 17 or 18.
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Heidi - You may have just revolutionized carseats for toddlers! Great idea.
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Heidi...seriously..I love how you take care of your pups and Russell...and all the other animals you take care of.....I think you take pretty good care of US on here too..thanks!
Oh..the Indians play the Sox tomorrow...what can I say but GO TRIBE!
I can't actually get under my porch..it is concrete..actually the snake is living under the wooden steps...We let our cat out today on the porch and he saw the snake and he went nuts..needless to say we put the cat back in the house...Ok..I will try to get a picture of the snake for you...actually I think we may have more than one...one lives in the front and one lives in the back..
Dlcw...at least you can take something for the ER positive part...certainly can understand the part about 3 years out from Tn could be a good thing and then findinig out you are ER postiive and you may have to worry a little bit longer..but in the long run being ER positive is probably a good thing...
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Wonder if those would work as "cat carriers" also...it's such a chore chasing down the cats to go to the vet.
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TiffanyF4-thanks for the encouragement. Maybe I WILL be a grandma someday after all.
HeidiToo- too funny! I can'believe my bichons would sit there so nicely in those carriers. I think they would be telling me off the whole time.
dlcw-of course you are upset with your pathology report. You were a brave soldier and got through it once and now here it is again. Definately, the nightmare we all have. No one wants to do it the first time let alone 2X. My heart goes out to you. You can do it. You know you can. I am sorry that you need to.
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I had my hair colored Saturday and I really like it,though I still don't feel like me. I've always had long hair or one-length hair. Just not 1/2 inch one-length hair!
I finished my last radiation treatment in Mid March. I'm still crying at the drop of a hat. Is this normal?
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Cute PUPPIES!!!! You are making me want one.
Cheer up ladies. We have to rally together, keep hope alive, and keep fighting for better tx options. I am tired of crying. Hey I am 8 months out today and on that note I am going to smile!
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Heidi that's a great idea! A lot less expensive than the harness contraptions, and it gives them some protection if the weather is a little chilly. If they are anything like my frenchies, they aren't much for the cold.
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Thanks everyone for understanding - I was just being sensitive, no harm was intended in the thread and all is good. But it was good to take a break this w/e and do some yard work.
I'm getting another brain MRI today at 3:15, ugh. Had a clear one 3 months ago, but have had vertigo-type crap for the past week and it isn't easing up. Better to catch it early if there is something, according to my MO.
Heidi - those are awesome doggie-holders! And great looking dogs
. I hope they enjoy their riding! As for snakes...my son walked into the house last week holding a foot-long garter snake, and my mom freaked out, lol. He was unfazed even when it bit him. Such a nature boy. Snakes don't bother me - poisonous ones are extremely rare in our area.dlcw - I see where you are coming from with this new wrinkle in your diagnosis
- like you are hearing it all over again. Hugs to you.0 -
Suze: I still cry at the drop of a hat but now I cry more when I am happy, too--we are forever changed after BC and I think it's natural to grieve our losses but to also embrace life. Hugs and hoping the best for your MRI today!!!
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Suze35 is 35 your age?? It's mine too. We now have two things in common. Keep on fighting!!!
Sending clear vibes your way!!!! (((((HUGS))))))))
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Suze, fingers crossed for good results on your MRI.
I've been having some dizziness issues but I'm trying to follow the 2 week rule and see if it passes. It's been a week so far - also reading that low vit. D (which I have) can cause this too.
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