Calling all TNs
Comments
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Kathrynn, I had the slosh too, mine ended up draining overnight in my bed, disgusting and FREAKED US out!! Then it did it again and got infected. Drs office had to open and let drain. They told me to keep myself binded together. It's caused by space, your body is just trying to fill. If you keep your self smooshed together it should go away.
Hope everyone is doing well, Suze, very glad to hear cough may be getting slightly better.
Had a fabulous weekend at Epcot with BF and her daughter. She calls me Aunt Heather (No siblings so no real nieces or nephews) and I got to buy her all kinds of crap she didn't need.
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Kathrynn: I would report it to your BS. I know sloshing is not uncommon, but it can lead to complications. My sister's surgical site opened up due to/or leading to infection... which led to 8 or 9 weeks of daily nurse visits to pack the wound until it healed; chemo was delayed. Not trying to freak you out, but complications can happen and it's helpful to report to your doctor so they can keep an eye on things.
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Kymm. Teka, Riley, Titan, Suze. Luah, Barberajo, McCrimmon- thank you all for the advice! I called the BS, yesterday and she confirmed it is normal. ( I laughingly suggested that they might want to add the sloshing breast thing to their list of what to expect after surgery). I don't have a drain, but if it's not better when I see her in a week, I'll talk to her about draining it. It also dashed my hopes that the surgery didn't appear to leave a big divot, lol, it only appears that way because it's full of fluid!
Kymm, you look so lovely!!!
Riley, love the sister story!
Suze, I hope your visit with your father goes well.
Christina - rest!!!!
Bak, I'm 5 weeks out of chemo and my hair is doing the exact same thing.
Lwarstler. I think somebody mentioned it, but couldn't remember the name. They gave me Aloxi and Emend with chemo (Aloxi last for several days, then daily Emend for 2 more days. Had no problems with nausea, but Aloxi can cause severe constipation.
Off to see Heidi's time lapse photos0 -
My heart goes ou7t to Tysmom and her family. She will be greatly missed by many. THIS DISEASE SUCKS....
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Some more humor:
Medical distinction between Guts and Balls
There is a medical distinction between Guts and Balls. We've all heard about people having Guts or Balls. But do you really know the difference between them?
In an effort to keep you informed, here are the definitions:
GUTS - Is arriving home late after a night out with the guys, being met by your wife with a broom, and having the Guts to ask: 'Are you still cleaning, or are you flying somewhere?'
BALLS - Is coming home late after a night out with the guys, smelling of perfume and beer, lipstick on your collar, slapping your wife on the butt and having the Balls to say: 'You're next, Chubby.'
I hope this clears up any confusion on the definitions.
Medically, speaking there is No difference in the outcome.
Both result in death.
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Very funny Heidi!
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Teka, That $166.00 sounds like a bargain. I was told by primary doctor that the Shingles vavvine was around $300.00 here. My insurance won't cover it until I am 60. We have sent an appeal in advance to try to get them to cover it, but with my recon surgery coming up in about 3 weeks, if they approve it I will probably wait until thats done. I would hate to have to postpone that surgery to get over a mild case of vaccine induced shingles.
Sigh, I guess I just take my chances and hope I am not exposed by a patient at work.
Becca
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k..must have missed something here..why do we need a shingles vaccination?
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Hi, I am new here. Diagnosed on 9/28, surgery on 10/18. Had a partial mastectomy with oncoplasty and a simultaneous breast reduction. They did a sentinel node biposy and port placement as a bonus.
I got a mild case of shingle 2 weeks sfter surgery and also found out that I am allergic to Vitamin E oil, Who knew?? LOL! So does this mean when I start chemo that more than likely I will have shingles outbreaks at the same time?? If so, oh Joy! I also have had to go back to the plastic surgeon to have fluid drained. It was 350 cc. Crazy! At least I can hold my arm to my side now.
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Hi ladies !! Haven't been on for while, although I get to read some of the post hope your well ? I don't and won't let me add photo some reason ,,,, I prefer my hair short now before Chemo I never thought I'd ever like shorter hair but I do how things change ,
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Completely agree with you on the benefits of short hair. I've grown mine out to a chin-length bob (which is still a LOT shorter than I have ever worn it), but next summer, I may just cut it pixie short again.
Just an update: I've been suffering from scan anxiety lately, but received some excellent news yesterday. My annual mammo was clear. And the bone scan I had due to some recent back pain came back NORMAL. What a relief. (To celebrate, DH and I are going to get a jump on winter and do a little early-season skiing out west for a few days.)
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Congrats Luah! Enjoy your trip, never been sking before but it's on my list of things to do.
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YAY Luah!!! What a relief for you!!! Have a great trip!
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Hello Ladies:
Its been a while since my last visit. Thank you all for the big PUSH you all gave me to get my surgery date. The doctors indeed (as you all predicted) needed some serious movitvation to get me an earlier surgery date and their schedulers...well.... they were just filling spaces on a page. I got my oncologist involved, my navigator joined the effort and they now have me scheduled for November 30. I was originally set for December. I am in south Florida and getting the surgeon and the reconstruction guy together is like aligning Jupiter and Mars. Anyway.
Kymn saw your picture you are FAB!!
I am getting a double mastectomy. I have enough real estate so I will get implants right then...Any tips/advice/cautions will be deeply appreciated. So far ladies, you have helped me find my way!! much love and prayers to you all.
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Gator, sorry you have to join us but welcome to the group. I had shingles about a year and a half before my chemo and had no outbreak during chemo.
Luah, Congrats!
Denjak, good job on advocating for yourself!0 -
Yay Luah! Great news all around.
susan
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I have to admitt I do like the ease of short hair. Maybe I will keep it short who knows
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Had my ct scan today, and my dr just called and said "all clear"! Yeah!!!! I have been sick all day worrying about it.
Luah good news!
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Kathrynn: Thanks for the info about Aloxi and constipation that explains why it took just short of a stick of dynamite to get things moving (took 6 days) They give me IV Aloxi and Emmend. I have always had some stomach and digestive trouble. I think this is why my stomach gets it so bad regardless of the meds.
KS and Luah: Yay...good news!
GatorL sorry you had to join us but really glad you found us! Wow, sometimes it seems like things hit us all at once doesn't it? Sorry to hear that!
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Luah, great news on the clear mammo and scan. Enjoy your ski trip.
Had my last Taxol tx today and no reaction. I am now officially PFC!!!! I expect to start RADs in 4 weeks and will continue to see me ONC once a month because of the clinical trial I'm in (Denosumab).
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KS, back at ya - that is great turnaround on great results!
michelleo13: Congrats on being finished with chemo! That is a great milestone, you'll probably find rads MUCH easier. What's denosumab? It's great you'll be followed so closely.
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Luah and KSmatthews - such good news! It's time to celebrate.
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I will be 40 in December. I have a 15 yr old son. I was diagnosed with Triple Negative at the end of September. I wasted 5 weeks at one clinic who's doctors drug their feet and did absolutely nothing. I am now going to Vanderbilt in Nashville and already scheduled for a kidney biopsy for Thursday and hopefully will start my first chemo tx next week. I am super nervous. I do pretty good until I get on the internet and read up on TN, and watch YouTube videos of chemo patients.
Encouraging words, anyone???? lol 0 -
Leanna my dr told me to stay off the internet except this site and the american cancer site, so I do. Anybody can put anything on the internet and it doesn't have to be real or true.
Also I am TN and my dr said it is neither good or bad, just has to be treated differently, so I hold on to that, do what they tell me and I am doing just fine. You will too.
Just stay off those sites, you will make yourself sick. And I hate to say it, but there are somethings on this site I have to avoid to keep myself at ease.
Good luck and God Bless!
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Thank you ks.... I appreciate it. It just feels like a death sentence to be triple negative. I've read very few positive things. I am VERY nervous about starting chemo next week. I don't have my port or anything yet.
Thanks again....
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Congrats to you to KS!!
YAY Michelle!! It's nice to say I'm PFC isn't it?!!
Welcome Leanna! You will get alot of help and support here!
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Hi Leanna..and welcome to the TN family. I was diagnosed in August and started my chemo in Sept. Had a bmx first. So far so good with the chemo. There is a website dedicated to Tn's too it is www.tnbcfoundation.org Also full of great ladies fighting tnbc. Lots of healthy and GOOD info on this site and that for us TN's Hang in there...it is tougher in the beginning.
Maggie
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Congrat KS and Luah on clean scans! I have good new to add to that, my bone scan and breast mri were clean! BMX is on for Nov. 30th.
Denjak, we have the same surgery date! I am not having immediate reconstruction though, they won't let me
but I am ok with delayed reconstruction now.Leanna-thinking of you! Many triple negs can respond to chemo very well, so hang in there. Once you start chemo the fear will ease up a bit, if you have any side effects let your doctor know immediately and they can usually give you something to help.
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Leanna, I'm sorry you had to join this group but you will find a lot of great support here. The triple negative thread here is very active and a great group of women! I am in TN - in Chattanooga (also went up to Vanderbilt for 2nd opinion) and also a fellow pit bull fan! I was diagnosed in Feb with triple neg - after my surgery in June, they analyzed the remaining tumor and found 5-10% ER receptors. I went through TAC (taxotere, adriamycin, and cytoxan) chemo - it was hard, but I worked through it - but not during the 5-8 days after infusion. It was helpful to me to also join one of the chemo threads on this board - in my case, it was the February 2011 chemo pals. Everyone going through it posts their experiences and helpful hints, etc.
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bak94 yeah!
Leanna Tn responds very good to chemo, that is a plus for us! I did TAC after chemo did a lumpectomy cause there was no tumor left! Path report was all clear!
Good luck, chemo isn't too bad, but if you do have any problems let your dr know, they can help you.
Just drink lots of water.
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