Calling all TNs
Comments
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JenC, I know what you mean. I am going for a bone scan tomorrow because of some back pain I've been having... and I'd love to hear it's arthritis!
denjak: yes, I agree with the others. Keep calling until you have a date.
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LauraJane. Just read your past posts. I am so VERY HAPPY for you. You sound wonderful. Continue the good work and that healer and your once are both miracle workers. I am so glad you found them.
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JenC and Luah- I just went through that scare last month! Bone scan just showed I am getting old!! (46).
Survivor, Inmate and Olive- I'm sending you good vibes!! Hope they help!
Suze- glad you had a good time with your BFF and wishing for good, no GREAT CT results!
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Sorry I haven't been able to post more-I have been reading everyone's but not posting myself. I highly recommend David, Laurajane's healer. I haven't been able to move my arm since August and after 10 minutes with David and a long painful night of my arm regaining it's nerve endings, I was able to move my arm, do my stretches and not be in excrutiating pain. He said I had "frozen shoulder" from the MX and recon and that everything else was just a re-injury. Don't get me wrong-it still hurts but I have mobility and less pain. He said if it doesn't resolve in a couple of weeks to come back. I can't believe he lives 20 minutes from my new home! And here I was worried how I was going to deal with having no insurance in Louisville.
JenC: I am so glad your scan showed nothing, though the arthritis sucks.
For all of the newbies and for those of you struggling, we are all here for you!
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denjak, don't be afraid to bug the crap out of them until you either have a date or understand why not (labs, pre-op scans? Do they want you to do chemo first?). It took a month for me to go from seeing my primary care doc about the lump to starting chemo. (see my doc, get mammo and US, get a biopsy, wait for results, yes, it's cancer, make an appt with the surgeon, surgeon says you need chemo first, make an appt with the onc, sign up for a clinical trial, get a port put in and schedule first chemo - Whew!) My nurse navigator had to "talk me down from the ledge", I was crying and positive all this waiting was going to get me killed. (((hugs))) Let us know when you get a date, OK?
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Dear Sisters - I'm visiting this thread with a sad update. Tysmom lost her battle yesterday. She was a brave and tough woman. She fought to the end, but God wanted her to be with Him. No more procedures, pain or tears. She will be missed dearly.
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Suze - thanks for the kind compliment. I am glad you had a big heart to heart talk with BFF. Can't wait to hear about what the medium said. I already knew you have a long life ahead of you.
Luah - I also have neck/back pain, am in physical therapy and it doesn't seem to be getting any better. Am getting worried now. It starts at my neck and goes down the spine. I also have a lot of tenderness on the soft tissues under my left breast, the soft flesh/tissues, not the rib bone pain. What the hell is that? Is that lymphatic liquid or something which collects there or what? I have always talked about this, maybe I am the only one who has this, and it seems to come and go. This one is actually lump like but I know it is not cancer, because it is very tender. I massage for several days and it goes away, hoping that this one also goes away as it has in the past.
GrandmaBubba - I am not sure if I saw any of Tysmom's posts here. Maybe I missed them, but I am so very sorry for your loss.
MBJ - Frozen Shoulder, wow! Who would have thought that?
JenC - Happy to hear that it was arthritis (not really, but you know what I mean).
I know two people who recently got diagnosed at work. One with lymphoma and one with BC, both our two top executives. I am in disbelief today. This is a plague, a great epidermic of our time.
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So very sad about Tysmom. I am so very sorry to hear she lost her battle with this beast. My sincere condolences to her family and loved ones. Yes, Teka, she was triple negative and posted on the Stage IV thread. I believe she was diagnosed in early 2011, but then found it had already spread and was stage IV. I hate the effing disease. She was much too young to lose her life to this shit.
Linda
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GrandmaBubba, thank you for letting us know. My thoughts are with you and your family through this.
She was far too young, and only had seven months after her second diagnosis. The disease is just so cruel and uncaring, there is no meaning to it. I am so very sad.
Where is the cure? Where are the drugs to help US? How many more children have to lose their mothers and fathers?
You all are wonderful, thank you for being here.0 -
So sorry to hear the news about Tysmom.....................My thoughts are with her family.
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so sorry to hear about Tysmom.. condolances to the family...
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Hi everyone have been lurking for awhile.So sorry about Tysmom
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Prayers and hugs to Tysmom's family and friends...this disease sux!!
Maggie
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So sorry to hear about Tysmom, so F'ing unfair!
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Heartfelt prayers to Tysmom's family and friends!
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So very sad to hear about Tysmom, my thoughts go out to her family and loved ones.
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Sending love to Ty and all of Tysmom's loved ones.
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Hi,
I haven't posted in many months. But today I found out that I am still dancing with NED. I did chemo/lumpectomy/radiation from July - Dec 2010.
Colleen
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cmkocal - congrats!
Barbarajo50 - Love the Mt Hope winery, we're originally from Philadelphia and every year a group of us used to go the the Renaissance Fair and stop in the winery and stock up for a year. Something we all looked forward to every year.
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My sympathy goes out to Tysmom's family. FUBC!
MBJ- I am in month 9 of a frozen shoulder. PT has helped tremendously and am beginning to feel "normal" again, but still have some pain. I hope you get rid of it much quicker!! How's Kentucky?
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cmkocal - that is wonderful news, yay! Time for a little celebrating
. I'm a big believer in this, take your joy with each passing milestone.
kathrynn - if you are lurking, I am doing my chemo with Michael today, and I passed along your well wishes. He was thrilled to "hear" from you and hopes you are doing well.
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Got my CT results today, and my instincts were right, I did have some progression. It was enough to increase my symptoms a bit, but not SO much that my MO wants me off the study. She feels the opportunity to try the experimental drug is very important, and going another month should not compromise my health overall, as the progression wasn't "major". I am willing to give it the month, and then we will scan. If still no results, she wants me to move to Halaven. I'd be skipping over some other choices, but she really likes what she sees with this drug, and feels using it earlier would be good. And we can always go back to the others.
Anyway, I am fine with all of this. Any progression sucks, but it could have been worse, and it got me the Tig. So onwards and upwards!0 -
Babs...OMG...so funny!!! Thanks to my new leaky bladder I had to stop 3 times to go dry myself...but worth it for the laughs!
Survivor and Inmate: all I can say is ((((BIG HUGS!!!))))
Olive: Please vent away...so sorry you have this on your plate for the holidays. ((Hugs to you))
Suze: Sorry about your news, progression definitely sucks but glad it was a minor progression (if it had to be any progression) and that there's a good plan in place that you feel good about. I am always amazed at your great attitude and it is a huge ....um chemobrain attack......inspiration for me to not let myself get down on my chemo sick days.
GrandmaBubba: So sorry to hear about Tysmom, my thoughts and prayers are with the entire family and all the people who have been touched by her life.
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Suze, sorry to hear about the small progression, however, I totally know with a bright head like yours, you will be making the best decisions for yourself. Seems like your MO is following you up very closely, which is really great. I hope you have a good chemo day today, I will be thinking about you. If you feel great later, take some moments to enjoy something which you love. I hope you do.
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Suze:
Wasn't halaven the drug that turned it all around for LJ? While I am so sorry to hear of even the small amount of progression, I am so glad that this is not being seen as a tremendous set back. I just know that you will do this - your turn too will come where you get the "all clear" as well. I just want it sooner than later for you! Be well dear Suze, and keep the faith, you will prevail, not the beast.
Gentle hugs,
Linda
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First, does HAPPY DANCE for LJ! Your news put the biggest smile on my face!
Suze, yes I've been "lurking". Was running like a banshee trying to get things done before surgery. Glad to hear the progression was small and that there's a plan in place.
To all the new recent members, this is a great source of info and support. Welcome.
Condolences to Tysmoms family and friends.
Inmate and Survivortobe, I'm so sorry for what you're going thru. I'm only on my first round with the beast, so I'm always awed by those on here who fight with such
grace and courage. Inmate, being a bit of a prankster, whenever the tell me I'm gonna "feel a little prick" I tell them "no problem, I'm used to it, I was married to him!"
Lovelyface, thanks for the tip on windows movie
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Had my lumpectomy (2 humors) and SNB yesterday. Good I never lie to my docs, lol. BS, came out to update my friend with a smirk on her face. Told her I woke up smiling and immediately asked when I could have a cigarette. (luckily I don't remember this!). Out of surgery at 11:00, out the door by 12:00 and at the restaurant having lunch by 1:00. Up today with almost no pain, don't even need a Tylenol! Doesn't get much better than this, I'm a lucky shit! Of, and I forgot, I did my celebration before surgery on Sunday. Went to the NY School of Trapeze and flew thru the air! I do feel a little bad about the trauma I caused the little kids in line in front of me. You has to see the look on their faces when they turned around and saw the bald old lady standing behind them! I thought of you immediately, Painting, future patients for you?0 -
Tifj: Loving Kentucky though it is really cold out right now and the temp is supposed to dramatically drop tomorrow and we still don't have our belongings! I am trying to work the kinks out of my arm because my insurance just never got on board with PT and this is why i have the issue in the first place, so I am on my own with it.
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Still exhausted almost 2 weeks pfc. Especially after yesterday. It was one of my last 8 hr days scheduled at work before my BMX. The Saturday before I got a call saying one of my favorite clients who I have been doing her hair for 20 years passed away and her funeral was on Tuesday, my 8 hr work day. I rearranged my day so I could go after my first client. Had a hard time with fatigue with my first client but thought I would get some rest at the funeral. Oh no, no rest for me! It was a Catholioc funeral! And a beautiful one I might add, but all the standing, sitting, standing wore me out! I thought about staying seated, but there were people in their 80's and 90's getting up and down, so I did not feel comfortable slacking off like that! We rushed back to work and my next client was there, did ok until I had to shampoo her hair, thought I was going to pass out. A friend came over and finished up for me. I brought my next client back, got all ready, mixed color and went to do her hair and felt really exhausted again. Looked on the mirror and I was as red as a tomatoe! A co worker took one look at me and said, go lay down, I will foil your client. I had to have my husband pick me up, he works just down the street and was just getting off work.
What is wrong with me? Shouldn't I be better than this? I guess this is why ssdi approved me. I want to feel stronger before my bmx on Nov. 30. My blood counts have been good, scans 6 weeks ago good, going in for more scans next tuesday. Just scared that something is wrong besides chemo exhaustion. Anybody else this tired after chemo? I did do 6 ac and 12 abraxane and avastin, maybe it will just take more time. Oh, I have less hair than I did 6 weeks ago!
Sorry for the book, I amjust frustrated.
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So sad to hear about tysmom. hope her family is doing ok.
Suze-I'm glad you get to try the new drug, I hope it wipes out fc. Sorry about the progression though, but thank goodness they are keeping a close eye on you and being thorough.
Kathrynn, you did what?!!! Must have been a blast!
Thinking of everyone, hope everyone is doing well.
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bak94 - you need to rest to give your body a chance to recover before surgery. You have been through a LOT with chemo - so don't feel bad about needing to rest.
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