Calling all TNs
Comments
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Beccad- I am so, so so sorry that this is happening to you. I'm hoping the abraxane kicks ass for you. I didn't think it was too bad, just another Taxane, and there are a bunch more chemos out there but again hoping this kicks it. If your not in Metformin, Insist on it! I'm serious. It can be totally beneficial when combined with chemo. And it can't hurt anything. I wish I'd done it earlier when I had chemos that were working. It doesn't do much by itself or so I've read.
Well the good news for me is no more chemo, just lots of pain meds to keep me as comfortable as possible. If I'm lucky which I am, LOL I could have 6-9 months. That's awesome compared with 3-4 months. My daughter and her family and my son are here and we are having homemade beef stroganoff for dinner with arugula salad with oranges, toasted walnuts, green onion, blue cheese and balsamic vinegar and olive oil and a touch of salt and pepper fabulous wine and laughter. Yup I feel good so nice to not have chemo today and never have to worry about nueprogen shots again. I'm so glad my daughter was with me today when I went to see my onc. Life is good but I'm determined to make it great. I wish I could have you all over for dinner tonight we would have a blast. Thinking of you all especially you Bac, I'm just sick over your news. Love y'all.0 -
Hello dear ladies. I have been away from the boards since December. Feeling guilty for not being around to offer support for those who need it. So glad that everyone else has done such a great job in taking care of each other.
I am saddened to see that so many of my TN sisters are struggling. My sincerest prayers for your strength and comfort. You are a true inspiration to me to live my best life..not just today but EVERYDAY!
I found a great quote to share from Maya Angelou:
The main thing in one's own private world is to try to laugh as much as you cry.
Hugs to everyone.
Navymom
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Well..good news from OBX! Yes..we need good news here!
Laura..your dinner sounds fabulous...
Beccad..well crap..that's all I can say..
We tn's need something now...I'm tired of waiting for a vaccine, chemo..whatever.....
That is what pisses me off about the metformin...why can't we all be on it now? So..it has some se's...so what...that's better than the alternative...dang..I hate this
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Becca and LJ so sorry about your news. I hate cancer!!!!
(((hugs)))
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I totally agree on the Metformin. I called my Onc yesterday and left a message to speak to her about getting a script for Metformin. One of her staff returned my call.....the answer was NO! But I am not giving up....I will see my cardiologist in March and my ob/gyne in May. I plan on bugging each Doc I see until I get it. Geez...it's not like it is controlled substance...just give it to us, already!
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Maybe your primary doc could prescribe it? I asked mine for it and then just told my onc I was taking it0
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LauraJane, What a talent you have for life, and living each moment. Love and blessings to you.
Beccad, shocking news, and I'm so sorry. Keep posting and you will find inspiration here.
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Thanks for all of the support.
TifJ- I think we were chemo "sisters", am I right? I haven't posted this news over there yet.
I will ask the MO about metformin on Thursday when I have that 1st new chemo. I need to do some reading on it and print out whatever to give to her.
I may not post much until this weekend, seeing that I am gonna be kinda busy the next couple of days, but I will try to at least lurk and read all that I can.
Becca
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Beccad - You will feel good again. Sending you lots and lots of positive vibes and heaps of hugs.
Laurajane - You are so positive and brave. At the end of nine months some new treatment may be out. You never know. Have you started your Metformin yet. Keep on smiling.
Tifj - hope you get the job. If its meant to be something will come up for the kids. Keep faith.
OBXK - so glad your bone scan was ok. Wonderful news.
Thinking of you all and hoping tomorrow brings a brighter day. Hugs to you all. Annie
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Beccad: So sorry to hear the cancer's back. There are lots of chemo options out there for TNs, and I hope you land on one, quickly, that kicks it to the the curb. Good luck with the abraxane, and LJ is right ... get on metformin - it really can't hurt.
Laurajane: Recently (from the mom of a young woman who died of brain cancer), I heard the motto: "Life isn't about waiting for the storm to pass; it's about learning to dance in the rain." Immediately I thought of you. I hope you have 6 or 9 or many, many more months or years of dancing... you sure have taught us all a lot about that!
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Beccad-I am so sorry about your news.
OBXK- so glad your scan came back clean.
Sending warm vibes to us all. This waiting to see if everything goes well approach REALLY SUCKS! Somedays I feel like a ticking time bomb.
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Beccad - So sorry, sending you lots of hugs, LuvRVing, just posted a few links about metformin a couple of days back on this thread. Look back or check out her profile I think you'll find the info you need.
LauraJane, I'll say it again, you are such an amazing lady and I have faith that you'll be here much longer than 6-9 months. As CS said, there will be something out there to do in a few months.
Suze, thinking of you and hoping you are enjoying every second with your family.
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Beccad- Yes. we are chemo sisters (Oct. 2010). There is an occasional post there from either Lago or Carrol2. My heart really hurts for you- this crap just isn't fair.
LJ- sounds like I need to be coming to your house for dinner- it sounds fabulous!! Glad you had a good day and don't have to worry about chemo or Neupogen again. We expect to "see" you here long after 9 months!
Cocker- Thanks for the good thoughts on the possible job! I have been a stay at home Mom for almost 10 years and both kids are finally in school full time and I am bored silly and need something to do!
Navy- good to see you!!
((((Suze))).
Bak- How are you doing?
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LauraJane, MBJ, Suze and Beccad:
Laugh as much as you breath and Love as long as you Live!!!
You are all in my thoughts and prayers,
Cyndi 0 -
Ladies,
I have a strange question. I haven't had my period since June of last year, right after my first chemo. My last chemo was 9/27/11 - Is it possible to still have PMS Symptoms yet no period. I swear I just feel like I've got PMS, complete with the large pimple in the center of my nose. I know this issue has been covered before but how long does it take before your body starts to menstrate again?
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Heather,
I look forward to an answer to your question. My periods did not return after my TAC started in 2/11, but I have had an extension of treatment with the additional chemo in the clinical trial. I am older than you, though, and was probably close to menopause although my periods were very regular at age 50. I have had some fibrocystic type feelings in the remaining breast that came and went during the past few months so I wondered if I was having PMS also during these random episodes.
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I have not had a period since Oct. 2010, but I still breakout (big pimples) every month. PMS moodiness? Not sure, but it sure is a good excuse to be bitchy!! My MO says that since I was 45 when chemo started I probably won't get my period back. That's just fine with me, but these dang hot flashes are still a pain in the butt!
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Christina, are you all done with the trial and chemo now?
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Good Morning Ladies....
I too have not had my period since starting chemo, July of 2010, but do experience mood swings from time to time. Not every month like before, more like every other or third month. Don't miss them. Like TifJ said, the hot flashes are a pain in the.....I was 44 when I started so my doc says they will probably not come back. So far so good!
Hope everyone has a wonderful day!
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I would have loved to be in chemopause for good!!! My periods stopped on chemo but came back with a vengance 2 weeks after my mastectomy the 1rst time and had a 2nd visit only 10 days after finishing the 1rst one!!! Before chemo, I was always late for about 5-10 days each time. Now I'm always 1 week in advance. I hate that!
My friend's sister was in chemopause for 2 1/2 years and 6 months ago it came back! She had 2 blood tests that declared her in chemopause and now it's back. She was 43 at the time.
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I got my period back 9 months after chemo ended, however it is unpredictable and not guaranteed to show up every month.
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Ok, this may be a silly question, but if we are in chemopause I guess we still need to use birth control?
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Lynn18- good question.
I am scared to take any type of birth control. I am thinking about having the Essure procedure done, but I would like to have all reconstruction completed first. By the way they look so good better than my old ones.
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Busy board and I have to cut this short.
Laurajane: Of course you are angy and scared - you have every right to be! I am so right there with you with no future medicine, tired, arm has't worked and now the legs don't work so I am home in bed with hospice. They give me maybe 5 months but the worse is not being able to bathe, walk, go to the bathroom. Never been so scared but focus is on the legs. Doctors didn't catch it. Big hugs and know you are in my heart and love is coming to you!!!
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Lynn, Fighter- My Mo told me that even with chemopause, there is a possibility you could get pregnant. I told him my husband had a vasectomy after we were done having kids- he said nevermind then!
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MBJ - I'm so sorry, are you still taking the tamoxifen? Big hugs and prayers to you, Laurajane and Suze!
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Fighter and Tifj, thank you. My Mo also said a while back to use birth control, but I have been in chemopause for almost 2 years and I feel like it's permanent. Fighter, how nice that that they look better than your old ones.
MBJ: (((hugs)))
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I'm a bit afraid to share my good news today with all that you ladies are going through but both my CT and Bone Scan came back clear.
Thinking of you all so much and hoping that you will all get some good news soon. Lots of hugs. Annie
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CS-Never be afraid to share good news. We can use all the good news we can get. Congrats!!!
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CS- Woohoo for clear scans!!!!!!!!!!!0
