Calling all TNs
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Welcome Kim. Glad you found us too. It so great to have each other for support, in good and in bad news. We have to stick together.
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Hi bak,
They did not mention chemo first. Surgery Tuesday. Haven't heard anything on my MRI from last night, so I'm going to assume its fine! (something new I'm trying. Don't worry unless told to! Haha)
Oncologist said nodes feel fine but I'll know for sure after they take them out.0 -
Well crap, Inmate, nothing is worse than waiting over the weekend. They should not allow appointments on Fridays. Did you hear me scream for you? I think I heard you screamong.....Really hoping it is just from rads or something weird not cancer related.
sandik-good for you! I need to adopt that way of thinking!
I am getting a bit crispy from rads, a bit hot, but no skin breakdown. Glad it's the weekend! This is strange, but everyone at rads is so nice I think I will miss them when I am done. One of the rads tech I recognize from 2003! She hasn't been by tech this time so far, but she is so nice, she says she remembers my voice! (that is probably bad, I always think I sound funny!)
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Inmate saying a prayer for you.
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Bak - glad you are getting the weekend off from rads. I saw my PT 3X a week for 2 months and I missed her!
Kim - Welcome! Do you know what chemo drugs you will be having? Not knowing what to expect can be hard. Let us know if you have any questions. Take good care. Karen0 -
Ok..inmate...lets all take a deep breath here..I know you are freaking..we all are..and you KNOW what you see when you see the doc's faces..there's nothing getting around that...dang it...we aren't stupid anymore about this crap...so...just hoping that IF it is something it's contained inside the breast...hoping, hoping, hoping.
Heidi..ummm football season is over...talk to me in a few months about f-ball...it is basketball time......March madnesss...love it.
..raider..talk to me anytime..who do you cheer for? I'm a OSU Buckeye fanatic..raised that way..my son goes there..I like your "Breast Cancer Awareness is every day when you have cancer....so true.
Jody...I think your foot pain is from the taxol...it gets better..really it does.
Maccrimmon..if your dh wants to talk to me about sports..let's have it...but he would probably like to talk to a bud instead of me..lol.
Welcome Sandi to our thread...there is so much information here...read what you can..its alot of information to take in...take it slow...I like BCO because though cancer is terrifying..the moderators on here and the information presented is low key in matter of fact way... its like..ok slow down, take a deep breath..and take in what you need to know...I don't go anywhere but here....
Have a great week end everyone
My gambling streak continues...you guys probably think I'm awful..but I was at this social club today..and 3 of us bought these pull off things and one $450.00 lol..fun stuff
Oh on vacation and Sandi..getting a port is YOUR choice..you don't have too...just saying..
personally..I freaked out about having a port and my onc said I didnt have to have one...almost 3 years later my veins are still very nice..but they roll...when I have blood taken it is from my hand....not trying to persuade you one way or another..but you do have a choice.
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Inmate you know when your kids are unwell and you wish you could take away all their suffering well that is how I feel. I wish I could take away all your fears and worry. Sometimes life sucks real bad. But on the up side when you get your good results next week all your weeding in the garden will have been done. Thinking of you every minute and wishing you peace and free of fear until you get those good results. Annie. xxooxx
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Titan- it's never too late (or early) to root for your team...
Happy Birthday LJ!
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Good morning - thanks for the warm welcome! The chemo I will be taking is Taxotere and Cytoxan followed by radiation. From what I read this is the "common" mix for treatment? I guess for me the scariest thing is this is not a "good" type of cancer to have (like there is a good kind! ) and they are just doing this to see if it works. Not sure if that is correct or not, but since I am triple negative, there is no magic pill after treatment to help prevent reoccurance. I didn't ask for any % or anything, because at the time I didn't want to know. I have read enough to know that it can happen and for now that is all I want to know! I think I am still in a bit of denial, but it is slowly sinking in!
For now I am trying to get my life ready for chemo, hair loss, eating right, exercising etc. Reading all I can about how to deal with the side effects and what to expect.
Have a great day ladies!
Kim
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Thanks, Heidi, I didn't know it was LJ's birthday:
Happy birthday LJ, and I pray that this birthday is just one of many, many more for you - each better than the last.
Inmate: - sending all positive thoughts and good wishes that this is non-cancer related. The weekend waiting sucks big time - I know only too well.
To all the newbies that have come on board, I wish you the easiest of journeys with your treatments and please know that we are all on this trip with you and will remain so.
((((Susan)))) - sending love and prayers......
MBJ: You are always in my thoughts - hope the tamoxifen is doing wonders for you.
And warm hugs to everyone else - may this weekend be good and kind to all of us.
Linda
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Kim..my onc told me after surgery that chemo was to hopefully kill any stray cancer cells still in your body...they won't promise you that it will happen but thats basically what we have going on.
Meformin is looking promising for we tn's and several of us are on it (not me yet.dang)..but hopefully the trial will be successfel and we can ALL be on it...
Sounds like you are preparing yourself mentally and physically for what is ahead... chemo isn't fun but it is doable. Good luck!
Beautiful day here in Ohio..Time for a BBQ tonight..and watching my Buckeyes in Indy.
Laura...I tried so hard to get tickets to the Big Ten Tounament in Indy..I wanted to see you.
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Inmate- do you have xanax or ativan that you can take to help you through this weekend. xxoo
PS. I tried to stay away but have missed the support here. I was on this thread waaaaaay back when... and then bailed during a scare I had. Been in touch with Heidi throughout... Thanks for taking me back!
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Girls I need some advice..I have had a cold/sinus drainage for about a month. With this I have coughing spells, which leads to shortness of breath. Sometimes when I have a coughing spell which is mostly at night. I have a spot in the middle of my back that starts hurting. I am on my 2nd round of antibiotics. Should I ask for more tests? I think I am due for another ct scan in April.
Also I think I may have arthritis in my left knee. It pops and cracks all the time and now it hurts. This has been going on for a while. Should I ask for a bone scan?
I am so scared! I dont know what to do..0 -
KS, If it will relieve your mind, maybe they can move up your CT scan - it is only one month away anyway. You are here in the land of pollen with me and I've already had one sinus drainage mild coughing episode this spring that has gone away. I blame those gorgeous Bradford pear trees the city went crazy planting until they realized many people are allergic to them. My breathing was ok when I was upright but when sleeping all that drainage would accumulate in my lungs and cause coughing. I'm not a medical professional and can't give medical advice, but your knee sounds like my right knee that has bothered me since my late 20s. I used to wear a Cho-pat knee strap when I ran. It lifts the kneecap a bit so it will track correctly. You can order them online or get them from an orthopedic doctor or sometimes chiropractor. They are fantastic! I've been very scared lately, too. Our group has been hit very hard lately.
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Inmate - I am so sorry you have to wait the weekend with this horrible thing looming over your head. I recently had a biopsy myself. While waiting for the results of my biopsy, during another procedure,I met the same nurse who had helped with the MRI guided biopsy the previous day. I asked her what my enhancement breast tissue looked like. She said it is just a very bloody piece of breast tissue, nothing else. Inmate, I am sure we all have been through this once and we know what we feel, what we read on our doctor's faces, but maybe the doctor's were just serious, I don't believe they know anything more than you do. They just had a breast tissue in their hand which is microscopic.
Believe me I may be one of the most "freaking out crazy" woman on this website. As I have written here before, I absolutely cannot handle the suspense, it drives me crazy. So, I go about calling all sorts of nurses and doctors that I know before the results are out. One other doctor told me (and I know this is so absurd) that cancer takes time to grow, up to 5 to 10 years. So you won't have it now. This statement shocked me especially that it came from a highly respected surgeon.
I am just saying that I am sure the doctor's don't know anything more than you do at this point just from the biopsy. Maybe it is just the rads after effects and not actually "cancer cells". Hugs!
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Happy Birthday, Laurajane!!!
Michele, Good to see you.
Onvacation, I'm sorry you have been diagnosed, but this is a fantastic thread for support.
Inmate, thinking of you this weekend.
Gonna cut this short as my alpha kitty keeps biting my fingers because I'm typing and not petting!
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Many Many Happy Returns of the day is wished for you, dear Laurajane!!!! Please write if you get a moment. We miss you here.
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Thanks everyone. Thanks Titan. I know that the port is my choice. I am terrified of needles, so I really do think it's best for me. I just don't want it! haha
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happy birthday Laurajane!0
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Thanks everyone for your words of encouragement. I know that whatever this happens to be at he moment has yet to be identified. The rash is just one of the issues along with pain in my left ribcage that also seems to be somewhat extended as well. The rib issue is what concerned the doctor most (as I recall him saying). My last clean scan was January 13th so I am hoping that it is just delayed reaction from radiation and everything else.
Sorry for the freak out yesterday. I certainly didn't want to dampen anyone's weekend. I will wait and worry but not let those feelings paralyze me. My best friends are coming over tonight and that could not have been better timed. I love it when things work out like that. I will enjoy their love and use their support to give me strength.
Here's to a great weekend. Love to you all!
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Inmate hope you enjoyed your time with your friends and had a peaceful nights sleep. Nobody like good friends to buck you up. Thinking of you today.
Laurajane a very happy birthday to you. Kick up those heels and have a great day and a good wine.
Susan, MBJ wishing you a happy day with lots of family and friends around you.
Annie. xxooxx
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LJ, Hope you are okay. I remember you had a brain scan last Monday and meeting with your onc last week. Post when you feel up to it. Sending love and support!
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LJ is gone. Sherri and I wished her a Happy Birthday yesterday and Sherri checked her FB page this morning. She died on her birthday.
https://www.facebook.com/laurajaneshively
I knew she was bad, and was expecting it any day. I think she fooled a lot of us with her *incredibly* upbeat attitude. She sure was a beautiful woman, inside and out. Talented, compassionate and brave. Now, her children, gardens and artwork are her legacy. RIP sweet LJ.
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Thank you, Heidi, for letting us know. I am so saddened by this, and no, did not expect this so soon. She had such an incredible attitude and zest for life.
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If any of you who knew LJ better than I want to coordinate sending some acknowledgement in the form of flowers or whatever her wishes may have been, please let me know. I would be glad to paypal toward something.
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Hi ladies - (my "real" name is Sherri). I'm very saddened right now. Then I catch myself and think of LJ and how she was. She was so optimistic and upbeat. She would have wanted all of us to see the beauty in each and every day. I will always remember the thing she started in 2010 where we each wrote on this thread about "the best thing that happened to us that day." RIP Laura!
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Sugar--- Oops! Sorry to blow your cover.
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So sad on hearing the loss of LJ. Wishing her peace. And strength for her family. She will be missed here on our TN thread. What an amazing woman.
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Thanks for letting us know. I am devastated, but sugar is correct - LJ would want nothing but positive feelings from each of us. I did not post here often but she made such an impression on me very early on. She was an amazing lady.
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heavy sigh! heavy heart!
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