Calling all TNs
Comments
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Mccrimmon324... enjoy every second
Melissa..hang in there, you are stronger than you know. We all have found that out about ourselves here. You are beautiful no matter how you feel. It is so hard to have these physical changes and still love ourselves but it is our true strength and beauty that is loved.
KSteve ...have a fabulous visit with your daughter
Heidi..please let me know about a group contribution for Laura.
Inmate...thinking of you dear woman. Prayers for the best news.
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OK the comments continue. The best thing that happened to me today was waking to a warm sunny day and watching my cats be so excited by the birds at the feeder. Also driving along the coast to my work was lovely. The water was so calm.
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Painting, just wondering how your dr visit went with asking for the metformin?
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mccrimmon324..my onc would not prescribe, Dana Farber will put me inthe trial but wants me to switch from MGH to them and I am happy with MGH. Thank you for the info. I have a packet of notes that I am taking to my PCP tomorrow. Wish me luck...
Also anyone have shooting pains intheir breast where surgery was done. I feel I get these randomly and when I stretch in yoga it feels as though my muscles are not normal and they certainly hurt. Maybe they are repairing themselves.
Getting so tired of this wig...April Fools I think I go wiht my super short hair.
Warm and beautiful here. Thanks McCrimmon324 for asking. Will let you know.
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Melissa....So sorry that you have to be here with us and that your local support seems to be failing you. The good news is you have an army of support right here. We may not be able to sit next to you in the infusion room but close your eyes and you will feel our thoughts and prayers whenever you need them as we will never waiver in our support. I too was scared of the physical changes this process brings, but found myself pleasantly surprised that one of those happened to be more inner strength. Cancer is a game changer in so many ways. There is an old rugby saying "that which does not kill you makes you stronger". It sounds wrong, but treatment made me stronger. I found my true beauty shone when I lost my hair. I wore my bald "out and proud" and felt that it made me walk tall. These days I say what I want and mean what I say. No more holding my tongue. I'm not mean, just honest, with my friends and family and myself. In the past I would not have been that person. It is all very liberating for me as I think it will be for you.
We are with you today and every day. Take and activity with you to treatment. It makes the time go by faster. Coloring books seemed to work best for me. I mean, who doesn't like to color?
Sending all my love!
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Hello to any of you reading this note. I am not Suze35, but one of her closest friends. She asked me months ago if, when the time came, I would be willing to let her many friends on line know what happened. Sadly that day has arrived. Susan passed away at home this morning - as she had requested - with her husband and mother beside her. Her three beautiful children were away at school, which was probably for the best. She was only 42 yrs old and four days shy of the 18 mth anniversary of her discovery of the cancer.
She wanted you all to know what happened to her as these boards and your notes gave her so much support and strength as she battled against this disease. She told me to tell you that she will miss you all and that you must not give up hope. For her, this cancer was like a runaway train - nothing was going to stop it. But that may not be the case for many of you reading this, and I know she wouldn't want any of you to feel disheartened. Even with such an aggressive cancer, Susan felt that the new discoveries might have been able to help her - if only she had developed the disease a little bit later.
So don't give up the fight. We will, as her friends and family, continue her legacy by helping to care for her three young children. If you would like to leave a comment or remembrance of Susan, she requested that I save and print them for her children to read when they get older.
I am sorry to have such sad news to pass on, but pray that for many of you there will be a happier outcome.
- Kim Shapiro0 -
NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!
I am broken..........
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OMG!!!!! I don't think I can take anymore, the tears just won't stop now.......
So incredibly sad :-( Two beautiful women taken way too soon, my heart breaks for their families, may they find peace in knowing the depths of their mothers love & strength.0 -
wow. speechless.
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OmGosh!!!! How many more????? I am so saddened!
My tears wont quit falling for these beautiful woman that have passed! I hate cancer!!!!!!!!!!!
Prayers for their families.
I am so heartbroken.
Has anyone heard from mbg?
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The TNBC family has lost an amazing and inspirational woman. When I was first diagnosed and found this board, I remember reading Susan's posts about the trips she was taking and the special moments she spent with her children and DH. Her strength and courage gave me hope as I started my journey to surviving breast cancer. I pray that her children will know how much she loved them. My condolences to her family. May your many memories bring you comfort during this difficult time.
I HATE cancer !!!
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Okay the tears are flowing and now I have my co-workers crying. I think I am leaving for today to be with the people that matter the most to me. I am so upset ladies. I can't get myself together.
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Oh no no no... Not LauraJane and Suze.
My condolences to their friends and family. I was tearing up when I read about the deck Laura Jane's friend was going to build her... and she'll never get to see it. And Suze's kids... Oh, so sad.
WHEN are they going to find something to help TNBC?
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I can't find the words to express my sadness about LauraJane and Suze. If I should ever find myself facing the worst, I only hope I can do so with half the grace these two fine women displayed. May they rest in peace.
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Kim, thank you for posting the news about Suze and carrying out her wishes, what a dear friend you are. I am so very sorry for your loss. As you probably know, Suze was much loved on these boards. Even when she was suffering through scans and treatments and horrible pain and discomfort, she always took time to ask after other ladies here and lift their spirits. She was very knowledgeable about this disease we share and researched carefully, then freely and generously dispensed information and wisdom to benefit others. Despite the aggressiveness of her cancer, she lived life to the fullest, and was so happy to be able to go on the recent cruise with her family. She adored her children, that was so evident in her posts. They were the center of her life, and it's devastating that they must carry on without their bright, vibrant mum at their side, but somehow I know she'll live on in their hearts and minds and souls. Dearest Suze, we will all miss you!
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Oh dear, Lord. I am so sorry for the loss of Susan. I can't stand it. So many, many tears.......
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Kim, (for Suze)
Thank you so much for letting us know. I am so very sorry to hear the news, my thoughts and prayers are with you and her family. I truly admired Susan, she was going thru radiation when I was first diagnosed, I can't tell you how much her words of support and her knowledge meant to me. She was such an amazing & kind hearted woman, always one of the first ladies to answer my questions or calm my nerves when anxiety would hit. She would often post about her family and how much they meant to her. Just as Lisa stated, I pray that her children will know how much she loved and cherished them.
Please know that Susan will always have a place in my heart.
Heather
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My heart is saddened by the news of both of our sisters. Suze and Laurajane.. rest in peace knowing you are in a better place and have helped so many with your kind words and life journey stories..
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How many of you ladies have FB's ??
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I am so sad right now.My heart is broken.......... My deepest sympathy to her DH, her 3 kids, her mother, family and friends. I will always remember Susan for her strenght, her grace thru all this and her compassion. She was truly a beautiful lady.I will miss her.
Isabelle
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I have requested that both LJ and Suze be added to the Angel's List. I wasn't going to say this but, with this added loss, I feel it is appropriate.
Today, as I was reading out on my lovely glassed in and wood-burning stove porch, I suddenly felt this "presence". It was like a wave of light and a smile....weird, I know. Now, I should add, that the book I am reading has a small element of a "ghost" in it, so maybe it is/was the power of suggestion.
But, as I allowed this odd sensation to flow over me I thought of LJ. LJ, I thought, are you there? Or, was it Suze, as she "crossed over" ? Am I delusional? I don't know.
You decide.
The loss of these two courageous and inspirational women is almost unbearable.
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LauraJane and Suze were our teachers, in how to live with love and joy, and how to face death with grace. I learned from each of them, in every word they wrote.
For Suze's children: Your mother knew the importance of living each day with love. Here is a quote from her on September 19th: "I plan on having some incredible times with my family while I can, and live every moment."
And on November 26th: " Hug often, don't stress the little things, make more memories rather than gather more stuff."
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Heidi,
I'll start out by saying that I am NOT a religious person, I do however, have my beliefs about God and my faith.
I had a terrible time when my mother passed a few years ago. Absolutely grief stricken. I remember very clearly one night days after she passed as I was starting dinner, (hubby wasn't home from work yet, so I was completely alone) someone tapped me on the shoulder. I felt the weight of fingers tapping and my hair tugged slightly like it had been caught under the tapping finger - I just knew at that moment my mom was standing with me.
I think about that alot on days when I really miss her.
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mitymuffin- there's a thread started by Suze's friend over on the stage IV forum... her fried is going to print out the comments for her kids to read when they are older. You might want to post those wonderful quotes on that thread.
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Hi everyone,
I wanted to introduce myself here on the TN thread. I'm so sorry to hear of the recent passing of these members. I've read posts from them recently and wish I had gotten a chance to know them.
My name is Betty. I'm 35 (34 at diagnosis) and live in Central Florida. I had excisional biopsy, re-excision of the margins, SNB with 3 nodes (all negative), and T/Cx4. My chemo ran from 6/23-8/25 of last year. I've had the horrible side effect of nearly constant bone pain since chemo started. I hate that others have also had this SE, but I'm relieved to find from this forum that I'm not alone in my experiences.
I look forward to getting to know you all.
Warm Regards,
Betty
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The passing of two wonderful women....I dont know how much more I can take of this awful disease - I am tired of living in fear! I cried today as I read the posts.
One good thing - my chocolate lab was licking the tears from my face
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Oh this is just so sad, so very, very sad. The loss of these two magnificent women at the same time, is truly too much to bear. How my heart aches for each of them and at all they lost to this disease, as they both battled so valiently, with so much grace and dignity, to remain with their families and to win this war.
I also find it somewhat consoling, and even fitting, in that they are both on their journey's at the same time. I remember how much fun they had in meeting and sharing NYC together................ Two very special ladies, with very special qualities, on yet another very special journey.
Linda
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Hi Betty,
Sorry you have to be here, looks like we are not too far away from each other. I'm down in SW florida.
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Hi Heather,
Thank you for the welcome. Yes, we are pretty close. My sister lives in Sarasota. I go to Moffitt in Tampa for treatment.
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Small World, I work in Sarasota. I looked into Moffit but found Florida Cancer Center very close to home.
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