Calling all TNs
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INMATE--Happiness happiness happiness!!!!
Titan--3 YRS woot woot!!
Finally some good news to us here.
I am in that what if thing again. My head has had a recurring pain on the left side for a few weeks now. My daughter keeps reminding me that I lived with headaches almost everyday before I was diagnosed. Oddly I had not a single one during chemo. I only have 2 rads left (partying on Friday with friends). I have considered calling my MO who will probably schedule an mri or catscan but I do see her next month anyway. Not sure if I want to persue it or not yet.
Best thing that happend to me today was having a spontaneous lunch with my Mama and DD at Red Lobster. I love you crab alfredo and cheese biscuits. YUMMM
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OOOH- cheese biscuits!!
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Inmate- yippee no spread!
Titan- 3 years, such great news!
Babs- yay for clear US!
Bak- sad you had a rough day! Happy about your new peach tree.
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Maggie:
Allergies?????? They can give you a nasty headache as well. I'm in the SE too and all the reports I have read so far is that this is supposed to be a horrid year for allergies.
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Nothing better than Red Lobster Cheese biscuits...did you put some in your purse and take them home...uh...I've been known to do that before...lol.
so glad for the good news on this board...we know that Suze and LJ would be so happy for us..you guys know that right? I think they would be so pissed off if we grieved for them too long...the best thing we can do for them is to LIVE like them....so..let's do it...!
I bet patsfan is a Patriot fan..there have to be a couple around...dang...you guys better get together because the BROWNS are going to win the Super Bowl in 2013...100 to 1 chance in Vegas.....lol
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Bak..11 more to go...that's nothing..you can handle it..I think we all can handle about anything anymore...yuk on the scans though...I've never had any...my onc isn't scan happy...I honestly don't think I could handle them...best of luck to YOU!
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Titan- Maybe the Browns and the Kansas City Chiefs will be in the 2013 Super Bowl. Maybe 1,000,000 to 1 in Vegas!! LOL!!
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From LJ's daughter Sarah:
well ill try to make this short and to the point. she loved all of you gals from the TNBC blog site. you were often times the only folks she could feel like who really understood what she was going thru. i know you all have probly heard from her most of the details up until a couple weeks ago. about 3 1/2 weeks ago, her doc said 6-9 months, then two weeks ago she said more like 6- 8 weeks, we were devastated. it turned out she only had a few days at the time of that statement. she became extremely short of breath starting around sunday march 4th. by tuesday it was so bad they admitted her and put her on 6 liters of oxygen, what a shock! just the saturday before that we were hanging out, watching " hugo" the movie, and playing with my son, eating popcorn, telling stories, having a great time..... it all just happened so fast. they figured the cancer spread" like a spider web" in her lungs, really fast, and also said she had had a small stroke without knowing it, probly sometime around the first weekend in march. apparently the cancer spread into her spine too... well after a bunch of procedures, pokes, and my mom getting very upset with the medical personel at the hospital( not her doc, of course) we finally got it thru their heads that we needed to go home asap, bc it really wasnt looking good, and we wanted to be togehter, in peace, at home.... did she tell you all about the deck on the back of her house that was built for a her last week by a friend? he finished it on wedsday, the night we got home, her by ambulance ( bc of the oxygen, etc..) the deck was finished, she insited on going out there and " having a cigarette on her new deck , damnit" :)well, it was scary. she sat down on the stoop and couldnt get up, after that i hated to say it but , no more smokes mom... she could barely breathe off her oxygen....... thursday, hospice started and her local girlfriends came over, we opened a bottle of wine, my mom in her chair and them all around, giving her love and support, while she huffed her ox... and mostly sleeping, not talking too much, she was getting so anxietal, too, when she would wake she would apologize to all of us for not being much fun( that was my mom!)
friday was the last time she spoke to me, just a few words, i took a picture of some outdoor furniture that her half sisiter sent as a bday present... brought it in and showed her, it was so hard for me and sad, and just crazy insane at how fast this happened, yall....
friday she slept all day, we called emts to come carry her into the living room from her bedroom, which is tiny, and into a hospital bed. we couldnt do it ourselves ( me and the nurse) they started her morphine into her port, bc we could tell she was still in a lot of pain, it took the pain away wonderfully, no more furrowed brow.....she was sleeping all day, her nurse told us she was in " transition" no food no water, we tried but she just wouldnt take it.... i sponged tiny bits of water into her mouth to help with dryness, but eventually she just would close her mouth tight and i couldnt get it in there... a bunch of people were here, just talking to her, listening to music, telling great stories about her, wine drinking, and eating food.... it was in a way, like a two day long birthday party....
saturday march 10 was moms bday. i enjoyed waking early and it was just me and her. a beautiful spring day here. i got out her drum and did some drumming to her, and her tibetan singing bowl that she loved! and did some chiming, and i love to sing so i sang her a few songs, and just told her how much i loved her, and how i wouldnt ever leave her side.... as the day progressed her breathing got worse and worse, you could tell it was a struggle by then... i cut her some daffodils. her bday party happened her at her house....
a bunch of her friends were here again, and more of the same as the night before... we all knew, well, i especially knew that she could hear us... i played her fave cd's, etc...
a little after 9:30 pm, i was feeling like my mom was going to die, and didnt want to in front of everyone, i told a friend that, and just as the words came out of my mouth, her other friend came and got me, and said " its time" i ran in, and it was over within a minute, it was the saddest thing i have ever experienced in my whole life. i love my mom so much, i miss her so much... she was litteraly my best friend, we were so close, we told eachother almost everything, and really she is the best mom i couldve ever asked for. i am so sad about my son thuja, he is 2 1/2 years old, and hi and my mom were best buddies. i have been telling him that grandma flies with the stars now, and that she always loves him.... etc... but its hard. my husband, and my son and i were here at her death time.... and i just cant leave her house now. i went home yesterday and i had lost all inspriation to be there, right now, at least for the time being, i jsut have to be surrounded with her beautiful gardens, and plants, and all her things. well, this has been extremely detailed, and i really hope it wasnt " too much"" for anybody, a rabbit appeared in the yard the other night, and no dogs chased. i know it was my mom, it made me feel a little better. she was the rabbit in chinese astrology..... also her time of death and date of death all add up in numerology to #9 which isthe number that symbolizes completeion.... i feel glad that my mom is not in any pain anymore, but there is such a huge void. she has been such a wonderful inspiration to me, she was so strong..... well i could go on and on and on.... but thank you for reading... she told me it was very important to her that i get on her blog site and post to all of you... i lost her login info, so im glad i met heidi here on FB so she can forward this to you all. my email is rootcycle@yahoo.com if you wanna write. peace to you, love sarah0 -
Inmate, that's great news!Titan, a big congratulations on hitting 3 years!0
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Patsfan, There is something about the pre-test, and pre-milestone, anxiety that brings out strange pains. I bet a week from now the pain in your side will be completely gone, but let us know what the Doc says.
My Onc doesn't do scans unless there have been ongoing symptoms for some weeks.
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Oh Sarah...oh Sarah...what a wonderful mom you HAVE!...We know how much she loved Thuja....she loved everyone...all of us here felt her love....she touched everyone of us here...and will continue to do so...
Thank you for sharing your mom with us...I totally get you about the rabbit...some things just can't be explained....
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So glad to hear all the good news.
Sarah thank you for sharing your story. Your mom was a special lady. And she will be missed.
Best thing that happened to me today was taking my kids and nephew, and nieces to the park and just watching their innocence.
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Inmate - no spread is such terrific news....what a relief!
Sarah, thanks for sharing your mother's story with us. The rabbit in the garden makes so much sense....there really is something to it. She was larger than life and will aways be a shining star to those who were blessed to have known her.
The best thing that happened to me today actually started yesterday (if that makes any sense...lol) when my daughter, her BFF and her BFF's mother (my friend) went to a concert. We had so much fun and it was a really late night (...and an early morning today getting up for work). Best thing today was taking my DD and her BFF out for dinner. It's spring break this week so my teacher husband and daughter are having a lot of fun while I'm at work.
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Sarah - thank you for making us a part of the story. We are all holding you in our arms.
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Sarah: Thank you so much for taking the time to fill us in. It meant a lot to me. I lost my mother suddenly (not cancer related), almost 6 years ago. I will email you hopefully soon, because what I want to share is longer than I have time for here. I felt especially close to Laurajane, and I never understood it. Going into my own surgery in 2010, she was heavy on my heart and I prayed for her. Coming out of anesthesia, she was the very first thing on my mind. Long story short, when I learned she had passed away March 10th, it partially made sense to me. Sugar is right, the rabbit incident is not your imagination. You will find more things happen... just look around. It may surprise you and it may even scare you a little. But don't be afraid because your mom is trying to let you know she is still there watching you. With me, many things happened.. sorta like your rabbit. It was so obvious that the things happening shouldn't be, and sometimes I saw literal billboards with messages on them that she had definitely had a hand in. Anyway, the number 10 is a number that has meaning to me. There've been a lot of things happen when "10" is involved. Very quickly, and just a few for instances; Last trip my mom took, the only pictures she had taken she was standing beneath the number 510; She died May 10th, at 4:10, hit by a petroleum truck; June 10th, we had another family member hit by a coal truck; and July 10th we had yet another member pass away from something crazy; often, the 10th results in me seeing, finding, or hearing from my mom; the entire 2010 year was bad for me - sick all year, bc, and more. I never had the pleasure of meeting your mom in person, but the connection was there. I thought it was my imagination until I learned she passed on the 10th, but now I know it wasn't. Have faith, dear friend... your mom is trying her best to help you through this. My own mother, a writer, wrote a book prior to her untimely death. In the book, she compared her body to a flowerpot. She said that one day, the flowers would be transplanted and have no need for the broken pot. Your mom, the beautiful flower that touched each of our lives and made everything more beautiful, had no more need of that broken pot. The one she has now is SO MUCH BETTER! My mother's name was Sarah.
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Sarah, Thank you so much for writing. Your mom was a beautiful person, inside and out - so positive and strong. Her personality shone through her writings on this board, and it was always apparent how much she loved her family. When my mom passed away, I remember feeling very strongly her presence back at her house on the porch where she loved to sit and look out at the city lights. Take good care, and I'm so sorry for the loss of your wonderful mother.
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Sarah, Thanks so much for sharing your mother with us, we are ever so grateful to her. We seem we already know you as we could feel her love for her children through her posts. If someone can have such a huge impact on many people just by her posts, I can just imagine what impact she must have had to her family and people she met in person. The world has lost such a wonderful soul but I guess God needed her more. We all have to go one day, that is a fact of life and we just have to accept it. I hope you will continue to get inspirations and be able to get past these most saddest days of your life onto happier days when her memories will give you strength.
cc4npg - I am also very sorry for the loss of your mother. You are very spiritually uplifted in order to be able to make connections. I absolutely believe that death of the body is not the end. Amazing story! Thanks.
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Inmate - brilliant news. You can relax now. Yes a little bit more treatment but it hasn't spread woo hoo. A wonderful ending to my day with that news.
Titan - congratulations on your 3 years. You go girl.
Lovelyface - hope you get some wonderful news as well. Wishing you some positive answers soon.
Bak94 - So sorry you are having all this trouble. Get that port in and give your small veins (I have the same) a rest. Positive thoughts and hugs coming your way.
Hi and welcome to Youngmommy and Patsfan. So sorry you have to be on here but you will find nothing but love and helpful advice from these ladies.
OBXK - the picture in my mind of you and your dog made me laugh out loud. Before I got my present Maltese I had a beautiful Bichon, Sophie. She was the only dog I know that hated walks and a bath. She used to sit and literally shake so much that in the end we used to spell out (shall we give her a bath) and I am sure she learnt to spell because she still shook. If we took her for a walk she would lay down in terror outside the gate and I would end up carrying her. On the way back home she would run like hell once she saw our gate to get inside. She had never been frightened in anyway so I don't know why she was like it. Her baths were always lovely warm water never cold. But by god she was beautiful and I loved her like mad.
Susan - I could just picture your story on your mun's last days. I felt like I was there. I could just picture her having a last puff on her new deck. I would be like that. Just about to expire and I'd say gimme a fag. Laurajane was wonderful to me and so very helpful and free with her advice and love. I hope she is enjoying a ciggi on Heaven's deck.
Annie
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HeidiToo- HUGE Patriots Fan. You too?
Thank you all for being so welcoming and for the feedback. I have 3 tests this afternoon and going to Boston tomorrow for the weekend to watch UMaine play in the Hockey East Championship. Hopefully I can have a relaxing weekend without worrying. My mother just told me a story about my onc. My mother's bff died 2 years ago from colon cancer. My onc was the same onc she had. The bff's iron was very low and onc was going to administer iron via IV. Bff questioned her and asked to investigate why iron was low. Turns out, colon was bleeding through, and was the beginning of the end. Needless to say, my mom is happy with my choice to seek a second opinion.
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Sorry..Patriots fans...2013 superbowl will be the Browns vs. Kansas City...
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Sarah: Tears were rolling down my cheeks as I read your post. I am so sorry for your loss. LJ often spoke of you and your son - I think he gave her her brightest moments as she faced this awful disease.
Thank you for sharing LJ's last days with us. She was a beautiful woman, inside and out, and as sudden as it came, I'm glad she had a beautiful death, surrounded by people she loved, music, stories, laughter, daffodils.
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thank you Sarah. many {{{hugs}}} for you.
yay to Titan and Inmate! woot woot!
hope everyone has a great day!!
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Sorry Titan, but Browns & Kansas City don't have this:
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HaHa! That says it all!
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Tsk tsk Titan... you appear to be outnumbered...
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Two properly turned out Boston Terriers (named Brady & Gisele, of course). Note harness and tags.... we hadn't bought their neckerchiefs yet...
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In the Midwest our men don't use hair spray
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Maybe they'd play better if they used hair spray--just saying.
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Sounds like sour grapes to me.... or hair envy.... (give up Titan, you're not going to win this. I've got back-up now)....
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Love the pics Heidi. So cute!
Nothing like some good team trash talking to take my mind off things. On my way for my tests. I don't really expect to hear anything until monday. I'll post when I know anything.
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