Calling all TNs
Comments
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Karen...good stuff with the one year out...I am 3 years out now but to tell you the truth I know that I'm not in the clear...just have to go day by day...
On the Stage 4 thread someone said that Mary was slipped through a medical crack...even being TN..Mary should not have died so soon... wow....this just sucks...
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I am so sad. To lose all 3 so close together. I thought I was holding it together until I found out about MBJ also. LJ was my favorite, MBJ so full of information and she researched everything - she always gave great advice. I didn't know Suze much but I always sympathized with her having youg children. I find it the hardest when those left behind have little ones. I read MBJ's husbands blog - so loving. Why!
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A friend of mine who had ovarian cancer, who went to the same oncologist as I - we even had coinciding chemo at times and we and our hubbies would hang in the chemo room and chat for hours during infusions... she died this morning. And now this news of MBJ, days after LJ and Suze - I am just numb. Cancer is claiming lives left and right all around me.
My sympathies to MBJ's sweet husband and her family.
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minxie, so sorry for your additional loss, you have a lot to handle right now.
Titan - Oh No! I am so sorry to hear about Mary slipping through the medical cracks. How awful! I never ever imagined in my wildest dreams that MBJ would get a recurrence. She was a regular on these boards when I first joined. Remember that time, when she felt that nobody was responding to her? And then she told me about the iodine therapy? She was taking all the right supplements. She PM'd me a website regarding the iodine therapy. She also talked on the subject of people having low body temperatures. She was researching and learning and sharing with us.
ccn4pg - Yes, your words are very consoling, thank you.
Mary and her husband were such a handsome couple. I am so saddened for her nice husband that she left behind.
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Oh Minxie.....I m so sorry!0
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"I would rather be ashes than dust! I would rather that my spark should burn out in a brilliant blaze than it should be stifled by dry rot. I would rather be a superb meteor, every atom of me in magnificent glow, than a sleepy and permanent planet. The proper function of man is to live, not to exist. I shall not waste my days in trying to prolong them. I shall use my time."
~ Jack London0 -
Well I dont have mets in my shoulder..good news.... dont have frozen choulder either. Turns out I have some arthrosis in the shoulder and 3 vertabrae in my neck are pretty won down. Geez gettting old aint no fun. Been doing therapy .. hoping it'll bring some relief.. doc didnt want to give me any meds or shots since my body is still contaminated with the chemo. Anyways ladies its been almost 2 years now since my dx.... may is 2.... how time flys.
Hope all of you are doing well... have a great weekend and stay healthy !
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OMG..Im so shocked... I havent been on here in so long and the last time I was here I had missed Posts from MBJ. I just scrolled up and read her husband blog aftzer seeing what all of you had posted... I just couldnt beleive it so I had to read for myself. Im so sad.... she's the one that welcomed me to this topic in 2010 ( when i was diagnosed ) and has kept me inspired the entire time.. she was was helpful in times when I was very down. She is at peace now and God has a new Angel on his team. My thoughts are with her Husband and her family.....
she will will be sadly missed here !!! rest in peace Mary.... and thank you for being there for me
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Heidi, I'm so glad to hear from LauraJane's daughter Sarah. I had hoped she died at home, and to die surrounded by family and friends, on her birthday, seems consistent with her joy and love of life.0
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OMG!! I just can't believe MBJ now. I'm so sick over this. I really just don't know what to say, l'm just numb. So sorry for her hubby and family. Both she and Suze were some of the first ladies to offer support and calm me down. I'm just devasted.
Inmate so happy to hear only RADS for you.
Gotta get up and move, leaving for vacation today and my thoughts are just consumed with LJ, Suze & MBJ.
Heidi, I'm interested in donating for the bench as well but will not have access to the boards all the time, would you PM me the info if you get it, just in case I miss it trying to "catch up"
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Stunned! Oh so sad.
Ladies, particularly our new members, remember that MBJ had ILC, lobular cancer, not IDC as most of us have. Perhaps the speed of her decline has something to do with that. We know that Suze and LauraJane were Stage 4 for a much longer period of time than Mary.
This is a time of mourning for us.
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Excellent post, Mity, for all those just beginning their journeys.
The recent deaths of 3 of our wonderful sisters has certainly been out the the norm, and the fact that they all came within days of each other has just taken the wind out of all of our sails. Please do not be discouraged by what you have walked into. This disease CAN be kicked to the curb, and you CAN go on to live your life fully - and you will! We are all here for you in any way we can help and give support.
Heidi: I too am interested in knowing where and how to donate towards the bench - when you get the info. A million thanks for taking this on for us and finding all this info out.
Linda
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Mity and Linda, I have been very down this week over the heart breaking news of these three wonderful ladies. Wondering if I should visit this site anymore. Thank you for your positive message this morning, it is what I needed.
Cyndi
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I really have no words except F*CK, F*CK, F*CK, F*CK!!!!!!
RIP Mary xoxoxo
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Look around ladies... Spring is here. Trees are budding. Babies are being born. Life is coming back to the earth. Birds are chirping. We gotta remember these things and concentrate on them or we will spiral down the road of depression. These women we lost would NOT want us to slip down that path. They would want us to get outside and enjoy the day. So do it!
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Hello everybody
I am posting to say that I have just found out that MBJ had died and to express my sadness at her death. When I first discovered this forum MBJ answered some of my posts and she was very informed. This has been a terrible week but we have to keep looking forward.Thinking of you all from over here in the UK.
Best wishes
Sylvia0 -
When I was telling my husband about our three horrible losses last night, I told him that I thought I might take a break from this website. Right or wrong, this kind of news naturally makes us all question our own mortality. You know what he said? He told me that I should take a short break if that was what I wanted to do, but then I needed to come back on so that others who are being diagnosed daily can hear from those of us that have finished active treatment. He said that those ladies were the ones that always made me feel better, so it was my duty to pay it forward in their honor. I really didn't realize how much he really "get's it" until he said that!
Hugs to all,
Kathy
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Wow Kathy - what an insightful husband you have.
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Minxie- So sorry on the loss of your friend.
Monisch- Yay on no mets!
Inmate- So glad it is just rads for you.
I am so angry and sad right now. All I can say is WHY?? Why do we have to lose our friends? Why do we have to live in fear? Why isn't there a cure yet? 3 times this week my son has caught me at the computer with tears running down my face- why do I have to explain to him why?
My best friend and I are taking the kids to the movies today- maybe a little movie magic escape is what I need.
Thinking of our 3 angels in particular today and everyday.
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We don't "HAVE" to live in fear. We can make a choice every day NOT to, and some days will be harder than others. I am a firm believer in taking a break from the boards. But, as Kathy's husband pointed out above, it is SO vital that those of us who are doing well post from time to time to help others know that NO, this is NOT a death sentence. YES, we are all individuals with no expiration date. And YES, there is LIFE after cancer treatment.
"Some day" there will come a time in my life where I will be transformed. I will have to leave those I love behind. But I make a choice every day to wake up, and enjoy the day I have been given. Each day is a gift. None of us are ever promised the next day, but we have to choose not to dwell on death or the possibility that something bad is going to happen. Laurajane lived this truth. All three of our friends lived and enjoyed their days, posting to uplift us and help those they could.If anyone missed the post from BernieEllen, go back to page 429, toward the bottom and read the quote she posted. It is absolutely true and is something to think about as we remember our friends.
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Hello ladies!
Good thing for the day:
Sitting on the river dock, watching an Osprey, trying to get a fish from the pound fishing net ( it's a net system, that fish swim into, but can't swim out of.) It was amazing to watch this huge bird, hover in place.
I hope everyone has the best weekend they can have. busy weekend for the marching band kids on the OBX. Big St. Patrick's Day parade.0 -
karen....congrats! one year is great!
minxie....i'm so sorry you have another loss so close to home.
berniellen....very beautiful poem.
monisch.....yeah for arthritis. oh the things that make us happy, like just old age.
i don't have a best thing yet, but i sure as heck am going to make a few today!
have a wonderful day ladies......love to you all!
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heidi.......i too want to contribute to the bench. thank you for arranging this wonderful tribute!0
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I read the posts everyday and but rarely comment. The loss of these 3 women is horrible. Not just for their friends and family but for all other cancer victims....I now question my mortality as I am just one year out. I have a question for all of you. Would anyone be interested in taking a small "survey" as to their life style pre cancer, say 5 years before dx? Finding a cause (especially for TNBC) more important than the toxic chemo, and burning radiation to supposedly cure it.. If interested, please respond and I will put a small survey together that can be copied and pasted. Some questions will include life style choices such as Smoker, Drinker, Diet, Exerciseand Stress 5 years BEFORE DX. My BS said my tumor, which literally appeared overnight, had probably been growing for 5 years. I was a drinker and smoker, but had low stress levels and good diet and exercise. Looking forward to hearing if anyone is interested. We need to stop this horrible disease that ruins not just the victim's life, but also their families and friends lives.
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I don't post much but I'm here reading the comments.
So sorry for the Loss of another beautiful lady.
I am a bundle of nerves today. It saddens me to read of these deaths but gladdens me to read
Those that are still here and fighting.
I am not a very confident person and feel as I never know the right things to say so please forgive me if I offend anyone but am praying for peace for you all and a special prayer for the family and friends of these three beautiful ladies that have gone on.
Hug to all. Marsha0 -
atteamnana.....the wonderful thing about this board is you can say what you feel without worrying that you may offend someone. we are all scared and at times frozen by that fear. by posing on this board i find it allows me to shake the fear and anxiety. i take great comfort in knowing that these ladies "get" what i'm saying. i am able to live because of the love and support i receive by being an active part of this group. i encourage you to read and post here. this is a wonderful refuge from the storm of cancer.
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Just logged on and can barely believe the news about MBJ. I am so sorry for her husband, they obviously loved each other very much.
Yes, all this news scares the shit out of me too, MBJ was diagnosed at the same time as me...it just seems unreal that she could be gone so fast.
Okay, now, deep breath... Best thing today, sun is shining, birds are out, it's warm... and there's still skiing!
Wishing everyone well.
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scares the shit out of me.... I have been having shoulder issues and pain in my implant too. I can't stop crying and then I feel guilty and selfish that I am worried about *me* and not just thankful for being alive.
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Remember these questions are about your lifestyle PRE CANCER DX-At least 5 years previous. JUST COPY AND PASTE ONTO BLOG REPLY. MAYBE THE RESULTS WILL BE INTERESTING ENOUGH FOR RESEARCHERS TO FIND OUT WHY THERE IS SUCH A THING AS TRIPLE NEGATIVE.
1) Age of DX -
2) How was tumor discovered? IE: Self exam - Doctor exam - Mammogram -Other
3) Alcohol Consumption per week and type of alcohol
4) Smoking Consumption per day and type of tobacco i.e. cigs, marijuana, chew
5) Child Bearing and at what age
6) Did you nurse your baby
7) Stress levels either from family or work - High, Moderate, Low or combination at different times
8) Exercise- Hours per day and type - Cardio, low impact, Yoga, Other
9) Any other cancers dx'd before BC-skin melanomas or precancerous lesions
10) Rx drugs taken and what kind and for how long?
11) Diet - Normal, Healthy (Organic), Vegan or Fast Food
Any other comments regarding your lifestyle BEFORE DX would be appreciated...lets see if there are any common denominators.
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