Calling all TNs
Comments
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Lovelyface, sorry about the link! This is the study - Efficacy and Safety Study of NeuVax(TM) Vaccine to Prevent Breast Cancer Recurrence (PRESENT)
Here, let me try again- http://clinicaltrials.gov/show/NCT01479244
It is a bit different of a link.
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Heather - we made the huge move last year from Missouri to New Hampshire, to be near our family. All I can say is it's, by far, the best move we've ever made. Last night we went to a Mexican restaurant - met my daughter and the grandkids there. The restaurant has a Mariachi band on Tuesdays and we had so much fun. The kids got up and became the "mini" Mariachi band and accompanied the musicians on several songs, even going across the restaurant to sing Happy Birthday to someone. They were so darn cute!!! There is NOTHING that compares to spending time with my children and grandchildren. No matter how hard or scary it may seem right at the moment, you will be so, so glad you moved.
Good luck with your checkup today! I'm sure it will be all good news!
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Thank you, for your replies
When my Mom had cervical cancer, she had surgery the next week. The process dose not take as long in Germany, I just moved to the states in January. 0 -
Good morning all! Just popping in to say hello. I will be on here less often, as my time to post is so limited due to work and family needs.
My former mother in law - who I will always claim as my mother in law because she is so wonderful, has been diagnosed with advanced lung cancer. I'm trying to be as helpful as I can,going to appointments with her. My daughter will be the main one who will deal with the major decisions, etc. and she has never had children or dealt with this kind of thing. It is very hard on her already, particularly right on the heels of my diagnosis/treatment.
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Christina, I'm so sorry to hear about your MIL - I'll keep her in my prayers.
LuvRVing, Thanks, I am very excited, just extremely worried about getting good health insurance. Our main goal is to get me up there and find a job with good benefits while hubby continues to work down here to keep our current insurance. I also need to call them or ask on this thread. Will I be able to find drs up there to treat me as out of network or will I have to keep coming down here for my port flush & check ups? I plan on coming alot considering I just can't leave my grandfather like that, so I want to come down about 1 a month or so for just over the weekend. Maybe schedule a later appt on a Friday afternoon when needed so I don't miss too much work from my new job, if / when I get one.
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Look closely....
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That's too cute Heidi.
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Heather - first suggestion, get the port removed. There's no real reason to keep it, other than some MO's preference. I got mine removed as soon as I got a clear PET. You're about to have a clear mammo and under the circumstances (with your moving) having a port that needs tending will be a pain. In the end, it's your choice. And you'll find just as many MOs who are ok with removing it - maybe your new one when you move, for example. So do away with that hassle and get it out. As for in or out of network providers, check with your insurance company. Most of them have internet sites where you can find doctors who are part of your network. If yours is a local HMO, you will need to find out how they handle out of network needs. For some it's a bigger co-pay. For others, it's not covered at all. You'll need to find out exactly how yours works. When we moved from MO to NH, I had no problem finding in-network docs using Anthem BC/BS's website. Just do a little homework and you should be ok.
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christina - so sorry to hear about your MIL. Do they have anything they can do for treatment? I hope and pray that they do. We will miss you on the boards, so please try to come as much as you can. You all have been great since our 3 most famous friends demise.
I am supposed to have a brain MRI tomorrow. Only because my neck was hurting - remember I had mentioned previously and at that time the Onc. had written this order which has taken such a long time for the insurance to process. My symptoms are still the pain on my neck, previously on the right now on both sides. I can't sleep without Lorazapam, which gives me alopecia. Ladies, should I go ahead with the MRI of the brain if there really doesn't seem to be a reason for it? Does anyone know of any side effects or any risks? The authorization for the MRI expires on Apr. 24, so I am thinking should I go ahead with it, on the other hand, what is the reason for it? I don't know what to do. Thanks.
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Lovelyface, I would go ahead with the MRI, just to rule out what is causing the pain. I too have increasing neck pain on the left side. I will bring it up to my Onco during my 3 month followup in a few weeks.
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Hi everyone!! Been AWOL for a few days.
Patsfan- I never had a period after chemo so getting my ovaries out was pretty minor. The hot flashes did ramp up a bit but better than dealing with the anxiety of having ovaries!
I don't regret for a minute having them removed. And, I was 38 when I had them out... (With that said, I have had a few *unpleasant* SE from chemo/menopause... feel free to PM me if you have more questions.)Heidi- Is that your house? lol
Annie- I did the 12 weekly taxols and have heard that it is way easier than the 4 done every other week. I workd almost FT during taxol. I worked PT during A/C.
Inmate- Woot! Woot!! Love that you have *stayed local!*
Wrenwood47- My counts are still a little low. My oncologist told me that sometimes that happens but so long as your counts stay *almost* at the low end of normal and you don't get sick all the time, it is just a lasting SE from chemo.
And, another lasting effect from chemo- MEMORY LOSS!!! Yes- count me in. It has been debilitating.
Lots of {{hugs}} all around. Hope everyone has a good day!!
xxoo
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Just returned from my appointment with my MO and blood work before my last chemo tomorrow. Apparently I qualify for the metformin clinical trial so I got all the info on that and I am to read it over at home and decide what I want to do. I was also given a book "Life After Breast Cancer Treatment". Looking forward to walking into chemo for the LAST time tomorrow. It's going to be an emotional day forsure.
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So many posts to catch up on. I am pretty loopy now from pain meds so will try to catch up later.
Surgery went great. In fact he was running ahead of schedule so I was out of the hospital by 4. Pretty sore. Feel like I have done too many crunches and can't stand up really straight, but no complaints here. I am eager to start chemo and be done with treatment for good.
Welcome newbies. You will love it here and come to love each and every one of these beautiful ladies.
CockerSpaniel......I found the Taxol to be easier than AC. The worst SE for me was a bit of neuropathy and fatigue at the very end. I know you can do this. Maybe you don't WANT to do it but you sure CAN do it. I don't know how you feel about it but I found that marijuana worked the best for relaxation and nausea. So far I have not had to throw up on any of the 9 chemo drugs I've had. Edible forms seemed to work the best. Nausea was relieved instantly and the anxiety just melted away. I believe there is a pharmaceutical version called marinol. You may feel more comfortable asking your MO about that. Hang in there.
Best thing that happened to me: Some of my tulips bloomed yesterday. They are white. Now to wait for the other 225 to pop. Can't wait to see what color those are.
Love to you all!
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Inmate.. Good to hear all went well. Hang tough chica!!
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Inmate - so good to hear from you. Glad that everything went well.
Lori - thanks for the suggestion to go ahead with the MRI. I have postponed the dates by a few days, will talk to my Onc. just to make sure.
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Inmate I am so pleased and relieved that surgery went well. You are so brave to actually want chemo. I do want to continue treatment but just doubt my ability to carry on. I try to hide my real self through humour so that people don't know how much of a coward I really am. In the next life I hope I come back big brave stronge and fearless. Everyone at work and my family think I am amazing with that smile but if only they knew. Marjiuana is illegal here in New Zealand otherwise I think I would try it.
I am slowly coming to realize how your insurance issues work. Here in NZ we have private insurance which a person pays for, either 80% or 100%. You can choose to go anywhere in NZ and use your insurance although most people choose as close to home as possible. The hospitals are really lovely and you get three course menu's and wine with your dinner and a private room with bathroom facilities etc. It is not through your place of work although some employers use this as an incentive to make people join their company or they use it as a perk. If you don't have or can't afford private insurance you then have to go public. You may not get your own room but the care is just as good but may be not as quick. If you have private you can go in for your treatment the next day whereas there is a waiting list for public. If the employer pays for the insurance you are really tied to that company and if you leave would have to continue paying yourself. The insurance is expensive and a lot of people including myself cannot afford it so we just go public. If you have 80% then you have to find the balance of the treatment yourself which could be thousands depending on what treatment you are having. Accident and emergency is not covered by private so you would have to go public for that. I find it quite interesting when you all talk about your insurance companies and how they operate. Even in public we don't have to pay for drugs, chemo or any other treatment it is all covered so I have no costs whilst I am having treatment you just don't get in as quick. Hopoe all that makes sense girls. Annie
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A must read!!!! A friend just posted this and I wanted to pass it on... A well-k...nown speaker started off his seminar holding up a $20.00 bill. In the room of 200, he asked, "Who would like this $20 bill?" Hands started going up. He said, "I am going to give this $20 to one of you but first, let me do this." He proceeded to crumple up the $20 dollar bill. He then asked, "Who still wants it...?" Still the hands were up in the air. "Well," he replied, "What if I do this?" And he dropped it on the ground and started to grind it into the floor with his shoe. He picked it up, now crumpled and dirty. "Now, who still wants it?" Still the hands went into the air. "My friends, we have all learned a very valuable lesson. No matter what I did to the money, you still wanted it because it did not decrease in value. It was still worth $20. Many times in our lives, we are dropped, crumpled, and ground into the dirt by the decisions we make and the circumstances that come our way. We may feel as though we are worthless. But no matter what has happened or what will happen, you will never lose your value. Dirty or clean, crumpled or finely creased, you are still priceless to those who DO LOVE you. The worth of our lives comes not in what we do or who we know, but by WHO WE ARE. You are special-Don't EVER forget it." If you do not pass this on, you may never know the lives it touches, the hurting hearts it speaks to, or the hope that it may bring. Count your blessings, not your problems...Happy New Year 2012!! ~~ Ryan Arnall -
I thought I would just pass this on to you. Annie
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Michele- Thanks for the feedback. I am still waiting to hear back from the gyn/onc about an appt. I have been waiting 8 days to have a call back to tell me when they can see me. Called Monday and talked to the patient advocate and she is still waiting to hear from the gyn/onc office. At this point I haven't gotten any info on what kind of cyst it is or even if I should be worried. I am just ready to have something done and I'm tired of feeling like crap all the time!
Heidi-You can grill up that squirrel with the hampster. Probably tastes like chicken!
Cocker Spaniel- Glad you decided to continue. It will be over before you know it. I had absolutely no nausea with Taxol. You'll do great!
LockeKoppe- I was almost a month from the mamo to my first chemo. They did tell me after chemo that I needed surgery within 6 weeks.
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Inmate - speedy recovery wishes!
Annie - thanks for explaining your health system and for the inspirational story. Your room is ready, we'll have hamster while you're here.
Heidi - Loved the photo!
Patsfan - I hope you have some answers soon.
Christina - take good care, good thoughts your way.
Lovelyface - I hope they figure out your pain soon. It's so exhausting to be in pain, it also makes me a bit reclusive. Hard to make plans, when tomorrow may be a really bad day. Hope you get some relief soon!
Michelle - I can just picture your evening out with the kids. What fun. I know they must be your best medicine.
Hugs to all in treatment!0 -
Just catching up on my reading here, and wanted to say hi to everyone.
Christina - so sorry to hear about your MIL.
LockeKopp - It's good that your onc is on top of this, but I don't think you have to worry....I can't imagine that a week either way would be a big deal.
Nsmolen - Sorry you have to be here, but as others have said, you will find a lot of support and information here. Sometimes a few laughs, too
Heidi - I love that pic!
Lovelyface - I think would have the MRI just for the reassurance.
Inmate - glad it all went well...wishing you a speedy recovery!
Annie - glad you're feeling better, and thanks for the inspiration.
Everybody - have a great evening!
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Love the pic..I think we are all kinda squirrely in a way..aren't we...yeah..we are in danger but we don't stop going for what we want....
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Here's an interesting read on "Chemo Brain", yes there is really such a thing.
http://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEffects/ChemotherapyEffects/chemo-brain0 -
To all my wonderful, supportive, brave friends on here I wish you and your families a wonderful, pain free, happy, stress free Easter. I hope you stuff your face with chocolate and have a great time. Love to you all with big hugs. Annie.
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Julie, I made your link clickable.
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michelle- no, not my house. Believe it or not, in the 23 years we have lived here we have only had two squirrels in our yard, and that was short-lived. One drowned in the horse trough and the other was chased to Timbucktoo by my cat. I think there is just too much terrier and feline activity around here for them to feel safe. Must be a farm thing.
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My annual contribution:
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So cute Heidi, that one is new for me. Might steel it from you and send to a couple friends.
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Thanks for the laughs Heidi. Always need a good laugh!
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Morning Ladies,
Best thing that happened yesterday was all went well at 3 month onc appt, said my mammo was perfect and same with my blood work. I know it doesn't really matter but my tumor markers went from 7.9 to 7.2 which is basically nothing.
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Excellent news mccrimmon!!
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