Calling all TNs
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woohoo mccrimmon!
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Yeah Heather! Now you can relax! Wish my tumor markers would work their way down to single digits!!!
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Great news, Heather!!!
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Thanks Ladies,
Spending this morning updating my resume. I HATE having to look for a job. It's been so long I have no idea the correct format to use and what looks professional anymore.
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Hi everyone, had a bit of a shock today. Had to see GP because I have nerve damage from the rads and can't use right arm properly plus have to have x rays - looks like I have osteoarthritus in the hips. Will I was there he told me my records for my diagnosis had been amend from Stage I to StageIIb and the tumour was double the size I had thought.
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Heather - these days, most resumes get imported into a central HR database, so the less special formatting, the better, especially in bigger companies. You might think about using a recruiter in your new area. Looking for a new job is both exciting and the pits!
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Bernie, I'm sorry you had a shock at the drs! Hope all is ok with your hips.
LuRVing - I think my resume looks ok, I'm actually planning on going to Accountemps, they got me my current job in florida and I actually had gotten my previous job up North from a Temp agency as well but I want to get it out to as many places as I can. It is exciting, I can't wait to move, but at the same time hubby and the dogs stay in florida until I find a job and get insurance. We're never apart, I don't know how well we're going to handle this separation. I will admit to being very excited about not having to cook!! I plan on eating alot of cereal. LOL
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The pastor asked if anyone in the congregation would like to express praise for answered prayers.
Suzie Johnson stood and walked to the podium. She said, "I have a praise. Two months ago my husband, Tom, had a terrible bicycle wreck and his scrotum was completely crushed. The pain was excruciating and the doctors didn't know if they could help him."
You could hear a muffled gasp from the men in the congregation as they imagine the pain that poor Tom must have experienced.
"Tom was unable to hold me or the children," she went on, "and every move caused him terrible pain. We prayed as the doctors performed a delicate operation, and it turned out, they were able to piece together the crushed remnants of Tom's scrotum and wrap wire around it to hold it in place."
Again the men in the congregation cringed and squirmed uncomfortably as they imagined the horrible surgery performed on Tom.
"Now," she announced in a quivering voice, "thank the Lord, Tom is out of the hospital and the doctors say that with time, his scrotum should recover completely."
All the men sighed with unified relief. The pastor rose and tentatively asked if anyone else had something to say.
A man stood up and walked slowly to the podium. He said, "I'm Tom Johnson."
The entire congregation held its breath.
"I just want to tell my wife....... the word is sternum."
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That is so funny!!!
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well, my blood chemistry panel came back with elevated AST (48, normal is under 40) and elevated ALT (71, normal under 56) so my PCP will not prescribe the Metformin
Of course I'm worrying now, though my liver enzymes have been out of whack before BC as well as after. I hate tests!
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Bernie Allen- congrats! It's not often I get a real giggle in here!
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Congratulations mccrimmon!!!!!! Excellent tumor markers. I was wondering which particular tumor marker is this? The CEA, CA27-29 or CA15-3? You don't have to look it up, just in case you know. I have made a spreadsheet and put mine in there every 3 months for all the 3. Thank God they have always been within the normal ranges, but even within the normal range, one of them was a little higher than normal. Doctor's don't even care about that, but I do and I did the last time. I look at my spreadsheet very closely, it is just the way I am. I am really looking towards the next one, whether that higher number has come down under CA-27-29.
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Lovelyface, It's the CA27-29. It was 7.9, now 7.2, I know it doesn't really matter but since it's all we have to go on I like looking at it for now.
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Ladies,
I've posted this on a different thread I had started but I'm afraid it won't get noticed. Wondered if anyone here would know the answer. Since we're moving out of state and need to find new jobs I've been very concerned with the "pre-existing clause" in health insurance. I just found this on the HIPAA site.
HIPAA says:
Preexisting Conditions, Job Changes, and General Protections
Can a plan deny benefits for chronic illnesses or injuries, like carpal tunnel syndrome, diabetes, heart disease, and cancer using a preexisting condition exclusion?
It depends on whether you received medical advice, care, diagnosis, or treatment within the 6 months prior to enrolling in a new employer's plan. If you did, you can be subject to a preexisting condition exclusion.
If I look at my scenario, I had my last chemo on 9/27/11, since then I've only had follow-up appts. I'm TN so there is no tamoxifen or hecepin for me. So am I out of the 6 month time frame? Or do my follow up appts count ?
Any info would be greatly apprieciated.
Thanks.
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Heather - Woo Hoo! Enjoy your good news!
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Heather - I was on Cobra from a lay off at a job when I was diagnosed and had surgery, I then started a new job and new insurance and I am 100% covered. The KEY is NO BREAK in coverage, if you have a break in coverage over a certain number of days ( around 40 or something) then the pre existing clause comes into effect.
Hope this helps.
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Kim,
yes it does help, thank you. Hubby is actually going to be staying in florida while I move and find a job. I'm really looking forward to moving home but we haven't really been separated for more than a few days at a time in 14 years. I'm going to miss him and my dogs something terrible.
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Heather I would contact a few ins companies and see what their policy is. It's hit and miss, so be sure you get the persons name when getting your answer. Oh wanted to add, when I left my employer I had blue cross- they gave me a letter, should I choose to go back to work and have Blue cross again..
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I posted this in its own thread -but no one is reading it. PLEASE READ - it's some good stuff:
http://www.ctv.ca/CTVNews/Health/20120404/triple-negative-breast-cancer-study-120404/
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I read it!! I hope they find the cure soon.
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LRM--- great article!
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Thanks for posting that article!
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mccrimmon324-another great resource for job hunting is www.indeed.com - it's a website that pulls from a ton of other websites, so all the job searching is done from one place.
Good luck!
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Good morning Ladies. Not sure if you are in front of me or I am behind but its Good Friday here.
Best news of the day Mccrimmon. Wonderful news Heather on mammo and tumour markers. Awesome.
BernieEllen So sorry to hear your news of a tumour update. Thinking of you heaps and that was a great joke. Even in bad times we manage to laugh.
Minxie I'm not sure what tests mean other than they go up and down all the time and mostly mean vey little. As you have had tests out of wack before I am hoping all will be well.
LRM read the article and it looks very positive. I wonder how long it will take them to develop the clinical trials. Good to know research for TN's if going on all the time. For a time I thought the positives got more help and the TN's missed out but may be this is not so and things are developing all the time.
Christina so sorry to hear of your mum-in-laws illness. I will be saying heaps of prayers for her and you and your family. Please come on as often as you can. I miss your posts on here.
Lovelyface I'm glad to hear you are going for your MRI but I wish you hadn't put it off for a while longer. Peace of mind is wonderful and this will reassure you all is well.
OBXK what have we got for dinner tonight. I must say your bed is comfy didn't even know I was in it lol. Can we have chocolate for desert as its Easter.
Have a wonderful stress free day ladies. Thinking of you all. Lots of love. Annie
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Hello everybody,
Thanks for the laughs with funny stories and photos/cartoons.
Linda, thanks for the great article and video. We can only hope that this new info will develop some targeted treatment for TNs.
I saw my PCP physician today. He ordered some bloodwork (B12 and folic level) and a carotid doppler and brain MRI for my complaints of forgetfulness. He feels confident that is chemo brain but wants to make sure he doesn't miss anything. Also talked to him about my slightly elevated Hgb A1c and the latest studies regarding metformin....He gave me a script for it without a problem. Even gave me the dose that the study gals are getting but recommended that I start on a half dose first and advance to full dose in a few weeks. He was very compassionate and shared that his sister has BC and that she went to the same BS and PS that I did. Gave me a hug before he left the exam room, too.
Think of all of you everyday.
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Bernie Ellen...I am sorry to hear about the changed stage of diagnosis but my gosh, to post such a wild joke shortly after, you truly are a woman with spunk. I hope this won't get you down too much. If you feel good, well that is the best thing.
mccrimmon/Heather....so glad to hear your news..it is things like your and inmates news that makes me feel so glad to be reading this and BernieEllen's that reminds me what we are dealing with.
Inmate....mend, mend, mend, thinking of you and relieved all went well.
Cocker spaniel...inspiring
Heidi..both too cute...
Lovelyface...I hope all goes well with the MRI
NAvy Mom....wonderful story. My PCP gave me the metformin too saying the same thing..start with one and after a month go to 2....it does disrupt my stomach. Dang, I wasn't going to wait for the trial. Will see what the onc says when I add that to my meds......
Anyone still find themselves tired after 6 months out form chemo and 4 from radiation?
I find I get totally exhausted sometimes. think working straight through all of this took it out of me. I would have preferred to have taken time off but couldn't afford to.
Hope everyone has a perfect weekend
Lovelyface...I hope all goes well with the MRI
My mushy loving kitty.0 -
BernieEllen - thanks for the laugh!
LRM - that's the most encouraging article I've read in a long time. Thanks for posting, and let's hope it will someday lead to a cure for us.
Heather - I'm in a similar position...I want to leave my job, but I'm concerned about the health insurance (and angry that we have to add this to our worries, too....there's got to be a better sysem!) I think onvacation is referring to the HIPAA law...it gives us protection for pre-existing conditions if you go on another group plan with no break in coverage. You can't have a gap of 63 days or more (I think) and you might have to get a letter from your old insurance company saying you had coverage. That's my understanding anyway, but you should check it out further just to be sure.
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Susan..I love orange cats...I have an orange and white one right now...in fact I have basically had an orange cat forever...your's is a cutie...
Navy..glad you got on the metformin...gah..my onc ticks me off..he won't give it to me...dang..I'm going to ask my BS when I see him in May....
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Painting: I did 6 TAC for chemo/no radiation. I think it took me about one year to really begin to feel like myself again. The body aches and pains seem to last forever. It wore me down. But time does seem to make things better. Hang in there.
Titan: Onc wouldn't give me the Metformin, either. I go see her in 2 weeks and it will be on my new med list! Oh well, gotta do what ya gotta do, right?
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