Calling all TNs
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happy dancing today....got my pet scan results---CLEAN---no evidence of this monster anywhere! This one was big to me cuz my last TM's were elevated! CELEBRATION TIME!!!
When first diagnosed I went crazy with my diet...deprived myself of everything. My MO said not to worry too much about diet during treatment. Think she too knew how hard it was to eat anything at all much less worry about nutritional content. I believe that it is all a crapshoot as to who get cancer and who gets a recurrence. Too many women who eat healthy and exercise regularly get cancer in the first place to make me believe that it can ALL be stopped thru diet. Just my two cents.
Maggie
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Congrats Mags!!!!!
Question, had my mammogram last week and dr said films looked fine, so I shouldn't expect anything different from my onc when I visit him on Wed right?
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Yeah Mags! I know that a clean PET is a huge deal!
Heather - I think you are correct, your MO will probably feel you in all the important spots and tell you everything is just fine! How's that pneumonia coming along?0 -
Think hubby's pnemonia is clearing up. He has his last IV tomorrow and he'll go back to work on Wed. I felt so bad for him, he was looking forward to this vacation like no other and he got so sick. I feel so much better but I can still feel it a bit in my lungs.
Thanks for letting me know, the radiologist that looked at the films told me everything looked good, then I asked the girl who took the pics if my MO would tell me the results and she said he would gets copies but I was just told the results. I guess my anxiety is kicking in before my next appt.
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Mccrimmon32 wishing all good results for you today and a clean mamo. Annie
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Thanks Annie,
Had my mammo last Thursday, they said everything looks fine but my anxiety is kicking up and I just wanted to be sure that I'm not going to be shocked when I go into my appt with my MO on Wed. This was only my 2nd Mammo ever. 1st one showed BC, I'm assuming I wouldn't have left without any follow up if there were any problems.
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Hi everybody
Best thing about today: Beautiful spring day and enjoying the smell of fresh cut grass.
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Hi Heather - I totally get the anxiety, especially since this is your first post-BC mammo. I think if the radiologist told you everything looks good, then everything looks good....yay! I think they would tell you if you needed other follow up. That's how they do it where I have my mammos....others may have had different experiences....but this sure sounds like good news to me!
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I just finished DD Taxol #2, will get Neulasta shot tomorrow and hope I don't get beat down on days 4-7 like I did after taxol #1. I am really scared with it being cumulative.
Best thing I did was bring my foster kittens home to play with for the weekend and get them ready for adoption and take cute pictures. They are about 8 weeks old now and so darn cute - Siamese and Snowshoe mixes with bright blue eyes. So, I have to change Inmates statement a little: Babies, puppies and kittens!
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CatWhispurrer what did you experience on days 4-7 with Taxol. I am going onto that next. This third chemo knocked me for a six this time and its taking ages for me to come right. I too am scared of the accumulative effect of all these drugs. Did you have to have the cough syrup before your Taxol and what does the Neulasta shots do. Thanks for your help. Annie
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Annie - Days 4-7 was a lot of bone pain, heavy legs, fatigue, nausea (ended up throwing up on day 5) and running fever that got as high as 100.1 and my original temp is usually 97.6, so 100.1 is really high for me. I do not get any cough syrup before Taxol and have had no sore throat or cough, so far. The only pre-meds I get is steriods I take the night before, benedryl and zantac in a drip before the taxol is started.
The Neulasta shot brings up your WBC (white blood count). I did not get it last week thanks to my insurance company and my WBC is the lowest ever and could account for some of the bad SE's I experienced. I think they threatened the insurance company that if I didn't continue to get the shots that I would likely end up in the hospital and that would be much more costly than just giving me the shot.
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I just have to share!! I just learned I was selected for Casting For Recovery!!! I am soo excited to share 3 days of fly fishing with other Ladies in my area..
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Cocker- Benadryl is not a cough medicine. It is an antihistamine used to help prevent allergic reactions. Sorry you are having such a rough time on chemo.
Why does the Kansas and Kentucky game have to be on so late? I won't be able to stay awake long enough to watch much of it! GO KU!!!
Lory- that sounds like fun!! The family and I went to Bennet Springs Missouri a couple weeks ago for the opening of trout season. It was fun to watch all the fly fisherman!!!
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Lory - not sure what that is, but sounds fun! Congrats!
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http://castingforrecovery.org/home
Casting for recovery is a retreat for survivors to connect and fish! If you have never heard of this. cllick and look.
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Lory, Congratulations! I'm a beginner but enjoy fly fishing. I have a picture of me going through chemo, with a cap on my little bald head, out fly fishing.
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Annie- There is a difference in SE between 12 weekly Taxol and 4 Taxol DD. The SE of the 12 weekly Taxol are much more tolerable and minimal. I did not get Neulasta shots with my 12 Taxol. My WBC did get low but never too low. I did get IV Benadryl before treatments but after the 3rd Taxol, asked to be switched to Claritin. Benadryl made me too drowsy but a Claritin pill 30 minutes before infusion did the trick with no drowsinness. I never had nausea with my Taxol, not once. Yes I did get bone pain 3 days after treatment but it only lasted for 1 day each time. No fever. No big fatigue (and I had a little 4 year old boy to take care of all day!). You can do this. xx0
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Heather, when I had my mammogram this time they told me that since I was diagnosed the last time I had the mammo, that now - instead of waiting a couple days for results, they read them right away and I get the results the same day. I can't imagine that you would hear anything but positive news from your onc, also, since they told you it all looked good. I know that "scanxiety" feeling.....
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Oh Babs37 when I read CatWhispurrers post I have never felt so down or ill as I did then but I thank her for being honest. I just can't do this anymore. I have terrible trouble getting over those four days every three weeks and the thought of having them for 12 weeks non stop is too much for me. This chemo was to be brave for my husband and my two beloved daughters but when God gave out bravery I was last in the line and he had run out. I take my hat off to all of you beautiful brave ladies on here but even the anxiety and thought of what might happen is too much for me because what if I am one of those unlucky people with the side effects and vomiting. Freaking out does not even touch me today. I just cant do this. Annie
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Annie - ((((HUGS)))) I am so sorry you are feeling this way, I wish I had some words of wisdom for you, but I don't other than you WILL get through this and we are all here for you.
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Oh Annie...sending a big hug to you sweetie...I'm so sorry you are hurting.....what do they say..you don't have to be brave you just have to show up...do your doctors know what is going on with you? maybe you can take a break for a week or two...you shouldn't have to hurt so bad...
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Oh ladies now after your posts I am wondering whether I can now do this. After my next chemo I have an appointment with my oncologist and I will speak to her then and see if she can advise me. What would I do without you all. Thank you brave ladies for all your help. Annie
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Cocker Spaniel-I had taxol 8 years ago and it was the worse experience ever, I sympathize with you. I had an allergic reation to it but they gave it to me anyways, I did 4 treatments every 3 weeks. This time I did abraxane 12 times once a week. It was much better. I am wondering if you can switch to abraxane? Insurance might approve it because your reaction is so severe. WIth the taxol my whole body hurt and I didn't even want sheets to touch me, it was awful, my heart goes out to you.
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I went to my pt appt. today and thought it would be uneventful but......she was worried that I have cellulitis, my arm is larger by about 2 cm and my chest where I had radiation is red and swollen, and the hard area is bad. So, she had me go over to my ro to see what is going on. He said it could be infection, or could just be inflammation from the rads, he wants me to wait a couple of days to see if it gets better or worse. Well, I see my mo tomorrow morning and I know where that is going to go! He is not a wait and see type doctor! So I am sure I will be rushed over to my surgeon's office for a biopsy/culture of the hard spot, and I have to work, my first day back since November, right after my appt. I look awful, my pt even said that, she said that is why she was a bit worried I might have an infection, but said it is not her area so she wanted to make sure I went to see one of my docs. I just love her, she is so honest and thorough. I am just so tired of all this. I cried all the way home, then I think I should not be upset because so many have it worse and so many are no longer here with us, so time to toughen up!
So, I get home and call my great nephew, it is his 11th birthday! He is just the sweetest boy ever! His birthday party is this Saturday and I am so excited to see the kids! His sister is 8 and of course is just as adorable! So my good thing is having these 2 beautiful kids in my life! I could not be a prouder great aunt! My niece and I grew up more like sisters, she is my oldest sister's daughter, so I am very close to these kids.
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Ok, one more thing. I started my online classes again today and was reading the syllabus for one of the classes. It said your computer needs to meet the requirements for virtual dating....I was like, what? Then I thought, oh, my teacher has a sense of humor! Well, not! It is a geology program, dating in a sense of years, not dating as in seeing someone! I am such a dork, I am just glad i did not make a comment about this!
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Bak,
I sure hope you get that swelling resolved - damn! Keep us posted. Hopefully they can give you something to just knock it out. I am so scared of lymphedema.
That is really funny about the "dating"! Don't feel bad, when my brother went back to school recently, he had not worked on computers at all. When the professor in his basic computer class instructed them to put in their user names and passwords, he called her over to tell her that something was wrong - when he entered the password, "there are just a lot of dots there."
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Annie, I got Ativan each time and that helped with the anxiety and also with the nausea. Are they giving you some type of tranquilizer? It really helps a lot. My heart goes out to you, please keep us posted.
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Annie - Please ask your doctor if there is something they can give you. When first diagnosed I asked to be put on Anti-depressants and they also have me a script for xanax for my high anxiety moments. I don't think I could have gotten thru this without both of those. You CAN do this, please don't give up and stop, your almost there. I promise, it really will be over before you know it.
Bak - praying for you and hoping this damn infection gets taken care of quickly. You've been thru too damn much! Funny about the PC & Enjoy the party, sounds like a lot of fun.
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Annie - if it's any help, I had my 2nd Taxol last week and I'm feeling really good. I have a little bit of bone pain but it's nothing that a couple of Advil won't take away. You CAN do this -- it may not seem like it now, but you can. I'm amazed that I've made it this far...I'm such a big baby. I cry every time I go to the MO and they take blood from me for my CBC. It's not easy, but it can be done. {{HUGS}}0
