Calling all TNs
Comments
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Lovelyface - on reading your post reminded me that I had a left earache intermittently for a good few months before I had a left mastectomy and the doctor could find nothing wrong. After surgery it went away. I sometimes wonder if the earache came back does that mean the cancer is back. God I hope not. Annie
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Just had my 7/12 taxol today, surgery scheduled for 5/25 am having partial mastectomy on right breast, then on to radiation I go
On the snoring note, I've always had issues, then had a cyst removed from my left nose and was cured for a while, then recently my DH told me I have been snoring lately, ugh! I did have a sleep test prior to the nose surgery, but no sleep apnea, but results were not that good either. My daughter snores and I fear she may have sleep issues.
Loved the pics from the beautiful islands, wish I was there with u, someday I would love to go there too.0 -
amazing pictures
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Luah-I, too, love the blue feet on that bird in the first photo! All the photos are amazing, looks like a wonderful time, love that the camera was in the turtle shot so you could see the size of the turtle!
Thinking of everyone! I have been back to work, only a couple days a week. Wow, what a change from staying home! I also am taking 2 online classes so things are keeping me busy. I realize, that even though I like my job and my clients, that it is very stressful. Feel like I have to be "on" all the time with a smile and positive attitude, and sometimes I just don't feel like that. Oh well, it is only 2 days a week.
Hi inmate! How are you feeling on the new chemo?
I hope all of you on chemo are feeling ok. Try to enjoy the good days and rest on the bad days, and don't feel guilty about it! My docs always told me to do what I enjoyed on the days that I felt good, and I think that is good advice!
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Luah - love the pictures!
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Lauh-Great pics!!!!
McCrimmon234-no I am not in chemopause, but my monthly friend is unpredictable.
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Sugar, Bak - that bird is a blue-footed booby. When mating, the males do a dance showing off their blue feet and wing spread. Needless to say there are a lot of souvenir T-shirts in the shops, reading "I love boobies" - lol.
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Luah, then in that case, it's fair to say "I love boobies" too! lol.
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My fellow TNs - anyone doing Zometa? My onc had me on it, then took me off after a study showed it was not effective. I thought that I had heard another study was now saying it might help, and I'd like to see if I can talk him into getting me back on it every 6 months. Are there any TNs whose oncs are prescribing it? If so, are you considered pre- or post menopausal? Thanks!
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Hi Minxie - I wonder why Zometa for a TN? I was 5% positive for Projesterone. My Onc. who is regarded as quite learned, ordered aridimex and zometa for me, zometa injections every 6 months. I took one, when I started aridimex. Aridimex almost disabled me. I think it drains every bit of estrogen we TN's have in our body, I could hardly lift my right hands. Anyway, I stopped the aridimex and after that first zometa, never took another one. By that time my Onc. had changed, who is not as smart, but more alert to my issues. He never insisted that I take Zometa. I was under the impression that both should be given together, not one without the other. I am 54, post, that's why I was taking aridimex rather than tamoxifen.
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No Zometa here. Onc felt just wasnt worth the SEs.
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I asked for Zometa, they had me do a bone density scan, it came back good so none for me either.
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Luah...what wonderful pics. thanks for sharing.
Bak.....i haven't started chemo yet. just one week out from surgery and doc wanted me to wait two weeks before starting. i see him on the 17th and will probably start that friday, the 20th. cancer is so ironic. i will start chemo exactly 2 years to the day that i had my diagnostic mammo and first biopsy. my 2 year "cancerversary" is the 23rd, monday. i can't believe it has been 2 years already. maybe because it has been 2 years of constant treatment that made the time fly. i don't know and guess i don't really care. i do hope that this one kicks it to the curb and on my 3 year i can look back instead of forward at this whole experience. i want all my forward thinking to involve life, love and the pursuit of happiness not friggin cancer. just sayin'!
have any of you experienced personality changes since going through treatment? i find myself to be much more outspoken and less concerned with other peoples feelings. that is just not like the old me and while i appreciate the new found boldness i cringe at the thought of becoming an insensitive pushy old lady. alienating friends and family at this stage of the game seems counter productive to needing the extra love and support. i guess this disease is just making me a bit jaded.
thanks for listening. hope you are all having a great day!
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Inmate, I've been thinking about you, glad you posted. This next round is going to kick cancers a**!
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Inmate - you are going to kick cancer to the curb for good!
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Luah - glad you had a great trip, and I loved your pics.
Inmate - Thinking of you, and hoping this round of chemo kicks a**! In answer to your question...yes, I think my personality has changed a lot through this whole cancer experience. In some ways, it's been a change for the better. In other ways........not so much!
Hope everyone's having a good day.
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Inmate - so good to hear from you. Yes, you are going forward to your 3 year mark, 10, 20 and 50 more years. I am glad you mentioned the personality change. My whole family including my poor old mother has noticed a huge negative personality from me and unfortunately, I am so self centered in all of this, that I just don't care that I have become this way. I just felt that I did not get the attention I deserved. I just did not feel loved at a time when I needed all these close family, brothers, sisters and their "educated" children. I wanted help with reading, decision making, researching. I didn't feel one single person really helped me. I felt so alone in all of this. My mother who is the most kindest and loving mother in this world, even her, when she came to visit me from New Zealand, she wanted to go back after my chemo was over,I wanted her to say loving things to me as one would to someone whose life may be shortened. No one did. I blame their level of education about cancer which made them all act this way. They just didn't realize the danger zone of cancer. As for friends - some don't even talk to me anymore, I swear. There is a very good friend of mine who loved me, or at least I thought she did, never ever contacts me anymore. My own niece who was a big part of my life before, never calls to ask how I am doing. Thanks for listening, everyone. I am sorry to be negative, but I find this subject to be the most disturbing in my cancer experience, that I have become so alone in this disease.
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Luah:
Wonderful pictures! Thanks so much for sharing them with us - what a paradise - and what a tan! You look fabulous.
Mity - Congrats! I too had mine last week, and always leave there with a sigh of relief. It's so convenient to go back to my Breast Surgery Center for the mammo's, even though I hate the drive there, as I get the results right away. Probably the only thing I get that I don't have to sweat out the "waiting period" to hear results.
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Lovelyface......I am so sorry to hear you feel alone and that your family has not continued to show their support. It is that continued support that is the most important. I too have had long time friends disappear as soon as I was diagnosed. Some were a surprise, others made more sense but all were hard to understand. This disease is such an equalizer. It just sucks that it takes away so very much of our lives. Even our relationships. Nothing and no one is safe from the effects. It seems so much easier to deal with the physical scars than the emotional ones. I wish I was closer to you so I could take a walk with you, go for coffee or just give you a big hug. What I can do is always be here to listen, offer my friendship and understanding. And of course send all my love..........:)0
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Lovelyface - I agree with Inmate. I too am sorry you are going through this just when you need family and friends more than ever. I find some people don't know what to say and that is understandable but not to contact at all is very hard to understand. You can rest assured that you are not alone on here and we will listen whenever you need us to. I also wish I was closer to you and could go for coffee or give you that great big hug. Your dear mum was probably trying to be practical and to keep you focused on treatment but you certainly find out who your friends are when you go through somthing like this. ALL of us here are by your side whenever you need us just like you are there for us. Love of love and hugs. Annie
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Lovelyface..I'm so sorry you feel alone. ..I dunno...no matter how much support (or little) we have going through the cancer and beyond..we really are still alone..aren't we...only WE can do the treatments and surgeries and have to deal with the emotions of it all.
But..we do have each other here...it may not be much..or it may be alot..depends on what you want....we are here for you...
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Love the pictures Luah!!! Amazing!!!
Inmate I just know chemo is going to kick cancers butt this time!
Lovelyface so sorry you are dealing with this, yes cancer changes us all!
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Lovelyface...we are always here for you..I love this forum for when I feel like no one else understands me.
Went for my 3 month follow up at my Onc and I was a little nervous as my ca 27/29 last time was elevated and she said it went from a 41 to a 24 woo hoo! happy dancing all day even though I went to work afterward my head was jumping.
Maggie
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yeah Maggie!
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Lovelyface, so sorry that you are feeling down. Hoping there are brighter days ahead. We are here for you.
Congrats to those getting good check ups.
Good to here from you Inmate.
Good night all.
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Lovelyface - I'm sorry to hear you're feeling so alone. I too have had those moments on this journey. I received a lot of support from my friends and family when I was diagnosed and throughout my treatment. But since it ended, I've felt very lonely at times...it's been one of the most difficult parts of this ride, emotionally. I think our loved ones feel we're "done" with cancer when we finish treatment, and don't think we need their help anymore. Let's face it....we've been through the experience, and they haven't. That's the beauty of these boards...everyone here "gets it." So please never think you're alone, because we are all here for you anytime you need us.
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Another low hormone-receptor positive here, so I'm getting Zometa with the Arimidex (post-menopausal by blood test). I've only had one Zometa infusion, and am doing much better on the Arimidex than I was on either the Tamoxifen or Aromasin. I think it's just a crapshoot sometimes how you tolerate the different meds. The only SE from the Zometa was a few days of feeling achy, although nowhere near as bad as I felt after the Neulasta shots before I found out about the Claritin for those.
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Inmate and Lovelyface-yeah, I get it. My personality is different, not as patient with stupid people! Wow, that was mean of me!
I like the blue footed boobies!
I am getting zometa. I have 3% er pos. I have been getting zometa since starting chemo. My doc said he gives it to all of his bc patients!? He's been doing this a long time and he said he sees it as good!
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Lovelyface - ((((hugs)))) So sorry you feel so alone. I too don't understand how our friends and family can just assume we can now go back to life like it was. We are changed, even if it makes us feel a bit selfish, but I'm learning to live for MYSELF for the first time.
As Hope said, it's the beauty of these boards, we "get it" and are here for each other. Wouldn't it be wonderful if we all lived just a little bit closer so we could grab that cup a coffee together!
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HUGS lovelyface! We are here for you!
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