Calling all TNs
Comments
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Ah, moms can be entertaining. Mine is notoriously literal and tends to forget things like, "Don't mention what I said about my brother's third wife TO my brother, for the love of Pete." I'd said I was going to quit trying to remember their names and just call her #3, as I was sick of getting close to his wives, only to have them never speak to me again after the marriage imploded. I was frustrated more than anything, but she faithfully parroted it to him. Argh! It was sticky for a little while, but we agreed not to discuss it again, and didn't, even when that marriage lasted less than 2 years.
When we visited France a few years ago, I got a little collection of flower seeds, which are verboten to bring back into the country. So I just didn't tell Mom, knowing that even if I told her to keep quiet about it, she'd forget and tell the TSA everything. Didn't really want us both detained and strip-searched, and definitely didn't want them to confiscate the seeds, which were from this lovely little plant:
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Hi Riley,
What a wonderful plant... did the seeds take - do you know what it is called. Its beautiful.
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Tazzy, ironically, after all the fuss, the seeds did not sprout, but I found that the flower is called Ipomoea lobata, aka Spanish Flag, Firecracker Vine, or Exotic Love Vine. I bought more seeds and am trying again this year. I also found out they're related to Cardinal Vine (Ipomoea multifida) and Moonflower (Ipomoea Alba), which I also love.0
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Good Evening Ladies. I hope you are having a good day.
Riley - beautiful plant, lovely colors. Shame the seeds didn't take.
Talking about what mum's say, I remember when my daughter was small and we were in the supermarket. I was getting sanitary pads and she asked me if the packet was 'Brillo Pads' (a product you clean pots with). This was at the check out. Don't think I have ever been so red.
Titan - 'my get up and go, got up and went too'. If you are so bored you could have come and helped me type. They say in a book here that 1 hour of running PER WEEK, could add six years on your life. If I keep it up I may live until I'm 106.
Tazzy - I missed the the Ellen show with Russell Brand but I've gone awf him. How could he leave that beautiful girl with the lovely blue hair. She is just so gorgeous.
OBXK - my fella likes fruit cake so that is what he is getting but we won't give it to him until Saturday when we all go out to dinner as the little kids will be tired tomorrow night.
I do love that little bit on your post about Facebook. Very intelligent, quick thinking son.
Kathrynn - you could try blue after your red. I probably would fit in with the blue rinse brigade now (Oldies). I would certainly try different colours if I was younger though unless it was the color of OBXK's that is gorgeous.
Minxie - Glad you are recovering but sorry you are missing the pool fun. I too will be taking notes on rads as that is my next lot of interogation.
Well I finally went and brought an outfit for my old fellar. Pants, shirt, sweater, shoes and jacket but he doesn't really need any of them. I was just so stumped. I wish I had seen your post earlier Kathrynn about cleaning the boat, good idea.
Tomorrow I am off for some more of that jungle juice. Hope it goes ok but I've given up worrying doesn't get me anywhere.
Well ladies I am off to bed. Got to be at my best for chemo!! Have a great evening with no stress. Sending lots of hugs. Annie
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CS hope your fella has a wonderful birthday! Men are so difficult to buy for!
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Thanks Riley... not sure if I'll be able to get it here in Canada...but I'm going to look.
Annie.. Sophia Grace, when asked by Russell Brand, "What's happening in your mind right now, Sophia Grace? Express everything you've ever thought!" Her answer..... 'PINK'. I really like RB so in his defence he really did say what a wonderful person she is (Katy Perry) and he hopes nothing but good things for her. Good luck with the chemo. Mine is on Friday.
Dunno about you ladies...but since chemo I have gone from a salty savoury type of girl (girl??? who am I kidding - haha) to a sweet tooth.... so I am off to bake some banana nut muffins and choc chip cookies.
Hope everyone is doing OK today.
Have a wonderful day/afternoon/evening - hugs to all
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Hi ladies i confess to reading a bit here..
I am UK Triple Neg Spindell cell Metaplastic...wow that was a mouthful...and i just love your humour Cocker Spaniel...i'm the same age and treat my diagnosis with humour...as i have just pulled out of chemo..i had my second one a week ago after 2 week delay and a nice weeks stay on the Chemo ward...NOT! I will have the rotten breast off as soon as i recover enough from this blasted chemo...then whats ahead is anybodys guess!
I accidently took 3 overdoses not one...of 2 lots of laxatives...defo NOT recommended..and i'm still recovering...the mistakes that have been made on my treatments..is it my age i wonder?
Hi too all you other fighting ladies too! I am on another forum...along with the March chemo ladies and we will all meet up...later in the year...
My family live in New Zealand..
Dulcie xxx
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argh, just talked to rad onc today and they want to wait 4 WEEKS after surgery to start rads! I thought it would be only 2! There goes my summer, grr...
How long did you all have to wait between surgery and rads?
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Titan, the kitchen floor is planned for removal, but sadly the other rooms have to be done first. ( big heavy furniture has to be moved into the kitchen, and I don't want to damage a new floor) I was laughing about your Mom. At least mine It a tee-totaled and she doesn't drive.
Riley- beautiful flower. I have a friend that grows gorgeous Moonflowers.
Dulcie- welcome to the group.
Cocker - when you get old like us, you can start doing whatever you want, people just think you're getting senile. Seriously, the one thing I love about being old, is I just don't give a sh*t what anyone thinks about what I do ( as long as I'm not doing anything hurtful to anyone)
Minxie, I think I had to wait 4 weeks (actually 5 because of the holidays. You have to make sure your scar is healed, because the rads
will intefer with skin healing. *ducks head and runs for cover* Did anybody tell you that there's no swimming during rads?0 -
So I was at work yesterday and noticed a small red patch on the underside of my forearm. Within an hour the small quarter size patch turned into a patch the size of my palm and was hot. I knew what was happening as I had been warned by both the LE therapist and my Mo when the LE started in the hand and arm. When I got off work I headed to the ER and sure enough cellulitis. My entire forearm was engulfed by the time I got to the hospital. They gave me IV antibiotics and sent me home with a script for 10 days of doxicycline. Yuck...It really hurts. Doc said any longer and I would have had to stay for a few days in the hospital. Glad I trusted my instincts. This morning it is now going into my hand and upper arm. Hope those meds kick in soon. Bc--the gift that keeps on giving.
Maggie
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Mags, ugh! Sorry to hear you have celulitis. My grandfather (91) just spent a week in the hospital with it in his legs.
Welcome Dulcie, - Hope your feeling better after your accidental overdose! That certainly sounds very unpleasant.
CS - hope everything is going well with your Taxol, another one down!!!
I'm officially employed ladies!!! Very happy. Got the job I wanted. Actually it was the first interview I had gone on. Phone is just now ringing with another prospective employer wanting to set up a 2nd interview. Let Voicemail pick it up as I have to work on how to tell them I've accepted another position.
Well, off to food store, then exercise. Need to lose a few pounds so I can fit into new "business casual" attire I need to shop for over the weekend.
Hope everyone has a good day.
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Good afternoon all! My name is Michelle and I live in Dallas, TX. I was diagnosed in August of 2011 and have been trying to find any semblence of "normal" ever since. I am glad to see that there is a discussion board for those of us with this sub-type of BC and hope to get to know a lot of you sooner rather than later.
Blessings!
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Congrats Mccrimmon on the job - such great news and to get the job you want.... good news amongst all this crap sometimes.
Mags...hope the meds work soon and you are quickly on the mend. I did chuckle (in a warped way) about your comment - bc the gift that keeps on giving.
Welcome Michelle... do we ever ever find 'normal' after being diagnosed... different type of normal I guess. I am still waiting... but then I think that normal can be boring !
Hi Dulcie...blame the OD on chemo brain... I blame everything on chemo brain.
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I know I mentioned before that I was singing at a cancer benefit. It just dawned on me that I will be singing on my 2 year anniversary. June 3, 2010 was the day the docotor informed me I had cancer. I supplied the person in charge with a list of songs (thanks to those who gave a suggestion) and she picked Wind Beneath My Wings. I want to take this opportunity to thank all of you for all of your words of wisdom and prayers the past 2 years. I am looking forward to celebrating many more anniversaries.....
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Cocker_Spaniel, I didn't think anyone else liked fruitcake! My family gets so much grief for liking it, but we usually make a couple loafs per family around the holidays and have no problem finishing them off. Our recipe is lovely - almost all fruit and nuts with just enough cake to glue it all together. And no citron peel; it's bitter, I think. Just candied pineapple in different colors, maraschino cherries, chopped dates and pecans. The only liquid is a bit of orange juice. Mmm!
Tazzy, I had trouble tasting salt during chemo and it came back slowly afterwards. Made me nuts, because I like salt, but salt just tasted metallic. Someone here (BCO, not necessarily this thread) described that awful metallic taste as "like licking a flagpole sprayed with bug spray" and it made me laugh, so I've always remembered that description. I've never done that, but it sounds like it might be about right.
Welcome, Dulcie! Sorry about the chemo experience. Yuck! Hope you feel better soon so you can get moving forward again.
Ouch, Mags! Hope the meds kick in and you feel better soon.
Congrats, Heather! One job offer is nice, and having a choice between two is fantastic! Glad you got your first choice.
Welcome, Michelle! Glad to have you join our little group. As for "normal", I've come to the conclusion is that the old normal is gone, and there's this new normal now that I'm getting used to. But it's a difficult concept for people to understand who haven't been through it. They keep thinking that everything should just go back to the way it was before. When you tell them it's NEVER going to be just like it was before, they either don't understand or think you're being a drama queen. I tell them my new "normal" isn't necessarily bad, it's just... different.
Ellen, I'm sure you'll do a fantastic job. Will it be emotional for you to be singing on the anniversary of your diagnosis? (It's just me, but I hate the term 'cancerversary'.)
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Chemo does some weird things to our taste buds... I love that description though of licking the flag pole... not that I've ever done that either
As soon as I was of AC my taste buds returned to normal (I think). And the fruit I loved was red delicious apples... went right off bananas euk ! But the apples were the one thing that actually tasted like they should. Guygal... congrats on your 2 year anniversary on June 3. Good luck at the benefit.
Kathyrnn... talking of being old I have a fridge magnet which says "I thought it was great that as I got older I had more patience... turns out I just dont give a sh*t". One of Maxines.
Hope you are all having a good day - Cocker... hope you are doing ok after your treatment today. Beautiful day here today 26 degrees. I have just come in the from garden to have a breather.... sometimes feel like 102 and not 52 ! Oh! well.
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This board has been so busy...I don't know if I'll ever catch up on my reading.
Michelle - Welcome. I know what you mean about finding a semblance of normal. Not sure I've found it yet, but I'm still looking.
Mccrimmon - Congrats on your new job!!! I've been following your move and your job hunt with interest, because I'd like to make a change myself. Change is kind of scary for me, always has been, and seems to be even harder since BC....thanks for providing some inspiration!
Sending good wishes to everyone....
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Heather- Congratulations!! I am so happy for you! How long until your husband can get home?
Mags- So sorry about the cellulitis. I don't have lymphedema, but I developed it in my port catheter. 12 days of IV antibiotics and 10 of oral- what a pain in the a**!!
Annie- I just love you humor and great attitude!!
Welcome to all the new ladies. I am 17 months post final chemo (PFC) and I am beginning to feel somewhat normal again, although it is a new normal where I will always be scared silly of every little ache and pain. I feel like chemo has really aged me (46 now) so I have been getting used to being a bit creaky and slow to get up! Maybe if I has a little of Titan's energy to go out and run!!
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Wow so much going on.
Cngrats HEATHER on your job!!! Wonderful.
Sorry you new ladies have to join but this is a wonderful forum.
Ttian I really appreciate that you started this.
I have been really busy with my artwork and feel it is time for me to take a break from this board but I will be back.
You have seen me through so much and I sincerely appreciate all the support. Everytime I go on I think of Laura Jane and Susie and MJX and feel so sad. My good neighbor has just started hospice today, my cousin's husband has just died of a rare cancer and my cousin I played with every weekend of my childhood has brain cancer and it is all too much for me right now. I thank you all for everything and will return.
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Welcome to the newbies!
Heather - doing the happy dance for you! You must feel like you are really moving forward. So nice to have good news to celebrate.
Mags - Rats!
Annie - hope you get through this one without too much down time. As I have a "Thing" aversion, I'll pass on the fruitcake, I'd really love one big slab of a deep chocolate cake, with mocha icing
Riley - that flower is stunning! Have never seen one like it, thanks for sharing.
Inmate - sending you some good energy!!!
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Tomorrow I go get the orders for my bloodwork - the woman at my PCP office, 2 blocks away can never get a drop. So I drive to the next county where they have some talent behind that needle! Will also bring up my abdominal issues. I hope she just tells me I'm fat - and I never thought I'd say that.
Must run... 12 year old son, just made me an ice cream sundae! Maybe I am fat
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obx...enjoy that sundae...made with alot of love right..no calories there...
Mac...woo hoo on the new job..you go girl....
Haven't run much lately...too hot for me...and I'm not one to really put myself out there..I thought of going yesterday when it was 93 degrees out and my hubby asked me if I had a med alert bracelet to let him know to come and get me when I passed out...decided not to go after all...but tomorrow it is supposed to be cool so I'm anxious to hit the track....I always think of you all when I'm doing this...
Hope everyone has a se free, good week...and welcome to the new ladies...we will get you through this crap...
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Hearty congrats on your new job, Heather!
Paintingmywaythru, sometimes taking a break is just what's needed, and you can count on this wonderful community to be here for you when you're ready to return.
Your Mods
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Hey everyone- so many wonderful things you all are doing today.
I LOVED the flower - am going to look more into that!!! My husband will roll his eyes when I tell him I want to check it out!! We already expanded my flower garden by installing a small pond--- anyone else have one? I could sure use some help getting my plants started!
My CT and MRI all came back as normal- will be rechecked in 6 months - my OC tells me my brain may not be working as well as it use to because of menopause(HYS last summer) No kidding!!!! I guess my lungs have scar tissue but will continue to monitor.
For today I continue in the survivor mode and my family went mini golfing to celebrate my good news.
Congrats on the job,and sorry for the cellulitus(my dad had that fight for almost 3 months-good luck)
Thanks for making me feel welcome!! Take care!!
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I love reading all about your days everyone. I especially love reading the jokes!
I'm scheduled to have my lumpectomy on June 5. I have a question about radiation. Has anyone not had to do radiation after their lumpectomy? My ONC said the only thing he can feel now is where the biopsy was done. I see my surgeon on Thursday for pre-op. I will ask her this same question, but wanted to see if anyone else had experienced this.
Thanks,
Lisa0 -
I love reading all about your days everyone. I especially love reading the jokes!
I am scheduled to have my lumpectomy on June 5. I have a question about radiation. Has anyone not had to do radiation after their lumpectomy? My ONC said the only thing he can feel now is where the biopsy was done. I see my surgeon on Thursday for pre-op. I will ask her this same question, but wanted to see if anyone else had experienced this.
Thanks,
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Hi Girls,
I haven't really taken the time to post or read anything lately. So I was off today and decided to catch up on this thread. I am heartbroken....... I can't believe all these beautiful women are gone . So deeply sad. Can't stop crying... Specially for MBJ - whom I had the pleasure of meeting in person. We had a great afternoon together.
Sorry i know I am 2 months behind ...but I needed to express my feelings. Thaks for understanding. 0 -
Kelly, I want a water lily tub on my patio and am currently investigating my options. When we visited France, we stayed with family we'd never met before
, Mom's father's cousin and his wife, Robert & Pauline, who were both 92, and also at the homes of their 2 grown children, Guy and Françoise. Françoise has waterlilies. They're the hardy kind that hibernate in winter and it doesn't matter if the tub freezes. No aerator, either. I'll post a pic of her lilies. She lives a little north of Paris, so it's not hot like in the south of France. The weather is pretty similar to the Midwest, but without the tornadoes.
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Gooday Ladies
Yay 4th one down only 8 to go with no problems today. The Onco Nurse did say that he wasn't going to tell me but if I did have another reaction the second time around it would have been far worse. Somebody was looking after me then, must have been you gals. So thank you for that.
Dulcie - welcome to the thread. You will be in safe hands here with these wise and wonderful ladies on here. I am metaplastic (not that I know what that means, am too scared to find out) but Triple Neg Spindell Cell, never heard of that either. Where do your family live in New Zealand, I am in Taupo.
OMG - three overdoses of laxatives. As my dad used to say when one of us had a dose of the runs, I bet you s... through the eye of a needle. He was English as well.
Tazzy - my taste is up the wall too. Some things are ok but others yuk. Though I must say on cutting down on salt its not too bad. Gotta be good for me right? along with decaffinated coffee, now that really is the pits.
5° degree below here and perishing cold at 6.30 this morning so I envy your summer. Do you get a cold winter. The mountains here look stunning though with the lake blue and sparkling.
Minxie - So sorry you can't go in the pool but they did say to me no swimming whilst on rads or any hot pool soaking, which is what we do a lot here. I have to wait four weeks after Taxol before I can get the rads so I am going to look on it as a holiday and enjoy. Hope you recover quickly and well.
Mags20487 - Bummer about the cellulitis. Yes instincts are good, just like a mum with a new baby. Do you know if it will clear up completely. Hope it does.
Mccrimmon - yay way to go girl. Excellent news. And the job you wanted. You go and get those posh corporate clothes now and look the part. What job are you doing? Just wonderful.
mmizerak - Welcome to your future home. Nothing but heaps of help and love for you on here.
GuyGirl - Beautiful song Wings Beneath My Wings. Great choice. Hope you have as many anniversaries as well.
Riley702 - I don't like fruit cake but my old fellar does. The rest of my family don't like it either. Your recipe does sound lovely though. I make one especially for him at Christmas and he eats it all by himself over a couple of months. So when its his birthday he gets another all to himself. When I make cakes for the brides though I keep my fingers crossed that they want a fruit cake cause its so much easier to decorate and if they pick chocolate and its summer and hot I have 40 heart attacks that it will melt on the way to the venue.
Tifj - I didn't know you could get cellulitis in your port. What happened? My Onco Nurse does put a phial of Heparin in once chemo finished to try and avoid a blood clot.
Painting - Just gonna miss you girl and your lovely paintings but hope you come back soon.
Karen - I too will pass on the fruit cake but I do like the sound of yours. You will have us all drooling again soon. When I make a chocolate cake I put chocolate port in it and it give it a beautiful moist chocolatty flavour.
When I got my first blood work done it was by someone called dracula. Christ did she hurt and she dug it in four times, so I told her I wasn't coming back to her again. She couldn't understand why. Bitch!! Hope yours goes ok for you and you don't have to wait too long for results. Do you have a wheat bag where you live. You can put it in the microwave for a minute or two then put it on your arm and its brings the veins up a bit more, enough for them to get blood from.
The best time for me to eat icecream is the winter. I hate it when it melts and runs down your hands and arms and the serviette they give you doesn't cover possible. But the Sundae sounds yummy. What wonderful son's you have. Is the big romance still still on?
Titan - well, what can I say. This is totally not on, you being too hot to exercise. Pretty poor excuse that. Do you know you will never win that race if you don't get your arse into gear. Here I am slogging it out and with a blister I might add and you are sitting fanning yourself. So Rattle your Dags (This is what a NZ Farmer will say to his sheep when he wants them to rattle their balls and start running lol) So if we want someone to hurry up we say this. So get out on that track and do your stuff. I expect better from you.
Well ladies, once again its a book! Tomorrow I go to see the Genetics Service and I am getting a little perturbed about it. I really don't want to make the decision for more surgery but I have a feeling I might. My youngest girl is coming with me and the old fellar as it concerns her too. So keep your fingers crossed for me and my beloved girl. Tonight I have thrush ugh, top and bottom. I can fix the top the bottom is harder, so uncomfortable. Just thought I would share my nether regions with you.
I hope the Dexa doesn't keep me up again tonight otherwise I will be typing in the early hours of the morning.
Keep well, keep happy and keep side effect free. Hugs to you all. Annie
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Cocker---you are one funny gal...love the way you express yourself in your posts. thanks for the humor. Sorry that your are uncomfortable right now. And as you know us by now--no region of the body is off limits here as this stuff effects our entire bodies in some way!
Woke this morining and my arm looks so much better...The redness has turned a lighter shade although the pain is still there. Glad the meds seem to be working. Going to be wearing gloves from now on at work especially to try to avoid this in the future. Doc gave me a script for percocet but not taking any pain meds as they just make me was too loopy to function.
Watching my gorgeous nephew today before summer care starts next week at school. Love that boy he is so awesome and makes me happy. He will just have to tag along for my MO appt this morning.
Have a great day ladies and welcome to all the newbies. You will love it here! Ask anything and you will get answers.
Maggie
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Just passing by quickly to say:
Mccrimmon: Congrats on the new job. Now you will really feel settled in.
Monika: Nice to see you back again. I'm sorry you weren't greeted by better news. We all miss MBJ, Suze and LJ - such spirited ladies who helped many, many posters here.
Kelly: Welcome.
Lisa: I have never heard of a lumpectomy without rads, but someone may be along to correct me. There has been a ton of evidence over the past 20 years that rads greatly improves outcomes following Lx. I think most breast surgeons with patients who cannot do rads (because of other serious medical conditions) would recommend Mx.
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